Re: Hello

[Guest guest]

You mentioned we just blow it off as more Fibro when we have symptoms

or pain and I wanted to tell everyone how true and how dangerous that

is.

Last winter as I was walking thru the check out at a store, I bumped

my midsection on the counter and felt a really sharp pain. Since I am

in pain nearly all the time anyway, I just thought it was a Fibro

thing even tho it was in a weird place. I avoided touching the sore

spot so I wouldn't cause myself more pain. A couple of months later I

had emergency surgery for gall bladder. It was a very serious, life

threatening procedure.....a stone had become lodged in a duct, the

duct had split and there was infection all thru my abdomen. I

actually had started feeling less pain and the doc explained it was

because the nerve endings had started to die. Needless to say, after

a week in the hospital and a long recuperation, I no longer blame

everything on the Fibro and will have things checked if I ever have

another " strange " sore spot or painful area.

Louise

[Guest guest]

Wow Louise, thank God everything turned out ok.. I know what you mean about

blaming all the weird pains on the fibro.. I am having alot of " female

problems " and I think it probably would be wise to see a doctor because these

are really bizare and scary symptoms going on.. I always think it is fibro

but you definelty openned my eyes to see that maybe I better get it checked

out.. Thank you so much and again, I am glad that you are ok

Terri

[Guest guest]

Thank you Pam for the information about the ovarian cysts.. I will definetly

have to bring this up to the doctor. I always debate (and hate )making

doctors appointment.. Usually because I am scared to death. And then going

thru the 22 doctors and what feels like a hundred tests to get the official

diagnosis of fibro, this is another reason why I hate going to doctors..

Again thank you for the information.

Terri

[Guest guest]

I am having alot of " female

> problems " and I think it probably would be wise to see a doctor because

these

> are really bizare and scary symptoms going on.. I always think it is fibro

> but you definelty openned my eyes to see that maybe I better get it

checked

> out.. Thank you so much and again, I am glad that you are ok

> Terri

*****************************************

Terri - please go to the doctor on this. When you do, ask to be checked for

a condition known as Polycystic Ovarian Syndrome (PCOS). I am also on a

PCOS list and many of the ladies on that list, along with myself, also have

FMS/CFS. For some reason, it seems to be one of those diseases that tags

along together.

Pam DuBois

Educated People Help Heal Themselves

Visit me at www.my.treeway.com/Singingbird/

[Guest guest]

Carolyn,

Thanks for the kind words. My mother is getting her strength back and I am taking her back to the doctor for a checkup on Friday. Things seem to be getting back to my usual chaos of which I am grateful. Thanks for writing and caring.....it is appreciated.

Debbie G.

hello

hi debbie my name is carolyn im new to the list and wanted to say hi and it sure does sound like youve been real busy i hope and pray your mother is ok and things slow down for you.

Peace in Christ,

carolyn~*~CHAT TIME:~*~MON & THURS Day Eastern 4 PM, Central 3 PM, Mt 2 PM Pacific 1 PM Night Eastern 9 Pm, Central 8 Pm, Mt 7 PM Pacific 6 PM WHERE: /chat/ VIPIf there is a problem on this list notify.Co-Moderator The_List_Owner@...Add or view links about fibro/CFS.http://www.onelist.com/links/ TO unsubscribe.Go to: http://www.onelist.com/ to this list and unsub from it.

[Guest guest]

anytime debbie, we are here to support each other.carolyn

hello

hi debbie my name is carolyn im new to the list and wanted to say hi and it sure does sound like youve been real busy i hope and pray your mother is ok and things slow down for you.

Peace in Christ,

carolyn~*~CHAT TIME:~*~MON & THURS Day Eastern 4 PM, Central 3 PM, Mt 2 PM Pacific 1 PM Night Eastern 9 Pm, Central 8 Pm, Mt 7 PM Pacific 6 PM WHERE: /chat/ VIPIf there is a problem on this list notify.Co-Moderator The_List_Owner@...Add or view links about fibro/CFS.http://www.onelist.com/links/ TO unsubscribe.Go to: http://www.onelist.com/ to this list and unsub from it. ~*~CHAT TIME:~*~MON & THURS Day Eastern 4 PM, Central 3 PM, Mt 2 PM Pacific 1 PM Night Eastern 9 Pm, Central 8 Pm, Mt 7 PM Pacific 6 PM WHERE: /chat/ VIPIf there is a problem on this list notify.Co-Moderator The_List_Owner@...Add or view links about fibro/CFS.http://www.onelist.com/links/ TO unsubscribe.Go to: http://www.onelist.com/ to this list and unsub from it.

[Guest guest]

Hi,

Once you have seen your PCP, nutritionist and psych all the paperwork

goes to Marina at Kaiser SSF (Marina is a Kaiser employee). Sounds

like that's where you are now. I would call your PCP to find out when

the paperwork was sent and then call Marina to verify it was rec'd. I

have had problems the last couple of months with the psych eval. My

PCP never rec'd it and sent what paperwork she had to SSF, after many

calls to the lady who did the eval, my PCP and Marina -- FINALLY,

Marina has rec'd the eval and now my paperwork is being processed

correctly! (hopefully!) and I will (hopefully!) know on Monday if I

have been approved. You need to keep on them. Don't slip through the

cracks. Good Luck!

~

> I have been checking in for about a month now. I have only just

> begun this process. I have seen the dietician and the

psychiatrist.

> My understanding is that after my pcp gets the psychiatrists report

> my referral will then go to a Kaiser committee for approval. I am

> trying to get a better understanding of the process. Where

> does " Marina " come in this process? Is she a Kaiser employee or

with

> Pacific Bariatrics? Just a little confused??

>

> Thanks for all the good information so far -- I am really

> enjoying " I'm still hungry " . Also, a while ago someone was looking

> to get a support group meeting started in the Antioch area - that

> would be great - count me in!

[Guest guest]

Here’s the Kaiser process

below. All referrals are sent to SSF first and then at that time, the

determination is made as to which facility your case will be sent.

Congratulations on your decision for a healthy life and keep us posted on your

progress. This email group will give you lots of support and

information. We are glad you are here!

Once all your evaluations are complete and

back to your PCP, the next step is to have your PCP submit the referral to the Bariatric

Program in SSF. If you can, try and get a copy of all the paperwork that

is submitted with your referral. I explain why in a minute.

Once your referral is submitted by your

PCP, wait about 2 weeks and then call Marina Berman () in

SSF. She is one of the coordinators there and will know if your paperwork

has been received. Call her and confirm the receipt of paperwork.

Sometimes things get dropped through the cracks so you want to make sure you

are not waiting for something to happen and it doesn't! If there is a

problem, you will have the copies of the paperwork you can fax to her.

Although the steps are slightly different

for each facility they pretty much follow a similar path to the one

below. Once the paperwork is received, the steps are like this:

Approval

Orientation

Surgeon Appt.

Pre-op Appt.

Surgery

Plan on about 3 months between each step.

The entire process takes about a year. I know, I know, it's a long time

but believe me it will pass quickly and you can use the time to learn more

about the process, the life after surgery and get lots of support so you are

ready when your time comes.

Hugs,

Pat B.

Hello

I have been checking in for about a month now. I

have only just

begun this process. I have seen the

dietician and the psychiatrist.

My understanding is that after my pcp gets the

psychiatrists report

my referral will then go to a Kaiser committee for

approval. I am

trying to get a better understanding of the

process. Where

does " Marina " come in this

process? Is she a Kaiser employee or with

Pacific Bariatrics? Just a little confused??

Thanks for all the good information so far -- I am

really

enjoying " I'm still hungry " . Also,

a while ago someone was looking

to get a support group meeting started in the

Antioch area - that

would be great - count me in!

[Guest guest]

Hi Patty,

Welcome, Weare glad you are here!! Please feel free to post any

questions you may have and we will try and answer them . Please also

feel free to pass this web sight address on to anyone who you think

it might help. We do ask that they have Kaiser as this is a Kaiser

group .

Again weclome and were glad to have you!

Shell

> Hi all:

>

> My name is Patty and I had my surgery on May 28, 2003. I

have

> lost 75 pounds. This is the best thing that has ever happened to

> me. I am a Kaiser patient but am not very happy with the support

> that I have received from Kaiser. We have started a support group

> where I work. We have thousands of employees and we are

discovering

> there are more and more of us everyday. I heard about your group

> through another Kaiser patient. I look forward to sharing with all

> of you.

[Guest guest]

Hi Patty & welcome to the group! It sounds like you're doing great!!

If I may ask, what area do you live in and where did you have your surgery

through Kaiser?

Hugs,

Jen

Menlo Park, CA

Kaiser/PB - 3/14/03

261/191.5/140

pbilly59 wrote:

Hi all:

My name is Patty and I had my surgery on May 28, 2003. I have

lost 75 pounds. This is the best thing that has ever happened to

me. I am a Kaiser patient but am not very happy with the support

that I have received from Kaiser. We have started a support group

where I work. We have thousands of employees and we are discovering

there are more and more of us everyday. I heard about your group

through another Kaiser patient. I look forward to sharing with all

of you.

[Guest guest]

Welcome to the group J'net! Someone recently posted (I think it was to this

group) that you can press 0 at some point during the voicemail message or

something and get a real person on the phone. Does anyone else remember

exactly how that goes? If no one else posts about it, I'll see if I cannot

find that somewhere for you.

Please feel free to post your questions, concerns, advice, whatever to the

group . . . or just continue to lurk and gather information. You are welcome

either way! :0)

Hugs,

Jen

-72 lbs!!

jnetg60 wrote:

I joined

the group about a month ago but I have not posted anything,

I have just been reading and finding out all kinds of things that

have helped me and has made me excited for when it will be my turn.

I went down to San Diego on Aug 15th for my consult but I still have

not gotten my date. I have been trying to call them but I have

gotten no call back, which has made me very frustrated. I'm not

sure how to call and actually get to talk to a person.

The process has been so lone for me (at least it feels that way) and

the waiting now has seemed to be the hardest part.

I've been very thankful that I hav been able to learn and read all

of your postings, Thank you.

J'net

[Guest guest]

Thanks for all the information. I have tried calling PB again today

and I did the zero thing. I got a person, I was happy to actually

get a real person, it was not Cheryl and she said that Myla was not

at her desk to leave a voice mail, I told her I had left several

but left one more. If I don't hear today I will call again tomorrow

and ask for Cheryl. Yikes, they have always been so good at calling

me back up to this point. I would feel so much better just knowing

my date. This is a great group and I can tell you all care for each

other.

J'net

>

> > I joined the group about a month ago but I have not posted

anything,

> > I have just been reading and finding out all kinds of things that

> > have helped me and has made me excited for when it will be my

turn.

> > I went down to San Diego on Aug 15th for my consult but I still

have

> > not gotten my date. I have been trying to call them but I have

> > gotten no call back, which has made me very frustrated. I'm not

> > sure how to call and actually get to talk to a person.

> >

> > The process has been so lone for me (at least it feels that way)

and

> > the waiting now has seemed to be the hardest part.

> >

> > I've been very thankful that I hav been able to learn and read

all

> > of your postings, Thank you.

> >

> > J'net

> >

> >

> >