Guest guest Posted May 14, 2000 Report Share Posted May 14, 2000 here are some more sites for free or partly free medications. i got these from another list i am on. I thought i would share with you all. Seeing there was a post about this AARP State Pharmacy Assistance Programs http://research.aarp.org/health/9905_pharm_1.html Bayer Indigent Patient Program http://www.phrma.org/patients/pa2.html#bayer Drug Patient Assistance Programs 2000 Directory of Prescription http://www.phrma.org/patients/ Free and Low Cost Prescription Drugs http://www.institute-dc.org/prescrip.htm prescription medications for free http://seniorliving.about.com/people/seniorliving/library/weekly/aa030300a.h tm Free meds and more http://www.needymeds.com/IndexText.html Free Prescription Medicine is Available http://ims1.ims-1.com/~freemed/ 1999-2000 Drug Patient Assistance Programs http://www.phrma.org/patients/index.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2000 Report Share Posted October 3, 2000 Bill and Charlotte, I totally agree with the exercise thing!!!! The doctor in Houston told my dad there was no need to exercise other that every day living. No one in our family agreed with this, but since my dad didn't want to exercise and the doc said OK, he didn't. How long has your wife had MSA, as far as you know? What " problems " does she have? I'm sure it's listed in the archives, but I'm only on 170 out of 45?? of them. Is she similar to my dad in any way? I have got to get my mother a computer. She does not have access to any information. She did call someone in Austin the other day. Is that you? or is that person out there? Her name is Virginia Willmann. Thanks, _________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com. Share information about yourself, create your own public profile at http://profiles.msn.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2000 Report Share Posted October 3, 2000 Bill and Charlotte, I totally agree with the exercise thing!!!! The doctor in Houston told my dad there was no need to exercise other that every day living. No one in our family agreed with this, but since my dad didn't want to exercise and the doc said OK, he didn't. How long has your wife had MSA, as far as you know? What " problems " does she have? I'm sure it's listed in the archives, but I'm only on 170 out of 45?? of them. Is she similar to my dad in any way? I have got to get my mother a computer. She does not have access to any information. She did call someone in Austin the other day. Is that you? or is that person out there? Her name is Virginia Willmann. Thanks, _________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com. Share information about yourself, create your own public profile at http://profiles.msn.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2000 Report Share Posted October 3, 2000 , Another medication to help with nerve pain is neurontin. > My mom is convinced that my dad is one of the few > people who could have gotten MSA from exposure > to toxins such as pesticides. Not sure he's the only one ... reviewing materials and talking with my mother reminded me that fogging with pesticides was once very common. And LOTS of kids once ran along behind those trucks. I'm sticking my hand up on that one. No way to know if there's a link. But I doubt he's the only one. > By the way, are you a doctor or something? > I was just curious how you knew so much > about the meds. You'll discover that Bill is one very helpful person! He's unfortunately had the chance to learn a great deal as he's helped his wife (who has MSA). He also tries to help the rest of us, as we deal with this. , hope things improve for your father. I can only imagine how hard it must be. Best wishes & prayers. Regards, =jbf= B. Fisher Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2000 Report Share Posted October 3, 2000 , Another medication to help with nerve pain is neurontin. > My mom is convinced that my dad is one of the few > people who could have gotten MSA from exposure > to toxins such as pesticides. Not sure he's the only one ... reviewing materials and talking with my mother reminded me that fogging with pesticides was once very common. And LOTS of kids once ran along behind those trucks. I'm sticking my hand up on that one. No way to know if there's a link. But I doubt he's the only one. > By the way, are you a doctor or something? > I was just curious how you knew so much > about the meds. You'll discover that Bill is one very helpful person! He's unfortunately had the chance to learn a great deal as he's helped his wife (who has MSA). He also tries to help the rest of us, as we deal with this. , hope things improve for your father. I can only imagine how hard it must be. Best wishes & prayers. Regards, =jbf= B. Fisher Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2000 Report Share Posted October 3, 2000 , NO, I.m not a doctor - actually I'm a manufacturing engineer (retired). I have a good assortment of websites to help me with meds and have learned to use them well. Engineers are taught to use all the resources available to help solve problems. I have ten years of experience in trying to solve my wife's problems. We have only been successful in keeping her moving as well as possible and of course keeping some quality of life. A good website for looking at meds is: http://www.intelihealth.com/IH/ihtIH?t=8124 & p=~br,IHW|~st,8124|~r,WSIHW000|~b,*| I am sorry that there was no doctor to tell us in 1990 that exercise would help keep range of motion and speech. The doctors at that time said it would not help the MSA, but we now know that it does help keep movement. The doctor we now use does say (and did as early as the late 80's) that exercise helps the overall condition of the patient and to maintain movement as long as possible. Anytime I suggest anything - I am only telling you to check it with your doctor. Take care, Bill and Charlotte =========================================================== jennifer worth wrote: > Bill and Charlotte, > > Thanks for the info on the meds. My dad does not have a PCP right now. He > does actually have a doctor's appt on Oct 19th. I told my mom all the stuff > about the meds you mentioned. She will look into it. The nurse that comes by > has the list of meds he takes and answers most of the questions my mom has. > > The pain med is Baclofen. It seems to help some, but not completely. > > He is not on HMO, only Medicare and gets SS disability. My mom is convinced > that my dad is one of the few people who could have gotten MSA from exposure > to toxins such as pesticides. After talking to her, the impotence started in > 1990, three years before diagnoses. The catheter started in 1996. > > By the way, are you a doctor or something? I was just curious how you knew > so much about the meds. > > Thanks, > > _________________________________________________________________________ > Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com. > > Share information about yourself, create your own public profile at > http://profiles.msn.com. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2000 Report Share Posted October 3, 2000 , NO, I.m not a doctor - actually I'm a manufacturing engineer (retired). I have a good assortment of websites to help me with meds and have learned to use them well. Engineers are taught to use all the resources available to help solve problems. I have ten years of experience in trying to solve my wife's problems. We have only been successful in keeping her moving as well as possible and of course keeping some quality of life. A good website for looking at meds is: http://www.intelihealth.com/IH/ihtIH?t=8124 & p=~br,IHW|~st,8124|~r,WSIHW000|~b,*| I am sorry that there was no doctor to tell us in 1990 that exercise would help keep range of motion and speech. The doctors at that time said it would not help the MSA, but we now know that it does help keep movement. The doctor we now use does say (and did as early as the late 80's) that exercise helps the overall condition of the patient and to maintain movement as long as possible. Anytime I suggest anything - I am only telling you to check it with your doctor. Take care, Bill and Charlotte =========================================================== jennifer worth wrote: > Bill and Charlotte, > > Thanks for the info on the meds. My dad does not have a PCP right now. He > does actually have a doctor's appt on Oct 19th. I told my mom all the stuff > about the meds you mentioned. She will look into it. The nurse that comes by > has the list of meds he takes and answers most of the questions my mom has. > > The pain med is Baclofen. It seems to help some, but not completely. > > He is not on HMO, only Medicare and gets SS disability. My mom is convinced > that my dad is one of the few people who could have gotten MSA from exposure > to toxins such as pesticides. After talking to her, the impotence started in > 1990, three years before diagnoses. The catheter started in 1996. > > By the way, are you a doctor or something? I was just curious how you knew > so much about the meds. > > Thanks, > > _________________________________________________________________________ > Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com. > > Share information about yourself, create your own public profile at > http://profiles.msn.com. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2000 Report Share Posted October 3, 2000 , I live in Herndon, VA about 20 miles west of Washington, DC. If anyone talked to someone in Austin, TX it was probably Don Summers. He is the head of the Shy-Drager and MSA National Support Group. Charlotte had tiredness and some clumsiness as early as 1987-88. She was diagnosed as Parkinson's in 1990 and MSA in 1995. Presently she must either be in bed or a wheelchair. She has problems with swallowing and gets most of her liquids and medicines through a PEG (feeding tube). She does eat mechanically soft food reasonably well and I supplement what she does not get by various supplements at night through the tube. We learned the hard way about dehydration and infection in 1998, when she got an infection and it almost killed her. She could not move, speak or eat at that time. She spent 18 days in the hospital and another 28 days in a rehab nursing facility. With concentrated therapy, she got back most of her movement and speech, but is due for more speech therapy. Hope this helps, Bill and Charlotte ------------------------------------------------------------------------------ jennifer worth wrote: > Bill and Charlotte, > > I totally agree with the exercise thing!!!! The doctor in Houston told my > dad there was no need to exercise other that every day living. No one in our > family agreed with this, but since my dad didn't want to exercise and the > doc said OK, he didn't. How long has your wife had MSA, as far as you know? > What " problems " does she have? I'm sure it's listed in the archives, but I'm > only on 170 out of 45?? of them. Is she similar to my dad in any way? > > I have got to get my mother a computer. She does not have access to any > information. She did call someone in Austin the other day. Is that you? or > is that person out there? Her name is Virginia Willmann. > > Thanks, > > _________________________________________________________________________ > Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com. > > Share information about yourself, create your own public profile at > http://profiles.msn.com. > > Quote Link to comment Share on other sites More sharing options...
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