Guest guest Posted November 26, 2005 Report Share Posted November 26, 2005 Thanks for the warm welcome. It is nice to find a group that won't think I am crazy because sometimes even I think I'm losing it! is > > Hi is, > Welcome.. So nice to have you join our group. I have found great support, wisdom, and humor..... I love this group, they understand me and don't think I'm crazy. > > Take care, Norene > > > > --------------------------------- > Yahoo! Music Unlimited - Access over 1 million songs. Try it free. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2005 Report Share Posted December 12, 2005 Hi Welcome to the group My name is I am 46, married with one married daughter and two grandchildren (boy and girl) and one on the way in Feb. I was diagnosed at 29 yrs old and it is still a daily battle. If you are looking for support, to learn new things and an understanding ear ....You are at the right place . The Ladies and Gents in this group are a fine group that you will soon learn to admire...I have. Welcome from a Canadian Fibro Friend wrote: Hi Yall:I am a new member. My doctor is in the process of diagnosing me. He's been running one blood test after another and everything is coming back normal. I have all the symptoms of fibro. Some days I can barely move and other days my mind is totally somewhere else. Today I was making Spicy hot wings for my husband and totally forgot I had them in the oven. Thank goodness I remembered just before they were charcoal broiled. LOL Anyways, it seems like the doc is trying to rule everything else out before he tells me it's fibro. But, eventually, he will have to tell me that's what it is or send me to a specialist because everything is coming back normal.I am 46 years old, mom to 2 boys and step-mom to 4 boys. Our first grandchild will be 3 months old on Christmas. She is so precious. We have 2 of the boys married with 4 to go. They range in age from 27 - 19.I moved here to Texas in 2002 after meeting my husband online in January 2001. Sure is a big change moving from the midwest (Iowa) to the south. The people, climate and way of life is so different. I love it here except for the hot summers. I can't wait to get to know all yall better. Thank yall for letting me be part of this group.Hugs,1. While it is wonderful to share our experiences with everyone on the list as to what treatments do and don't work for us, pls always check with your dr. Some treatments are dangerous when given along with other meds as well as to certain health conditions or just dangerous in general.2. If you are in a difficult situation (doesn't matter what it is) pls don't be afraid to ask for help. It is the first step to trying to make that situation better.3. To unsubscribe the e-mail is: Fibromyalgia_Support_Group-unsubscribe 4. Also, it is not uncommon for more than one member to be feeling bad at the same time when it comes to flares and b/c of that potentially take something another member says the wrong way. And that includes the things that one member may find funny (even if it's laughing at fibro itself) even though we who deal with illness whether one such as fibro or multiple illnesses try to keep a sense of humor.5. Pls let's be gentle with each other, and if you are having a bad day pls let us know so that we can do our best to offer our support.Have a nice day everyone. Find your next car at Yahoo! Canada Autos Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2005 Report Share Posted December 12, 2005 Thank you so much . It was such a blessing to receive your warm welcome. I'm totally lost at this and don't really know what to expect, so the support is so welcome. Hugs, Re: New Member Hi Welcome to the group My name is I am 46, married with one married daughter and two grandchildren (boy and girl) and one on the way in Feb. I was diagnosed at 29 yrs old and it is still a daily battle. If you are looking for support, to learn new things and an understanding ear ....You are at the right place . The Ladies and Gents in this group are a fine group that you will soon learn to admire...I have. Welcome from a Canadian Fibro Friend wrote: Hi Yall:I am a new member. My doctor is in the process of diagnosing me. He's been running one blood test after another and everything is coming back normal. I have all the symptoms of fibro. Some days I can barely move and other days my mind is totally somewhere else. Today I was making Spicy hot wings for my husband and totally forgot I had them in the oven. Thank goodness I remembered just before they were charcoal broiled. LOL Anyways, it seems like the doc is trying to rule everything else out before he tells me it's fibro. But, eventually, he will have to tell me that's what it is or send me to a specialist because everything is coming back normal.I am 46 years old, mom to 2 boys and step-mom to 4 boys. Our first grandchild will be 3 months old on Christmas. She is so precious. We have 2 of the boys married with 4 to go. They range in age from 27 - 19.I moved here to Texas in 2002 after meeting my husband online in January 2001. Sure is a big change moving from the midwest (Iowa) to the south. The people, climate and way of life is so different. I love it here except for the hot summers. I can't wait to get to know all yall better. Thank yall for letting me be part of this group.Hugs,1. While it is wonderful to share our experiences with everyone on the list as to what treatments do and don't work for us, pls always check with your dr. Some treatments are dangerous when given along with other meds as well as to certain health conditions or just dangerous in general.2. If you are in a difficult situation (doesn't matter what it is) pls don't be afraid to ask for help. It is the first step to trying to make that situation better.3. To unsubscribe the e-mail is: Fibromyalgia_Support_Group-unsubscribe 4. Also, it is not uncommon for more than one member to be feeling bad at the same time when it comes to flares and b/c of that potentially take something another member says the wrong way. And that includes the things that one member may find funny (even if it's laughing at fibro itself) even though we who deal with illness whether one such as fibro or multiple illnesses try to keep a sense of humor.5. Pls let's be gentle with each other, and if you are having a bad day pls let us know so that we can do our best to offer our support.Have a nice day everyone. Find your next car at Yahoo! Canada Autos Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2005 Report Share Posted December 12, 2005 Hi and welcome. My name is , I have had fibromyalgia all my life but was officially diagnosed in 2001. I am a single mom with two kids, a 15 year old daughter who lives with me and a 21 year old son at college. I work full time for right now even though it is getting harder and harder to manage that. I hope you enjoy getting to know everyone here. N. > > Hi Yall: > > I am a new member. My doctor is in the process of diagnosing me. > He's been running one blood test after another and everything is > coming back normal. I have all the symptoms of fibro. Some days I > can barely move and other days my mind is totally somewhere else. > Today I was making Spicy hot wings for my husband and totally forgot > I had them in the oven. Thank goodness I remembered just before > they were charcoal broiled. LOL Anyways, it seems like the doc is > trying to rule everything else out before he tells me it's fibro. > But, eventually, he will have to tell me that's what it is or send > me to a specialist because everything is coming back normal. > > I am 46 years old, mom to 2 boys and step-mom to 4 boys. Our first > grandchild will be 3 months old on Christmas. She is so precious. > We have 2 of the boys married with 4 to go. They range in age from > 27 - 19. > > I moved here to Texas in 2002 after meeting my husband online in > January 2001. Sure is a big change moving from the midwest (Iowa) > to the south. The people, climate and way of life is so different. > I love it here except for the hot summers. > > I can't wait to get to know all yall better. Thank yall for letting > me be part of this group. > > Hugs, > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2005 Report Share Posted December 12, 2005 Hi : It's wonderful to meet you. Thank you so much for the warm welcome. I know raising kids that age can be difficult and trying to work. I applaud you for that. Hugs, Re: New Member Hi and welcome. My name is , I have had fibromyalgia all mylife but was officially diagnosed in 2001. I am a single mom with twokids, a 15 year old daughter who lives with me and a 21 year old sonat college. I work full time for right now even though it is gettingharder and harder to manage that. I hope you enjoy getting to know everyone here. N.>> Hi Yall:> > I am a new member. My doctor is in the process of diagnosing me. > He's been running one blood test after another and everything is > coming back normal. I have all the symptoms of fibro. Some days I > can barely move and other days my mind is totally somewhere else. > Today I was making Spicy hot wings for my husband and totally forgot > I had them in the oven. Thank goodness I remembered just before > they were charcoal broiled. LOL Anyways, it seems like the doc is > trying to rule everything else out before he tells me it's fibro. > But, eventually, he will have to tell me that's what it is or send > me to a specialist because everything is coming back normal.> > I am 46 years old, mom to 2 boys and step-mom to 4 boys. Our first > grandchild will be 3 months old on Christmas. She is so precious. > We have 2 of the boys married with 4 to go. They range in age from > 27 - 19.> > I moved here to Texas in 2002 after meeting my husband online in > January 2001. Sure is a big change moving from the midwest (Iowa) > to the south. The people, climate and way of life is so different. > I love it here except for the hot summers. > > I can't wait to get to know all yall better. Thank yall for letting > me be part of this group.> > Hugs,> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2005 Report Share Posted December 12, 2005 Hi , Welcome to the group! I haven't been posting much, between 'puter problems & being sick, but am hopefully getting better. You may want to ask your doc if he'll recommend a pain clinic. I went for my second visit today, armed with some printouts of articles I thought the doc should see, including the one about morphine & Neurontin taken together provide greater pain relief than either taken separately. He had taken me off of morphine a few weeks ago, but on the basis of that article, he put me back on, albeit a lower dose. Instead of MS-Contin, I'm now on something called Kadian. It's a once-a-day pill, & he said the dosage I'm on (20 mg/day) should work nicely with the Neurontin (generic name is Gabapentin), of which I'm taking 4200 mg/day. He said I'm on a fairly low dose of Neurontin, but with the Kadian, it should work well. Morphine actually increases the blood plasma level by 40%, instead of letting it be excreted. The problem with high doses of Neurontin is that if you take too much, your body doesn't use it and it's excreted unused. I had to get x-rays before the visit, & they (the hospital) put the films on a CD. After the visit the doc gave me the cd to bring home! I told him I was going to use the pics as screen backdrops. He thinks I'm crazy, lol! Our visit today went much better than the first one, and I feel much better about seeing him. Pain clinics will often have you sign a contract...you can only get your pain meds from them, & even use only one drugstore to get them filled. But, each one is different, so if you decide to go to one, you may not get the same set of rules. But do give it a thought. It's worth a try, and if you've had problems with meds, this is their specialty. Good luck! cyn At 02:43 PM 12/12/2005, wrote: >I can't wait to get to know all yall better. Thank yall for letting >me be part of this group. clmerritt@... FSG co-moderator Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2005 Report Share Posted December 13, 2005 Hi ! You're very welcome! I have been to so many different doctors lately, and they've all pretty much washed their hands of me! They all said to go to a pain clinic, so I did it. I wasn't happy with it at first, but now things seem to be going well. The x-rays were of my lumbar spine, hips & knees, because that's where most of my pain is. My rheumy took x-rays of my hands, because he suspected osteoarthritis. It turned out that most of my fingers are showing signs of being in the early stages of OA. The pain doc just wanted to make sure I didn't have any lesions or problems with the bones (at the joints especially). My x-rays showed that my spine, knees & hips are all free of problems. The doc said the ball & socket joints in my hips look like those of someone much younger (I'm 53), as did my knees & spine. He said there's no compression, good spaces between the vertebrae, & no spurs or wear & tear on the cartilage. My rheumy wanted to put me on Cymbalta, but my pdoc is leery of trying anything new, because of the NMS. I've had a couple of recurrences, and now none of my docs will try me on anything new unless the pdoc approves it first. There is an anti-Parkinsons drug that they've found can help people with fibro. It reduces pain & feelings of inflammation. I begged my rheumy to try me on it, but he refused because of the NMS. It's called Mirapex. Here's a link to the study - http://www.webmd.com/content/article/109/109243?action=related_link. I also copied the article & posted it to the list. I begged and begged, and even offered to sign a release form, but he said I'd have to get the ok from my pdoc, who I won't be seeing until the end of the month. But this sounds so hopeful! Hugs, cyn At 11:49 AM 12/13/2005, Hunt wrote: Hi Cyn: Thank you for your warm welcome. It was such a blessing to hear from you. Thank you for all the wonderful advice you have given to me. It's really nice to hear from someone that understands. May I ask what the doc took x-rays for? My doctor has only been doing blood tests up to this point. He put me on Cymbalta, which has made me so tired all I have done is sleep or lay on the couch with no energy to do anything. Hugs, clmerritt@... FSG co-moderator Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2009 Report Share Posted May 9, 2009 ---------- Forwarded message ---------- Date: Sat, May 9, 2009 at 6:01 PM Subject: Re: Yahoo! Groups: Welcome to mscured. Visit today! To: mscured Moderator <mscured-owner > Here is my intro, I am a 35 year old mother of one who started having MS like symptoms 2 years ago. Progress has been very slow and seems stress related. No one can tell by looking at me and I don't have an official diagnosis. I have just been told that I may have slow peripheral neural degeneration even though I have experienced a numb face at times. The symptoms started about 4 months after I received a dental implant which I am very suspicious about. The experience has made me feel scared and very alone, because I know my husband does not want to think that there is a possibility I may have MS. I have read about many reactions to amalgam fillings and root canals and a link to dental implants. I want to hear the opinions and stories of others, and find out there are other people who have had a similar reaction to an implant. I am very open to alterative/ homeopathic treatments. My daughter is unvaccinated and all I use on her and myself are natural medicines unless I think it is really serious. I believe people acquire MS for a variety of reasons and I want to narrow down what is causing disease like symptoms in my self, so I can determine the most logical means and methods for a cure. Gillian Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2009 Report Share Posted May 26, 2009 Mike, I am author of a theory about haptens, which trigger MS: http://www.haptens.republika.pl/haptenology_en.html There is about predicting and preventing MS. Please feel free to write me. Jerzy Grzeszczuk from Poland jerzygrzeszczuk@... > > hello. I'm a M/33. I was diagnosed with RRMS back in Oct '06. It was a time that I will never forget... Well thats about it in a nut shell. Please contact me with any suggestions or comments/questions... > Mike Quote Link to comment Share on other sites More sharing options...
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