Guest guest Posted January 6, 2006 Report Share Posted January 6, 2006 Hi le Welcome, Welcome to the group!!! Well I know you are having a hard time with the diagnosis but at least now your monster has a name. Now you can become active and have more control on managing this painful disorder. Start out slowly so as not to get overwhelmed and do some research on it. You'll feel better just knowing its not all in your head. This group will also be a great place to ask questions and listen to others and how they handle things. We are all different but the same. Weird huh? Anyway I have alot of leg , hip and knee pain that affects my walking at times. Hang in there le we are here when you need someone and there are alot of us. Chin up and gentle hugs A Canadian Fibro Friend le Souther wrote: Hi all, my name is le I am new to the group. I was diagnosed with fibro about 2 weeks ago. I am having a hard time with the diagnosis which I'm sure everyone probably does. I just wanted some concrete evidence of what is going on with me. I have real bad hand and feet pain, sholder blade pain and hip and knee pain. Does anyone else have feet pain where they can barely walk. I really thought I had RA but all my labs are normal and the Dr said it would have presented itself by know (I've been going to the Rhematologist for 2 1/2 years). I guess it doesn't really matter what I have, right? I just have a lot of pain and I can not get comfortable enough to sleep. Anyway, just wanted to introduce myself and let you all know that I feel for you all! Am so glad I have found this site! Thanks for listening! le Find your next car at Yahoo! Canada Autos Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2009 Report Share Posted April 28, 2009 Hi, New to the board, new to MS. Tired of thinking about this already. I don't even know where to begin... First how come my symptoms are all over the place? Sometimes it's numbness, sometimes I fall, sometimes it's speaking, thinking, seizures. I feel like Goldie Hawn in Death Becomes Her at then end of the movie where she was falling apart, and held together with glue and spray paint. I'm angry, afraid, and confused. The doctors seem to know next to nothing. I can't get two matching answers. I generally don't subscribe to theories about radical diets, environmental stuff etc. My feeling has always been sometimes people get sick. My approach is usually moderate. I can get on board with cutting out some artificial stuff, eating more fresh food, drinking water, common sense. I do want to improve my immune system, and do what I can for my own health, but I am not going to switch out the pantry every other week - is there any real reason to do anything other than a basic healthy diet? Can you have MS without lesions, do they improve? I didn't even realize there were different mri's. What the heck Is there anything " normal " about these relapses? How much time between relapses? How do I know when to call the doctor? Sometimes I feel terrible but if there isn't anything to do about it then why bother? Do you keep a journal of symptoms? Am I just imagining that some days are fine and other days are really bad? What the heck? How can I feel fine in the morning and barely able to walk at night? Taking medication scares the bejeebers out of me. What if the doctors are wrong? I don't want shots or experimental treatments. So then what? So sorry this is long, rambling and frustrated. I am very grateful for this outlet. Thanks & blessings, Robin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2009 Report Share Posted April 28, 2009 Robin MS is a difficult and frustrating illness hope you find some answers that make the MS trip easier. Bruce Subject: I'm new To: mscured Received: Wednesday, 29 April, 2009, 12:14 PM Hi, New to the board, new to MS. Tired of thinking about this already. I don't even know where to begin... First how come my symptoms are all over the place? Sometimes it's numbness, sometimes I fall, sometimes it's speaking, thinking, seizures. I feel like Goldie Hawn in Death Becomes Her at then end of the movie where she was falling apart, and held together with glue and spray paint. I'm angry, afraid, and confused. The doctors seem to know next to nothing. I can't get two matching answers. I generally don't subscribe to theories about radical diets, environmental stuff etc. My feeling has always been sometimes people get sick. My approach is usually moderate. I can get on board with cutting out some artificial stuff, eating more fresh food, drinking water, common sense. I do want to improve my immune system, and do what I can for my own health, but I am not going to switch out the pantry every other week - is there any real reason to do anything other than a basic healthy diet? Can you have MS without lesions, do they improve? I didn't even realize there were different mri's. What the heck Is there anything " normal " about these relapses? How much time between relapses? How do I know when to call the doctor? Sometimes I feel terrible but if there isn't anything to do about it then why bother? Do you keep a journal of symptoms? Am I just imagining that some days are fine and other days are really bad? What the heck? How can I feel fine in the morning and barely able to walk at night? Taking medication scares the bejeebers out of me. What if the doctors are wrong? I don't want shots or experimental treatments. So then what? So sorry this is long, rambling and frustrated. I am very grateful for this outlet. Thanks & blessings, Robin The new Internet Explorer 8 optimised for Yahoo!7: Faster, Safer, Easier. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2009 Report Share Posted April 28, 2009 Robin MS is a difficult and frustrating illness hope you find some answers that make the MS trip easier. Bruce Subject: I'm new To: mscured Received: Wednesday, 29 April, 2009, 12:14 PM Hi, New to the board, new to MS. Tired of thinking about this already. I don't even know where to begin... First how come my symptoms are all over the place? Sometimes it's numbness, sometimes I fall, sometimes it's speaking, thinking, seizures. I feel like Goldie Hawn in Death Becomes Her at then end of the movie where she was falling apart, and held together with glue and spray paint. I'm angry, afraid, and confused. The doctors seem to know next to nothing. I can't get two matching answers. I generally don't subscribe to theories about radical diets, environmental stuff etc. My feeling has always been sometimes people get sick. My approach is usually moderate. I can get on board with cutting out some artificial stuff, eating more fresh food, drinking water, common sense. I do want to improve my immune system, and do what I can for my own health, but I am not going to switch out the pantry every other week - is there any real reason to do anything other than a basic healthy diet? Can you have MS without lesions, do they improve? I didn't even realize there were different mri's. What the heck Is there anything " normal " about these relapses? How much time between relapses? How do I know when to call the doctor? Sometimes I feel terrible but if there isn't anything to do about it then why bother? Do you keep a journal of symptoms? Am I just imagining that some days are fine and other days are really bad? What the heck? How can I feel fine in the morning and barely able to walk at night? Taking medication scares the bejeebers out of me. What if the doctors are wrong? I don't want shots or experimental treatments. So then what? So sorry this is long, rambling and frustrated. I am very grateful for this outlet. Thanks & blessings, Robin The new Internet Explorer 8 optimised for Yahoo!7: Faster, Safer, Easier. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2009 Report Share Posted April 29, 2009 Hi Robin, Welcome to the group! Here is a website you may find helpful in treating your MS: http://tinyurl.com/advice-to-msers With best wishes, Dudley Delany http://profiles.yahoo.com/dudley_delany Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2009 Report Share Posted April 29, 2009 Robin, I'm the mother of a daughter who has MS,,,,,,,,,,there are many up's and down's when it comes to MS. As hard as it may seem to be ,,remain positive ,, this is a good site with alot of very good information and caring people. I wish you all the best on your journey. If you need a shoulder ,,I'm just a e mail away,,feel free to e mail me directly ... blessings \ Sharon * Live ,,laugh ,, & love ,, From: wwandsprmn <wwandsprmnyahoo (DOT) com> Subject: I'm new To: mscured@yahoogroups .com Received: Wednesday, 29 April, 2009, 12:14 PM Hi, New to the board, new to MS. Tired of thinking about this already. I don't even know where to begin... First how come my symptoms are all over the place? Sometimes it's numbness, sometimes I fall, sometimes it's speaking, thinking, seizures. I feel like Goldie Hawn in Death Becomes Her at then end of the movie where she was falling apart, and held together with glue and spray paint. I'm angry, afraid, and confused. The doctors seem to know next to nothing. I can't get two matching answers. I generally don't subscribe to theories about radical diets, environmental stuff etc. My feeling has always been sometimes people get sick. My approach is usually moderate. I can get on board with cutting out some artificial stuff, eating more fresh food, drinking water, common sense. I do want to improve my immune system, and do what I can for my own health, but I am not going to switch out the pantry every other week - is there any real reason to do anything other than a basic healthy diet? Can you have MS without lesions, do they improve? I didn't even realize there were different mri's. What the heck Is there anything " normal " about these relapses? How much time between relapses? How do I know when to call the doctor? Sometimes I feel terrible but if there isn't anything to do about it then why bother? Do you keep a journal of symptoms? Am I just imagining that some days are fine and other days are really bad? What the heck? How can I feel fine in the morning and barely able to walk at night? Taking medication scares the bejeebers out of me. What if the doctors are wrong? I don't want shots or experimental treatments. So then what? So sorry this is long, rambling and frustrated. I am very grateful for this outlet. Thanks & blessings, Robin The new Internet Explorer 8 optimised for Yahoo!7: Faster, Safer, Easier. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2009 Report Share Posted April 29, 2009 Robin, I'm the mother of a daughter who has MS,,,,,,,,,,there are many up's and down's when it comes to MS. As hard as it may seem to be ,,remain positive ,, this is a good site with alot of very good information and caring people. I wish you all the best on your journey. If you need a shoulder ,,I'm just a e mail away,,feel free to e mail me directly ... blessings \ Sharon * Live ,,laugh ,, & love ,, From: wwandsprmn <wwandsprmnyahoo (DOT) com> Subject: I'm new To: mscured@yahoogroups .com Received: Wednesday, 29 April, 2009, 12:14 PM Hi, New to the board, new to MS. Tired of thinking about this already. I don't even know where to begin... First how come my symptoms are all over the place? Sometimes it's numbness, sometimes I fall, sometimes it's speaking, thinking, seizures. I feel like Goldie Hawn in Death Becomes Her at then end of the movie where she was falling apart, and held together with glue and spray paint. I'm angry, afraid, and confused. The doctors seem to know next to nothing. I can't get two matching answers. I generally don't subscribe to theories about radical diets, environmental stuff etc. My feeling has always been sometimes people get sick. My approach is usually moderate. I can get on board with cutting out some artificial stuff, eating more fresh food, drinking water, common sense. I do want to improve my immune system, and do what I can for my own health, but I am not going to switch out the pantry every other week - is there any real reason to do anything other than a basic healthy diet? Can you have MS without lesions, do they improve? I didn't even realize there were different mri's. What the heck Is there anything " normal " about these relapses? How much time between relapses? How do I know when to call the doctor? Sometimes I feel terrible but if there isn't anything to do about it then why bother? Do you keep a journal of symptoms? Am I just imagining that some days are fine and other days are really bad? What the heck? How can I feel fine in the morning and barely able to walk at night? Taking medication scares the bejeebers out of me. What if the doctors are wrong? I don't want shots or experimental treatments. So then what? So sorry this is long, rambling and frustrated. I am very grateful for this outlet. Thanks & blessings, Robin The new Internet Explorer 8 optimised for Yahoo!7: Faster, Safer, Easier. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2009 Report Share Posted April 29, 2009 Robin, I'm the mother of a daughter who has MS,,,,,,,,,,there are many up's and down's when it comes to MS. As hard as it may seem to be ,,remain positive ,, this is a good site with alot of very good information and caring people. I wish you all the best on your journey. If you need a shoulder ,,I'm just a e mail away,,feel free to e mail me directly ... blessings \ Sharon * Live ,,laugh ,, & love ,, From: wwandsprmn <wwandsprmnyahoo (DOT) com> Subject: I'm new To: mscured@yahoogroups .com Received: Wednesday, 29 April, 2009, 12:14 PM Hi, New to the board, new to MS. Tired of thinking about this already. I don't even know where to begin... First how come my symptoms are all over the place? Sometimes it's numbness, sometimes I fall, sometimes it's speaking, thinking, seizures. I feel like Goldie Hawn in Death Becomes Her at then end of the movie where she was falling apart, and held together with glue and spray paint. I'm angry, afraid, and confused. The doctors seem to know next to nothing. I can't get two matching answers. I generally don't subscribe to theories about radical diets, environmental stuff etc. My feeling has always been sometimes people get sick. My approach is usually moderate. I can get on board with cutting out some artificial stuff, eating more fresh food, drinking water, common sense. I do want to improve my immune system, and do what I can for my own health, but I am not going to switch out the pantry every other week - is there any real reason to do anything other than a basic healthy diet? Can you have MS without lesions, do they improve? I didn't even realize there were different mri's. What the heck Is there anything " normal " about these relapses? How much time between relapses? How do I know when to call the doctor? Sometimes I feel terrible but if there isn't anything to do about it then why bother? Do you keep a journal of symptoms? Am I just imagining that some days are fine and other days are really bad? What the heck? How can I feel fine in the morning and barely able to walk at night? Taking medication scares the bejeebers out of me. What if the doctors are wrong? I don't want shots or experimental treatments. So then what? So sorry this is long, rambling and frustrated. I am very grateful for this outlet. Thanks & blessings, Robin The new Internet Explorer 8 optimised for Yahoo!7: Faster, Safer, Easier. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2009 Report Share Posted April 29, 2009 >... New to the board, new to MS. ... Am I just imagining that some days are fine and other days are really bad? What the heck? How can I feel fine in the morning and barely able to walk at night? > Robin I suppose that some days are bad because you are inhaling haptens, which trigger your symptoms. If so, preventing is easy. Please read my website: http://www.haptens.republika.pl/haptenology_en.html Jerzy Grzeszczuk Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2009 Report Share Posted April 29, 2009 >... New to the board, new to MS. ... Am I just imagining that some days are fine and other days are really bad? What the heck? How can I feel fine in the morning and barely able to walk at night? > Robin I suppose that some days are bad because you are inhaling haptens, which trigger your symptoms. If so, preventing is easy. Please read my website: http://www.haptens.republika.pl/haptenology_en.html Jerzy Grzeszczuk Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2009 Report Share Posted April 29, 2009 Robin, There is a lot that you can do to help yourself..especially with common sense. You obviously already have that. So don't panic and go slow. Go to www.copingandprevailing.com If you cannot afford it send me your mailing address and I'll send it to you. Regards, Tom I'm new Hi, New to the board, new to MS. Tired of thinking about this already. I don't even know where to begin... First how come my symptoms are all over the place? Sometimes it's numbness, sometimes I fall, sometimes it's speaking, thinking, seizures. I feel like Goldie Hawn in Death Becomes Her at then end of the movie where she was falling apart, and held together with glue and spray paint. I'm angry, afraid, and confused. The doctors seem to know next to nothing. I can't get two matching answers. I generally don't subscribe to theories about radical diets, environmental stuff etc. My feeling has always been sometimes people get sick. My approach is usually moderate. I can get on board with cutting out some artificial stuff, eating more fresh food, drinking water, common sense. I do want to improve my immune system, and do what I can for my own health, but I am not going to switch out the pantry every other week - is there any real reason to do anything other than a basic healthy diet? Can you have MS without lesions, do they improve? I didn't even realize there were different mri's. What the heck Is there anything " normal " about these relapses? How much time between relapses? How do I know when to call the doctor? Sometimes I feel terrible but if there isn't anything to do about it then why bother? Do you keep a journal of symptoms? Am I just imagining that some days are fine and other days are really bad? What the heck? How can I feel fine in the morning and barely able to walk at night? Taking medication scares the bejeebers out of me. What if the doctors are wrong? I don't want shots or experimental treatments. So then what? So sorry this is long, rambling and frustrated. I am very grateful for this outlet. Thanks & blessings, Robin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2009 Report Share Posted April 29, 2009 Robin, There is a lot that you can do to help yourself..especially with common sense. You obviously already have that. So don't panic and go slow. Go to www.copingandprevailing.com If you cannot afford it send me your mailing address and I'll send it to you. Regards, Tom I'm new Hi, New to the board, new to MS. Tired of thinking about this already. I don't even know where to begin... First how come my symptoms are all over the place? Sometimes it's numbness, sometimes I fall, sometimes it's speaking, thinking, seizures. I feel like Goldie Hawn in Death Becomes Her at then end of the movie where she was falling apart, and held together with glue and spray paint. I'm angry, afraid, and confused. The doctors seem to know next to nothing. I can't get two matching answers. I generally don't subscribe to theories about radical diets, environmental stuff etc. My feeling has always been sometimes people get sick. My approach is usually moderate. I can get on board with cutting out some artificial stuff, eating more fresh food, drinking water, common sense. I do want to improve my immune system, and do what I can for my own health, but I am not going to switch out the pantry every other week - is there any real reason to do anything other than a basic healthy diet? Can you have MS without lesions, do they improve? I didn't even realize there were different mri's. What the heck Is there anything " normal " about these relapses? How much time between relapses? How do I know when to call the doctor? Sometimes I feel terrible but if there isn't anything to do about it then why bother? Do you keep a journal of symptoms? Am I just imagining that some days are fine and other days are really bad? What the heck? How can I feel fine in the morning and barely able to walk at night? Taking medication scares the bejeebers out of me. What if the doctors are wrong? I don't want shots or experimental treatments. So then what? So sorry this is long, rambling and frustrated. I am very grateful for this outlet. Thanks & blessings, Robin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2009 Report Share Posted April 29, 2009 Robin, There is a lot that you can do to help yourself..especially with common sense. You obviously already have that. So don't panic and go slow. Go to www.copingandprevailing.com If you cannot afford it send me your mailing address and I'll send it to you. Regards, Tom I'm new Hi, New to the board, new to MS. Tired of thinking about this already. I don't even know where to begin... First how come my symptoms are all over the place? Sometimes it's numbness, sometimes I fall, sometimes it's speaking, thinking, seizures. I feel like Goldie Hawn in Death Becomes Her at then end of the movie where she was falling apart, and held together with glue and spray paint. I'm angry, afraid, and confused. The doctors seem to know next to nothing. I can't get two matching answers. I generally don't subscribe to theories about radical diets, environmental stuff etc. My feeling has always been sometimes people get sick. My approach is usually moderate. I can get on board with cutting out some artificial stuff, eating more fresh food, drinking water, common sense. I do want to improve my immune system, and do what I can for my own health, but I am not going to switch out the pantry every other week - is there any real reason to do anything other than a basic healthy diet? Can you have MS without lesions, do they improve? I didn't even realize there were different mri's. What the heck Is there anything " normal " about these relapses? How much time between relapses? How do I know when to call the doctor? Sometimes I feel terrible but if there isn't anything to do about it then why bother? Do you keep a journal of symptoms? Am I just imagining that some days are fine and other days are really bad? What the heck? How can I feel fine in the morning and barely able to walk at night? Taking medication scares the bejeebers out of me. What if the doctors are wrong? I don't want shots or experimental treatments. So then what? So sorry this is long, rambling and frustrated. I am very grateful for this outlet. Thanks & blessings, Robin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2009 Report Share Posted April 29, 2009 Hi Robin, I'm also like you on the 'not wanting to switch out the pantry every other week' feeling, though I have learned many things here that have helped me and am getting things settled out and a really not very healthy diet changed into one that actually helps me. :-) I was diagnosed 3 yrs ago, so totally understand your frustration, and no, the Dr.s do NOT know everything - find one who can admit they don't have all the answers, they listen to your ideas and feelings a little more. lol I'll go through your Qs and share MY experience: First how come my symptoms are all over the place? ~ Your body changes throughout the day, hence your symptoms change, I get way worse when I get fatigued (do to much) so I've learned to pace my self. I stay a bit more 'normal' then, and can predict the result if I know something is coming up that is strenuous, stressful, ect. When I get a 'new' symptom (like last night my feet 'buzzed', I know that either I pushed something too far, or, I'm starting to see corrilations with food I eat and lack of good water intake. Still learning my 'new' body. is there any real reason to do anything other than a basic healthy diet? ~ I have yet to subscribe to one of the diets, but I have been learning about a lot of the 'whys' of why they say to eat or not eat this and that. There are a lot of things out there, I wouldn't write off the diets - learn about them and at least start incoorporating aspects into your own healthy diet. Like I said, I'm trying to get healthier and incoorporate some of the diets myself, we'll see where I end up. :-) Can you have MS without lesions, do they improve? ~ I got my second opinin from a really nice neuro at Mayo clinic in MN, he gave a great, still annoying, summary of ms and lesions. You can have now symptoms and a brain that looks like swiss cheese on an MRI, and you can have all the symptoms you possibly can and have a perfect looking MRI. No one knows why that is (the annoying part lol), but it's comforted me to know the lesions don't coorilate with the symptoms completely. Also, as far as them improving, my chiropractor has neurological training as well and pointed out that the lesions are just signs of inflamation and/or scar tissue. Scars get better on your skin, so that would explain why you see lesions getting better - his answer, but it makes sense to me. :-) Is there anything " normal " about these relapses? ~ I have found that in learning to pay attention to my body, I can kind of predict some of the relapses. That being said, I have also learned to expect 'surprises' and that anything 'not normal', is ms 'normal'. Itn't this a great 'friend', hmm, kinda reminds me of my other 'friend' that visits regularly... ;-) How much time between relapses? ~ see above :-) How do I know when to call the doctor? ~ ANYTHING really out of the 'ordinary'. I had a small, constant, schange, turned out to be a bladder infection. Illness really messes with symptoms, so sudden changes/relapses might not be just your ms. I love to call my Dr. with everything, hence the point on finding a doc who is open to hearing your concerns. Sometimes I feel terrible but if there isn't anything to do about it then why bother? ~ 'cause things get worse when you leave them. My first Dr. (I dumped him like a bad boyfriend - HE knew everything!) ignored my first 'fuzzy hand' symptoms and wouldn't even believe I was having issues til I showed him I couldn't write. I got into OT and got my writing back, but still don't have much sensitive feeling in my hands and they're always 'fuzzy'. Asked about it at my last 'check up' with my new Dr. (nurse practioner with PhD in ms research! - she CARES!!) and was told that, unfortuately, when left, it may be like that permantly. We'll see about that, but good to know. Do you keep a journal of symptoms? ~ Try to, do for sure when things started, now it just kind runs in my head but havn't written anything since my last bad 'flare up'. Am I just imagining that some days are fine and other days are really bad? What the heck? ~ Not likely. Me, I WAY over did things last night (cleaning, hubby gone so had daughter duties on my own, went to bed late) and, I knew today would be bad, but I am definitely feeling it today - head/hands/feet fuzzy, back hurts and I havn't done much more then help send the girl off to school and plop myself down here. I know that if I try and make it a 'normal' day, I'll get the falling, etc, so I'm going to be taking it really easy and using my cane for sue so I might avoid some of the 'mishaps'. How can I feel fine in the morning and barely able to walk at night? ~ see some of the above, but when I get like that, it's because I over did things. Last night, as I was finishing the cleaning, I looked like a drunk 'cause my body was 'breaking down'. Taking medication scares the bejeebers out of me. What if the doctors are wrong? I don't want shots or experimental treatments. So then what? ~ Me too, and the Dr.s could be wrong. I was on intereferons when I was first Dx - BAD. Those had side effects that made me feel like crud on top of dealing with the ms AND I kept getting more lesions on my MRIs. Try foolowing the suggestions here, but do a lot of your own research and find what works for you. So sorry this is long, rambling and frustrated. ~ Don't be sorry! This is exactly how I felt when I first got introduced to this 'ms game'. ms is VERY frustrating, I wish you the best of luck on your journey and hope you can find your answers. Good luck, and don't forget to smile. 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Guest guest Posted May 20, 2009 Report Share Posted May 20, 2009 Hi there What I would like to say to people that newly diagnosed is that you should start LDN first and foremost before doing anything else. I knew about LDN for a few years before I finally managed to get it and if I had started then I would not be walking with a stick right now. I couldn't get it in South Africa and so carried on with diet and supplements and still got worse. I have now been on LDN for about 9 months and am doing well but not as well as I would have if I had started 5 years ago when I was newly diagnosed. If I knew then, what I know now, I would have gone overseas to get stock no matter how much it cost and what I would have had to sell to do it. I would like to make one other comment about LDN for everyone on the list. I was fortunate enough to go to the LDN conference and I met Tom Gilhooly, Burt Berkson, Skip Lorenz, Bob Lawrence, Phil Doyle, Elsegood and Wouk among others. The thing that stood out the most for me out of everything that I learned in the conference is dose. LDN's success is very much dose dependant. I have lowered my dose and have had better results. Smiles Elise Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2009 Report Share Posted May 20, 2009 I would also like to add, that if you are newly diagnosed, even better then starting the LDN, is doing the stem cell therapy. I found out on May 1st that I had MS for sure (by results of the MRI), and on the 6th of May I was already in Mexico doing stem cell therapy. Doing the stem cell therapy in the very early stages, increases your chances of the MS not coming back. After stem cell therapy, then do the LDN to stop the MS from ever coming back. My cost for the stem cell therapy was $5800, very doable. ----- Re: I'm new Date: Wed, 20 May 2009 08:51:30 -0000 Hi there What I would like to say to people that newly diagnosed is that you should start LDN first and foremost before doing anything else. I knew about LDN for a few years before I finally managed to get it and if I had started then I would not be walking with a stick right now. I couldn't get it in South Africa and so carried on with diet and supplements and still got worse. I have now been on LDN for about 9 months and am doing well but not as well as I would have if I had started 5 years ago when I was newly diagnosed. If I knew then, what I know now, I would have gone overseas to get stock no matter how much it cost and what I would have had to sell to do it. I would like to make one other comment about LDN for everyone on the list. I was fortunate enough to go to the LDN conference and I met Tom Gilhooly, Burt Berkson, Skip Lorenz, Bob Lawrence, Phil Doyle, Elsegood and Wouk among others. The thing that stood out the most for me out of everything that I learned in the conference is dose. LDN's success is very much dose dependant. I have lowered my dose and have had better results. Smiles Elise ____________________________________________________________ Free information on a POS system that meets your needs. Click here. http://thirdpartyoffers.juno.com/TGL2131/fc/BLSrjnsCjTmnsXM8fS0w7naCNfMYKAHn5qbZ\ opc9RDB7vsLkZwwEwfENCUo/ Quote Link to comment Share on other sites More sharing options...
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