Jump to content
RemedySpot.com

I'm new

Rate this topic


Guest guest

Recommended Posts

Hi le Welcome, Welcome to the group!!! Well I know you are having a hard time with the diagnosis but at least now your monster has a name. Now you can become active and have more control on managing this painful disorder. Start out slowly so as not to get overwhelmed and do some research on it. You'll feel better just knowing its not all in your head. This group will also be a great place to ask questions and listen to others and how they handle things. We are all different but the same. Weird huh? Anyway I have alot of leg , hip and knee pain that affects my walking at times. Hang in there le we are here when you need someone and there are alot of us. Chin up and gentle hugs A Canadian Fibro Friend le Souther wrote: Hi all, my name is le I

am new to the group. I was diagnosed with fibro about 2 weeks ago. I am having a hard time with the diagnosis which I'm sure everyone probably does. I just wanted some concrete evidence of what is going on with me. I have real bad hand and feet pain, sholder blade pain and hip and knee pain. Does anyone else have feet pain where they can barely walk. I really thought I had RA but all my labs are normal and the Dr said it would have presented itself by know (I've been going to the Rhematologist for 2 1/2 years). I guess it doesn't really matter what I have, right? I just have a lot of pain and I can not get comfortable enough to sleep. Anyway, just wanted to introduce myself and let you all know that I feel for you all! Am so glad I have found this site! Thanks for listening! le

Find your next car at Yahoo! Canada Autos

Link to comment
Share on other sites

  • 3 years later...
Guest guest

Hi,

New to the board, new to MS. Tired of thinking about this already.

I don't even know where to begin...

First how come my symptoms are all over the place? Sometimes it's numbness,

sometimes I fall, sometimes it's speaking, thinking, seizures. I feel like

Goldie Hawn in Death Becomes Her at then end of the movie where she was falling

apart, and held together with glue and spray paint.

I'm angry, afraid, and confused. The doctors seem to know next to nothing. I

can't get two matching answers.

I generally don't subscribe to theories about radical diets, environmental stuff

etc. My feeling has always been sometimes people get sick. My approach is

usually moderate. I can get on board with cutting out some artificial stuff,

eating more fresh food, drinking water, common sense. I do want to improve my

immune system, and do what I can for my own health, but I am not going to switch

out the pantry every other week - is there any real reason to do anything other

than a basic healthy diet?

Can you have MS without lesions, do they improve? I didn't even realize there

were different mri's. What the heck

Is there anything " normal " about these relapses? How much time between

relapses? How do I know when to call the doctor? Sometimes I feel terrible but

if there isn't anything to do about it then why bother? Do you keep a journal

of symptoms?

Am I just imagining that some days are fine and other days are really bad? What

the heck? How can I feel fine in the morning and barely able to walk at night?

Taking medication scares the bejeebers out of me. What if the doctors are wrong?

I don't want shots or experimental treatments. So then what?

So sorry this is long, rambling and frustrated.

I am very grateful for this outlet.

Thanks & blessings,

Robin

Link to comment
Share on other sites

Guest guest

Robin

 

MS is a difficult and frustrating illness hope you find some answers that make

the MS trip easier.

 

Bruce

Subject: I'm new

To: mscured

Received: Wednesday, 29 April, 2009, 12:14 PM

Hi,

New to the board, new to MS. Tired of thinking about this already.

I don't even know where to begin...

First how come my symptoms are all over the place? Sometimes it's numbness,

sometimes I fall, sometimes it's speaking, thinking, seizures. I feel like

Goldie Hawn in Death Becomes Her at then end of the movie where she was falling

apart, and held together with glue and spray paint.

I'm angry, afraid, and confused. The doctors seem to know next to nothing. I

can't get two matching answers.

I generally don't subscribe to theories about radical diets, environmental stuff

etc. My feeling has always been sometimes people get sick. My approach is

usually moderate. I can get on board with cutting out some artificial stuff,

eating more fresh food, drinking water, common sense. I do want to improve my

immune system, and do what I can for my own health, but I am not going to switch

out the pantry every other week - is there any real reason to do anything other

than a basic healthy diet?

Can you have MS without lesions, do they improve? I didn't even realize there

were different mri's. What the heck

Is there anything " normal " about these relapses? How much time between relapses?

How do I know when to call the doctor? Sometimes I feel terrible but if there

isn't anything to do about it then why bother? Do you keep a journal of

symptoms?

Am I just imagining that some days are fine and other days are really bad? What

the heck? How can I feel fine in the morning and barely able to walk at night?

Taking medication scares the bejeebers out of me. What if the doctors are wrong?

I don't want shots or experimental treatments. So then what?

So sorry this is long, rambling and frustrated.

I am very grateful for this outlet.

Thanks & blessings,

Robin

The new Internet Explorer 8 optimised for Yahoo!7: Faster, Safer, Easier.

Link to comment
Share on other sites

Guest guest

Robin

 

MS is a difficult and frustrating illness hope you find some answers that make

the MS trip easier.

 

Bruce

Subject: I'm new

To: mscured

Received: Wednesday, 29 April, 2009, 12:14 PM

Hi,

New to the board, new to MS. Tired of thinking about this already.

I don't even know where to begin...

First how come my symptoms are all over the place? Sometimes it's numbness,

sometimes I fall, sometimes it's speaking, thinking, seizures. I feel like

Goldie Hawn in Death Becomes Her at then end of the movie where she was falling

apart, and held together with glue and spray paint.

I'm angry, afraid, and confused. The doctors seem to know next to nothing. I

can't get two matching answers.

I generally don't subscribe to theories about radical diets, environmental stuff

etc. My feeling has always been sometimes people get sick. My approach is

usually moderate. I can get on board with cutting out some artificial stuff,

eating more fresh food, drinking water, common sense. I do want to improve my

immune system, and do what I can for my own health, but I am not going to switch

out the pantry every other week - is there any real reason to do anything other

than a basic healthy diet?

Can you have MS without lesions, do they improve? I didn't even realize there

were different mri's. What the heck

Is there anything " normal " about these relapses? How much time between relapses?

How do I know when to call the doctor? Sometimes I feel terrible but if there

isn't anything to do about it then why bother? Do you keep a journal of

symptoms?

Am I just imagining that some days are fine and other days are really bad? What

the heck? How can I feel fine in the morning and barely able to walk at night?

Taking medication scares the bejeebers out of me. What if the doctors are wrong?

I don't want shots or experimental treatments. So then what?

So sorry this is long, rambling and frustrated.

I am very grateful for this outlet.

Thanks & blessings,

Robin

The new Internet Explorer 8 optimised for Yahoo!7: Faster, Safer, Easier.

Link to comment
Share on other sites

Guest guest

Robin,

           I'm the mother of a daughter who has MS,,,,,,,,,,there are many up's

and down's when it comes to MS. As hard as it may seem to be ,,remain positive

,, this is a good site with alot of very good information and caring people. I

wish you all the best on your journey.

If you need a shoulder ,,I'm just a e mail away,,feel free to e mail me directly

...

                                                            blessings

                                                                                \

    Sharon *

Live ,,laugh ,, & love ,,

From: wwandsprmn <wwandsprmnyahoo (DOT) com>

Subject: I'm new

To: mscured@yahoogroups .com

Received: Wednesday, 29 April, 2009, 12:14 PM

Hi,

New to the board, new to MS. Tired of thinking about this already.

I don't even know where to begin...

First how come my symptoms are all over the place? Sometimes it's numbness,

sometimes I fall, sometimes it's speaking, thinking, seizures. I feel like

Goldie Hawn in Death Becomes Her at then end of the movie where she was falling

apart, and held together with glue and spray paint.

I'm angry, afraid, and confused. The doctors seem to know next to nothing. I

can't get two matching answers.

I generally don't subscribe to theories about radical diets, environmental stuff

etc. My feeling has always been sometimes people get sick. My approach is

usually moderate. I can get on board with cutting out some artificial stuff,

eating more fresh food, drinking water, common sense. I do want to improve my

immune system, and do what I can for my own health, but I am not going to switch

out the pantry every other week - is there any real reason to do anything other

than a basic healthy diet?

Can you have MS without lesions, do they improve? I didn't even realize there

were different mri's. What the heck

Is there anything " normal " about these relapses? How much time between relapses?

How do I know when to call the doctor? Sometimes I feel terrible but if there

isn't anything to do about it then why bother? Do you keep a journal of

symptoms?

Am I just imagining that some days are fine and other days are really bad? What

the heck? How can I feel fine in the morning and barely able to walk at night?

Taking medication scares the bejeebers out of me. What if the doctors are wrong?

I don't want shots or experimental treatments. So then what?

So sorry this is long, rambling and frustrated.

I am very grateful for this outlet.

Thanks & blessings,

Robin

The new Internet Explorer 8 optimised for Yahoo!7: Faster, Safer, Easier.

Link to comment
Share on other sites

Guest guest

Robin,

           I'm the mother of a daughter who has MS,,,,,,,,,,there are many up's

and down's when it comes to MS. As hard as it may seem to be ,,remain positive

,, this is a good site with alot of very good information and caring people. I

wish you all the best on your journey.

If you need a shoulder ,,I'm just a e mail away,,feel free to e mail me directly

...

                                                            blessings

                                                                                \

    Sharon *

Live ,,laugh ,, & love ,,

From: wwandsprmn <wwandsprmnyahoo (DOT) com>

Subject: I'm new

To: mscured@yahoogroups .com

Received: Wednesday, 29 April, 2009, 12:14 PM

Hi,

New to the board, new to MS. Tired of thinking about this already.

I don't even know where to begin...

First how come my symptoms are all over the place? Sometimes it's numbness,

sometimes I fall, sometimes it's speaking, thinking, seizures. I feel like

Goldie Hawn in Death Becomes Her at then end of the movie where she was falling

apart, and held together with glue and spray paint.

I'm angry, afraid, and confused. The doctors seem to know next to nothing. I

can't get two matching answers.

I generally don't subscribe to theories about radical diets, environmental stuff

etc. My feeling has always been sometimes people get sick. My approach is

usually moderate. I can get on board with cutting out some artificial stuff,

eating more fresh food, drinking water, common sense. I do want to improve my

immune system, and do what I can for my own health, but I am not going to switch

out the pantry every other week - is there any real reason to do anything other

than a basic healthy diet?

Can you have MS without lesions, do they improve? I didn't even realize there

were different mri's. What the heck

Is there anything " normal " about these relapses? How much time between relapses?

How do I know when to call the doctor? Sometimes I feel terrible but if there

isn't anything to do about it then why bother? Do you keep a journal of

symptoms?

Am I just imagining that some days are fine and other days are really bad? What

the heck? How can I feel fine in the morning and barely able to walk at night?

Taking medication scares the bejeebers out of me. What if the doctors are wrong?

I don't want shots or experimental treatments. So then what?

So sorry this is long, rambling and frustrated.

I am very grateful for this outlet.

Thanks & blessings,

Robin

The new Internet Explorer 8 optimised for Yahoo!7: Faster, Safer, Easier.

Link to comment
Share on other sites

Guest guest

Robin,

           I'm the mother of a daughter who has MS,,,,,,,,,,there are many up's

and down's when it comes to MS. As hard as it may seem to be ,,remain positive

,, this is a good site with alot of very good information and caring people. I

wish you all the best on your journey.

If you need a shoulder ,,I'm just a e mail away,,feel free to e mail me directly

...

                                                            blessings

                                                                                \

    Sharon *

Live ,,laugh ,, & love ,,

From: wwandsprmn <wwandsprmnyahoo (DOT) com>

Subject: I'm new

To: mscured@yahoogroups .com

Received: Wednesday, 29 April, 2009, 12:14 PM

Hi,

New to the board, new to MS. Tired of thinking about this already.

I don't even know where to begin...

First how come my symptoms are all over the place? Sometimes it's numbness,

sometimes I fall, sometimes it's speaking, thinking, seizures. I feel like

Goldie Hawn in Death Becomes Her at then end of the movie where she was falling

apart, and held together with glue and spray paint.

I'm angry, afraid, and confused. The doctors seem to know next to nothing. I

can't get two matching answers.

I generally don't subscribe to theories about radical diets, environmental stuff

etc. My feeling has always been sometimes people get sick. My approach is

usually moderate. I can get on board with cutting out some artificial stuff,

eating more fresh food, drinking water, common sense. I do want to improve my

immune system, and do what I can for my own health, but I am not going to switch

out the pantry every other week - is there any real reason to do anything other

than a basic healthy diet?

Can you have MS without lesions, do they improve? I didn't even realize there

were different mri's. What the heck

Is there anything " normal " about these relapses? How much time between relapses?

How do I know when to call the doctor? Sometimes I feel terrible but if there

isn't anything to do about it then why bother? Do you keep a journal of

symptoms?

Am I just imagining that some days are fine and other days are really bad? What

the heck? How can I feel fine in the morning and barely able to walk at night?

Taking medication scares the bejeebers out of me. What if the doctors are wrong?

I don't want shots or experimental treatments. So then what?

So sorry this is long, rambling and frustrated.

I am very grateful for this outlet.

Thanks & blessings,

Robin

The new Internet Explorer 8 optimised for Yahoo!7: Faster, Safer, Easier.

Link to comment
Share on other sites

Guest guest

>... New to the board, new to MS. ... Am I just imagining that some days are

fine and other days are really bad? What the heck? How can I feel fine in the

morning and barely able to walk at night?

> Robin

I suppose that some days are bad because you are inhaling haptens, which trigger

your symptoms. If so, preventing is easy. Please read my website:

http://www.haptens.republika.pl/haptenology_en.html

Jerzy Grzeszczuk

Link to comment
Share on other sites

Guest guest

>... New to the board, new to MS. ... Am I just imagining that some days are

fine and other days are really bad? What the heck? How can I feel fine in the

morning and barely able to walk at night?

> Robin

I suppose that some days are bad because you are inhaling haptens, which trigger

your symptoms. If so, preventing is easy. Please read my website:

http://www.haptens.republika.pl/haptenology_en.html

Jerzy Grzeszczuk

Link to comment
Share on other sites

Guest guest

Robin,

There is a lot that you can do to help yourself..especially with common sense.

You obviously already have that. So don't panic and go slow. Go to

www.copingandprevailing.com

If you cannot afford it send me your mailing address and I'll send it to you.

Regards,

Tom

I'm new

Hi,

New to the board, new to MS. Tired of thinking about this already.

I don't even know where to begin...

First how come my symptoms are all over the place? Sometimes it's numbness,

sometimes I fall, sometimes it's speaking, thinking, seizures. I feel like

Goldie Hawn in Death Becomes Her at then end of the movie where she was falling

apart, and held together with glue and spray paint.

I'm angry, afraid, and confused. The doctors seem to know next to nothing. I

can't get two matching answers.

I generally don't subscribe to theories about radical diets, environmental

stuff etc. My feeling has always been sometimes people get sick. My approach is

usually moderate. I can get on board with cutting out some artificial stuff,

eating more fresh food, drinking water, common sense. I do want to improve my

immune system, and do what I can for my own health, but I am not going to switch

out the pantry every other week - is there any real reason to do anything other

than a basic healthy diet?

Can you have MS without lesions, do they improve? I didn't even realize there

were different mri's. What the heck

Is there anything " normal " about these relapses? How much time between

relapses? How do I know when to call the doctor? Sometimes I feel terrible but

if there isn't anything to do about it then why bother? Do you keep a journal of

symptoms?

Am I just imagining that some days are fine and other days are really bad?

What the heck? How can I feel fine in the morning and barely able to walk at

night?

Taking medication scares the bejeebers out of me. What if the doctors are

wrong? I don't want shots or experimental treatments. So then what?

So sorry this is long, rambling and frustrated.

I am very grateful for this outlet.

Thanks & blessings,

Robin

Link to comment
Share on other sites

Guest guest

Robin,

There is a lot that you can do to help yourself..especially with common sense.

You obviously already have that. So don't panic and go slow. Go to

www.copingandprevailing.com

If you cannot afford it send me your mailing address and I'll send it to you.

Regards,

Tom

I'm new

Hi,

New to the board, new to MS. Tired of thinking about this already.

I don't even know where to begin...

First how come my symptoms are all over the place? Sometimes it's numbness,

sometimes I fall, sometimes it's speaking, thinking, seizures. I feel like

Goldie Hawn in Death Becomes Her at then end of the movie where she was falling

apart, and held together with glue and spray paint.

I'm angry, afraid, and confused. The doctors seem to know next to nothing. I

can't get two matching answers.

I generally don't subscribe to theories about radical diets, environmental

stuff etc. My feeling has always been sometimes people get sick. My approach is

usually moderate. I can get on board with cutting out some artificial stuff,

eating more fresh food, drinking water, common sense. I do want to improve my

immune system, and do what I can for my own health, but I am not going to switch

out the pantry every other week - is there any real reason to do anything other

than a basic healthy diet?

Can you have MS without lesions, do they improve? I didn't even realize there

were different mri's. What the heck

Is there anything " normal " about these relapses? How much time between

relapses? How do I know when to call the doctor? Sometimes I feel terrible but

if there isn't anything to do about it then why bother? Do you keep a journal of

symptoms?

Am I just imagining that some days are fine and other days are really bad?

What the heck? How can I feel fine in the morning and barely able to walk at

night?

Taking medication scares the bejeebers out of me. What if the doctors are

wrong? I don't want shots or experimental treatments. So then what?

So sorry this is long, rambling and frustrated.

I am very grateful for this outlet.

Thanks & blessings,

Robin

Link to comment
Share on other sites

Guest guest

Robin,

There is a lot that you can do to help yourself..especially with common sense.

You obviously already have that. So don't panic and go slow. Go to

www.copingandprevailing.com

If you cannot afford it send me your mailing address and I'll send it to you.

Regards,

Tom

I'm new

Hi,

New to the board, new to MS. Tired of thinking about this already.

I don't even know where to begin...

First how come my symptoms are all over the place? Sometimes it's numbness,

sometimes I fall, sometimes it's speaking, thinking, seizures. I feel like

Goldie Hawn in Death Becomes Her at then end of the movie where she was falling

apart, and held together with glue and spray paint.

I'm angry, afraid, and confused. The doctors seem to know next to nothing. I

can't get two matching answers.

I generally don't subscribe to theories about radical diets, environmental

stuff etc. My feeling has always been sometimes people get sick. My approach is

usually moderate. I can get on board with cutting out some artificial stuff,

eating more fresh food, drinking water, common sense. I do want to improve my

immune system, and do what I can for my own health, but I am not going to switch

out the pantry every other week - is there any real reason to do anything other

than a basic healthy diet?

Can you have MS without lesions, do they improve? I didn't even realize there

were different mri's. What the heck

Is there anything " normal " about these relapses? How much time between

relapses? How do I know when to call the doctor? Sometimes I feel terrible but

if there isn't anything to do about it then why bother? Do you keep a journal of

symptoms?

Am I just imagining that some days are fine and other days are really bad?

What the heck? How can I feel fine in the morning and barely able to walk at

night?

Taking medication scares the bejeebers out of me. What if the doctors are

wrong? I don't want shots or experimental treatments. So then what?

So sorry this is long, rambling and frustrated.

I am very grateful for this outlet.

Thanks & blessings,

Robin

Link to comment
Share on other sites

Guest guest

Hi Robin,

I'm also like you on the 'not wanting to switch out the pantry every other week'

feeling, though I have learned many things here that have helped me and am

getting things settled out and a really not very healthy diet changed into one

that actually helps me. :-) I was diagnosed 3 yrs ago, so totally understand

your frustration, and no, the Dr.s do NOT know everything - find one who can

admit they don't have all the answers, they listen to your ideas and feelings a

little more. lol I'll go through your Qs and share MY experience:

First how come my symptoms are all over the place? ~ Your body changes

throughout the day, hence your symptoms change, I get way worse when I get

fatigued (do to much) so I've learned to pace my self. I stay a bit more

'normal' then, and can predict the result if I know something is coming up that

is strenuous, stressful, ect. When I get a 'new' symptom (like last night my

feet 'buzzed', I know that either I pushed something too far, or, I'm starting

to see corrilations with food I eat and lack of good water intake. Still

learning my 'new' body.

is there any real reason to do anything other than a basic healthy diet? ~ I

have yet to subscribe to one of the diets, but I have been learning about a lot

of the 'whys' of why they say to eat or not eat this and that. There are a lot

of things out there, I wouldn't write off the diets - learn about them and at

least start incoorporating aspects into your own healthy diet. Like I said, I'm

trying to get healthier and incoorporate some of the diets myself, we'll see

where I end up. :-)

Can you have MS without lesions, do they improve? ~ I got my second opinin from

a really nice neuro at Mayo clinic in MN, he gave a great, still annoying,

summary of ms and lesions. You can have now symptoms and a brain that looks like

swiss cheese on an MRI, and you can have all the symptoms you possibly can and

have a perfect looking MRI. No one knows why that is (the annoying part lol),

but it's comforted me to know the lesions don't coorilate with the symptoms

completely. Also, as far as them improving, my chiropractor has neurological

training as well and pointed out that the lesions are just signs of inflamation

and/or scar tissue. Scars get better on your skin, so that would explain why you

see lesions getting better - his answer, but it makes sense to me. :-)

Is there anything " normal " about these relapses? ~ I have found that in

learning to pay attention to my body, I can kind of predict some of the

relapses. That being said, I have also learned to expect 'surprises' and that

anything 'not normal', is ms 'normal'. Itn't this a great 'friend', hmm, kinda

reminds me of my other 'friend' that visits regularly... ;-)

How much time between relapses? ~ see above :-)

How do I know when to call the doctor? ~ ANYTHING really out of the 'ordinary'.

I had a small, constant, schange, turned out to be a bladder infection. Illness

really messes with symptoms, so sudden changes/relapses might not be just your

ms. I love to call my Dr. with everything, hence the point on finding a doc who

is open to hearing your concerns.

Sometimes I feel terrible but if there isn't anything to do about it then why

bother? ~ 'cause things get worse when you leave them. My first Dr. (I dumped

him like a bad boyfriend - HE knew everything!) ignored my first 'fuzzy hand'

symptoms and wouldn't even believe I was having issues til I showed him I

couldn't write. I got into OT and got my writing back, but still don't have much

sensitive feeling in my hands and they're always 'fuzzy'. Asked about it at my

last 'check up' with my new Dr. (nurse practioner with PhD in ms research! - she

CARES!!) and was told that, unfortuately, when left, it may be like that

permantly. We'll see about that, but good to know.

Do you keep a journal of symptoms? ~ Try to, do for sure when things started,

now it just kind runs in my head but havn't written anything since my last bad

'flare up'.

Am I just imagining that some days are fine and other days are really bad? What

the heck? ~ Not likely. Me, I WAY over did things last night (cleaning, hubby

gone so had daughter duties on my own, went to bed late) and, I knew today would

be bad, but I am definitely feeling it today - head/hands/feet fuzzy, back hurts

and I havn't done much more then help send the girl off to school and plop

myself down here. I know that if I try and make it a 'normal' day, I'll get the

falling, etc, so I'm going to be taking it really easy and using my cane for sue

so I might avoid some of the 'mishaps'.

How can I feel fine in the morning and barely able to walk at night? ~ see some

of the above, but when I get like that, it's because I over did things. Last

night, as I was finishing the cleaning, I looked like a drunk 'cause my body was

'breaking down'.

Taking medication scares the bejeebers out of me. What if the doctors are wrong?

I don't want shots or experimental treatments. So then what? ~ Me too, and the

Dr.s could be wrong. I was on intereferons when I was first Dx - BAD. Those had

side effects that made me feel like crud on top of dealing with the ms AND I

kept getting more lesions on my MRIs. Try foolowing the suggestions here, but do

a lot of your own research and find what works for you.

So sorry this is long, rambling and frustrated. ~ Don't be sorry! This is

exactly how I felt when I first got introduced to this 'ms game'. ms is VERY

frustrating, I wish you the best of luck on your journey and hope you can find

your answers.

Good luck, and don't forget to smile.

Link to comment
Share on other sites

  • 3 weeks later...
Guest guest

Hi there

What I would like to say to people that newly diagnosed is that you should start

LDN first and foremost before doing anything else. I knew about LDN for a few

years before I finally managed to get it and if I had started then I would not

be walking with a stick right now. I couldn't get it in South Africa and so

carried on with diet and supplements and still got worse. I have now been on LDN

for about 9 months and am doing well but not as well as I would have if I had

started 5 years ago when I was newly diagnosed. If I knew then, what I know now,

I would have gone overseas to get stock no matter how much it cost and what I

would have had to sell to do it.

I would like to make one other comment about LDN for everyone on the list. I was

fortunate enough to go to the LDN conference and I met Tom Gilhooly, Burt

Berkson, Skip Lorenz, Bob Lawrence, Phil Doyle, Elsegood and Wouk

among others. The thing that stood out the most for me out of everything that I

learned in the conference is dose. LDN's success is very much dose dependant. I

have lowered my dose and have had better results.

Smiles

Elise

Link to comment
Share on other sites

Guest guest

I would also like to add, that if you are newly diagnosed, even better then

starting the LDN, is doing the stem cell therapy. I found out on May 1st that I

had MS for sure (by results of the MRI), and on the 6th of May I was already in

Mexico doing stem cell therapy. Doing the stem cell therapy in the very early

stages, increases your chances of the MS not coming back. After stem cell

therapy, then do the LDN to stop the MS from ever coming back. My cost for the

stem cell therapy was $5800, very doable.

----- Re: I'm new

Date: Wed, 20 May 2009 08:51:30 -0000

Hi there

What I would like to say to people that newly diagnosed is that you should start

LDN first and foremost before doing anything else. I knew about LDN for a few

years before I finally managed to get it and if I had started then I would not

be walking with a stick right now. I couldn't get it in South Africa and so

carried on with diet and supplements and still got worse. I have now been on LDN

for about 9 months and am doing well but not as well as I would have if I had

started 5 years ago when I was newly diagnosed. If I knew then, what I know now,

I would have gone overseas to get stock no matter how much it cost and what I

would have had to sell to do it.

I would like to make one other comment about LDN for everyone on the list. I was

fortunate enough to go to the LDN conference and I met Tom Gilhooly, Burt

Berkson, Skip Lorenz, Bob Lawrence, Phil Doyle, Elsegood and Wouk

among others. The thing that stood out the most for me out of everything that I

learned in the conference is dose. LDN's success is very much dose dependant. I

have lowered my dose and have had better results.

Smiles

Elise

____________________________________________________________

Free information on a POS system that meets your needs. Click here.

http://thirdpartyoffers.juno.com/TGL2131/fc/BLSrjnsCjTmnsXM8fS0w7naCNfMYKAHn5qbZ\

opc9RDB7vsLkZwwEwfENCUo/

Link to comment
Share on other sites

Join the conversation

You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

Loading...
×
×
  • Create New...