Guest guest Posted January 14, 2006 Report Share Posted January 14, 2006 OK all, let me know what you think so far, the next section will be all that I've been sent so far from our members. Living with an Invisible Illness: The day to Day struggles of those living with Fibromyalgia And how they cope. By LV Dutton Fibromyalgia is the most misdiagnosed disorder in the US today, maybe even the world. What makes it worse is the fact that it cannot be seen. To the average person, a Fibromyalgia person is normal. But we are far from normal. Living with a condition that robs us of sleep, energy and the ability to handle the simplest of tasks. Each person that has this debilitating condition shows different signs. Each person varies in age and gender. More females are diagnosed with Fibromyalgia than males, but it is not a condition that cares about race, color or sex. Most people with Fibromyalgia at first think that they have the flu as that is most of the common symptoms. Starting with the minor aches and pains, the tiredness and the loss of energy. But what makes this condition different from the flu, is the fact that the pains, the tiredness and the general all over aches never goes away. Many that suffer with this condition suffer for years. They never understand what is going on with their own bodies. Wondering if they may have something far worse. Going to countless doctors to find out what is wrong. Jumping from doctor to doctor to get answers to a question that for some seems to have no answer. Many try to live their lives as normally as they can, trying to do things with friends and family. But then the pain becomes to much and they refuse to even leave their homes. At times it seems that the world doesn’t understand that Fibromyalgia is a real condition, that we are not making it up for attention. Families of those with Fibromyalgia seem to think that the family member is just making things up to get attention. Even the doctors we see seem to only want to give us medication and make us go away. They see us as wanting attention, but when we are actually hurting it seems they turn a blind eye to that. Over the years that I’ve heard of Fibromyalgia it seems that more and more comes out about it. First let’s look at what it is from a doctors point of view. As a doctor would say that Fibromyalgia is not a disease but a condition. Many would argue that point but doctors think they know best. As a doctor would diagnose the condition they would look for several factors from wide spread pain, pain in pressure points and lack of sleep. It may take a doctor a while to pinpoint the problem before giving a straight diagnosis. Many doctors will even take blood tests, x-rays and other tests to prove that what is wrong is something different. Each of the people that are diagnosed with Fibromyalgia have it and was diagnosed differently. Each person was told a possible way they got it and why. Now while the condition does not cause permanent damage to the tissue or internal organs, this condition is painful to say the least. There are times when the person feels on top of the world, with little to no pain at all, then there are the days when they are wanting to find a dark corner and hide from the pain that their body has inflicted upon them. But that is where someone with Fibromyalgia learns that they must change their sometimes busy lifestyle to fit the one that isn’t. When Fibromyalgia is diagnosed, it’s hard for the doctor to explain a clear cause, as there are many reasons and ideas why Fibromyalgia appears. Many have said it could be from abuse, any kind, to any form of trauma that may have happened to the body. But without enough evidence to support any claim, the patience go around wondering what caused this condition. Symptoms tend to come and go, some feel periods of pain, fatigue and varied sleep problems. Others feel nothing at all, there are factors of the weather that seem to make the symptoms worse. Cold and damp areas seem to make symptoms worse. With the difficulty of diagnosis, there comes the frustration of the person with the Fibro, many times the symptoms are similar to other conditions, and with that different people show different symptoms. But most times it’s diagnosed when all other problems are ruled out, there is no set test to check for Fibromyalgia and with that comes the trouble of finding the cause. Many are diagnosed with the tender points and with the wide spread pain over both sides of the body above and below the waist. Through out the time of this book, as you read you will learn how each of the people listed in here cope with their Fibromyalgia. Each of them listed are of different ages, cultures and even sexes. Mostly Fibromyalgia is diagnosed in Females, but there are the few males that have been recorded to have this condition. But reading their words will make you understand how we each cope and how we each are the others support system. People who don’t know each other, or whom never met, become a family through a condition that has no reason, or cure. Living with an Invisible Illness: The day to Day struggles of those living with Fibromyalgia And how they cope. By LV Dutton Fibromyalgia is the most misdiagnosed disorder in the US today, maybe even the world. What makes it worse is the fact that it cannot be seen. To the average person, a Fibromyalgia person is normal. But we are far from normal. Living with a condition that robs us of sleep, energy and the ability to handle the simplest of tasks. Each person that has this debilitating condition shows different signs. Each person varies in age and gender. More females are diagnosed with Fibromyalgia than males, but it is not a condition that cares about race, color or sex. Most people with Fibromyalgia at first think that they have the flu as that is most of the common symptoms. Starting with the minor aches and pains, the tiredness and the loss of energy. But what makes this condition different from the flu, is the fact that the pains, the tiredness and the general all over aches never goes away. Many that suffer with this condition suffer for years. They never understand what is going on with their own bodies. Wondering if they may have something far worse. Going to countless doctors to find out what is wrong. Jumping from doctor to doctor to get answers to a question that for some seems to have no answer. Many try to live their lives as normally as they can, trying to do things with friends and family. But then the pain becomes to much and they refuse to even leave their homes. At times it seems that the world doesn’t understand that Fibromyalgia is a real condition, that we are not making it up for attention. Families of those with Fibromyalgia seem to think that the family member is just making things up to get attention. Even the doctors we see seem to only want to give us medication and make us go away. They see us as wanting attention, but when we are actually hurting it seems they turn a blind eye to that. Over the years that I’ve heard of Fibromyalgia it seems that more and more comes out about it. First let’s look at what it is from a doctors point of view. As a doctor would say that Fibromyalgia is not a disease but a condition. Many would argue that point but doctors think they know best. As a doctor would diagnose the condition they would look for several factors from wide spread pain, pain in pressure points and lack of sleep. It may take a doctor a while to pinpoint the problem before giving a straight diagnosis. Many doctors will even take blood tests, x-rays and other tests to prove that what is wrong is something different. Each of the people that are diagnosed with Fibromyalgia have it and was diagnosed differently. Each person was told a possible way they got it and why. Now while the condition does not cause permanent damage to the tissue or internal organs, this condition is painful to say the least. There are times when the person feels on top of the world, with little to no pain at all, then there are the days when they are wanting to find a dark corner and hide from the pain that their body has inflicted upon them. But that is where someone with Fibromyalgia learns that they must change their sometimes busy lifestyle to fit the one that isn’t. When Fibromyalgia is diagnosed, it’s hard for the doctor to explain a clear cause, as there are many reasons and ideas why Fibromyalgia appears. Many have said it could be from abuse, any kind, to any form of trauma that may have happened to the body. But without enough evidence to support any claim, the patience go around wondering what caused this condition. Symptoms tend to come and go, some feel periods of pain, fatigue and varied sleep problems. Others feel nothing at all, there are factors of the weather that seem to make the symptoms worse. Cold and damp areas seem to make symptoms worse. With the difficulty of diagnosis, there comes the frustration of the person with the Fibro, many times the symptoms are similar to other conditions, and with that different people show different symptoms. But most times it’s diagnosed when all other problems are ruled out, there is no set test to check for Fibromyalgia and with that comes the trouble of finding the cause. Many are diagnosed with the tender points and with the wide spread pain over both sides of the body above and below the waist. Through out the time of this book, as you read you will learn how each of the people listed in here cope with their Fibromyalgia. Each of them listed are of different ages, cultures and even sexes. Mostly Fibromyalgia is diagnosed in Females, but there are the few males that have been recorded to have this condition. But reading their words will make you understand how we each cope and how we each are the others support system. People who don’t know each other, or whom never met, become a family through a condition that has no reason, or cure. Vicki/Lady Vader http://www.trueteam.com/vdutton http://www.greathealthcareplan.com/vdutton www.freewebs.com/victoriadutton Yahoo! Photos – Showcase holiday pictures in hardcover Photo Books. You design it and we’ll bind it! Quote Link to comment Share on other sites More sharing options...
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