newbie

[Guest guest]

Welcome, Mache!

I'm glad you jumped in right away (she subbed yesterday!). That's the best

way to go. :-)

I must ask -- how do you pronounce your name?

I'm Jacquie, the group moderator. My son, , has a dx of " autism/pdd "

(which seems an oxymoron to me), and he'll be six on August 28. He's an

only child. We live in Ontario, far far away from family and support.

<sigh> This group is a real lifeline for me!

What's you son's name? Where ya from?

Jacquie

[Guest guest]

Hello Mache,

I am Lori, I don't get on much but I do try. You will enjoy this list they are

great support when you need a shoulder or anything else.

Lori

newbie

Hello, I'm new to the group and just wanted to introduce myself. I have

a 4 and half year old son with autism. He is still non-verbal but

babbles all the time. Anyways, I'm happy to be part of the group.

Regards,

Mache

[Guest guest]

Welcome, Mache!

I'm Sara, SAHM to (aka Mikey) who will be 3 in September & has been

dx'd with autism since his 2nd birthday. (Happy birthday!) We also have

(Gabe) who just turned 1 in May. Oh, there's a husband and father

here too, his name is Matt. And that's us in a nutshell.

This is a very busy group but feel free to jump in anywhere and delete

anything.

How DO you pronounce your name, and what is your son's name?

-Sara.

[Guest guest]

Hi Mache. Nice to meet you. I am Tamara. My

daughter is 4 and a half too. She is autistic, ADHD,

and bipolar. She is also still non-verbal, though she

babbles a lot.

Great to have you in the group.....

Tamara

--- Mache wrote:

> Hello, I'm new to the group and just wanted to

> introduce myself. I have

> a 4 and half year old son with autism. He is still

> non-verbal but

> babbles all the time. Anyways, I'm happy to be part

> of the group.

>

> Regards,

> Mache

>

>

=====

Tamara

mom to :

Ebony, 4 yrs -- asd, ADHD, bi-polar

, 1 year

wife to:

Terry, love of my life

__________________________________________________

[Guest guest]

Mache unsubbed without a word.

<shrug>

[Guest guest]

Nice to meet you Mache!

Where are you from???

Welcome to the group!

Penny

Mom to Jacqui, 7 1/2, HFA

Jeff, 19

[Guest guest]

Nicki,

I am a patient with Chronic Regional Pain Syndrome also know as Reflex

Sympathy Dystrophy Syndrome. To make it easier, I will refer to the

common abbreviations which are CRPS & RSD.

I was the one that was concerned with the fact that my pain was so

severe but that the surgery I just had was suppose to make me feel

better. That is when I was concerned that my orthopedist was going to

think that I was having something going on in my head.

My surgeon is young & I believe that it is a God send to me that it

allowed him to remember patients he had observed during his medical

training. He knew after the third or fourth time after I went into his

office crying in severe pain & nothing could soothe me. He also had an

assistant in the room that said the fact that I had RSD. That was a new

one on me. I'ld had never heard of this disease before.

Hopefully, if your doctors already mentioned chronic pain syndrome to

you, the doctors are already planning on what they need to do to ease

your pain.

>Nicki wrote:

Hello everybody

>My name is Nicki I'm 35 and I come from Guildford, Surrey. I have

suffered from lower back pain for many years. I have had 5 procedures

carried out on it consisting of facet joint injections and RF all to no

avail. I'm beginning to think that the professionals think I have

chronic pain syndrome and that I'm imagining it which really frightens

me and leaves me feeling very alone. It would be nice to hook up with

others who are going through the same experience.

Nic x

[Guest guest]

Hello, I've been living with chronic pain for almost a year now.

I've been to quite a few doctors. I used to have terrible burning pain all over

my body.

My general doctor put me on Cymbalta, and my neuro has me on Gapbentin 1,200 mg

3x a day. Most of the burning pain went away.

The only problem I have now is some intense itching in my thigh area. Once in

awhile I'll have a pins and needles feeling all over. My

abdomin always hurt on the left side. It really hurts if I press down

on it, sometimes it takes my breath away. I also have a pulling

sensation bilateral by my pelvic bone, and it feels raw always on my

pelvis.

I've been tested for every disease possible, had a whole body MRI, EMG, and EKG,

and all test come up negative. I really wish I knew what is going on.

I would love to return to work soon and start living a normal life again. It's

really unfortunate that with the technology we have today nobody has a clue what

is happening to me.

If anybody has similar symptoms please contact me, or at least help me learn how

to cope with this. Some days I just want to kill myself, not joking.

Nikki

[Guest guest]

Thank you soo much for your reply, I think I'm going to try the heat

pad and massage, and I think it might be wise to ask my neuro if I

should start seeing a pain specialist too, since this has been going on

for soo long.. I think it's time to actually step up to the plate and

do it. Thank you for your help

Nikki

[Guest guest]

You're welcome, and I hope you get things worked out, because we all want

less pain, and the courage to deal with it in a positive way.

> Thank you soo much for your reply, I think I'm going to try the heat

> pad and massage, and I think it might be wise to ask my neuro if I

> should start seeing a pain specialist too, since this has been going on

> for soo long.. I think it's time to actually step up to the plate and

> do it. Thank you for your help

> Nikki

>

>

>