Re: Thiamine tetrahydrofurfuryl disulfide (TTFD)

[Guest guest]

Matt,

My child was seen by Dr. Lonsdale in the past. My child is older, verbal and

able to swallow pills so maybe that is the reason but Dr. Lonsdale put put

her on oral TTFD (8 pills 50mg ea per day). Some doctors and Andy told me

they believe this has some benefit but doubt its ability as an effective

chelator. I honestly am not sure but have kept my child on this but in

addition to the ALA for what it is worth. Just thought I would let you know

Dr. Lonsdale can and does use oral as well (these can be purchased in the

US).

Michele

[Guest guest]

We are using transdermal TTFD we got it thru a compounding

pharmacy. Dr called in the RX. We are seeing some real good

things right now, don't know if it is the TTFD, the gut bug

treatment or what.

Laurie

mom to Grace 5

--- In @y..., " carpentermt " <icarpenter@a...>

wrote:

> D. Lonsdale published a paper in Neuroendocrinology Letter,

2002 Aug,

> 23:(4):303-8, about using TTFD 50 mg twice a day in

suppository form

> in 10 children with autism. 8/10 improved in behavior based

on a

> symptom score. There is data in the study about increased

heavy

> metal excretion in all the kids, including Hg, As, Cd, Pb and Ni.

>

> The reason this was interesting is because it was twice a day

in

> suppositor, a much easier regimen than DMSA appears to be

for a young

> child.

>

> I contacted Dr. Lonsdale. TTFD is only available from Japan,

so a

> physician would have to e-mail information directly from Dr.

Lonsdale

> on how to obtain it.

>

> I was wondering if Dr. Amy or Andy have any comments on this

compared

> to DMSA.

>

> Thanks in advance, Matt

[Guest guest]

for the thiamine buff

[Guest guest]

carpentermt wrote:

> D. Lonsdale published a paper in Neuroendocrinology Letter, 2002 Aug,

> 23:(4):303-8,

Can we get to read this on line?

> about using TTFD 50 mg twice a day in suppository form

> in 10 children with autism. 8/10 improved in behavior based on a

> symptom score. There is data in the study about increased heavy

> metal excretion in all the kids, including Hg, As, Cd, Pb and Ni.

I read in a book that B1 can help to eliminate lead from brain. But, I have

not heard of Hg, etc. It is interesting.

Thanks.

mt

>

>

> The reason this was interesting is because it was twice a day in

> suppositor, a much easier regimen than DMSA appears to be for a young

> child.

>

> I contacted Dr. Lonsdale. TTFD is only available from Japan, so a

> physician would have to e-mail information directly from Dr. Lonsdale

> on how to obtain it.

>

> I was wondering if Dr. Amy or Andy have any comments on this compared

> to DMSA.

>

> Thanks in advance, Matt

>

>

> =======================================================

>

[Guest guest]

> > I contacted Dr. Lonsdale. TTFD is only available from Japan, so a

> > physician would have to e-mail information directly from Dr.

Lonsdale

> > on how to obtain it.

> >

> > I was wondering if Dr. Amy or Andy have any comments on this

compared

> > to DMSA.

> >

> > Thanks in advance, Matt

Aside from that I seriously doubt it is removing heavy metals, any doc

who imports it and then gives it to a patient will be in a LOT more

trouble than Kirkman Labs is with the FDA. The FDA would view it as

an " unapproved drug. " Hopefully someone will find a way to call it a

" nutritional supplement " which you could all then just buy.

Andy ,. ..