Re: Curious Q about exercise and types

[Guest guest]

Becky,

Type 2 here. In general, in the past, exercise has helped me maintain

muscle and even build muscle. Of course, I have not done much regular

exercise in the last 10 years (since kids were born - too busy and too

tired.) My progression over the last 2 years has accelerated from what it

was before. I feel like I need exercise.

Ruth

>From: " Maxwell " <rmax@...>

>Reply-egroups

><egroups>

>Subject: [] Curious Q about exercise and types

>Date: Wed, 6 Sep 2000 01:43:58 -0500

>

>

>

> I'm curious. Some can exercise and not lose muscles, others like me

>excerise and lose fast. Could this have to do with type 1 Myelin, verses

>type 2 Axonal? I'm type 2. So lets hear from each of you, your type, and

>if exercise helps or causes progression of muscle loss. ~>Becky M.

>(p.s. See what I mean , I'm full of em! LOL)

>

>

>

[Guest guest]

In a message dated 9/5/00 11:45:08 PM, rmax@... writes:

<< So lets hear from each of you, your type, and if exercise helps or causes

progression of muscle loss. >>

Interesting question. Exercise doesn't cause muscle loss for me, but does

cause rapid muscle weakness! Type 2. I have well-developed calves and all the

rest, and none are losing size, just strength. I LOOK about the same as I

have for 30 years, as far as my muscles are concerned, although I think my

hands may be getting thin.

Kat

[Guest guest]

In a message dated 9/6/00 6:13:59 AM, warrenre@... writes:

<< Of course, I have not done much regular exercise in the last 10 years

(since kids were born - too busy and too tired.) My progression over the

last 2 years has accelerated from what it was before. I feel like I need

exercise. >>

Hi Ruth. Just running a house with children in it is getting a lot of

exercise, and may be what is accelerating your CMT. Or, you may be programmed

to have the acceleration at that time of your life.

We do seem to have internal clocks with minds of their own (to mix a couple

of metaphors. LOL) Stress or trauma can upset that.

My 2 cents worth.

Kat

[Guest guest]

Thanks Kat,

I KNOW stress has taken its toll. I'm trying to get back to some sort of

exercise that will work for me now. What used to work well doesn't anymore.

But I'm having a hard time making exercise (whatever it ends up being) a

priority. Gotta keep working on that one. Just like I decided to make the

list a priority again. One thing at a time!

Big hug to all.

Ruth

>From: KathleenLS@...

>Hi Ruth. Just running a house with children in it is getting a lot of

>exercise, and may be what is accelerating your CMT. Or, you may be

>programmed

>to have the acceleration at that time of your life.

>

>We do seem to have internal clocks with minds of their own (to mix a couple

>of metaphors. LOL) Stress or trauma can upset that.

>My 2 cents worth.

>

>Kat

>

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[Guest guest]

Hi Becky and all, exercise? LOL I find it very difficult to exercise, the

pain and fatigue has put a damper on that portion of my life for now. I am

still trying to get the pain under control. However I do go to Hydrotherapy

2x weekly. I have found the water help take the load off and the heat helps

relax the muscles so I can do an hour twice a week. I have a PT who works

with me and this seems to help. By-the-way, Becky I have type 1A. Hope this

helps your survey, please let us all know how it comes out. thanks. jr

PS Sorry I went on and on.

[Guest guest]

Becky ...

I have been involved in physical conditioning all my life ... but started

weight training 18 months ago. I have put on muscle and have really trimmed

down at the same time.

[Guest guest]

Hi all, this is kinda or fun, just off the wall fun, for a very short time,

just copy, paste and go, the url.

http://www.datacomm.ch/rf.buecheler/Moving/Moving.htm

jr,

[Guest guest]

-----Original Message-----

From: oregonpapa@... <oregonpapa@...>

egroups <egroups>

Date: Wednesday, September 06, 2000 11:40 AM

Subject: Re: [] Curious Q about exercise and types

>

>Becky ...

>

>I have been involved in physical conditioning all my life ... but started

>weight training 18 months ago. I have put on muscle and have really trimmed

>down at the same time.

>

>

>

>>>>, whats your type if you know? ~>Becky M.