Guest guest Posted November 2, 2001 Report Share Posted November 2, 2001 LOL Vicki.....I think my stubborness makes up for my shortness!! :-) If you really want to you can see my pic, it's at the rheumatic.org site, the link is: http://www.geocities.com/SoHo/Gallery/6412/francofiles.htm take care :-) Connie > > Good grief Connie... You know how you picture people??? Well, I > certainly didn't picture you at only 5'2 " ... More like 5'7 " , don't know > why though...lol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2001 Report Share Posted November 2, 2001 LOL Vicki.....I think my stubborness makes up for my shortness!! :-) If you really want to you can see my pic, it's at the rheumatic.org site, the link is: http://www.geocities.com/SoHo/Gallery/6412/francofiles.htm take care :-) Connie > > Good grief Connie... You know how you picture people??? Well, I > certainly didn't picture you at only 5'2 " ... More like 5'7 " , don't know > why though...lol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2001 Report Share Posted November 2, 2001 LOL Vicki.....I think my stubborness makes up for my shortness!! :-) If you really want to you can see my pic, it's at the rheumatic.org site, the link is: http://www.geocities.com/SoHo/Gallery/6412/francofiles.htm take care :-) Connie > > Good grief Connie... You know how you picture people??? Well, I > certainly didn't picture you at only 5'2 " ... More like 5'7 " , don't know > why though...lol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2001 Report Share Posted November 2, 2001 I found ya...oohhh, you are an itty bitty!!! Lynn --- jhache@... wrote: > LOL Vicki.....I think my stubborness makes up for my > shortness!! :-) > > If you really want to you can see my pic, it's at > the rheumatic.org > site, the link is: > http://www.geocities.com/SoHo/Gallery/6412/francofiles.htm > > take care :-) > > Connie > > > > > > Good grief Connie... You know how you picture > people??? Well, I > > certainly didn't picture you at only 5'2 " ... More > like 5'7 " , don't > know > > why though...lol > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2001 Report Share Posted November 2, 2001 I found ya...oohhh, you are an itty bitty!!! Lynn --- jhache@... wrote: > LOL Vicki.....I think my stubborness makes up for my > shortness!! :-) > > If you really want to you can see my pic, it's at > the rheumatic.org > site, the link is: > http://www.geocities.com/SoHo/Gallery/6412/francofiles.htm > > take care :-) > > Connie > > > > > > Good grief Connie... You know how you picture > people??? Well, I > > certainly didn't picture you at only 5'2 " ... More > like 5'7 " , don't > know > > why though...lol > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2001 Report Share Posted November 2, 2001 Well I got the hair color right... Cool pictures! ~ Vicki ~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2001 Report Share Posted November 2, 2001 Well I got the hair color right... Cool pictures! ~ Vicki ~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2001 Report Share Posted November 2, 2001 Isn't it funny how we get a picture in our minds.....and then it turns out we were sooooooo wrong LOL Glad you liked the pics...they were actually taken mostly by meeeee at Dr. Franco's conference. I even took the one of him :-) take care and have fun tonight.....I really better get away from this computer, Connie > > Well I got the hair color right... Cool pictures! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2001 Report Share Posted November 3, 2001 Another group member with a terrific smile! No wonder people don't think we're sick...so far everyone has looked like the picture of health! Annette Re: Connie LOL Vicki.....I think my stubborness makes up for my shortness!! :-) If you really want to you can see my pic, it's at the rheumatic.org site, the link is: http://www.geocities.com/SoHo/Gallery/6412/francofiles.htm take care :-) Connie > > Good grief Connie... You know how you picture people??? Well, I > certainly didn't picture you at only 5'2 " ... More like 5'7 " , don't know > why though...lol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2001 Report Share Posted November 3, 2001 Thanks, Annette :-) You're right, most of the time we don't look sick. I remember we chatted about this very same thing at the rheumatic conference I went to in 1998. There was a whole room full of people who appeared to be in perfect health. As we know, that can either work for you or against you in some situations. Hope you have a great weekend, take care, Connie > Another group member with a terrific smile! No wonder people don't think > we're sick...so far everyone has looked like the picture of health! Annette > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2004 Report Share Posted January 16, 2004 Hi Connie, I wondered the same thing! In fact, I sent my Nephrologist an email about an hour ago asking that. You do have a good memory, my clearance was 30 in June. I asked my Neph in my email why my clearance would have dropped when my serum creatinine stayed essentially the same. I am pretty thin (5 ft 6.5 inches and 120 pounds) and I don't know if it is because I don't have enough body mass. I for sure had symptoms in my teens, so I am over 25 years with IgAN. In fact, I think protein was first noted 28 years ago now. My how time flies when we are having fun! I am curious is your Nephrologist gave you any indication on how long he thinks you can maintain in the low 20s. I have not given up on the ten year goal yet :-) I am willing to admit this is a setback, but I do not forfeit the battle by any means! In a message dated 1/16/2004 12:40:20 PM Pacific Standard Time, csink@... writes: > , > Thanks for the info. I'm very curious what this all means. I say that > because of a conversation that you and I had 8-10 months ago you asked me > where my labs were because you and I have been running neck and neck for > quite some time. > > We both have had IgAN for 20+ yrs, we both run around 3.0 Serum Creatinine, > we both have had potassium problems and can have high protein spill but the > difference as I remember it was that my Creatinine Clearance was at 22% and > you were closer to 30% at the time. (I hope I remember all of these numbers > as they really were) I always wondered why my clearance was so much lower > when all other factors seemed to be the same. How much of this difference > is due to height, weight, muscle mass, activity level, age, etc., (I think > that we're close to the same age though) Any ideas? > > I'm curious about any thoughts out there on this. > > Connie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2004 Report Share Posted January 16, 2004 You know what Pierre, that could be it! I got an injury running, followed by the flu so it was about 4 weeks off running all together. I think you might be on to something. You are so smart, no wonder you are the leader! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2004 Report Share Posted January 16, 2004 You know what Pierre, that could be it! I got an injury running, followed by the flu so it was about 4 weeks off running all together. I think you might be on to something. You are so smart, no wonder you are the leader! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2004 Report Share Posted January 16, 2004 You know what Pierre, that could be it! I got an injury running, followed by the flu so it was about 4 weeks off running all together. I think you might be on to something. You are so smart, no wonder you are the leader! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2004 Report Share Posted January 16, 2004 You are still on Connie! Ten years is the goal, and this is one race I don't want to be first in :-) I'll let you know when my Nephrologist responds. Probably won't hear until Monday though. In a message dated 1/16/2004 2:01:17 PM Pacific Standard Time, csink@... writes: > Let's just keep counting on our bet of 10 years! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2004 Report Share Posted January 16, 2004 You are still on Connie! Ten years is the goal, and this is one race I don't want to be first in :-) I'll let you know when my Nephrologist responds. Probably won't hear until Monday though. In a message dated 1/16/2004 2:01:17 PM Pacific Standard Time, csink@... writes: > Let's just keep counting on our bet of 10 years! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2004 Report Share Posted January 16, 2004 You are still on Connie! Ten years is the goal, and this is one race I don't want to be first in :-) I'll let you know when my Nephrologist responds. Probably won't hear until Monday though. In a message dated 1/16/2004 2:01:17 PM Pacific Standard Time, csink@... writes: > Let's just keep counting on our bet of 10 years! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2004 Report Share Posted January 16, 2004 , Could you possibly have dropped some muscle mass? That could be one reason your serum creatinine is the same, but your cr cl is less. Pierre Re: Connie > Hi Connie, > > I wondered the same thing! In fact, I sent my Nephrologist an email about an > hour ago asking that. You do have a good memory, my clearance was 30 in > June. I asked my Neph in my email why my clearance would have dropped when my > serum creatinine stayed essentially the same. I am pretty thin (5 ft 6.5 inches > and 120 pounds) and I don't know if it is because I don't have enough body > mass. I for sure had symptoms in my teens, so I am over 25 years with IgAN. In > fact, I think protein was first noted 28 years ago now. My how time flies > when we are having fun! > > I am curious is your Nephrologist gave you any indication on how long he > thinks you can maintain in the low 20s. I have not given up on the ten year goal > yet :-) I am willing to admit this is a setback, but I do not forfeit the > battle by any means! > > > Quote Link to comment Share on other sites More sharing options...
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