Great plains lab not reliable?

[Guest guest]

The organic acids is an ok

> test, but the interpretation is what doctors have such problems

with - and

> of course it's what parents need most. Many docs have sent

multiple tests

> off to a number of labs and GPL is the only one that consistently

comes up

> wrong for this test.

Could someone elborate on what is wrong with the tests? Which test

consistently comes back wrong???? And in what way???? We just got

the results back from GPL and we had the OATs done and the gluten

casein peptide tests. Nothing like hearing they are not accurate

after spending $350 on them. Can someone fill me in so I don't feel

like it was a COMPLETE waste of money!!!

[Guest guest]

> > There are several issues. the first is yeast vs yeast metabolites.

Their

> > test is for metabolites, not yeast. This does not mean yeast is not a

> > problem, just that NO ONE ELSE IS ABLE to replicate this stuff. That is

a

> > BIG tipoff. Many doctors report that in-depth testing have shown that

they

> > have NEVER found yeast in the gut of autistic kids, just cancer and AIDS

> > patients. We need to really think about that. The organic acids is an

ok

> > test, but the interpretation is what doctors have such problems with -

and

> > of course it's what parents need most. Many docs have sent multiple

tests

> > off to a number of labs and GPL is the only one that consistently comes

up

> > wrong for this test. AAL gets slammed in secretin antibodies, peptides,

and

> > a number of other tests they do. Great Smokies is much better but few

buy

> > their gut dysbiosis index at all! This is one area we intend to hit on

at

> > the next Orlando conference. What's real and what's not so we all stop

> > wasting time and money. We all live and learn as we go.

We are getting ready to collect our sons urine for the GPL organic acid test

tomorrow. So, you're saying this is a good test, but doctors have a

difficult time interpreting the results. We tried to collect urine for the

amino acid test for Great Smokies, and failed miserably. Those darn u-bags

were a waste of time. I managed to collect 3 urine samples, the rest leaked

into the diaper. Can't you test a childs plasma for the amino acid test,

and if so, why do the urine?

a

[Guest guest]

Holly, thanks for the info....was getting ready to do some testing on our son.

The problem is now.........is there ANYBODY that does accurate, honest,

reliable testing? Or should we just go on our own " instinct " and blindly try

to

treat Dylan ourselves? We are doing the GFCF diet and some supplements

already. I, too, am confused now......and I don't trust anybody anymore!

Not talking about you!! LOL So what would you advise?????? Thanks for

any help.

[Guest guest]

Wow Holly,

This is a big can of worms. Please keep us all posted as I am sure you will.

Thank you so much for checking this out. My sons eyes have been itching so

much He is so miserable that I have been giving him claritin syrup. I hate

to but I thought maybe allergy. Guess what, it doesn't work so I thought it

was yeast coming back. In fact I am almost sure of it. I am going to

elimate sugar again completely and increase his biotin. We shall see

Juli

[Guest guest]

In a message dated 6/13/00 7:52:17 AM Central Daylight Time,

maximom@... writes:

<< Many doctors report that in-depth testing have shown that they

have NEVER found yeast in the gut of autistic kids, >>

We had the Great Smokies Lab stool analysis--the complete one that looks for

parasites,etc. All that was found was that my son was high in yeast. Can

anyone tell me what that means in relation to the above post?

[Guest guest]

Oh honey, this can has been opened off and on for 2 years, we're just

revisiting again. There has been a big discussion on the SD list (pretty

medical list) about all the different labs, people's experiences with them,

doctor's experiences, and doctor critiques of them. Solid medical

information hurts this lab the most. One doctor sent split samples to a

number of labs and the only one that consistently messed up was GPL. These

same doctors - who know their autism stuff - also think the interpretations

are inventive but not at all medically sound. That should make people

think.

I am not telling anyone to do or not do any testing but maybe do some

research about the issue before you test since it's likely that you will be

the one interpreting the tests anyway.

Holly

-----Original Message-----

From: minold@...

>Wow Holly,

>

>This is a big can of worms. Please keep us all posted as I am sure you

will.

>Thank you so much for checking this out. My sons eyes have been itching so

>much He is so miserable that I have been giving him claritin syrup. I hate

>to but I thought maybe allergy. Guess what, it doesn't work so I thought

it

>was yeast coming back. In fact I am almost sure of it. I am going to

>elimate sugar again completely and increase his biotin. We shall see

[Guest guest]

Holly et al..

I have to tell you I am not happy with any labs, after my son had about

1/2 of his bodies blood contents removed, just to be told " Nothing looks

wrong..(and we KNEW he had a yeast problem) I skip the testing, as long as the

treatment is safe...Who needs an idea of where your kid stands, if half the time

you don't get the right info? I wouldn;t be surprised if my husband got a

positive pregnancy test back from some of these labs :0)-Shari

[Guest guest]

You can do the stool sample through Great Smokies if the urine isn't what

you want to do. It's gross, but it will tell you what is in the stools. I

have the same dilemma with my son who was on antibiotics for several years

until we eliminated dairy. We gave him lots of acidolpholus, some herbs, &

homeopathics as needed, so I don't know if this is a problem for him or not.

But we continue to supplement off & on the acidolpholus (when dh

remembers!). His Great Plains test that was done 3 years ago didn't

indicate yeast & one of the elevations Shaw said could indicate slightly

elevated yeasts. Great Smokies is probably your best bet. I know many kids

have seen improvements with the Nystatin and/or Diflucan and I believe the

parents who see the changes in front of their eyes. I wholeheartly believe

it is NOT a scam, just an appropriate intervention in some children, esp.

with loose stools & lots of antibiotics. Just don't know if its for my

child since his stools have been formed for years since taking out the dairy

& no antibiotics. As usual, no clear cut black & white answer here!

Janice

>Hi

>... I am confused. Do you buy into the whole yeast problem/nystasin etc?

Is

>it a scam to make $$ off of us sad parents?

>