Re: Sweat test scheduled, what do I expect?

October 30, 2000

I'm not sure why anyone has to wait so long for the results they are ready in

2 to 3 hours. Maybe we have had so many kids tested they don't want us

hanging around so they tell us as soon as they have the answer? The sweat

test is a solution is swabbed on the skin and a tiny electrical impulse is

given the sweat glands (to make them sweat) the sweat is collected in a

plastic disc that is covered in plastic (helps to sweat) the test is really

quick my 8th baby has been tested 3 times 3 ways (he is a carrier) He had the

cheek brush test, the blood DNA test, and the sweat test (he was

FTT,reflux,preemie)My best to you and yours. BeckyB.

October 30, 2000

In a message dated 10/30/00 1:58:34 PM Pacific Standard Time, Mmloft@...

writes:

<< cfparentsegroups >>

We (and our child) found out right away; they just stimulate electronically a

tiny area

of the arm, usually, put gauze on it, and weigh and measure and analyze the

chloride, usually sodium, sometimes potassium, too of the chloride and give

you

a resulting figure in relation to average; for example many people test

around 23-26;

our CFer hit 102; one of my cousing hit 68, and I came out at 175! There has

not

been found to date any connection between high sweat chloride excretion amount

or mineral content and severity of disease, only to dehydration and rare,

seizures

when extremely dehydrated (not the same as epileptic condition). That's the

best

I can do at this time of the evening; I hope it helps. There are rare cases

of double

DeltaF508 gene copies who are very ill at diagnosis, often with meconium

ileus, but

not always where the sweat chloride excretion level is about 33; in these

cases, the

child clearly has cf, and is jost not losing much more than the average

amount of

sodium chloride. Good luck with the test, and if you don't keep us posted,

we will

all be short of breath! n Rojas wcf, mom of 3, 1 wcf--kids grown and

fine, mom

a bit off kilter lately--too many doctor appointments!

October 30, 2000

Thank you, , n wcf

October 30, 2000

Meredith -

My daughter had the test at 13 months old. A solution was put on her arm, and

then her arm was wrapped and plastic was put on top of that. She had to stay

that way for about half and hour, but it didn't seem to cause her much

discomfort (although my older children who had it said it burned and itched a

little). It took us 1 to 2 weeks to get the results, but I think our doctor

was out of town for part of the time, and we didn't call because we had no

reason to worry that the results might be positive (oops!).

Hang in there. I think the waiting is worse than anything . . .

, mom of Syd, 2 w/cf

>

> OK, we finally got one scheduled for Wed. Nov 1 at 10 am (EST). Is

> there anything I can expect? Dylan is almsot 11 months. Can you

> tell me what is involved? Will they be able to tell immediatley?

> Will I? How soon did you all find out?

> Thank you all so much...

> Meredith

>

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October 30, 2000

My daughter has cf but my son was sweat tested at 3. They put white stuff on

his arm then covered it in plastic for about 1 hour. We knew in a couple of