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Re: Re: [Listen-Up)LVAs and caution

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At 12:52 PM 3/6/01 +0000, you wrote:

>HEAD INJURIES (Maybe wearing a helmit would help)

>soccer, football, basketball, gynastics, many physical education and camp

>games that involve chasing or being hit with balls, diving boards,

>ice/roller skating, skateboarding, monkey bars, junping on the bed, " horse

>play "

One of the first things my ENT told me was to encourage my son to love

tennis (and he doesn't have LVA, but he does have a Mondini). :-) There's

also track & field, and there's not a lot of risk of head injury in

basketball or even baseball either. But it's a GREAT excuse to keep him out

of football. :-)

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For those who are wondering, EVAS=Enlarged Vestibular Aqueduct Syndrome.

> After reading this, how do

> we raise our kids NOT to be couch potatoes?

For us, this was something of a dilema. We couldn't restrict all activities for

JD, after

all, he is a child. We felt that restricting all of his activities would be

going too far.

Much as I would like to be able to protect him from everything, life happens and

I have to

let him live that life. But where do we draw the line? Fortunately, JD is not

into sports,

so we don't have to worry about that too much. This year he doesn't have PE so

that's not

a worry for now, but in the past we have had him excused from any contact sport

activities

(volleyball was big in PE last year). I still have issues about this one

relating to JD's

broken arm earlier this year, but that's another story.

> SPINNING (EVA can cause dizziness and nausea)

Some kids with EVA love to spin, the spinning doesn't cause dizziness. It's just

another

one of those things for which there are no set answers (as if our lives weren't

filled

with enough of those).

When JD was old enough, we taught him about how hits on the head and such could

affect his

hearing. He was very aware that jarring his head can cause more of his hearing

to be

lost - and it was something he could never get back. We let him be part of the

solution.

He's old enough now to make these decision for himself - though now with the CI,

it's not

that big of a deal, but it's not completely a moot issue because he does still

wear a

hearing aid in the other ear (but no longer gets much from it).

Egad....Gotta run!

Kay

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> One of the first things my ENT told me was to encourage my son to love

> tennis (and he doesn't have LVA, but he does have a Mondini). :-) There's

> also track & field, and there's not a lot of risk of head injury in

> basketball or even baseball either.

Hey! Tennis! I didn't even think of that one! Also, we're going to see if

likes bowling and golf. We're thinking of letting him play soccer

until the kids start " heading " the ball. wanted to take martial arts

but I'd say that's a pretty definite no. :-(

Carol - mom to , 4.10, mod to severe/profound HL, EVAS

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To add to this list:

PRESSURE INSIDE THE HEAD

blowing hard into an instrument, giving birth, ?constipation?

flying on a regular airplane while having fluid in ones ears

HEAD INJURY

Volley ball, even being near games that are being played where a ball may

fly ones way or people may crash into them

From what I've read and learned so far- and not to be so over protective,

but people with Enlarged Vestibular Aqueducts should avoid a lot of things:

(I am " just " a mom searching info., not an ENT) After reading this, how do

we raise our kids NOT to be couch potatoes? The ? are the ones I am still

trying to find out.

HEAD INJURIES (Maybe wearing a helmit would help)

soccer, football, basketball, gynastics, many physical education and camp

games that involve chasing or being hit with balls, diving boards,

ice/roller skating, skateboarding, monkey bars, junping on the bed, " horse

play "

SPINNING (EVA can cause dizziness and nausea)

gynastics, dance spinning, ?rollercoaster or amusement park rides?

BARAMETRIC PRESSURE

unpressurized planes (the FAA things regular flights are okay as sudden

losses in barametric pressure is very rare), helicopters, fast elevators in

tall buildings, bungee jumping, deep sea diving, ?regular diving?, ?visiting

the mountains or valleys?

WHIPLASH

definitely use carseats until age 4 and a booster until 80 lbs.,

?bumber cars?

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