Happy Day After Easter Card

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[Guest guest]

... thank you for the beautiful card. Hope you have a wonderful

Easter.

Vicki

[Guest guest]

Cari

I will keep in my prayers. I know too well the side effects of prednisone

withdrawl. I think the worat is behind me now and I started last night walking

again. I am starting with short 1 milers and will gradulally increase back up

to my 3 1/2 mile treks. It feels soooooooooooooo good to get out and feel like

I am actually doing something good for my body !!! Woooooooooohooooooooooo !!!!

[Guest guest]

It was beautiful . Gave me goosebumps. Hope everyone had a great

holiday weekend. We have had beautiful, high 80's weather and now it is in

the low 60's and suppossed to freeze tonight. Had to haul the jeans and

sweaters out again.

sees his Rheumotologist tomorrow. He is suppossed to go completely

off Prednisone to try and help his hip joint. This is good news I know, but

makes me very nervous. Now his little system has to work right this time!!!

Hugs to all,

Cari

>From: anzavic@...

>Reply-To: OurMyositis

>To: OurMyositis

>Subject: Re: Happy Day After Easter Card

>Date: Mon, 16 Apr 2001 20:20:12 -0700 (PDT)

>

>

>

>... thank you for the beautiful card. Hope you have a wonderful

>Easter.

>

>Vicki

>

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[Guest guest]

Hi Cari...I didn't know that has a problem with his hip joint. Is it

related (I'm sure it is) to his DM? I'll keep him in my thoughts. Annette

Re: Happy Day After Easter Card

>Date: Mon, 16 Apr 2001 20:20:12 -0700 (PDT)

>

>

>

>... thank you for the beautiful card. Hope you have a wonderful

>Easter.

>

>Vicki

>

_________________________________________________________________

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[Guest guest]

So glad you are feeling so much better. Enjoy your walks. They are good

for the soul.

Hugs,

Cari

>From: catzmeowz@...

>Reply-To: OurMyositis

>To: <OurMyositis >

>Subject: Re: Happy Day After Easter Card

>Date: Tue, 17 Apr 2001 10:19:45 EDT

>

>Cari

>I will keep in my prayers. I know too well the side effects of

>prednisone withdrawl. I think the worat is behind me now and I started

>last night walking again. I am starting with short 1 milers and will

>gradulally increase back up to my 3 1/2 mile treks. It feels

>soooooooooooooo good to get out and feel like I am actually doing something

>good for my body !!! Woooooooooohooooooooooo !!!!

_________________________________________________________________

Get your FREE download of MSN Explorer at http://explorer.msn.com

[Guest guest]

Annette,

developed Avascular Necrosis in his R)hip due to extended Prednisone

use. Fatty tissue has developed, cutting off the one vessel that feeds the

hip socket. The top of 's femur is a little rough looking but the bone

hasn't started showing any dead spots yet. We are taking him off Prednisone

to stop the development of the fatty deposit and hoping that his body will

absorb that fatty deposit before permanent damage occurs. Because of his

age, he would not be able to have hip replacement surgery for many years.

We lowered his Pred. usage about 6 weeks ago and he hasn't complained of

pain in his hip for a few weeks. Or, I should probably say, I haven't

noticed him limping or walking funny in the past few weeks. rarely

ever complains. He will limp around outside trying his best to keep up with

all the neighbor kids. One afternoon about a month ago I knew he was

hurting because he was really limping around outside. The dozen or so kids

that all play together decided to play soccer in someone's backyard. They

all took off at the same time in the same direction. had had it trying

to keep up. I just happened to be looking out the window. stood

there and then sat down on the curb with his head in his hands and cried.

As his parents, it is always a hard call. If we called him inside he would

stand at the window and cry because he wasn't being allowed to join in. We

have learned to let him make the decision of when enough is too much. He

came in a few minutes later and asked if he could take a warm bath. We have

a whirlpool tub and that really seems to help his hip. I had dried my tears

by then. It's tough sometimes. If ever complains I know he is

really, really hurting.

Fern and Mike have also developed Avascular Necrosis in a hip joint. Not

everyone who takes Prednisone develops this.

Hugs, Cari

>

>Reply-To: OurMyositis

>To: <OurMyositis >

>Subject: RE: Happy Day After Easter Card

>Date: Tue, 17 Apr 2001 10:20:25 -0400

>

>Hi Cari...I didn't know that has a problem with his hip joint. Is it

>related (I'm sure it is) to his DM? I'll keep him in my thoughts. Annette

>

> Re: Happy Day After Easter Card

> >Date: Mon, 16 Apr 2001 20:20:12 -0700 (PDT)

> >

> >

> >

> >... thank you for the beautiful card. Hope you have a wonderful

> >Easter.

> >

> >Vicki

> >

>

>_________________________________________________________________

>Get your FREE download of MSN Explorer at http://explorer.msn.com

>

>

>

>

>

>

[Guest guest]

Cari...Even though he doesn't know me, please just give a gentle hug

from me. I don't have any other words. Annette

Re: Happy Day After Easter Card

> >Date: Mon, 16 Apr 2001 20:20:12 -0700 (PDT)

> >

> >

> >

> >... thank you for the beautiful card. Hope you have a wonderful

> >Easter.

> >

> >Vicki

> >

>

>_________________________________________________________________

>Get your FREE download of MSN Explorer at http://explorer.msn.com

>

>

>

>

>

>

[Guest guest]

I did just as you asked. Thank you Annette.

Cari

>

>Reply-To: OurMyositis

>To: <OurMyositis >

>Subject: RE: Happy Day After Easter Card

>Date: Tue, 17 Apr 2001 15:10:27 -0400

>

>Cari...Even though he doesn't know me, please just give a gentle hug

>from me. I don't have any other words. Annette

>

> Re: Happy Day After Easter Card

> > >Date: Mon, 16 Apr 2001 20:20:12 -0700 (PDT)

> > >

> > >

> > >

> > >... thank you for the beautiful card. Hope you have a wonderful

> > >Easter.

> > >

> > >Vicki

> > >

> >

> >_________________________________________________________________

> >Get your FREE download of MSN Explorer at http://explorer.msn.com

> >

> >

> >

> >

> >

> >

[Guest guest]

, Your card was so beautiful. Thank you. Sue