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Hi Cheryl,

Nice to meet you :o) Yes, I was referring to the Xmas pics of your triplets.

Jerry's pictures are not up yet; I am planning on taking some soon and getting

them

scanned, just haven't gotten around to it. It would seem that Jerry doesn't

weigh

too much more than in that picture; Jerry's 27 lbs. That's only an

eleven

pound difference and Jerry is 7! Wow, like I said, just by looking at your son,

I

know that Jerry is definitely RSS.

Many of the children whose pix were on that site resembled Jerry a great deal.

for one; and the other I can't remember his name. (terrible memory, looked

at

the pix yesterday and forgot kids names by today, lol)

Jerry seems, on the whole, to be thinner than the kids in those pictures,

though.

I suppose that's because he's 41 inches tall and 27 lbs; I guess he'd look a

little

chunkier were he say 35 inches tall. He has the same frail chest as the little

girl in the first picture that shows up in the list of pix on there. His

stomach

looks a bit distended most of the time too, but interestingly, I never thought

much

about that, since you can also see little baby sized abdominal muscles over his

distended belly.

Another thing I wanted to ask people on the list.....

Did you find that your children had trouble writing? Jerry spells very well

(Now

that he's on Ritalin, lol) and he can read, but writing is a chore. I tend to

let

him slide after about 5 written repetitions of each of his 20 spelling words

because he complains that his hands hurt. And I know that they must; he has

tiny

little wrists, and it just looks like the sort of activity that would be

painful.

The doctors have him on physical therapy to strengthen the muscles in his

wrists.

They seem to worry too much, to me at least, that he's not able to write as long

or

as skillfully as the other children his age. But the way I look at it, he has

the

hands of a one year old child; he's just not going to be able to control a

pencil

as well as other 7 year old kids and I don't think they have a realistic goal

here.

(to get him writing like other kids his age within a year's time).

So did anyone else have kids who had trouble handling a pencil? He's not

uncoordinated; he can catch and throw a ball and he can play pick-up-sticks very

well. He just can't make his letters look neat and not sloppy and childish like

a

pre-schoolers.

Thanks for your time,

Robin, maternal aunt to Jerry, aged 7, 27 lbs and 41 inches tall, ADHD

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Hi Robin,

I'm Cheryl, 's Mom. I don't think we've talked yet, but glad to meet

ya. If you're referring to the XMAS picture of all of us, he's 22 months old.

He's around 16 lbs. in that pix. Are Jerry's pics. out there? 's

always had full cheeks. When he was a baby, his cheeks were kind of tight and

all you wanted to do was kiss them to loosen them up. The tightness has gone

away, but they're still on the full side. He's got big brown eyes and long eye

lashes. I saw a picture once on the HGF Foundations pamphlet of RSS kids.

There were 2 children on the cover - 1 is Jodi's Max wearing the Arizona hat,

and the other little boy looked exactly like my . That's when I said to

myself there's no doubt he's RSS. So, if Jerry truly looks like , I'm

sure he is too. Sometimes you just go by the " look " .

Cheryl

Mom to , , and - all 26 months

biteme@... wrote:

> Hi all,

>

> I just looked at the picture of , Cheryl and 's son, and he

> looked so much like Jerry that I was literally speechless. I dont know

> how old is in this picture but he doesn't appear to be much

> smaller than Jerry is currently, and he carries more weight in his face.

> Those are really the only differences. Same wide eyes, same forehead,

> same smile, there is no doubt in my mind now that Jerry is RSS.

> On another note, I can't wait to share these pictures with my sister.

> These children are all so beautiful, and it looks like the older they

> get, the more 'normal' they start to appear.

> Thank you all for posting your pictures; they will be a great comfort to

> my family.

>

> Robin, maternal aunt to Jerry, aged 7, 27 lbs, 41 inches

>

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Danna,

I thought Storm looked alot like when I looked at his pics

too. Storm weighed 4lbs. 5oz. at birth but lost the 5oz befor

comming home. Do you know if you are going to the convention for

sure yet? I would like to see how Storm and would get along.

Where are you from? We are from Texas near the Ft. Worth area. We

can't wait to meet others at the convention.

Carmen mom to Storm

ds

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Carmen,

You have a beautiful family! Your son looks so much like my son! I

know you've already posted all the info, but can you tell me again how much

Storm weighed at birth? I loved the two month pic, had the same out-

fit. I have it put up. I have a ever growing box of momentous. When

is 19 and brings home a girl friend I plan on bringing out all the fun stuff

for show and tell. Ha, Ha.

Danna Mom to Carol, and 4 RSS.

Character cannot be developed in ease and quiet. Only through experience of

trial and suffering can the soul be strengthened, ambition inspired, and

success achieved.

--Helen Keller

Pictures

> Hi all

> I added a page of pics of Storm from 10 day to 4 1/2 years. Some of

> the pictures don't look so great. I'm not sure what I did wrong. Also

> the picture is bigger than the screen. Don't know how to fix that

> either. But you get the jist of what he has looked like.

> Hope you enjoy them as much as I do.

> I can really see the LOOK in the 10 month picture.

> Carmen, wife to , mom to Paisley 7 and Storm 4 1/2

>

> PS. Storm was finally started on pediasure. The wic office weighed

> and measured him and found it to be about the same as it was in

> October when last he was weighed and measured. They we extremely

> concerned and for the first time I saw them mark " failure to thrive "

> I did not like that. If you knew Storm you would understand. He

> thrives very well. The name fits to a certain extent.:)

> Well, looks like we are in for some more Dr. visits very soon.

> I will be talking to our Ped. for advice about our Ped. Endo, and

> about getting our insurance to pay for us to see Dr. H.

> More Later.

>

>

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Hi Carmen

We can't make it to the convention this year. Between work and school

the time isn't there. We live in Georgia, closer to North Carolina than

Atlanta. weighed 3 pounds and 8 ounces at birth. I'd love to see how

plays with a real peer group, one that is size equivalent as well as

age equivalent.

Danna Mom to Carol, and 4 RSS.

Character cannot be developed in ease and quiet. Only through experience of

trial and suffering can the soul be strengthened, ambition inspired, and

success achieved.

--Helen Keller

Re: Pictures

> Danna,

> I thought Storm looked alot like when I looked at his pics

> too. Storm weighed 4lbs. 5oz. at birth but lost the 5oz befor

> comming home. Do you know if you are going to the convention for

> sure yet? I would like to see how Storm and would get along.

> Where are you from? We are from Texas near the Ft. Worth area. We

> can't wait to meet others at the convention.

> Carmen mom to Storm

>

> ds

>

>

> ------------------------------------------------------------------------

> Always forgetting those important dates?

> Let the eGroups calendar remind you.

> http://click./1/3936/0/_/229381/_/957414059/

> ------------------------------------------------------------------------

>

>

>

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