Guest guest Posted November 1, 2007 Report Share Posted November 1, 2007 Lou and K, I have been on O2 for 3 years and am currently on 3L sleeping 4 to 5L with activity. I was diagnosed in June,2004. This hateful disease will be quite for a while then you realize you need a little more O2. And the increase in O2 gets you more comfortable. Don't be afraid of it. Your body needs it. Please don't let this disease scare you out of living. We gotta do what we gotta do. I was on prednisone for almost a year gained an huge amount of weight. 70 lbs in 8 weeks. I lost about 40 pounds of it and all of a sudden I needed to make a transplant decision and just can't do it so I have just baked and cooked and gone sweet crazy.. I am trying to quit. Lordy it is hard not to go in there and bake a pie...NO NO NO I'm gonna behave myself. LOL Joyce D has been fighting this monster for 10 years. She is THE TROOPER. ANY questions you have ASK. We have been just where you are and nothing is a crazy question..or off limits. Just remember You are a child of the King and He will give you strength to endure. Take Care of You. Love and Prayers, Peggy ipf 6/04 Florida " Worry looks around, Sorry looks back, Faith looks up. " Hi Lou, I am like you. I want to know what to expect. I was diagnosed just five weeks ago and I'm not on oxygen yet. There are a lot of members on here but we only hear from a dozen or so. I want to know who's been dealing with this for eight or ten years? How many years have some been on oxygen? Kay > I do have one BIG question. If I am on oxygen (level 2) 24/7 > forever, does that mean I am in the end stage??????? truth now, > guys!!! I have had PF for 5 years, non-progressive up until this > past Feb. now it is moving. Love, Lou > > Quote Link to comment Share on other sites More sharing options...
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