Guest guest Posted November 12, 2000 Report Share Posted November 12, 2000 you will obviously need me on the cover if you plan to make the best sellers list.Kinda like them trashy love novels use Fabio.The nf2 novel can use Handsome Jimmy/. Jimmy A BOOK?????? >Would anybody be interested in participating in a book about NF2 and our >experiences?? If so, I'll give you my ideas on how we could do it or get >yours...and all funds can go to NF reseach directly?? What do ya >think?????? > >Carol > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2000 Report Share Posted November 12, 2000 HI CAROL, IT SOUNDS LIKE A GREAT IDEA TO ME. HOPE YOU CAN MAKE IT HAPPEN. CATHERINE > A BOOK?????? > > > Would anybody be interested in participating in a book about NF2 and our > experiences?? If so, I'll give you my ideas on how we could do it or get > yours...and all funds can go to NF reseach directly?? What do ya > think?????? > > Carol > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2000 Report Share Posted November 12, 2000 on 13/11/00 5:48 AM, carol winarski at horizons@... wrote: > Would anybody be interested in participating in a book about NF2 and our > experiences?? If so, I'll give you my ideas on how we could do it or get > yours...and all funds can go to NF reseach directly?? What do ya > think?????? > > Carol > > > > I think it's a great idea Carol. i must say I had also wondered about another idea for a book or film..... whether Annette(?) would be interested in writing Jordan's story, from a mother's perspective.....some of her comments about how privileged she was in being privy to her daughter's innermost thoughts because she had been communicating for Jordan towards the end, really struck a chord, also Jordan's life seemed to cover it all........I thought how it might be cathartic/therapeutic for Annette because in her last contact she had said she was feeling lost without Jordan........but I am only new on the block here. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2000 Report Share Posted November 12, 2000 ou know, I think that is a great idea. And it is not the usual " disease of the week " type thing, but rather a different approach. Now all we have to do is convince Annette she should write a book! marie Prowse wrote: > on 13/11/00 5:48 AM, carol winarski at horizons@... wrote: > > > Would anybody be interested in participating in a book about NF2 and our > > experiences?? If so, I'll give you my ideas on how we could do it or get > > yours...and all funds can go to NF reseach directly?? What do ya > > think?????? > > > > Carol > > > > > > > > > I think it's a great idea Carol. i must say I had also wondered about > another idea for a book or film..... whether Annette(?) would be interested > in writing Jordan's story, from a mother's perspective.....some of her > comments about how privileged she was in being privy to her daughter's > innermost thoughts because she had been communicating for Jordan towards > the end, really struck a chord, also Jordan's life seemed to cover it > all........I thought how it might be cathartic/therapeutic for Annette > because in her last contact she had said she was feeling lost without > Jordan........but I am only new on the block here. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2000 Report Share Posted November 12, 2000 ou know, I think that is a great idea. And it is not the usual " disease of the week " type thing, but rather a different approach. Now all we have to do is convince Annette she should write a book! marie Prowse wrote: > on 13/11/00 5:48 AM, carol winarski at horizons@... wrote: > > > Would anybody be interested in participating in a book about NF2 and our > > experiences?? If so, I'll give you my ideas on how we could do it or get > > yours...and all funds can go to NF reseach directly?? What do ya > > think?????? > > > > Carol > > > > > > > > > I think it's a great idea Carol. i must say I had also wondered about > another idea for a book or film..... whether Annette(?) would be interested > in writing Jordan's story, from a mother's perspective.....some of her > comments about how privileged she was in being privy to her daughter's > innermost thoughts because she had been communicating for Jordan towards > the end, really struck a chord, also Jordan's life seemed to cover it > all........I thought how it might be cathartic/therapeutic for Annette > because in her last contact she had said she was feeling lost without > Jordan........but I am only new on the block here. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2000 Report Share Posted November 12, 2000 ou know, I think that is a great idea. And it is not the usual " disease of the week " type thing, but rather a different approach. Now all we have to do is convince Annette she should write a book! marie Prowse wrote: > on 13/11/00 5:48 AM, carol winarski at horizons@... wrote: > > > Would anybody be interested in participating in a book about NF2 and our > > experiences?? If so, I'll give you my ideas on how we could do it or get > > yours...and all funds can go to NF reseach directly?? What do ya > > think?????? > > > > Carol > > > > > > > > > I think it's a great idea Carol. i must say I had also wondered about > another idea for a book or film..... whether Annette(?) would be interested > in writing Jordan's story, from a mother's perspective.....some of her > comments about how privileged she was in being privy to her daughter's > innermost thoughts because she had been communicating for Jordan towards > the end, really struck a chord, also Jordan's life seemed to cover it > all........I thought how it might be cathartic/therapeutic for Annette > because in her last contact she had said she was feeling lost without > Jordan........but I am only new on the block here. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2000 Report Share Posted November 12, 2000 Carol, I like the book idea. I've often thought of it but I sensed that people were too much into privacy. One thing that has struck me about this group is their ability to survive against the odds, to have courage, to be able to suffer the indignity with poise and strength. I've kept the sayings, writings and poems of many of the members. they inspire me and I know if presented correctly, they could inspire others with chronic illness. Let's do it!!!!Vicki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2000 Report Share Posted November 13, 2000 Well, Jimmy....would you be willing to wear SPEEDOS??? LOL! And you have to shave your head!!!!! Carol Jimmy wrote: > you will obviously need me on the cover if you plan to make the best sellers > list.Kinda like them trashy love novels use Fabio.The nf2 novel can use > Handsome Jimmy/. > Jimmy > A BOOK?????? > > >Would anybody be interested in participating in a book about NF2 and our > >experiences?? If so, I'll give you my ideas on how we could do it or get > >yours...and all funds can go to NF reseach directly?? What do ya > >think?????? > > > >Carol > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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