Re: Fibromyalgia/Normi and all

[Guest guest]

Hey Norms.....and all

Well I

haven't said much about my medical condition lately, but it's mostly

because I am pissed! As you know, I was tested for Human Parvo virus

and it came back positive. After reading up on this virus I came

across some info that told me it mimicks Lupus, and like Lupus it attacks

parts of you body, like your pancreas.

Well I

had a Dr visit and he tells me he thinks the Parvo is not active although

my test tells me it is a 7.8 (normal range is 0.9 to 1.1) and he tests

my ANA AGAIN. ANA comes back negetive again.

So we

are back on the band wagon again sending me from Dr to Dr.....I am losing

weight due to constant diarrhea, I hurt so bad, my joints and muscles hurt....I

have NO energy again. So I've chalked it up to a fibro flare again.

He took me off Naprosyn and put me on Ultracet,which I am taking 2 pills

3x's a day along with Darvocet....it dulls the pain and that is about it.

I do NOT have good pain control.

Anyway

back to my point! My pcp sent me to a Endicr.Dr....after waiting

for 4 hours to see this man you know what he tells me......LOSE WEIGHT,

and I will cure my diabetes and not have to use the CPAP machine anymore.

Wel first off I am losing weight that is why my pcp sent me to the idiot

in the first place! Second, I will Never cure the diabetes, because

my pancreas has been damaged from so many attacks! Aand third, I

am so use to the CPAP machine I will probably never be able to sleep

without it now!

Anyway, pcp called and wanted

me to have another Ct scan done on my liver. He keeps telling me

there is something wrong he just doesn't know what. WELL... I have

Fibro and parvo virus!!!!! he keeps blowing off the parvo......

So I am being pissed off right

now and refusing to have anymore tests done or seeing anymore quacks!

I've been doing this for 5 years now and the merry go round never stops!

I go from one Dr to the next, test after test for them to tell me to lose

weight and get rid of my stress. they are MY stress!

I know I am being a butthead

about this, but right now I am really mad! When I asked what we need

to do about the parvo, he said NOTHING!

Ok, I'm off the band wagon.......

Love, Becky

Normi Balderrama wrote:

I will have to read more about myofascial pain. I

was told by 3 doctors over

a period of years that I had this. I just clumped it in with Fibro,

although

I was told it was not exactly the same though.

I was originally told I had polymylagia and to start reading about

polymoyositis. When I ready bout pmyositis, i got really freaked out.

They

have check my muscle enxzymes and they were negative.

The first rjeumy I ever seen said he predicted this, and he predicted

many

other things that did happen over the many years.

Love, Normi

Fibromyalgia

>There is a page on my site that shows the trigger points and symptoms

>for fibromyalgia. The trigger points are one of the main symptoms

>doctors use to diagnose fibromyalgia.

>

> http://www.itzarion.com/fibromyalgia.html

>

>Hope it helps.. huggles..

>Rion

>

>

>

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>http://www.itzarion.com/lupusgroup.html

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