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Billy's home!

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Hi Everyone,

I just wanted to let you all know is finally home. He's in

watching the new Mc movie as I type. :)) The ped still isn't

really sure what, if anything, had. He said could have just

been colonized with pseudo and not had a real infection. His white cell

count was normal and other than one time, he didn't run a fever. We did

decide to change the trach more often--once every 2 or 3 weeks instead of

once a month. Maybe that will help keep the pseudo at bay. I did want to

extend a big thank-you to everyone who sent well wishes and those who

thought about us but just didn't have time to e. :)) Your thoughtfullness

is appreciated. Take care everyone...

Sue ( & Jack)-worn out parents to the greatest kids on earth--

Chris-8: Leigh's Disease, MR (mild), hypotonia, non-walker/talker

-7: Leigh's Disease, MR (mild), hypotonia, non-walker/talker, trach

tube (tracheomalasia), g-tube/fundo http://jscb.home.mindspring.com

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