Re: Shirley and Sharon and Jackie.....RE: Need help with a letter

October 11, 2006

I watched that show last week and it brought more tears to my eyes than any other. I am in no way disabled in that way. But I know it is coming. My husband and I just bought a house in March of this year. To our dismay, I was diagnosed in late April. I wish we would have known about my dx before because I bet we would have had a house built instead. We could have made sure certain things would have been "upgradeable". Now in the future ahead, I worry about how things are going to be. So far the only disabling effect I have is walking long periods of time, like at the grocery store. Just walking from the car to the store is starting to really wear me out. My shopping trips take hours because I have to go so slow so as not to get so dang tired and worn out. I know the inevitable is coming and I am just so glad that the ones who need help can get it throught channels such as this show. Just

wanted to throw my 2 cents in. Love to all Tammy, TxJackie Hanan wrote: Boy I sure could use them to make my house disabled friendly. I love the idea of having a level shower. Mine is much too small, and I have a hard time getting in and out. I thought one like they have

in “school locker” rooms would be ideal. I need ramps too, and grab bars. A few years ago I had a house built to accommodate me, and sadly my hubby lost his job and we had to sell it. There was a gal on that show last week I think that was in a wheelchair, and I didn’t see the show, but blurbs here and there, but she was so grateful, and happy with what I did see. I wish your friend good luck Shirley,

and I’m sure your letter will help! I don’t know what their criteria is to get chosen? Maybe something on the lines of why you think she deserves to be chosen? What her friendship means to you? Smiles, Jackie p/s Sharon I finally got my e-letter off to you yesterday. Hopefully you got it? I sometimes don’t get all the messages from the group, so I never know half the time if my friends and family get mine either? From: MSersLife

[mailto:MSersLife ] On Behalf Of Sharon MarsdenSent: Tuesday, October 10, 2006 7:25 PMTo: MSersLife Subject: Re: Need help with a letter I think I would stress that she wants to be independent as independent as possible. Is she totally disabled? In a wheelchair all the time? Can she use her hands? If so having a truly accessible kitchen and laundry room would be a big deal for her. My 40 y/o

nephew is disabled from Muscular Dystrophy. His house was designed with his disabilities in mind. Everything is spacious so he won't have any trouble getting around. His bathroom is huge. He can transfer to a shower chair and wheel into his huge shower. There isn't a lip on the shower--it's just a continuation of the bathroom ceramic tile. There's a drain in the floor and the shower is sloped down so the water doesn't go all over the bathroom. He had shower knobs at his level and the shower head is at the right level for someone in a chair. There are grab bars everywhere and a emergency pull cord like in hospitals so it can be independent but get help if needed. That's a cool show and I wish her luck. Let us know what you decide to do for her. hugs)))SharonRight now I'm having amnesia and deja vu at the same time.. Need help with a letter I have a friend who is wanting to

try for the home makeover on TV. Extrememe something or another. Liz and I grew up in the same neighborhood street. It's a mile circle basically. I lived on the west side and her on the east side. She is 3 years younger than me. She has PPMS, primary progressive MS. She cannot do anything for herself. She is wanting me to send in a referral letter for her. I am glad to do it. But what should I say? Should I ask Liz if I can go see her house? I think I should so I can compare what I can't do and I have a "simple: form of MS in her house. She has completed all the info they need. Liz and her family thought getting letters from friends could help. And more help from me since I have MS. I just need to get the creative juices flowing. I think if I see her house I would get some ideas to get me started too. Thanks, Shirley

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October 11, 2006

Tammy,

I am like you. I wish I had known about my

diagnosis before I bought my house. We bought 4 years ago, and I was diagnosed

3 ½ years ago. It is a two-story with a really steep staircase. The master

bedroom is downstairs so that helps. I only need to go upstairs to use the

computer and to check and see how bad my kids’ rooms look. My husband and

I talk about getting me a laptop to use downstairs or converting the formal

living room into an office. I am fine most days but sometimes the flight of

stairs is overwhelming after a long day. I use the computer a lot for school so

I can’t avoid it. Downsizing to a ranch is also a possibility but we want

to wait till our sophomore graduates.

Did you see the show where they built a

house for the woman with MS? Her son is featured in the latest MS Society

magazine.

Connie

From: MSersLife

[mailto:MSersLife ] On Behalf

Of Tamatha P

Sent: Wednesday, October 11, 2006

8:37 AM

To: MSersLife

Subject: Re: Shirley and Sharon

and Jackie.....RE: Need help with a letter

I watched that show last week and it brought more tears to my eyes than

any other. I am in no way disabled in that way. But I know it is

coming. My husband and I just bought a house in March of this

year. To our dismay, I was diagnosed in late April. I wish we would

have known about my dx before because I bet we would have had a house built

instead. We could have made sure certain things would have been

" upgradeable " . Now in the future ahead, I worry about how

things are going to be. So far the only disabling effect I have is

walking long periods of time, like at the grocery store. Just walking

from the car to the store is starting to really wear me out. My shopping

trips take hours because I have to go so slow so as not to get so dang tired

and worn out. I know the inevitable is coming and I am just so glad that

the ones who need help can get it throught channels such as this show.

Just wanted to throw my 2 cents in.

Love to all

Tammy,

Tx

Jackie Hanan

<rubyjaxcenturytel (DOT) net> wrote:

Boy I sure could use them to make my house disabled friendly. I love the

idea of having a level shower. Mine is much too small, and I have a hard time

getting in and out. I thought one like they have in “school locker”

rooms would be ideal. I need ramps too, and grab bars.

A few years ago I had a house built to accommodate me, and sadly my hubby

lost his job and we had to sell it.

There was a gal on that show last week I think that was in a wheelchair,

and I didn’t see the show, but blurbs here and there, but she was so

grateful, and happy with what I did see.

I wish your friend good luck Shirley, and I’m sure your letter will

help! I don’t know what their criteria is to get

chosen? Maybe something on the lines of why you think she deserves to be

chosen? What her friendship means to you?

Smiles, Jackie

p/s Sharon

I finally got my e-letter off to you yesterday. Hopefully you got it? I

sometimes don’t get all the messages from the group, so I never know half

the time if my friends and family get mine either?

From: MSersLife

[mailto:MSersLife ] On Behalf Of Sharon Marsden

Sent: Tuesday, October 10,

2006 7:25 PM

To: MSersLife

Subject: Re: Need help

with a letter

I think I would stress that she wants to be

independent as independent as possible. Is she totally disabled? In

a wheelchair all the time? Can she use her hands? If so having a

truly accessible kitchen and laundry room would be a big deal for her. My

40 y/o nephew is disabled from Muscular Dystrophy. His house was designed

with his disabilities in mind. Everything is spacious so he won't have

any trouble getting around. His bathroom is huge. He can transfer

to a shower chair and wheel into his huge shower. There isn't a lip on

the shower--it's just a continuation of the bathroom ceramic tile.

There's a drain in the floor and the shower is sloped down so the water doesn't

go all over the bathroom. He had shower knobs at his level and the shower

head is at the right level for someone in a chair. There are grab bars

everywhere and a emergency pull cord like in hospitals so it can be independent

but get help if needed.

That's a cool show and I wish her luck. Let us know what you decide to do

for her.

hugs)))

Sharon

Right now I'm having

amnesia and deja vu at the same time..

Need help with a letter

I have a friend who is wanting to try for the home makeover on

TV. Extrememe something or another. Liz and I grew up in the same

neighborhood street. It's a mile circle basically. I lived on the

west side and her on the east side. She is 3 years younger than me.

She has PPMS, primary progressive MS. She cannot do anything for

herself.

She is wanting me to send in a referral letter for her. I

am glad to do it. But what should I say? Should I ask Liz if I can

go see her house? I think I should so I can compare what I can't do and I

have a " simple: form of MS in her house.

She has completed all the info they need. Liz and her

family thought getting letters from friends could help. And more help

from me since I have MS.

I just need to get the creative juices flowing. I think if

I see her house I would get some ideas to get me started too.

Thanks,

Shirley

Join Killeen Barter at http://finance.groups.yahoo.com/group/KilleenBarter/

Trade or Barter away those things

you don't want anymore!

Yahoo! Messenger with Voice. Make

PC-to-Phone Calls to the US

(and 30+ countries) for 2¢/min or less.

October 11, 2006

Luckily our house is a;most 100 years old and the doorways are 36" and it single level. We are adding on a master suite on the back(another 1000 sq ft) and everything n it will be wheelchair compatible also. a wide steo in shower, a jacuzzi tub and counters the right height. 'Tamatha P wrote: I watched that show last week and it brought more tears to my eyes than any other. I am in no way disabled in that way. But I know it is coming.

My husband and I just bought a house in March of this year. To our dismay, I was diagnosed in late April. I wish we would have known about my dx before because I bet we would have had a house built instead. We could have made sure certain things would have been "upgradeable". Now in the future ahead, I worry about how things are going to be. So far the only disabling effect I have is walking long periods of time, like at the grocery store. Just walking from the car to the store is starting to really wear me out. My shopping trips take hours because I have to go so slow so as not to get so dang tired and worn out. I know the inevitable is coming and I am just so glad that the ones who need help can get it throught channels such as this show. Just wanted to throw my 2 cents in. Love to all Tammy, TxJackie Hanan <rubyjaxcenturytel (DOT) net>

wrote: Boy I sure could use them to make my house disabled friendly. I love the idea of having a level shower. Mine is much too small, and I have a hard time getting in and out. I thought one like they have in “school locker” rooms would be ideal. I need ramps too, and grab bars. A few years ago I had a house built to accommodate me, and sadly my hubby lost his job and we had to sell it. There was a gal on that show last week I think that was in a wheelchair, and I didn’t see the show, but blurbs here and there, but she was so grateful, and happy with what I did see. I wish your friend good luck Shirley, and I’m sure your letter will help! I don’t know what their criteria is to get chosen? Maybe something on the lines of why you think she deserves to be chosen? What her friendship means to you? Smiles, Jackie p/s Sharon I finally got my e-letter off to you yesterday. Hopefully you got it? I sometimes don’t get all the messages from the group, so I never know half the time if my friends and family get mine either? From: MSersLife [mailto:MSersLife ] On Behalf Of Sharon MarsdenSent: Tuesday, October 10, 2006 7:25 PMTo: MSersLife Subject: Re: Need help with a letter I think I would stress that she wants to be independent as independent as possible. Is she totally disabled? In a wheelchair all the time? Can she use her hands? If so having a truly accessible kitchen and laundry room would be a big deal for her. My 40 y/o nephew is disabled from Muscular Dystrophy. His house was designed with his disabilities in mind. Everything is spacious so he won't have any trouble getting around. His bathroom is huge. He can transfer to a shower chair and wheel into his huge shower. There isn't a lip on the shower--it's just a continuation of the bathroom ceramic tile. There's a drain in the floor and the shower is sloped down so the water doesn't go all over the

bathroom. He had shower knobs at his level and the shower head is at the right level for someone in a chair. There are grab bars everywhere and a emergency pull cord like in hospitals so it can be independent but get help if needed. That's a cool show and I wish her luck. Let us know what you decide to do for her. hugs)))SharonRight now I'm having amnesia and deja vu at the same time.. Need help with a letter I have a friend who is wanting to try for the home makeover on TV. Extrememe something or another. Liz and I grew up in the same neighborhood street. It's a mile circle basically. I lived on the west side and her on the east side. She is 3 years younger than me. She has PPMS, primary progressive MS. She cannot do anything for herself. She is wanting me to send in a referral letter for her. I am glad to do it. But what should I say? Should I ask Liz if I can go see her house? I think I should so I can compare what I can't do and I have a "simple: form of MS in her house. She has completed all the info they need. Liz and her family thought getting letters from friends could help. And more help from me since I have MS. I just need to get the creative juices flowing. I think if I see her house I would get some ideas to get me started too. Thanks, Shirley Join Killeen Barter at http://finance.groups.yahoo.com/group/KilleenBarter/ Trade or Barter away those things you don't want anymore! Yahoo! Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less.

October 12, 2006

Wow, 1,000 sq ft bedroom? Now that's impressive! Challis Trimm wrote: Luckily our house is a;most 100 years old and the doorways are 36" and it single level. We are adding on a master suite on the back(another 1000 sq ft) and everything n it will be wheelchair compatible also. a wide steo in shower, a jacuzzi tub and counters the right height. 'Tamatha P

<tamatha_tx> wrote: I watched that show last week and it brought more tears to my eyes than any other. I am in no way disabled in that way. But I know it is coming. My husband and I just bought a house in March of this year. To our dismay, I was diagnosed in late April. I wish we would have known about my dx before because I bet we would have had a house built instead. We could have made sure certain things would have been "upgradeable". Now in the future ahead, I worry about how things are going to be. So far the only disabling effect I have is walking long periods of time, like at the grocery store. Just walking from the car to the store is starting to really wear me out. My shopping trips take hours because I have to go so slow so as not to get

so dang tired and worn out. I know the inevitable is coming and I am just so glad that the ones who need help can get it throught channels such as this show. Just wanted to throw my 2 cents in. Love to all Tammy, TxJackie Hanan <rubyjaxcenturytel (DOT) net> wrote: Boy I sure could use them to make my house disabled friendly. I love the idea of having a level shower. Mine is much too small, and I have a hard time getting in and out. I thought one like they have in “school locker” rooms would be ideal. I need ramps too, and grab bars. A few years ago I had a house built to accommodate me, and sadly my hubby lost his job and we had to sell it. There was a gal on that show last week I think that was in a wheelchair, and I didn’t see the show, but blurbs here and there, but she was so grateful, and happy with what I did see. I wish your friend good luck Shirley, and I’m sure your letter will help! I don’t know what their criteria is to get chosen?

Maybe something on the lines of why you think she deserves to be chosen? What her friendship means to you? Smiles, Jackie p/s Sharon I finally got my e-letter off to you yesterday. Hopefully

you got it? I sometimes don’t get all the messages from the group, so I never know half the time if my friends and family get mine either? From: MSersLife [mailto:MSersLife ] On Behalf Of Sharon

MarsdenSent: Tuesday, October 10, 2006 7:25 PMTo: MSersLife Subject: Re: Need help with a letter I think I would stress that she wants to be independent as independent as possible. Is she totally disabled? In a wheelchair all the time? Can she use her hands? If so having a truly accessible kitchen and laundry room would be a big deal for her. My 40 y/o nephew is disabled from Muscular Dystrophy. His house was designed with his disabilities in mind. Everything is

spacious so he won't have any trouble getting around. His bathroom is huge. He can transfer to a shower chair and wheel into his huge shower. There isn't a lip on the shower--it's just a continuation of the bathroom ceramic tile. There's a drain in the floor and the shower is sloped down so the water doesn't go all over the bathroom. He had shower knobs at his level and the shower head is at the right level for someone in a chair. There are grab bars everywhere and a emergency pull cord like in hospitals so it can be independent but get help if needed. That's a cool show and I wish her luck. Let us know what you decide to do for her. hugs)))SharonRight now I'm having amnesia and deja vu at the same time.. Need help with a letter I have a friend who is wanting to try for the home makeover on TV. Extrememe something or another. Liz and I grew up in the same neighborhood

street. It's a mile circle basically. I lived on the west side and her on the east side. She is 3 years younger than me. She has PPMS, primary progressive MS. She cannot do anything for herself. She is wanting me to send in a referral letter for her. I am glad to do it. But what should I say? Should I ask Liz if I can go see her house? I think I should so I can compare what I can't do and I have a "simple: form of MS in her house. She has completed all the info they need. Liz and her family thought getting letters from friends could help. And more help from me since I have MS. I just need to get the creative juices flowing. I think if I see her house I would get some ideas to get me started too. Thanks, Shirley Join Killeen Barter at http://finance.groups.yahoo.com/group/KilleenBarter/ Trade or Barter away those things you don't want anymore! Yahoo! Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less. __________________________________________________

October 12, 2006

You know you have MS when the thought of a 1,000 sq. ft bedroom

poops you out rather then get excited. Gosh, I hope you have a maid

for that bedroom!!!

Mindy

> Boy I sure could use them to make my house disabled

friendly. I love the idea of having a level shower. Mine is much too

small, and I have a hard time getting in and out. I thought one like

they have in " school locker " rooms would be ideal. I need ramps too,

and grab bars.

> A few years ago I had a house built to accommodate me, and sadly

my hubby lost his job and we had to sell it.

> There was a gal on that show last week I think that was in a

wheelchair, and I didn't see the show, but blurbs here and there,

but she was so grateful, and happy with what I did see.

> I wish your friend good luck Shirley, and I'm sure your letter

will help! I don't know what their criteria is to get chosen? Maybe

something on the lines of why you think she deserves to be chosen?

What her friendship means to you?

> Smiles, Jackie

>

> p/s Sharon I finally got my e-letter off to you yesterday.

Hopefully you got it? I sometimes don't get all the messages from

the group, so I never know half the time if my friends and family

get mine either?

>

> ---------------------------------

>

> From: MSersLife

[mailto:MSersLife ] On Behalf Of Sharon Marsden

> Sent: Tuesday, October 10, 2006 7:25 PM

> To: MSersLife

> Subject: Re: Need help with a letter

>

> I think I would stress that she wants to be independent as

independent as possible. Is she totally disabled? In a wheelchair

all the time? Can she use her hands? If so having a truly

accessible kitchen and laundry room would be a big deal for her. My

40 y/o nephew is disabled from Muscular Dystrophy. His house was

designed with his disabilities in mind. Everything is spacious so

he won't have any trouble getting around. His bathroom is huge. He

can transfer to a shower chair and wheel into his huge shower.

There isn't a lip on the shower--it's just a continuation of the

bathroom ceramic tile. There's a drain in the floor and the shower

is sloped down so the water doesn't go all over the bathroom. He

had shower knobs at his level and the shower head is at the right

level for someone in a chair. There are grab bars everywhere and a

emergency pull cord like in hospitals so it can be independent but

get help if needed.

>

> That's a cool show and I wish her luck. Let us know what you

decide to do for her.

>

> hugs)))

> Sharon

>

> Right now I'm having amnesia and deja vu at the same time..

>

> Need help with a letter

> I have a friend who is wanting to try for the home makeover

on TV. Extrememe something or another. Liz and I grew up in the

same neighborhood street. It's a mile circle basically. I lived on

the west side and her on the east side. She is 3 years younger than

me. She has PPMS, primary progressive MS. She cannot do anything

for herself.

>

> She is wanting me to send in a referral letter for her. I am

glad to do it. But what should I say? Should I ask Liz if I can go

see her house? I think I should so I can compare what I can't do

and I have a " simple: form of MS in her house.

>

> She has completed all the info they need. Liz and her family

thought getting letters from friends could help. And more help from

me since I have MS.

>

> I just need to get the creative juices flowing. I think if I

see her house I would get some ideas to get me started too.

>

> Thanks,

>

> Shirley

>

> Join Killeen Barter at

http://finance.groups.yahoo.com/group/KilleenBarter/

>

> Trade or Barter away those things you don't want anymore!

>

> ---------------------------------

> Yahoo! Messenger with Voice. Make PC-to-Phone Calls to the US

(and 30+ countries) for 2¢/min or less.

>

> __________________________________________________

>

October 13, 2006

Yeah, i WAS TRYING TO HELP HIM GET THE RAFTERS READY.nOW i'M WORE OUTSmyelin groovy wrote: Wow, 1,000 sq ft bedroom? Now that's impressive! Challis Trimm <dixmstx> wrote: Luckily our house is a;most 100 years old and the doorways are 36" and it single level. We are adding

on a master suite on the back(another 1000 sq ft) and everything n it will be wheelchair compatible also. a wide steo in shower, a jacuzzi tub and counters the right height. 'Tamatha P <tamatha_tx> wrote: I watched that show last week and it brought more tears to my eyes than any other. I am in no way disabled in that way. But I know it is coming. My husband and I just bought a house in March of this year. To our dismay, I was diagnosed in late April. I wish we would have known about my dx before because I bet we would have had a house built instead. We could have made sure certain things would have been "upgradeable". Now in the future ahead, I worry about how things are going to be. So far the only disabling

effect I have is walking long periods of time, like at the grocery store. Just walking from the car to the store is starting to really wear me out. My shopping trips take hours because I have to go so slow so as not to get so dang tired and worn out. I know the inevitable is coming and I am just so glad that the ones who need help can get it throught channels such as this show. Just wanted to throw my 2 cents in. Love to all Tammy, TxJackie Hanan <rubyjaxcenturytel (DOT) net> wrote: Boy I sure could use them to make my house disabled friendly. I love the idea of having a level

shower. Mine is much too small, and I have a hard time getting in and out. I thought one like they have in “school locker” rooms would be ideal. I need ramps too, and grab bars. A few years ago I had a house built to accommodate me, and sadly my hubby lost his job and we had to sell it. There was a gal on that show last week I think that was in a wheelchair, and I didn’t see the show, but blurbs here and there, but she was so grateful, and happy with what I did see. I wish your friend good luck Shirley, and I’m sure your letter will help! I don’t know what their criteria is to get chosen? Maybe something on the lines of why you think she deserves to be chosen? What her friendship means to you? Smiles, Jackie p/s Sharon I finally got my e-letter off to you yesterday. Hopefully you got it? I sometimes don’t get all the messages from the group, so I never know half the time if my friends and family get mine either? From: MSersLife [mailto:MSersLife ] On Behalf Of Sharon MarsdenSent: Tuesday, October 10, 2006 7:25 PMTo: MSersLife Subject: Re: Need help with a letter I think I would stress that she wants to be independent as independent as possible. Is she totally disabled? In a wheelchair all the time? Can she use her hands? If so having a

truly accessible kitchen and laundry room would be a big deal for her. My 40 y/o nephew is disabled from Muscular Dystrophy. His house was designed with his disabilities in mind. Everything is spacious so he won't have any trouble getting around. His bathroom is huge. He can transfer to a shower chair and wheel into his huge shower. There isn't a lip on the shower--it's just a continuation of the bathroom ceramic tile. There's a drain in the floor and the shower is sloped down so the water doesn't go all over the bathroom. He had shower knobs at his level and the shower head is at the right level for someone in a chair. There are grab bars everywhere and a emergency pull cord like in hospitals so it can be independent but get help if needed. That's a cool show and I wish her luck. Let us know what you decide to do for her.

hugs)))SharonRight now I'm having amnesia and deja vu at the same time.. Need help with a

letter I have a friend who is wanting to try for the home makeover on TV. Extrememe something or another. Liz and I grew up in the same neighborhood street. It's a mile circle basically. I lived on the west side and her on the east side. She is 3 years younger than me. She has PPMS, primary progressive MS. She cannot do anything for herself. She is wanting me to send in a referral letter for her. I am glad to do it. But what should I say? Should I ask Liz if I can go see her house? I think I should so I can

compare what I can't do and I have a "simple: form of MS in her house. She has completed all the info they need. Liz and her family thought getting letters from friends could help. And more help from me since I have MS. I just need to get the creative juices flowing. I think if I see her house I would get some ideas to get me started too. Thanks, Shirley Join Killeen Barter at http://finance.groups.yahoo.com/group/KilleenBarter/ Trade or Barter away those things you don't want anymore! Yahoo! Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less. __________________________________________________

October 13, 2006