New to Group - Have Questions

October 16, 2001

Hello! I've been reading many posts daily for about 2 weeks now and

have learned much from all of you. My child just turned 3 and we

finished Round 1 of Chelation yesterday. Our doctor has us using

DMSA only and I was giving my son 1 ml 3X per day for 3 days (3 days

on, 11 days off). On the bottle it says it is " 100 MG/ML

suspension. " It is a tangerine flavored liquid. My son weighs 38.5

pounds. Does this dosage sound appropriate? My son did not have too

bad a time, really. He stimmed here and there, but he does that

normally anyway. He did seem to stare off more and put his fingers

on his eyes and he'd whimper/cry a few times. He slept longer during

the night too. Other than that, I haven't noticed any real positive

or negative changes in him.

Is it better to give the DMSA at any particular time of the day, like

with food or on an empty stomach? I also only gave him vitamins and

took him off the minerals (both from BrainChild Nutritionals) during

the chelation period.

I would certainly like to hear from some of you who have already been

where I am at and what worked for you.

Thanks for all I've already learned and for reading my post.

Tammy

October 16, 2001

sqrlklr2001@... wrote:

> Hello! I've been reading many posts daily for about 2 weeks now and

> have learned much from all of you. My child just turned 3 and we

> finished Round 1 of Chelation yesterday. Our doctor has us using

> DMSA only and I was giving my son 1 ml 3X per day for 3 days (3 days

> on, 11 days off). On the bottle it says it is " 100 MG/ML

> suspension. " It is a tangerine flavored liquid. My son weighs 38.5

> pounds. Does this dosage sound appropriate? My son did not have too

> bad a time, really. He stimmed here and there, but he does that

> normally anyway. He did seem to stare off more and put his fingers

> on his eyes and he'd whimper/cry a few times. He slept longer during

> the night too. Other than that, I haven't noticed any real positive

> or negative changes in him.

I think the dose rate is 10mg/kg?

you should check with the FAQ files and the like or others posts

Im new to this and checking it out for us.

Right now my son has been fighting a strep infection and the antibiotics

have pretty much negated all we had been trying to do for getting the

intestinal flora back in balance.

Im not new to the math.

I can help with the math

with that (.454 kilograms in 1 lb)

38.5lbs x .454= 17.479 ~ 17.5kilograms

you son weighs about 17.5 kilograms

How many mg are needed?

assuming the 10mg/kg rate

10mg x mg

-------- = -------- = 175mg needed

1kg 17.5kg

" the bottle it says it is " 100 MG/ML

suspension. "

1ml x ml

----- = ------ = 1.75ml dose needed for 38.5lb individual at a

10mg/kg rate

100mg 175mg

Best Wishes

Caleb's Dad

October 16, 2001

Most on this list find the every 4 hr. proptocol best. Andy can explain the

details and pharmokinetic basis for this schedule and the problems with the

3x/day approach.

S

On Tue, 16 October 2001, Mueller wrote:

>

> <html><body>

> <tt>

>

> sqrlklr2001@... wrote:

>

> & gt; Hello! & nbsp; I've been reading many posts daily for about 2 weeks now

and

> & gt; have learned much from all of you. & nbsp; My child just turned 3 and

we

> & gt; finished Round 1 of Chelation yesterday. & nbsp; Our doctor has us

using

> & gt; DMSA only and I was giving my son 1 ml 3X per day for 3 days (3 days

> & gt; on, 11 days off). & nbsp; On the bottle it says it is & quot;100 MG/ML

> & gt; suspension. & quot; & nbsp; It is a tangerine flavored liquid. & nbsp; My son

weighs 38.5

> & gt; pounds. Does this dosage sound appropriate? & nbsp; My son did not have

too

> & gt; bad a time, really. & nbsp; He stimmed here and there, but he does that

> & gt; normally anyway. & nbsp; He did seem to stare off more and put his

fingers

> & gt; on his eyes and he'd whimper/cry a few times. & nbsp; He slept longer

during

> & gt; the night too. & nbsp; Other than that, I haven't noticed any real

positive

> & gt; or negative changes in him.

>

> I think the dose rate is 10mg/kg?

> you should check with the FAQ files and the like or others posts

> Im new to this and checking it out for us.

>

> Right now my son has been fighting a strep infection and the antibiotics

> have pretty much negated all we had been trying to do for getting the

> intestinal flora back in balance.

>

> Im not new to the math.

> I can help with the math

>

> with that & nbsp; & nbsp; & nbsp; (.454 kilograms in 1 lb)

> 38.5lbs & nbsp; x .454= & nbsp; 17.479 ~ 17.5kilograms

>

> you son weighs about 17.5 kilograms

>

> How many mg are needed?

> assuming the 10mg/kg rate

>

> 10mg & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; x mg

> -------- & nbsp; & nbsp; = & nbsp;

-------- & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; = & nbsp; 175mg needed

> & nbsp; & nbsp; & nbsp; 1kg & nbsp; & nbsp; & nbsp; & nbsp; & nbsp; 17.5kg

>

> & quot;the bottle it says it is & quot;100 MG/ML

> suspension. & quot;

>

> & nbsp; & nbsp; & nbsp; 1ml & nbsp; & nbsp; & nbsp; x ml

> & nbsp; & nbsp; ----- = ------ = 1.75ml dose needed for 38.5lb individual at

a

> 10mg/kg rate

> & nbsp; & nbsp; 100mg & nbsp; & nbsp; 175mg

>

> Best Wishes

> Caleb's Dad

>

> </tt>

>

>

>

>

>

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> =======================================================

>

October 17, 2001

At 08:55 PM 10/16/2001 -0700, you wrote:

>Most on this list find the every 4 hr. proptocol best. Andy can explain

the details and pharmokinetic basis for this schedule and the problems with

the 3x/day approach.

> S

You can find some (small subset) of Andy's explanations of this here:

/files/ANDY_INDEX

Moria

October 17, 2001

Hello Tammy,

welcome to this corner of the world. We have had quite a number

of people who have said they are new recently. It is nice.

>Hello! I've been reading many posts daily for about 2 weeks now and

>have learned much from all of you. My child just turned 3 and we

>finished Round 1 of Chelation yesterday. Our doctor has us using

>DMSA only and I was giving my son 1 ml 3X per day for 3 days (3 days

>on, 11 days off). On the bottle it says it is " 100 MG/ML

>suspension. " It is a tangerine flavored liquid. My son weighs 38.5

>pounds. Does this dosage sound appropriate?

First the easy part: recommended dose is 1/8 to 1/2 mg per pound

per dose.

Now the hard part: 100 mg per/ml; you are giving 1 ml; oh, that

is NOT hard: you are giving 100 mg per dose to kid who weighs

38 pounds. So, that is about 3 mg per pound per dose, or about

6 times the about Andy recommends. (The 1/8 to 1/2 mg I quoted

is Andy's recommendation.) But don't feel bad or hate your

doctor--- mostly I think doctors are using either the PDR

or the DAN! protocol, in which case the dose they say to use

is much higher than what Andy recommends. Welcome to the

world of controversial issues about chelation. It can be

confusing, but please don't ever think you are alone in this

case. We all sort it out and decide what to do, and

(often) talk about it a lot in the process. Feel free.

You can read more about Andy and what he thinks about DMSA

dosage and so forth here:

/files/ANDY_INDEX

> My son did not have too

>bad a time, really. He stimmed here and there, but he does that

>normally anyway. He did seem to stare off more and put his fingers

>on his eyes and he'd whimper/cry a few times. He slept longer during

>the night too. Other than that, I haven't noticed any real positive

>or negative changes in him.

>

>Is it better to give the DMSA at any particular time of the day, like

>with food or on an empty stomach?

Yeah, it is better to give it to him every 4 hours, INCLUDING AT

NIGHT. With food or no food doesn't matter. This " at night " thing

is very controversial too, but just keep reading (and a few deep

breaths maybe?) It is kinda amazing to me that in spite of the

difficulty of this method and in spite of the popular opinion

(e.g. from DAN!, doctors, etc) that it doesn't matter, a lot of

people on this list persist in using every 4 hours. Haven't

done any surveys on how many, but there are many who

waken to timers in the wee hours.

> I also only gave him vitamins and

>took him off the minerals (both from BrainChild Nutritionals) during

>the chelation period.

>

>I would certainly like to hear from some of you who have already been

>where I am at and what worked for you.

>

>Thanks for all I've already learned and for reading my post.

Since I'm a rather verbose and frequent writer on the list,

I'll also mention that I don't have any kids-- I'm a mercury

toxic adult, and doing chelation on mySELF. (I wake up with

a timer at night.) I say this pretty often, so you may have

already come across this fact in reading for 2 weeks. (This

explains why I don't talk about my kid, for example .)

best wishes,

Moria

October 17, 2001

Tammy,

3x a day is not a good thing. Every four hours is much better. Some people

can get by with the every 8 hours, but the majority of kids do much better

on a four-hour regime. Also, I believe the optimal dose is 1/8 to 1/2 mg.

per pound.

Barb

[ ] New to Group - Have Questions

>Hello! I've been reading many posts daily for about 2 weeks now and

>have learned much from all of you. My child just turned 3 and we

>finished Round 1 of Chelation yesterday. Our doctor has us using

>DMSA only and I was giving my son 1 ml 3X per day for 3 days (3 days

>on, 11 days off). On the bottle it says it is " 100 MG/ML

>suspension. " It is a tangerine flavored liquid. My son weighs 38.5

>pounds. Does this dosage sound appropriate? My son did not have too

>bad a time, really. He stimmed here and there, but he does that

>normally anyway. He did seem to stare off more and put his fingers

>on his eyes and he'd whimper/cry a few times. He slept longer during

>the night too. Other than that, I haven't noticed any real positive

>or negative changes in him.

>

>Is it better to give the DMSA at any particular time of the day, like

>with food or on an empty stomach? I also only gave him vitamins and

>took him off the minerals (both from BrainChild Nutritionals) during

>the chelation period.

>

>I would certainly like to hear from some of you who have already been

>where I am at and what worked for you.

>

>Thanks for all I've already learned and for reading my post.

>

>Tammy

>

>=======================================================

>

October 17, 2001

Thanks to those who have responded! Thanks too, for figuring out the

dosage per pound/kg, !

So then, it looks like I didn't give enough at each dose? Could this

be why he didn't act that much different during the chelation

period? (I was giving 1 ML 3X/day.) So if 1.75ML is what I should

give 3X/day, what should it be every 4 hours??

I'm sorry for still " not getting it " and with asking more about the

doses... I'm still very confused how all this works. I did read

Andy's section of past posts regarding chelating, dosing times, etc.,

and now am scared I may have sent more mercury to the brain!

Also, being that this 1st chelation round may not have been good,

should I start Round 2 sooner than waiting the 11 days?

Thanks very much for all your help!

With Great Hope for All Our Kids,

Tammy

October 17, 2001

Dear Tammy,

>Thanks to those who have responded! Thanks too, for figuring out the

>dosage per pound/kg, !

>

>So then, it looks like I didn't give enough at each dose? Could this

>be why he didn't act that much different during the chelation

>period? (I was giving 1 ML 3X/day.) So if 1.75ML is what I should

>give 3X/day, what should it be every 4 hours??

No no no. You didn't give too much. (um, if I remember right.)

The dose Andy recommends is 1/8 to 1/2 mg per pound of child per dose,

every 4 hours. If using ALA it is every 3 hours.

>I'm sorry for still " not getting it " and with asking more about the

>doses... I'm still very confused how all this works. I did read

>Andy's section of past posts regarding chelating, dosing times, etc.,

>and now am scared I may have sent more mercury to the brain!

Sorry to tell you, but worrying won't help. (Actually I'm happy to

point this out, and hope that you will decide to drop this issue

entirely.)

>Also, being that this 1st chelation round may not have been good,

>should I start Round 2 sooner than waiting the 11 days?

I would still wait at least 4 days. You are waiting to give body

some time off. It needs this regardless of what schedule you used.

Oh--- regarding " not getting it " -- please ask more questions about

whatever you want. (But I may just refer you back to Andy's

past posts. hummmm.)

best,

Moria

October 17, 2001

sqrlklr2001@... wrote:

> Thanks to those who have responded! Thanks too, for figuring out the

> dosage per pound/kg, !

I dont think you should give that amount necessarily. I am new to this

and I here to try to get an understanding of the process of chelation

myself.

The math part I do know. However, I DONT think I have the initial dosage

right (10mg/kg). Someone like Andy could be exact for you.

The factor for the math would still be similar.

Best Wishes

October 19, 2001

> Thanks to those who have responded! Thanks too, for figuring out

the

> dosage per pound/kg, !

>

> So then, it looks like I didn't give enough at each dose? Could

this

> be why he didn't act that much different during the chelation

> period? (I was giving 1 ML 3X/day.) So if 1.75ML is what I should

> give 3X/day, what should it be every 4 hours??

ML? As in milliliter of liquid? DMSA is not stable in liquids for

more than a day or two.

>

> I'm sorry for still " not getting it " and with asking more about the

> doses... I'm still very confused how all this works. I did read

> Andy's section of past posts regarding chelating, dosing times,

etc.,

> and now am scared I may have sent more mercury to the brain!

>

> Also, being that this 1st chelation round may not have been good,

> should I start Round 2 sooner than waiting the 11 days?

>

> Thanks very much for all your help!

>

> With Great Hope for All Our Kids,

>

> Tammy

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