Guest guest Posted February 26, 2003 Report Share Posted February 26, 2003 Marty Of course we are interested in hearing how things are with you, always. So pleased to hear that your kidney is working fine, and indeed I think we should thank God that you are progressing so well. Keep well Marty and your cousin too, great to hear from you. Best wishes Marty's Update Hi, If anyone is interested, I had a check-up with my Neph recently. The kidney is working fine. My serum creatinine was 1.8 mg/dl. I am so, so thankful and I think of my blessing many times a day. I think of my cousin's sacrifice and God's endless blessings. My phosphorous and magnesium are still low. They have been since the transplant. I take supplements for these. Rather than increasing my supplements, my Neph recommended me to eat more foods and drink more beverages that are rich in these minerals. For example, he wants me to drink a fair amount of diet cola because of the phosphorous. Since the transplant, I've tried to only drink water 99% of the time. Unfortunately, the reason he suggested diet cola was because I had gained 13 pounds in about three months. I'm still taking 5 mg of Prednisone, and I'd like to " blame " my weight increase on that but I think it is more diet and excercise related. My potassium was right at the upper of the range. That could be from a combination of monopril 10 mg, K-phos (8 tabs a day) which is potassium phosphate, and the fact that I don't watch my potassium intake closely anymore. That's about it. Marty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2003 Report Share Posted February 26, 2003 Thanks for the update Marty. Very interesting. I hope to do as well when I get a kidney. What's your favourite cola? Pierre Marty's Update > Hi, > > If anyone is interested, I had a check-up with my Neph recently. The > kidney is working fine. My serum creatinine was 1.8 mg/dl. I am so, > so thankful and I think of my blessing many times a day. I think of > my cousin's sacrifice and God's endless blessings. > > My phosphorous and magnesium are still low. They have been since the > transplant. I take supplements for these. Rather than increasing my > supplements, my Neph recommended me to eat more foods and drink more > beverages that are rich in these minerals. For example, he wants me > to drink a fair amount of diet cola because of the phosphorous. Since > the transplant, I've tried to only drink water 99% of the time. > Unfortunately, the reason he suggested diet cola was because I had > gained 13 pounds in about three months. I'm still taking 5 mg of > Prednisone, and I'd like to " blame " my weight increase on that but I > think it is more diet and excercise related. My potassium was right > at the upper of the range. That could be from a combination of > monopril 10 mg, K-phos (8 tabs a day) which is potassium phosphate, > and the fact that I don't watch my potassium intake closely anymore. > > That's about it. > > Marty > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2003 Report Share Posted February 26, 2003 hey diet dr pepper caff free is really good,,,, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2003 Report Share Posted February 26, 2003 Good news Marty...........I'm not sure I'd like to have to drink diet coke though, too sweet for me but what about the sweeteners in it, are they OK? All the best. Sally. Marty's Update Hi, If anyone is interested, I had a check-up with my Neph recently. The kidney is working fine. My serum creatinine was 1.8 mg/dl. I am so, so thankful and I think of my blessing many times a day. I think of my cousin's sacrifice and God's endless blessings. My phosphorous and magnesium are still low. They have been since the transplant. I take supplements for these. Rather than increasing my supplements, my Neph recommended me to eat more foods and drink more beverages that are rich in these minerals. For example, he wants me to drink a fair amount of diet cola because of the phosphorous. Since the transplant, I've tried to only drink water 99% of the time. Unfortunately, the reason he suggested diet cola was because I had gained 13 pounds in about three months. I'm still taking 5 mg of Prednisone, and I'd like to " blame " my weight increase on that but I think it is more diet and excercise related. My potassium was right at the upper of the range. That could be from a combination of monopril 10 mg, K-phos (8 tabs a day) which is potassium phosphate, and the fact that I don't watch my potassium intake closely anymore. That's about it. Marty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2003 Report Share Posted February 26, 2003 Hi Marty, Very good news! I'm interested in knowing if your serum creatinine has stayed around 1.8 mg/dl since the transplant and is that what they expect to see after a transplant? (in other words, what is going to be considered a normal range for you?) Marty, what was the recuperation time for both you and your cousin? Has your cousin noticed a change in his/her life? Glad you gave us an update! Connie, USA Marty's Update Hi, If anyone is interested, I had a check-up with my Neph recently. The kidney is working fine. My serum creatinine was 1.8 mg/dl. I am so, so thankful and I think of my blessing many times a day. I think of my cousin's sacrifice and God's endless blessings. My phosphorous and magnesium are still low. They have been since the transplant. I take supplements for these. Rather than increasing my supplements, my Neph recommended me to eat more foods and drink more beverages that are rich in these minerals. For example, he wants me to drink a fair amount of diet cola because of the phosphorous. Since the transplant, I've tried to only drink water 99% of the time. Unfortunately, the reason he suggested diet cola was because I had gained 13 pounds in about three months. I'm still taking 5 mg of Prednisone, and I'd like to " blame " my weight increase on that but I think it is more diet and excercise related. My potassium was right at the upper of the range. That could be from a combination of monopril 10 mg, K-phos (8 tabs a day) which is potassium phosphate, and the fact that I don't watch my potassium intake closely anymore. That's about it. Marty To edit your settings for the group, go to our Yahoo Group home page: http://groups.yahoo.com/group/iga-nephropathy/ Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: http://www.igan.ca/id62.htm Thank you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2003 Report Share Posted February 26, 2003 Thanks . > Marty > > > > Of course we are interested in hearing how things are with you, always. > So pleased to hear that your kidney is working fine, and indeed I think > we should thank God that you are progressing so well. > > > > Keep well Marty and your cousin too, great to hear from you. > > > > Best wishes > > > > > > > > > > > > Marty's Update > > > > Hi, > > If anyone is interested, I had a check-up with my Neph recently. The > kidney is working fine. My serum creatinine was 1.8 mg/dl. I am so, > so thankful and I think of my blessing many times a day. I think of > my cousin's sacrifice and God's endless blessings. > > My phosphorous and magnesium are still low. They have been since the > transplant. I take supplements for these. Rather than increasing my > supplements, my Neph recommended me to eat more foods and drink more > beverages that are rich in these minerals. For example, he wants me > to drink a fair amount of diet cola because of the phosphorous. Since > the transplant, I've tried to only drink water 99% of the time. > Unfortunately, the reason he suggested diet cola was because I had > gained 13 pounds in about three months. I'm still taking 5 mg of > Prednisone, and I'd like to " blame " my weight increase on that but I > think it is more diet and excercise related. My potassium was right > at the upper of the range. That could be from a combination of > monopril 10 mg, K-phos (8 tabs a day) which is potassium phosphate, > and the fact that I don't watch my potassium intake closely anymore. > > That's about it. > > Marty > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2003 Report Share Posted February 26, 2003 Thanks Pierre. Actually, I started drinking diet Dr. Pepper. Not a cola, but still has the phosphorous. Marty > What's your favourite cola? > > Pierre > > Marty's Update > > > > Hi, > > > > If anyone is interested, I had a check-up with my Neph recently. The > > kidney is working fine. My serum creatinine was 1.8 mg/dl. I am so, > > so thankful and I think of my blessing many times a day. I think of > > my cousin's sacrifice and God's endless blessings. > > > > My phosphorous and magnesium are still low. They have been since the > > transplant. I take supplements for these. Rather than increasing my > > supplements, my Neph recommended me to eat more foods and drink more > > beverages that are rich in these minerals. For example, he wants me > > to drink a fair amount of diet cola because of the phosphorous. Since > > the transplant, I've tried to only drink water 99% of the time. > > Unfortunately, the reason he suggested diet cola was because I had > > gained 13 pounds in about three months. I'm still taking 5 mg of > > Prednisone, and I'd like to " blame " my weight increase on that but I > > think it is more diet and excercise related. My potassium was right > > at the upper of the range. That could be from a combination of > > monopril 10 mg, K-phos (8 tabs a day) which is potassium phosphate, > > and the fact that I don't watch my potassium intake closely anymore. > > > > That's about it. > > > > Marty > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2003 Report Share Posted February 26, 2003 Thanks Sally. Actually, I have always tried to avoid diet sodas because of the artificial sweeteners. But now, it's doctor's orders. LOL. Marty > Good news Marty...........I'm not sure I'd like to have to drink diet coke > though, too sweet for me > but what about the sweeteners in it, are they OK? > All the best. > Sally. > > > Marty's Update > > > > Hi, > > If anyone is interested, I had a check-up with my Neph recently. The > kidney is working fine. My serum creatinine was 1.8 mg/dl. I am so, > so thankful and I think of my blessing many times a day. I think of > my cousin's sacrifice and God's endless blessings. > > My phosphorous and magnesium are still low. They have been since the > transplant. I take supplements for these. Rather than increasing my > supplements, my Neph recommended me to eat more foods and drink more > beverages that are rich in these minerals. For example, he wants me > to drink a fair amount of diet cola because of the phosphorous. Since > the transplant, I've tried to only drink water 99% of the time. > Unfortunately, the reason he suggested diet cola was because I had > gained 13 pounds in about three months. I'm still taking 5 mg of > Prednisone, and I'd like to " blame " my weight increase on that but I > think it is more diet and excercise related. My potassium was right > at the upper of the range. That could be from a combination of > monopril 10 mg, K-phos (8 tabs a day) which is potassium phosphate, > and the fact that I don't watch my potassium intake closely anymore. > > That's about it. > > Marty > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2003 Report Share Posted February 26, 2003 I WAS TOLD TO GIVE MY DAUGHTER ZANTACS AT EVERY MEAL,,,,DOES ANY ONE ELSE TAKES THESE??,,,,,CRYSTAL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2003 Report Share Posted February 26, 2003 > Hi Marty, Very good news! I'm interested in knowing if your serum > creatinine has stayed around 1.8 mg/dl since the transplant and is that > what they expect to see after a transplant? (in other words, what is going > to be considered a normal range for you?) Marty, what was the recuperation > time for both you and your cousin? Has your cousin noticed a change in > his/her life? > Glad you gave us an update! > Connie, USA > Thanks Connie. Actually, the transplant doc wanted it to go down to 1.5 if I recall correctly. It did stay there for quite some time. Lately, it's been around 1.7 to 1.8, so they consider it my norm. My transplant doc had told me that about 10% of the kidney had lost function due to an error on the part of the urologist who extracted it. He cut a small artery and they had to do an emergency repair before putting it into me. Also, my cousin is a female and she weighs about 90 pounds less than I do. I was back to work in 8 weeks. My cousin was back to normal in about the same time. She leads a completely normal life now, playing sports, etc. ) Marty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2003 Report Share Posted February 26, 2003 THE DR ALSO TOLD US TO ONLY LET MY DAUGHTER HAVE DIET SPRITES,,,,DOES ANY ONE KNOW WHY SHE CANT HAVE THE COLORED SODAS?,,,,CRYSTAL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2003 Report Share Posted February 26, 2003 Crystal, Colas are higher in phosphorus, and that is probably why your daughter's doctor has advised you to avoid them in favor of sprite. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2003 Report Share Posted February 26, 2003 THANKS LAURA,,,,CRYSTAL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2003 Report Share Posted February 26, 2003 You are very welcome Crystal Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2003 Report Share Posted February 26, 2003 > Marty, > > Good to know you are doing so well.People who donate > their organs, especially living donors are wonderful > people indeed. I am sure words can't begin to explain > how it feels to receive such a gift!! > > You mention your phosphorus is low...on my last lab > mine was a half a point low. What exactly does this > mean? My creat was down to 1.6 & my bun was up to 30. > I thought those of us whose creat was creeping up also > had trouble with elevated phosphorus. > > Hi , You are right, there's no way to describe my feelings on that. And yet, my cousin speaks of it like it's no big deal at all. : ) I don't recall the values on my labs, but I think it was significantly lower than half a point. Perhaps one of the moderators can answer your question about the phos and creat relationship. take care, Marty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2003 Report Share Posted February 26, 2003 > hey diet dr pepper caff free is really good,,,, > You're right Crystal. That's exactly what I drink. : ) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2003 Report Share Posted February 26, 2003 > hey diet dr pepper caff free is really good,,,, > You're right Crystal. That's exactly what I drink. : ) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2003 Report Share Posted February 26, 2003 Hi there Marty, Thanks for the update, extremely important to us at the other end of the spectrum. I am pleased things are ticking along OK for you. Having just got into the routine of dialysis myself, I would imagine you feel like a caged bird set free. It gives us all a goal to work towards in what might seem to some of us with IGAN as a lost cause. Derrick Sydney Australia > Hi, > > If anyone is interested, I had a check-up with my Neph recently. The > kidney is working fine. My serum creatinine was 1.8 mg/dl. I am so, > so thankful and I think of my blessing many times a day. I think of > my cousin's sacrifice and God's endless blessings. > > My phosphorous and magnesium are still low. They have been since the > transplant. I take supplements for these. Rather than increasing my > supplements, my Neph recommended me to eat more foods and drink more > beverages that are rich in these minerals. For example, he wants me > to drink a fair amount of diet cola because of the phosphorous. Since > the transplant, I've tried to only drink water 99% of the time. > Unfortunately, the reason he suggested diet cola was because I had > gained 13 pounds in about three months. I'm still taking 5 mg of > Prednisone, and I'd like to " blame " my weight increase on that but I > think it is more diet and excercise related. My potassium was right > at the upper of the range. That could be from a combination of > monopril 10 mg, K-phos (8 tabs a day) which is potassium phosphate, > and the fact that I don't watch my potassium intake closely anymore. > > That's about it. > > Marty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2003 Report Share Posted February 26, 2003 Re: Marty's Update > Marty, [snipped] > You mention your phosphorus is low...on my last lab > mine was a half a point low. What exactly does this > mean? My creat was down to 1.6 & my bun was up to 30. > I thought those of us whose creat was creeping up also > had trouble with elevated phosphorus. > > As far as I know, phosphorus doesn't start rising until there's renal insufficiency. It's a very gradual thing, but at what point it becomes significant probably varies from one person to another. I would say probably not unless you're close to 30% or less. Most people I know with chronic renal insufficiency were told to start taking a Tums with meals at around that time. Pierre Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2003 Report Share Posted February 26, 2003 I'm speaking from the spouse of a kidney recipient....our feelings were so big we couldn't put it into words. Gratitude doesn't begin to describe it. My brother-in-law who was the donor, has been so unassuming about the whole thing, one wouldn't know he had even done it, at least not from his lips. He wouldn't even go to church to pray with us the night before because he didn't want any of our friends fawning over him. I know for a fact he has been dishonest with us about his complaints - any aches and pains he's had with regard to the surgery or any inconvenience. One can only assume he'll get his reward in heaven. I underestimated what a sacrifice it would be. It wasn't until I saw my brother-in-law post-op that it really dawned on me what he had done. Sorry to jump in there, but I can't help taking every opportunity to sing my b-i-l's praises! :-) -- Re: Marty's Update > Marty, > > Good to know you are doing so well.People who donate > their organs, especially living donors are wonderful > people indeed. I am sure words can't begin to explain > how it feels to receive such a gift!! > > You mention your phosphorus is low...on my last lab > mine was a half a point low. What exactly does this > mean? My creat was down to 1.6 & my bun was up to 30. > I thought those of us whose creat was creeping up also > had trouble with elevated phosphorus. > > Hi , You are right, there's no way to describe my feelings on that. And yet, my cousin speaks of it like it's no big deal at all. : ) I don't recall the values on my labs, but I think it was significantly lower than half a point. Perhaps one of the moderators can answer your question about the phos and creat relationship. take care, Marty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2003 Report Share Posted February 26, 2003 Many people need to take a stomach acid reducing pill of some kind. People on prednisone are often prescribed one to help with some side effects of the drug. Pierre Re: Marty's Update > I WAS TOLD TO GIVE MY DAUGHTER ZANTACS AT EVERY MEAL,,,,DOES ANY ONE ELSE > TAKES THESE??,,,,,CRYSTAL > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2003 Report Share Posted February 26, 2003 Marty, That sounds wonderful. Aren't these just great things to be worried about? What a miracle we have in science today. We are so lucky!! Marty's Update Hi, If anyone is interested, I had a check-up with my Neph recently. The kidney is working fine. My serum creatinine was 1.8 mg/dl. I am so, so thankful and I think of my blessing many times a day. I think of my cousin's sacrifice and God's endless blessings. My phosphorous and magnesium are still low. They have been since the transplant. I take supplements for these. Rather than increasing my supplements, my Neph recommended me to eat more foods and drink more beverages that are rich in these minerals. For example, he wants me to drink a fair amount of diet cola because of the phosphorous. Since the transplant, I've tried to only drink water 99% of the time. Unfortunately, the reason he suggested diet cola was because I had gained 13 pounds in about three months. I'm still taking 5 mg of Prednisone, and I'd like to " blame " my weight increase on that but I think it is more diet and excercise related. My potassium was right at the upper of the range. That could be from a combination of monopril 10 mg, K-phos (8 tabs a day) which is potassium phosphate, and the fact that I don't watch my potassium intake closely anymore. That's about it. Marty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2003 Report Share Posted February 26, 2003 You know I very seldom ever drink a carbonated drink anymore. I have gotten so I really love water. It tastes just wonderful. Marty's Update Hi, If anyone is interested, I had a check-up with my Neph recently. The kidney is working fine. My serum creatinine was 1.8 mg/dl. I am so, so thankful and I think of my blessing many times a day. I think of my cousin's sacrifice and God's endless blessings. My phosphorous and magnesium are still low. They have been since the transplant. I take supplements for these. Rather than increasing my supplements, my Neph recommended me to eat more foods and drink more beverages that are rich in these minerals. For example, he wants me to drink a fair amount of diet cola because of the phosphorous. Since the transplant, I've tried to only drink water 99% of the time. Unfortunately, the reason he suggested diet cola was because I had gained 13 pounds in about three months. I'm still taking 5 mg of Prednisone, and I'd like to " blame " my weight increase on that but I think it is more diet and excercise related. My potassium was right at the upper of the range. That could be from a combination of monopril 10 mg, K-phos (8 tabs a day) which is potassium phosphate, and the fact that I don't watch my potassium intake closely anymore. That's about it. Marty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2003 Report Share Posted February 26, 2003 uck! Re: Marty's Update hey diet dr pepper caff free is really good,,,, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2003 Report Share Posted February 26, 2003 Good to hear that everything's fine at the moment apart from a couple of the things being low. " wrote:Hi, If anyone is interested, I had a check-up with my Neph recently. The kidney is working fine. My serum creatinine was 1.8 mg/dl. I am so, so thankful and I think of my blessing many times a day. I think of my cousin's sacrifice and God's endless blessings. My phosphorous and magnesium are still low. They have been since the transplant. I take supplements for these. Rather than increasing my supplements, my Neph recommended me to eat more foods and drink more beverages that are rich in these minerals. For example, he wants me to drink a fair amount of diet cola because of the phosphorous. Since the transplant, I've tried to only drink water 99% of the time. Unfortunately, the reason he suggested diet cola was because I had gained 13 pounds in about three months. I'm still taking 5 mg of Prednisone, and I'd like to " blame " my weight increase on that but I think it is more diet and excercise related. My potassium was right at the upper of the range. That could be from a combination of monopril 10 mg, K-phos (8 tabs a day) which is potassium phosphate, and the fact that I don't watch my potassium intake closely anymore. That's about it. Marty Quote Link to comment Share on other sites More sharing options...
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