Guest guest Posted April 11, 2007 Report Share Posted April 11, 2007 Hi Joyce, sorry to hear your going through so much. My Mum has rehab coming to the house to help her with breathing exercises and they have made a big difference to her 'control' of the breathing. We have Bach flower remedies in the Uk and their rescue remedy is wonderful for calming you down, actors use it to help stage fright, certainly helps my Mum. Out of the 18 pills she is on a day she feels confident with the rescue remedy. When I was at the hospice during the time I was on chemo they gave us relaxation tapes and learnt us to control breathing with music and light therapy, used to leave you feeling like you were floating on a cloud. I was given a cd and although theres 9 tracks on it usually fell asleep before the 3rd one so it worked for me. Its been lovely in England today and temperatures expected to be good for the next several days too, Mums only been out to go to hospital and Doctors for months now so hopefully now the weather is improving it would be nice if I could get her for a wheel in her wheelchair around the local lake. Take care all of you, love Ann xx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2007 Report Share Posted April 11, 2007 Joyce,I am so saddened you are feeling so poor. You are such a wonderful lady. Keep fighting as hard as it is! God isn't done with you yet, and you are way to special to all of us. I will continue to pray for you...try and get some peaceful zzzz's tonight.Love,Cyndi (DAD PF 12.05)Joyce wrote: Hi Friends, I saw my pulmonary doc today. I had bloodwork and he is sending me for X Rays....useless. I couldn't go 30 feet with out my oxygen dropping. He is sending me for a few days of rehab....AGAIN. He wants me to get instruction on how to get my breathing under control in panic situations. Think it is stupid, but I will try. Several times and again last night, I have had choking episodes from coughing. I start violent coughing, then my bronchia just closes up. No air in. It is the scariest thing. I feel like someone is choking me and my head is swelling. I coughed and vomited and coughed and vomited. My husband worked with me to get my breathing under control. It was horrible. I was wet with sweat and so weak. When I do this and I am alone, it is really scarey. He refused to give me anything for coughing....nothing. He is afraid that I will drown in snot in the night. I am so tired of coughing all night. I was so exhausted by the episode last night I slept a few hours. So, I will do what he says and he wants me back in a month. I am always so dissapointed when I leave a doc's office. I feel like it is useless to even try, sometimes. I know that I have been blessed to have this many years and I am grateful to God and the my doc, who I just love. Somewhere in my mind I keep thinking someone is going to make it better and it only gradually gets worse. O.K....my little pity party is over....just have to whine once in awhile. This gets so tiresome. But, I will keep pushing and praying until God is finished with me. I went to bible study tonight at church. Ended up sitting in the ladies room, coughing. But, it was good for me to be there. I got a few 'poor baby' hugs and just made me feel better...ha! You all take care. It means so much to unload on people who totally get it. I feel like I have to put on the brave face for everyone else, but not you all. Hugs, Joyce D. PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2007 Report Share Posted April 11, 2007 Thanks Ann, Could you come take care of me? Thanks for the information on the breathing exercises. I wish they would come to my house. I am getting where I don't like to get out by myself for very long or drive into congested areas. All my docs are in the city. The rehab that he wants me to go to is in the city. I have done it all myself for so long, but it is getting difficult. More tanks, more weakness and coughing. I have a relaxation tape that I got when I did pulmonary rehab a few years ago. I love it. I cannot stay awake during the tape. When it ends I wake up. I think I need an eight hour version! Do you remember what the title to the CD is? Yes, I hope that you can take your mom outside soon. It is so depressing to be shut in. You are so sweet to take such good care of her. Hugs, Joyce PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA >> Hi Joyce, sorry to hear your going through so much. My Mum has rehab coming > to the house to help her with breathing exercises and they have made a big > difference to her 'control' of the breathing. > > We have Bach flower remedies in the Uk and their rescue remedy is wonderful > for calming you down, actors use it to help stage fright, certainly helps my > Mum. Out of the 18 pills she is on a day she feels confident with the rescue > remedy.> > When I was at the hospice during the time I was on chemo they gave us > relaxation tapes and learnt us to control breathing with music and light therapy, > used to leave you feeling like you were floating on a cloud. I was given a cd > and although theres 9 tracks on it usually fell asleep before the 3rd one so > it worked for me.> > Its been lovely in England today and temperatures expected to be good for > the next several days too, Mums only been out to go to hospital and Doctors for > months now so hopefully now the weather is improving it would be nice if I > could get her for a wheel in her wheelchair around the local lake.> > Take care all of you, love Ann xx> Quote Link to comment Share on other sites More sharing options...
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