Guest guest Posted March 15, 2003 Report Share Posted March 15, 2003 hi,my son was 5 years old on March 14th,hope the survey goes well?sarah. In CHARGE , " paulus_khouri " <paulus.khouri@g...> wrote: > I thinking of doing a survey, can everyone like down the age and > gender of each child that has change syndrome. It would be quite > cool to see how many of us there are. > > ps Im guessing that the CHarge syndrome conference will be July, > anyone know the four one one, eg the application etc Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2003 Report Share Posted March 16, 2003 5 year old male; strong as an ox, body of steel Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2003 Report Share Posted March 16, 2003 I mean 4 years old...not 5 yet. Sorry. Lack of sleep.... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2003 Report Share Posted March 17, 2003 daughter. 7 12 yrs, 45 inches tall, 48 lbs! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2003 Report Share Posted March 19, 2003 Well I'm not a child but....I am 48 years old and female. Kay survey > I thinking of doing a survey, can everyone like down the age and > gender of each child that has change syndrome. It would be quite > cool to see how many of us there are. > > ps Im guessing that the CHarge syndrome conference will be July, > anyone know the four one one, eg the application etc > > > > Membership of this email support groups does not constitute membership in the CHARGE Syndrome Foundation. > For information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter) > please contact marion@... or visit > the CHARGE Syndrome Foundation web page > at http://www.chargesyndrome.org > 6th International CHARGE Syndrome Conference, Cleveland, Ohio, > July 25-27, 2003. Information will be available at our website > www.chargesyndrome.org or by calling 1-. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2003 Report Share Posted March 21, 2003 Ed is a 3 year old boy, about 28 lbs. ( & I'm only a week behind on my reading...) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2003 Report Share Posted April 6, 2003 We didn't hear what you found out when you took to the Endo. survey > > > > I thinking of doing a survey, can everyone like down the age and > > gender of each child that has change syndrome. It would be quite > > cool to see how many of us there are. > > > > ps Im guessing that the CHarge syndrome conference will be July, > > anyone know the four one one, eg the application etc > > > > > > > > Membership of this email support groups does not constitute membership in > the CHARGE Syndrome Foundation. > > For information about the CHARGE Syndrome > > Foundation or to become a member (and get the newsletter) > > please contact marion@... or visit > > the CHARGE Syndrome Foundation web page > > at http://www.chargesyndrome.org > > 6th International CHARGE Syndrome Conference, Cleveland, Ohio, > > July 25-27, 2003. Information will be available at our website > > www.chargesyndrome.org or by calling 1-. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2003 Report Share Posted April 7, 2003 grew some. She is now 51 pounds and, I think, 43 and 11/12 inches tall. She gained about 8 pounds and almost 1 1/2 " . Doctor said not great, but better. He keeps wanting to see the " spectacular growth " some achieve with GHT. At least she is growing. (I don't think she would without the growth hormone.) He said to up the dose and we were thinking it would be a bigger jump: We went from .26 to .27 units - whoopee! We thought maybe it would jump to .3 or something. Oh, well, must not take much to increase a good bit. Took her to the dorm tonight and she seemed happy to be back at school following her Spring Break! Friends in CHARGE, Marilyn Ogan Mom of Ken (13 yrs.) and (10 yrs. CHARGE+) Re: survey We didn't hear what you found out when you took to the Endo. Quote Link to comment Share on other sites More sharing options...
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