Guest guest Posted March 13, 2003 Report Share Posted March 13, 2003 Male, 18 1/2 yrs. Smiles from, Baker - Mom to Jeff (18 ½ yrs. CHARGEr), Steve (20 yrs. and serving a Mission in Brazil), and others married with children of the own. Idaho, USA On Thu, 13 Mar 2003 17:25:15 -0000 " paulus_khouri " writes: > I thinking of doing a survey, can everyone like down the age and > gender of each child that has change syndrome. It would be quite > cool to see how many of us there are. > > ps Im guessing that the CHarge syndrome conference will be July, > anyone know the four one one, eg the application etc > > > > Membership of this email support groups does not constitute > membership in the CHARGE Syndrome Foundation. > For information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter) > please contact marion@... or visit > the CHARGE Syndrome Foundation web page > at http://www.chargesyndrome.org > 6th International CHARGE Syndrome Conference, Cleveland, Ohio, > July 25-27, 2003. Information will be available at our website > www.chargesyndrome.org or by calling 1-. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2003 Report Share Posted March 13, 2003 Male, 12 years old, 56 pounds, 4'8'' Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2003 Report Share Posted March 13, 2003 Hi, age 7.5 male maria mom to Timmy 7.5 ChARGE, keegan, liam wife to pat survey > I thinking of doing a survey, can everyone like down the age and > gender of each child that has change syndrome. It would be quite > cool to see how many of us there are. > > ps Im guessing that the CHarge syndrome conference will be July, > anyone know the four one one, eg the application etc > > > > Membership of this email support groups does not constitute membership in the CHARGE Syndrome Foundation. > For information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter) > please contact marion@... or visit > the CHARGE Syndrome Foundation web page > at http://www.chargesyndrome.org > 6th International CHARGE Syndrome Conference, Cleveland, Ohio, > July 25-27, 2003. Information will be available at our website > www.chargesyndrome.org or by calling 1-. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2003 Report Share Posted March 13, 2003 Im 24 and 5/12 Chantelle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2003 Report Share Posted March 13, 2003 I'm 5 ft, male, my weight is around 75 lbs., and I'm 23 yrs. old (going on 24 this June) See ya! Ol' Chipper --- " paulus_khouri " wrote: > I thinking of doing a survey, can everyone like down the age and >gender of each child that has change syndrome. It would be quite >cool to see how many of us there are. > >ps Im guessing that the CHarge syndrome conference will be July, >anyone know the four one one, eg the application etc > > > >Membership of this email support groups does not constitute membership in the CHARGE Syndrome Foundation. >For information about the CHARGE Syndrome >Foundation or to become a member (and get the newsletter) >please contact marion@... or visit >the CHARGE Syndrome Foundation web page >at http://www.chargesyndrome.org >6th International CHARGE Syndrome Conference, Cleveland, Ohio, >July 25-27, 2003. Information will be available at our website >www.chargesyndrome.org or by calling 1-. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2003 Report Share Posted March 13, 2003 is l6 - 5feet and weights 85 pounds. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2003 Report Share Posted March 13, 2003 Female 5 yrs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2003 Report Share Posted March 13, 2003 is about 4 foot 4 inches, 60 pounds. He is 13 years old and will be 14 in September. (!!!) He has been on growth hormone therapy[y for a month now .... here's to hoping! yuka Re: survey > I'm 5 ft, male, my weight is around 75 lbs., and I'm 23 yrs. old (going on 24 this June) > See ya! > Ol' Chipper > > --- " paulus_khouri " wrote: > > I thinking of doing a survey, can everyone like down the age and > >gender of each child that has change syndrome. It would be quite > >cool to see how many of us there are. > > > >ps Im guessing that the CHarge syndrome conference will be July, > >anyone know the four one one, eg the application etc > > > > > > > >Membership of this email support groups does not constitute membership in the CHARGE Syndrome Foundation. > >For information about the CHARGE Syndrome > >Foundation or to become a member (and get the newsletter) > >please contact marion@... or visit > >the CHARGE Syndrome Foundation web page > >at http://www.chargesyndrome.org > >6th International CHARGE Syndrome Conference, Cleveland, Ohio, > >July 25-27, 2003. Information will be available at our website > >www.chargesyndrome.org or by calling 1-. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2003 Report Share Posted March 13, 2003 7 years, female, 43 lbs and 42 inches high! Re: survey > > > > I'm 5 ft, male, my weight is around 75 lbs., and I'm 23 yrs. old (going on > 24 this June) > > See ya! > > Ol' Chipper > > > > --- " paulus_khouri " wrote: > > > I thinking of doing a survey, can everyone like down the age and > > >gender of each child that has change syndrome. It would be quite > > >cool to see how many of us there are. > > > > > >ps Im guessing that the CHarge syndrome conference will be July, > > >anyone know the four one one, eg the application etc > > > > > > > > > > > >Membership of this email support groups does not constitute membership in > the CHARGE Syndrome Foundation. > > >For information about the CHARGE Syndrome > > >Foundation or to become a member (and get the newsletter) > > >please contact marion@... or visit > > >the CHARGE Syndrome Foundation web page > > >at http://www.chargesyndrome.org > > >6th International CHARGE Syndrome Conference, Cleveland, Ohio, > > >July 25-27, 2003. Information will be available at our website > > >www.chargesyndrome.org or by calling 1-. > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2003 Report Share Posted March 13, 2003 Hi My son Mark is 19, 5'4 " and 125 solid pounds! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2003 Report Share Posted March 13, 2003 Female 5 yrs old ~ Weir Mom to Kennedy, 5yr old CHARGEr, 13, 11, and wife to Graeme Saint , New Brunswick, Canada Visit the Weir Family Website - http://personal.nbnet.nb.ca/gweir CHARGE Syndrome Canada - http://www.chargesyndrome.ca survey I thinking of doing a survey, can everyone like down the age and gender of each child that has change syndrome. It would be quite cool to see how many of us there are. ps Im guessing that the CHarge syndrome conference will be July, anyone know the four one one, eg the application etc Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2003 Report Share Posted March 13, 2003 , For info on the conference, contact info@... ~ Weir Mom to Kennedy, 5yr old CHARGEr, 13, 11, and wife to Graeme Saint , New Brunswick, Canada Visit the Weir Family Website - http://personal.nbnet.nb.ca/gweir CHARGE Syndrome Canada - http://www.chargesyndrome.ca survey I thinking of doing a survey, can everyone like down the age and gender of each child that has change syndrome. It would be quite cool to see how many of us there are. ps Im guessing that the CHarge syndrome conference will be July, anyone know the four one one, eg the application etc Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2003 Report Share Posted March 13, 2003 PS - you can visit http://www.chargesyndrome.org/ and click on " 2003 conference " for more info survey I thinking of doing a survey, can everyone like down the age and gender of each child that has change syndrome. It would be quite cool to see how many of us there are. ps Im guessing that the CHarge syndrome conference will be July, anyone know the four one one, eg the application etc Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2003 Report Share Posted March 13, 2003 is 22, 60lb and 3.5ft. , friend to > PS - you can visit http://www.chargesyndrome.org/ and click on " 2003 conference " for more info > > survey > > > I thinking of doing a survey, can everyone like down the age and > gender of each child that has change syndrome. It would be quite > cool to see how many of us there are. > > ps Im guessing that the CHarge syndrome conference will be July, > anyone know the four one one, eg the application etc > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2003 Report Share Posted March 13, 2003 Female 1 10/12 re: survey Female 5 yrs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2003 Report Share Posted March 13, 2003 Granddaughter 10 months 26 3/4 " long 15.4 lbs survey I thinking of doing a survey, can everyone like down the age and gender of each child that has change syndrome. It would be quite cool to see how many of us there are. ps Im guessing that the CHarge syndrome conference will be July, anyone know the four one one, eg the application etc Membership of this email support groups does not constitute membership in the CHARGE Syndrome Foundation. For information about the CHARGE Syndrome Foundation or to become a member (and get the newsletter) please contact marion@... or visit the CHARGE Syndrome Foundation web page at http://www.chargesyndrome.org 6th International CHARGE Syndrome Conference, Cleveland, Ohio, July 25-27, 2003. Information will be available at our website www.chargesyndrome.org or by calling 1-. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2003 Report Share Posted March 14, 2003 Female, 10 yrs. 7 mo., We go to the Endo at the end of March for the " official " weight & height check; and the re-evaluation of the GHT for her. Marilyn survey > I thinking of doing a survey, can everyone like down the age and > gender of each child that has change syndrome. It would be quite > cool to see how many of us there are. > > ps Im guessing that the CHarge syndrome conference will be July, > anyone know the four one one, eg the application etc > > > > Membership of this email support groups does not constitute membership in the CHARGE Syndrome Foundation. > For information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter) > please contact marion@... or visit > the CHARGE Syndrome Foundation web page > at http://www.chargesyndrome.org > 6th International CHARGE Syndrome Conference, Cleveland, Ohio, > July 25-27, 2003. Information will be available at our website > www.chargesyndrome.org or by calling 1-. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2003 Report Share Posted March 14, 2003 My grandson Aman will be 17 months on 21st march, Loves Pushpa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2003 Report Share Posted March 14, 2003 Hey , Kendra is 16 years old. She is almost 5 feet tall and weighs about 75 lbs. Mom to Kendra, and Camille Re: survey is 22, 60lb and 3.5ft. , friend to Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2003 Report Share Posted March 14, 2003 hi gang, isley here, mom of JEREMY,9YR OLD CHARGER, WERE FROM NORTH CAROLINA, ACTUALLY I KNOW SEVERAL FAMILIES FROM OUR ARE WHO I CAN CORRESPOND WITH, BUT THE SUPPORT OF THIS SITE IS EXCELLENT, KEEP UP THE GOOD INFO. survey > I thinking of doing a survey, can everyone like down the age and > gender of each child that has change syndrome. It would be quite > cool to see how many of us there are. > > ps Im guessing that the CHarge syndrome conference will be July, > anyone know the four one one, eg the application etc > > > > Membership of this email support groups does not constitute membership in the CHARGE Syndrome Foundation. > For information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter) > please contact marion@... or visit > the CHARGE Syndrome Foundation web page > at http://www.chargesyndrome.org > 6th International CHARGE Syndrome Conference, Cleveland, Ohio, > July 25-27, 2003. Information will be available at our website > www.chargesyndrome.org or by calling 1-. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2003 Report Share Posted March 14, 2003 Two males, 6 years old 42lbs, 47lbs, and both about 45 inches. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2003 Report Share Posted March 14, 2003 is 2.5 years old - female. Lori Myers paulus_khouri wrote: > I thinking of doing a survey, can everyone like down the age and > gender of each child that has change syndrome. It would be quite > cool to see how many of us there are. > > ps Im guessing that the CHarge syndrome conference will be July, > anyone know the four one one, eg the application etc > > Membership of this email support groups does not constitute membership in the CHARGE Syndrome Foundation. > For information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter) > please contact marion@... or visit > the CHARGE Syndrome Foundation web page > at http://www.chargesyndrome.org > 6th International CHARGE Syndrome Conference, Cleveland, Ohio, > July 25-27, 2003. Information will be available at our website > www.chargesyndrome.org or by calling 1-. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2003 Report Share Posted March 14, 2003 female 15 years 4 foot 10 68 pounds on growth hormone for 15 months grown 3 inches Re: Re: survey > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2003 Report Share Posted March 14, 2003 Hillary will be 12 y/o on June 20, she weighs 67 lbs. and is approx. 3' tall. Re: survey is about 4 foot 4 inches, 60 pounds. He is 13 years old and will be 14 in September. (!!!) He has been on growth hormone therapy[y for a month now .... here's to hoping! yuka Re: survey > I'm 5 ft, male, my weight is around 75 lbs., and I'm 23 yrs. old (going on 24 this June) > See ya! > Ol' Chipper > > --- " paulus_khouri " wrote: > > I thinking of doing a survey, can everyone like down the age and > >gender of each child that has change syndrome. It would be quite > >cool to see how many of us there are. > > > >ps Im guessing that the CHarge syndrome conference will be July, > >anyone know the four one one, eg the application etc > > > > > > > >Membership of this email support groups does not constitute membership in the CHARGE Syndrome Foundation. > >For information about the CHARGE Syndrome > >Foundation or to become a member (and get the newsletter) > >please contact marion@... or visit > >the CHARGE Syndrome Foundation web page > >at http://www.chargesyndrome.org > >6th International CHARGE Syndrome Conference, Cleveland, Ohio, > >July 25-27, 2003. Information will be available at our website > >www.chargesyndrome.org or by calling 1-. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2003 Report Share Posted March 15, 2003 Tyler is male, 2.5 yr old. He weighs 25.5 lbs and is 33 inches long. Eve (foster mom to Tyler, cHAGRE) _________________________________________________________________ Add photos to your e-mail with MSN 8. Get 2 months FREE*. http://join.msn.com/?page=features/featuredemail Quote Link to comment Share on other sites More sharing options...
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