Re: Swank's diet/

[Guest guest]

You actually did. ly, you (and others here)give out sometimes

disturbing advice over and over again--such as telling people not to

take pharmaceutical products, not see a regular dr/neuro, take

certain supplements/products/etc that you say work for you--are

you " cured? " is your profile/set of syptoms/ethnic and sociological

background the same as everyone elses? Be honest, you have had

success with what you have done, but you are still tweaking your

routine to find the right balance to feel the best that you can

feel.

I really feel like there is a lot of catch-all advice given here

without any caveat that " this works for me, I can't guarantee

anything more than that. "

Many people here are desperate, uninsured and poor; suggesting

supplements that are sold by and advised by members of this group is

a bit off-putting--it is expensive to attempt to be healthy, it is

expensive to take supplements that have no guarantee attached and I

feel like some people here claim guarantees-- " glycos will help cure

you, " " LDN will help cure you, " " colloidal silver cured me, " MS is

caused by candida overgrowth/mercury poisoning/etc. Eat only raw,

eat only organic, one speck of wheat will send a person into a

downward spiral, etc.

We all make choices based on what we learn, what feels right, what

will make life livable and as pleasant as possible. We won't all

agree, nor should we on the best way to treat this thing called MS.

If differing opinions are not welcome, then that disclaimer should

be put on the site/message board.

BTW: I have been dx'd since 2000, am fully mobile and stable, I have

been for 5 1/2 years. I see a neuro and a dr who practices

integrative medicine. I take some supplements--digestive and

vitamin/minerals, eat a modified meat-free paleo diet, I am candida-

free and test normal for mercury toxicity. I do take

pharmaceuticals--IVIG and valium for a muscle relaxant. I drink

alcohol and coffee regularly, and occasionally I stray from the diet

and drink wine, eat bread and cheese--it makes me happy. I have

something I cannot control, why should I deny myself even more--

living healthy is not the same as living miserably. IT works for me,

maybe not for others.

~sarah

>

> No one said this product wasn't beneficial. I stated that the

ingredients concerned me. I also wanted the group to know that the

person who suggested the product was a rep. for the company. Make

up your own minds based on all the information. It isn't a good

recommendation to suggest the SAD and do nothing but take a vitamin

supplement. It takes more effort than that to overcome MS.

>

[Guest guest]

. You misunderstood me if you think I said Reliv wasn't beneficial. Why

did you join this group if you don't plan on using any of the information

generously posted by the members? I never said not to go to a doctor, I've been

to many. I refused to take the MS drugs because they can cause more harm than

good (IMHO). At the very least the info. could send you to a point of

reference. This group was formed to help find what our deficiencies are and to

determine what may have caused our MS, and then address the issues. We are an

alternative medicine group. Of course we don't have all the answers. With each

other's input, maybe we can find them. Not one member has ever said that

something will cure you. I wish there was one product that could. We all have

different needs and try different things. Sometimes they help, sometimes not.

There are no guarantees in life. Sorry, (moderator)

cherry_bomb99x wrote: You actually did. ly, you (and

others here)give out sometimes

disturbing advice over and over again--such as telling people not to

take pharmaceutical products, not see a regular dr/neuro, take

certain supplements/products/etc that you say work for you--are

you " cured? " is your profile/set of syptoms/ethnic and sociological

background the same as everyone elses? Be honest, you have had

success with what you have done, but you are still tweaking your

routine to find the right balance to feel the best that you can

feel.

__________________________________________________

[Guest guest]

Kathy~

You are just Awesome......People helping People thats all thats matters...Who

cares what company they choose to support. Let me tell you something someone

once said to me, " Oh that company is just taking your money " ! I said, " Who

cares.........how much money they make off of me " . I have a better qualtiy of

life because of that company making money off of me " !

It's funny how people talk about all these supplements/alternative meds in

this group (I wont mention any of these items promoted by reps)LOL!!!! Anyway

nothing has been said until now...Someone shares a story on their experiences

and all of sudden it gets told to the group that this person is a rep....very

interesting! So everyone need to do for themselves whats best but I would go

with what it takes to run up those stairs!!!!!!!!!

Tray

Kathy Lintzenich wrote:

Re: Swank's diet/

You actually did. ly, you (and others here)give out sometimes

disturbing advice over and over again--such as telling people not to

take pharmaceutical products, not see a regular dr/neuro, take

certain supplements/products/etc that you say work for you--are

you " cured? " is your profile/set of syptoms/ethnic and sociological

background the same as everyone elses? Be honest, you have had

success with what you have done, but you are still tweaking your

routine to find the right balance to feel the best that you can

feel.

I really feel like there is a lot of catch-all advice given here

without any caveat that " this works for me, I can't guarantee

anything more than that. "

Many people here are desperate, uninsured and poor; suggesting

supplements that are sold by and advised by members of this group is

a bit off-putting--it is expensive to attempt to be healthy, it is

expensive to take supplements that have no guarantee attached and I

feel like some people here claim guarantees-- " glycos will help cure

you, " " LDN will help cure you, " " colloidal silver cured me, " MS is

caused by candida overgrowth/mercury poisoning/etc. Eat only raw,

eat only organic, one speck of wheat will send a person into a

downward spiral, etc.

We all make choices based on what we learn, what feels right, what

will make life livable and as pleasant as possible. We won't all

agree, nor should we on the best way to treat this thing called MS.

If differing opinions are not welcome, then that disclaimer should

be put on the site/message board.

BTW: I have been dx'd since 2000, am fully mobile and stable, I have

been for 5 1/2 years. I see a neuro and a dr who practices

integrative medicine. I take some supplements--digestive and

vitamin/minerals, eat a modified meat-free paleo diet, I am candida-

free and test normal for mercury toxicity. I do take

pharmaceuticals--IVIG and valium for a muscle relaxant. I drink

alcohol and coffee regularly, and occasionally I stray from the diet

and drink wine, eat bread and cheese--it makes me happy. I have

something I cannot control, why should I deny myself even more--

living healthy is not the same as living miserably. IT works for me,

maybe not for others.

~sarah

>

> No one said this product wasn't beneficial. I stated that the

ingredients concerned me. I also wanted the group to know that the

person who suggested the product was a rep. for the company. Make

up your own minds based on all the information. It isn't a good

recommendation to suggest the SAD and do nothing but take a vitamin

supplement. It takes more effort than that to overcome MS.

>

[Guest guest]

:: I think the points I am making go further than Reliv. I

have *no* opinion on Reliv, I really have *no interest* in it. I do

not take it, if someone wants to--their choice, they don't need a

slap on the wrist.

I am merely reacting to your statement:

" I think this is bad advice since we have scientific evidence that

many foods in the SAD are toxic and harmful for those with MS... You

also sell this product and

can hardly be considered impartial. "

My problem is that you never seem to call out people on this message

board whose sell glycos or the products *you* endorse. There are

people here who give dangerous advice--in particular to the young

woman suffering from depression. Several people told her to

immediately stop taking Baclofen, that the Baclofen causes

depression, or her diet is wrong or to eat only apples or not to eat

at all because she was not hungry, yet not eating for days! That

totally discounts that depression is real, that it often occurs in

concurrance with major illness, that she should get help. I

stupidly did not say anything at the time, I just read in wonderment

the advice given. And no--I personally don't have a stake in

Baclofen, I do not believe that the MS drugs work for me.

I am interested in other people's opinions, what they have tried,

etc. That is why I am here, the group tagline is " sharing

information. " I read, I take what I want out of it--I do not tell

people they are wrong, that whatever works for them is not ok or is

toxic or frankly is snake oil.

I have been using traditional and non-traditional therapies since my

dx. I understand that this is an alternative therapy group. I

thought that I had explained that I use diet and supplements as a

way of living--maybe it will make a difference in the long term,

maybe not, who knows. I am not an idiot--of course there is no

miracle cure, I never stated there was, I think that what is

called " MS " is different in every body due to environment/ethnic

background/socioeconomic factors/perhaps genetics/etc. There is no

one thing or common denomonator in what is called " MS. "

I'm sorry I disagreed with you. I'm sorry that you think that I

am " disappointed " in the lack of cure-all supplement. I am really

sorry that you don't seem to tolerate disagreement and have

questioned my reasons for subscribing to the group when I had

explained in detail that I generally take an alternative approach to

my body and regulating my " MS. "

~sarah

>

> . You misunderstood me if you think I said Reliv wasn't

beneficial. Why did you join this group if you don't plan on using

any of the information generously posted by the members? I never

said not to go to a doctor, I've been to many. I refused to take

the MS drugs because they can cause more harm than good (IMHO). At

the very least the info. could send you to a point of reference.

This group was formed to help find what our deficiencies are and to

determine what may have caused our MS, and then address the issues.

We are an alternative medicine group. Of course we don't have all

the answers. With each other's input, maybe we can find them. Not

one member has ever said that something will cure you. I wish there

was one product that could. We all have different needs and try

different things. Sometimes they help, sometimes not. There are no

guarantees in life. Sorry, (moderator)

>

[Guest guest]

Opps! Sorry this was to 'Cherry Bomb " .................I met not

Kathy! Sorry Kathy I think you are awesome too!!!!!!!!!!!!

Kathy Lintzenich wrote:

Re: Swank's diet/

You actually did. ly, you (and others here)give out sometimes

disturbing advice over and over again--such as telling people not to

take pharmaceutical products, not see a regular dr/neuro, take

certain supplements/products/etc that you say work for you--are

you " cured? " is your profile/set of syptoms/ethnic and sociological

background the same as everyone elses? Be honest, you have had

success with what you have done, but you are still tweaking your

routine to find the right balance to feel the best that you can

feel.

I really feel like there is a lot of catch-all advice given here

without any caveat that " this works for me, I can't guarantee

anything more than that. "

Many people here are desperate, uninsured and poor; suggesting

supplements that are sold by and advised by members of this group is

a bit off-putting--it is expensive to attempt to be healthy, it is

expensive to take supplements that have no guarantee attached and I

feel like some people here claim guarantees-- " glycos will help cure

you, " " LDN will help cure you, " " colloidal silver cured me, " MS is

caused by candida overgrowth/mercury poisoning/etc. Eat only raw,

eat only organic, one speck of wheat will send a person into a

downward spiral, etc.

We all make choices based on what we learn, what feels right, what

will make life livable and as pleasant as possible. We won't all

agree, nor should we on the best way to treat this thing called MS.

If differing opinions are not welcome, then that disclaimer should

be put on the site/message board.

BTW: I have been dx'd since 2000, am fully mobile and stable, I have

been for 5 1/2 years. I see a neuro and a dr who practices

integrative medicine. I take some supplements--digestive and

vitamin/minerals, eat a modified meat-free paleo diet, I am candida-

free and test normal for mercury toxicity. I do take

pharmaceuticals--IVIG and valium for a muscle relaxant. I drink

alcohol and coffee regularly, and occasionally I stray from the diet

and drink wine, eat bread and cheese--it makes me happy. I have

something I cannot control, why should I deny myself even more--

living healthy is not the same as living miserably. IT works for me,

maybe not for others.

~sarah

>

> No one said this product wasn't beneficial. I stated that the

ingredients concerned me. I also wanted the group to know that the

person who suggested the product was a rep. for the company. Make

up your own minds based on all the information. It isn't a good

recommendation to suggest the SAD and do nothing but take a vitamin

supplement. It takes more effort than that to overcome MS.

>

[Guest guest]

Re: Swank's diet/

You actually did. ly, you (and others here)give out sometimes

disturbing advice over and over again--such as telling people not to

take pharmaceutical products, not see a regular dr/neuro, take

certain supplements/products/etc that you say work for you--are

you " cured? " is your profile/set of syptoms/ethnic and sociological

background the same as everyone elses? Be honest, you have had

success with what you have done, but you are still tweaking your

routine to find the right balance to feel the best that you can

feel.

I really feel like there is a lot of catch-all advice given here

without any caveat that " this works for me, I can't guarantee

anything more than that. "

Many people here are desperate, uninsured and poor; suggesting

supplements that are sold by and advised by members of this group is

a bit off-putting--it is expensive to attempt to be healthy, it is

expensive to take supplements that have no guarantee attached and I

feel like some people here claim guarantees-- " glycos will help cure

you, " " LDN will help cure you, " " colloidal silver cured me, " MS is

caused by candida overgrowth/mercury poisoning/etc. Eat only raw,

eat only organic, one speck of wheat will send a person into a

downward spiral, etc.

We all make choices based on what we learn, what feels right, what

will make life livable and as pleasant as possible. We won't all

agree, nor should we on the best way to treat this thing called MS.

If differing opinions are not welcome, then that disclaimer should

be put on the site/message board.

BTW: I have been dx'd since 2000, am fully mobile and stable, I have

been for 5 1/2 years. I see a neuro and a dr who practices

integrative medicine. I take some supplements--digestive and

vitamin/minerals, eat a modified meat-free paleo diet, I am candida-

free and test normal for mercury toxicity. I do take

pharmaceuticals--IVIG and valium for a muscle relaxant. I drink

alcohol and coffee regularly, and occasionally I stray from the diet

and drink wine, eat bread and cheese--it makes me happy. I have

something I cannot control, why should I deny myself even more--

living healthy is not the same as living miserably. IT works for me,

maybe not for others.

~sarah

>

> No one said this product wasn't beneficial. I stated that the

ingredients concerned me. I also wanted the group to know that the

person who suggested the product was a rep. for the company. Make

up your own minds based on all the information. It isn't a good

recommendation to suggest the SAD and do nothing but take a vitamin

supplement. It takes more effort than that to overcome MS.

>

[Guest guest]

I don't have a problem with disagreeing opinions. I do have a problem with

rudeness. You seem to keep insulting what other members have to say. That's

why I asked why you joined. You haven't been here long enough to know how sales

have been handled and you don't know what goes on behind the scenes. I don't

have any stake in the products I use and I'm truthful about the experiences I

have with them. (moderator)

cherry_bomb99x wrote:

My problem is that you never seem to call out people on this message

board whose sell glycos or the products *you* endorse. There are

people here who give dangerous advice--in particular to the young

woman suffering from depression. Several people told her to

immediately stop taking Baclofen, that the Baclofen causes

depression, or her diet is wrong or to eat only apples or not to eat

at all because she was not hungry, yet not eating for days! That

totally discounts that depression is real, that it often occurs in

concurrance with major illness, that she should get help. I

stupidly did not say anything at the time, I just read in wonderment

the advice given. And no--I personally don't have a stake in

Baclofen, I do not believe that the MS drugs work for me.

I am interested in other people's opinions, what they have tried,

etc. That is why I am here, the group tagline is " sharing

information. " I read, I take what I want out of it--I do not tell

people they are wrong, that whatever works for them is not ok or is

toxic or frankly is snake oil.

~sarah

__________________________________________________

[Guest guest]

No problem, I read it and thought wow! I just got a compliment for no reason and

this is a really good day!! Smiles....

Re: Swank's diet/

You actually did. ly, you (and others here)give out sometimes

disturbing advice over and over again--such as telling people not to

take pharmaceutical products, not see a regular dr/neuro, take

certain supplements/products/etc that you say work for you--are

you " cured? " is your profile/set of syptoms/ethnic and sociological

background the same as everyone elses? Be honest, you have had

success with what you have done, but you are still tweaking your

routine to find the right balance to feel the best that you can

feel.

I really feel like there is a lot of catch-all advice given here

without any caveat that " this works for me, I can't guarantee

anything more than that. "

Many people here are desperate, uninsured and poor; suggesting

supplements that are sold by and advised by members of this group is

a bit off-putting--it is expensive to attempt to be healthy, it is

expensive to take supplements that have no guarantee attached and I

feel like some people here claim guarantees-- " glycos will help cure

you, " " LDN will help cure you, " " colloidal silver cured me, " MS is

caused by candida overgrowth/mercury poisoning/etc. Eat only raw,

eat only organic, one speck of wheat will send a person into a

downward spiral, etc.

We all make choices based on what we learn, what feels right, what

will make life livable and as pleasant as possible. We won't all

agree, nor should we on the best way to treat this thing called MS.

If differing opinions are not welcome, then that disclaimer should

be put on the site/message board.

BTW: I have been dx'd since 2000, am fully mobile and stable, I have

been for 5 1/2 years. I see a neuro and a dr who practices

integrative medicine. I take some supplements--digestive and

vitamin/minerals, eat a modified meat-free paleo diet, I am candida-

free and test normal for mercury toxicity. I do take

pharmaceuticals--IVIG and valium for a muscle relaxant. I drink

alcohol and coffee regularly, and occasionally I stray from the diet

and drink wine, eat bread and cheese--it makes me happy. I have

something I cannot control, why should I deny myself even more--

living healthy is not the same as living miserably. IT works for me,

maybe not for others.

~sarah

>

> No one said this product wasn't beneficial. I stated that the

ingredients concerned me. I also wanted the group to know that the

person who suggested the product was a rep. for the company. Make

up your own minds based on all the information. It isn't a good

recommendation to suggest the SAD and do nothing but take a vitamin

supplement. It takes more effort than that to overcome MS.

>

[Guest guest]

,

Thank you for detailed response. I was not aware of the previous discourse,

no, and just the original email you posted in response. It sounds like there was

some personal stuff between members going on, which is too bad. I think

MacDougall is awesome (although wish he pushed enzymes more) and know others

controlling their MS with a similar program to his (whole organic vegan, etc). I

wasn't trying to " say anything " about your program, just trying to illustrate

the potential damage of even small amounts of cheese. Once a year probably isn't

worth mentioning, but very few eat it in only that capacity. It wasn't meant to

upset you, though. It sounds like you truly have a grip on many different

useful therapies and that you are managing your MS quite well. Congratulations

on that, and I would be sorry to see you leave the group (even though I don't

post a lot) because it sounds as if you have a lot to contribute. I'm sorry if I

was one of the people who made you feel

unwelcome as that was never my intent! :-) Truly enjoy your holiday, and your

one day off your strict diet ;-) You sound like you deserve it, sister! Happy

Holidays, a (School Of RAWk)

a Albanese

School Of RAWk

Certified Raw Chef, Raw Nutritionist and Health Coach

Advanced Practitioner of The Living Foods Lifestyle

www.SchoolOfRAWk.com Coming Soon!

SchoolOfRAWk@...

(541)915-1995

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__________________________________________________