Guest guest Posted January 3, 2007 Report Share Posted January 3, 2007 , I am so sorry you are so down. My heart goes out to you. Here is something I learned while dealing with breast cancer. When you are stressed, which you are, it affects the immune system causing other problems. I am not a doctor but would think that being so down IS affecting your immune system and in turn causing problems with your MS. Are you on any antidepressants? If not I would definitely call your doctor and tell him how horrible you are feeling. I will keep you in my prayers. Hugs nne Breast Cancer Patients Soul Mates for Lifehttp://www.geocities.com/chucky5741/breastcancerpatients.htmlBreastCancerStories.comhttp://www.breastcancerstories.com/content/view/433/161/Angel Feather Loomerwww.angelfeatherloomer.blogspot.comCheck out my other ornaments atwww.geocities.com/chucky5741/bcornament.htmlLots of info and gifts at:www.cancerclub.com Going Nutty with MS Help - I am down! I am really struggling with having MS. I am tired of it. I am tired of being limited by this. I am upset about what has been taken away and what will never be because of this. I am tired of being tired and then not being able to sleep. I just want to be healthy again. For some reason I am feeling really worn down by this. I just don't want this anymore. It's been almost 16 years and I am done with MS. Sorry to just ramble - I know it's not gonna go away and I know I just have to keep learning how to live with this. I know I could be so much worse (and I really am grateful for that). I just want to sit here and cry. No one else but all of you know what I am talking about. I wish I could just take take off MS like a big heavy coat and throw it down and be rid of it for good. Sorry again for being a downer at the New Year. But I am down - really down. No virus found in this incoming message.Checked by AVG Free Edition.Version: 7.1.409 / Virus Database: 268.16.3/614 - Release Date: 1/2/2007 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2007 Report Share Posted January 3, 2007 Sweet ~Yes, we can all relate in one shape or form. There are those of us who have had MS nearly as long as you, others who have had it longer. I'm one of the ones who has had it probably some time, but wasn't really 'afflicted' to the point of pursuing what it was, and have only been officially dx'd for 1 year now. As far as the not sleeping/sleeping--I have that also, and in some part it is due, for me, to perimenopause. I finally pushed myself yesterday and went outside for about 45 min. with my dog. I didn't walk nearly as fast as I used to, and yes, I mourn that, as you yourself mourn the loss of many things in your life, due to MS. Even if you are limited in your walking, at least try and get outdoors in the fresh air, even if it is cold~it did wonders for me yesterday, and for the first time in a while, I slept like a top! Praise God! Also, to try and pull me from the funk of MS, I am looking into possibly visiting MS folks who are nursing home bound in my area, or visiting with hospice patients. I hope and believe 2 things will occur: I will see what I do have, i.e., that the cup is half full, not half empty, and that I will have a sense of reaching out and doing something positive;a serving heart. You are NOT being a downer--you are being you, and being real and truthful~that is a blessing to each of us here, really! The NMSS has counseling services available -just contact them via email or phone and try to set something up with them. Do something for yourself--get a haircut, a massage, reflexology, your nails painted. If you can't afford it, see if a local church, or your home church, if you have one, could assist you in this. Please keep sharing, venting...We are hear to listen and lift you in prayer, and encourage you, whatever ways we can. Blessings and many hugs to you! kate Going Nutty with MSTo: MSersLife > Help - I am down! I am really struggling with having MS. I am > tired > of it. I am tired of being limited by this. I am upset about > what > has been taken away and what will never be because of this. > > I am tired of being tired and then not being able to sleep. I > just > want to be healthy again. For some reason I am feeling really > worn > down by this. > > I just don't want this anymore. It's been almost 16 years and I > am > done with MS. > > Sorry to just ramble - I know it's not gonna go away and I know > I > just have to keep learning how to live with this. I know I > could be > so much worse (and I really am grateful for that). > > I just want to sit here and cry. No one else but all of you > know > what I am talking about. > > I wish I could just take take off MS like a big heavy coat and > throw > it down and be rid of it for good. > > Sorry again for being a downer at the New Year. But I am down - > really down.> > > > Recharge Your Chi! Believe and Achieve! Dreams are Worth Striving For! 10 lbs down, 40 to go! Ask me~I'm on Fire! ians 4:13 I can do all things through Crhist who gives me strength. Attachment: vcard [not shown] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2007 Report Share Posted January 3, 2007 , wishing I had a magic wand. Sending a cyber hug from Idaho instead. I know how you feel. It's only been two years here. I'm waiting on an SSI hearing, and had hte paperwork conversation with my doctor last week. Hearing him say out loud that what I lost two years ago still isn't back was ugly. I've been mentally framing it as *I'm so much better than I was the year before I got on Copaxone.* He reminded me that where I am sucks compared to where I was at 36. I can't fix mine. I can't fix yours. Try to find some part of your life that MS hasn't screwed over. Maybe music, maybe reading, maybe pets. Find it, cherish it. Hugs, Amy in Idaho > > Help - I am down! I am really struggling with having MS. I am tired > of it. I am tired of being limited by this. I am upset about what > has been taken away and what will never be because of this. > > I am tired of being tired and then not being able to sleep. I just > want to be healthy again. For some reason I am feeling really worn > down by this. > > I just don't want this anymore. It's been almost 16 years and I am > done with MS. > > Sorry to just ramble - I know it's not gonna go away and I know I > just have to keep learning how to live with this. I know I could be > so much worse (and I really am grateful for that). > > I just want to sit here and cry. No one else but all of you know > what I am talking about. > > I wish I could just take take off MS like a big heavy coat and throw > it down and be rid of it for good. > > Sorry again for being a downer at the New Year. But I am down - > really down. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2007 Report Share Posted January 3, 2007 , No doubt most if not all of us understand your thoughts and feelings. This is a good place to get them out...so go ahead. It is helpful to talk to those that understand. No apology is necessary. A point to ponder....Educators agree that we only retain a small portion of what we hear or read. So with that in mind....How much of what is written regarding God...........has been missed by we humans through the ages ??.....Needless to say, most of what was seen, witnessed and/or experienced. So it may be worth while to ask God for some help to accept what is....for some Faith to see....for some Hope to understand or at least accept.....Maybe, just maybe His will is best and we probably will not ever understand but we might be able to accept. You are doing the best that you can....so stand tall, you can't do more than that. Regards, Tom Going Nutty with MS Help - I am down! I am really struggling with having MS. I am tired of it. I am tired of being limited by this. I am upset about what has been taken away and what will never be because of this. I am tired of being tired and then not being able to sleep. I just want to be healthy again. For some reason I am feeling really worn down by this. I just don't want this anymore. It's been almost 16 years and I am done with MS. Sorry to just ramble - I know it's not gonna go away and I know I just have to keep learning how to live with this. I know I could be so much worse (and I really am grateful for that). I just want to sit here and cry. No one else but all of you know what I am talking about. I wish I could just take take off MS like a big heavy coat and throw it down and be rid of it for good. Sorry again for being a downer at the New Year. But I am down - really down. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2007 Report Share Posted January 3, 2007 , I do understand what you are going through... I've never been much of a " housewife " type person... I used to tell a friend of mine something along the order of " If the Good Lord had intended for me to make beds, and wash dishes and clothes.. he wouldn't have given me a brain " (sorry to those who have loved being housewives & mothers).. and her reply was " There's a (being the housewife motherly type person) in ALL of us and that I just hadn't found the right person to be a with " .. I'd laugh at her of course... 7 years ago I stopped laughing and changed my position on the " the Good Lord " thing... It frustrates me to NO END.. that NOW that I've found the man who I'd LOVE to be a " " for.. I can't... Now that I've got a man around who appreciates and doesn't expect me to get out of the bed to see him off to work in the morning.. who really appreciates it when I can cook something and doesn't expect it... I can't do any of it... Yup, I agree with you.. I'm tired of the MonSter and I wish he'd go somewhere else for awhile at the very least.. Just go away, and let me have the energy and the balance and all the stuff I don't have.. to allow me to clean the house, washes the dishes and cook a decent meal and have it on the table when he comes through the door.. Just one day... I know it's not going to happen.. but I think about it often.. and sometimes I do actually get something accomplished.. even if it's only getting the glasses and the coffee cups washed & dried.. Have ya ever heard Baz Luhrman's song (Everybody's Free To Wear) Sunscreen? If you can find it, you might want to give it a listen.. I don't know why, but when I'm feeling really really down... the words seem to pick me up and give me a little bit of hope to go on.. And I do agree that dealing with the MonSter day in and day out gets really really really old sometimes faster than others.... and I think most of us want to just give it up once in awhile.. I also think that being housebound has alot to do with it.. I don't drive anymore.. it wouldn't be a really wise thing to do.. but sometimes I think maybe I'll drive to work and I'll have the car for the day, and I can go running.. to the library, or the courthouse (and do some document searches for my family trees.. know that's not going to happen though.. there is NO handicapped parking near the courthouse entrance, and it's uphill two blocks to the nearest parking lot... the downhill part isn't much better.. no balance... lol)... Some days to battle the depression I just pick a topic that strikes my fancy and google it all day long.. usually end up way off the path that I started on.. but it takes my mind off things as well... Winter is the worst time.. but summer isn't much better either... but I think the shorter days and lack of sunshine makes a difference in the amount of frustration I feel.. maybe one of those natural light sunlamps that they use in closed offices would help.. I've been having more than few bouts of the being exhausted but not being able to sleep thing.. I thought maybe some Excedrin PM would help.. at least relax me enough that my mind wouldn't race at 100 miles per hour so that every time I closed my eyes they wouldn't just pop back open wide awake.. I found out that the two pill doseage is NOT a good thing for me.. does help me fall asleep.. but then I have really really strange dreams.. therefore don't rest at all.. did find out that if I only take one pill instead, that eventually I can drift off to sleep and rest at least for a few hours... it also helps to sing the " 1 little 2 little 3 little indians " forward and backward (from 1 to 10, then 10 to 1) under my breath while I'm laying in bed.. Okay.. yeah.. I know that sounds nuts... but it works for me.. the concentration of keeping track of where I am in the song keeps my mind focused on that task rather than all those pop-in-your-head-things-while-it's-racing-100-miles-per-hour-that keep me awake.. Well if none of my suggestions work for you, then know that I'm still hear to listen anytime you want to rant or rave, or cry and complain.. I'll understand.. been there myself... Take care... |)onna Deao wrote: > > Help - I am down! I am really struggling with having MS. I am tired > of it. I am tired of being limited by this. I am upset about what > has been taken away and what will never be because of this. > > I am tired of being tired and then not being able to sleep. I just > want to be healthy again. For some reason I am feeling really worn > down by this. > > I just don't want this anymore. It's been almost 16 years and I am > done with MS. > > Sorry to just ramble - I know it's not gonna go away and I know I > just have to keep learning how to live with this. I know I could be > so much worse (and I really am grateful for that). > > I just want to sit here and cry. No one else but all of you know > what I am talking about. > > I wish I could just take take off MS like a big heavy coat and throw > it down and be rid of it for good. > > Sorry again for being a downer at the New Year. But I am down - > really down. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2007 Report Share Posted January 3, 2007 Donna, what you are doing when you sing the indian song is akin to reciting a Mantra. That is what I do when I can't sleep (like last night, I was way too excited and that moon was way too loud!) I repeat one in Sanscrit, though (wouldn't ya know I can't do anything *normal*?) Goes like this: Ohm KaliMa Vasini KaliMe Maja Lukshime Raja Re Deji! Deji! Varaday Swaha. It is a prayer for help and support BTW. I repeat it in my Mala, which is a sort of ry with 108 beads when I need to, as well. I repeat that over and over till the random thoughts stop and I finally rest and sleep...works for me... --- Donna wrote: > , > > I do understand what you are going through... I've > never been much of a > " housewife " type person... I used to tell a friend > of mine something > along the order of " If the Good Lord had intended > for me to make beds, > and wash dishes and clothes.. he wouldn't have given > me a brain " (sorry > to those who have loved being housewives & > mothers).. and her reply was > " There's a (being the housewife motherly type > person) in ALL of us > and that I just hadn't found the right person to be > a with " .. I'd > laugh at her of course... 7 years ago I stopped > laughing and changed my > position on the " the Good Lord " thing... > > It frustrates me to NO END.. that NOW that I've > found the man who I'd > LOVE to be a " " for.. I can't... Now that I've > got a man around who > appreciates and doesn't expect me to get out of the > bed to see him off > to work in the morning.. who really appreciates it > when I can cook > something and doesn't expect it... I can't do any of > it... > > Yup, I agree with you.. I'm tired of the MonSter and > I wish he'd go > somewhere else for awhile at the very least.. Just > go away, and let me > have the energy and the balance and all the stuff I > don't have.. to > allow me to clean the house, washes the dishes and > cook a decent meal > and have it on the table when he comes through the > door.. Just one day... > > I know it's not going to happen.. but I think about > it often.. and > sometimes I do actually get something accomplished.. > even if it's only > getting the glasses and the coffee cups washed & > dried.. > > Have ya ever heard Baz Luhrman's song (Everybody's > Free To Wear) > Sunscreen? If you can find it, you might want to > give it a listen.. I > don't know why, but when I'm feeling really really > down... the words > seem to pick me up and give me a little bit of hope > to go on.. > > And I do agree that dealing with the MonSter day in > and day out gets > really really really old sometimes faster than > others.... and I think > most of us want to just give it up once in awhile.. > I also think that > being housebound has alot to do with it.. I don't > drive anymore.. it > wouldn't be a really wise thing to do.. but > sometimes I think maybe I'll > drive to work and I'll have the car for the > day, and I can go > running.. to the library, or the courthouse (and do > some document > searches for my family trees.. know that's not going > to happen though.. > there is NO handicapped parking near the courthouse > entrance, and it's > uphill two blocks to the nearest parking lot... the > downhill part isn't > much better.. no balance... lol)... > > Some days to battle the depression I just pick a > topic that strikes my > fancy and google it all day long.. usually end up > way off the path that > I started on.. but it takes my mind off things as > well... > > Winter is the worst time.. but summer isn't much > better either... but I > think the shorter days and lack of sunshine makes a > difference in the > amount of frustration I feel.. maybe one of those > natural light sunlamps > that they use in closed offices would help.. > > I've been having more than few bouts of the being > exhausted but not > being able to sleep thing.. I thought maybe some > Excedrin PM would > help.. at least relax me enough that my mind > wouldn't race at 100 miles > per hour so that every time I closed my eyes they > wouldn't just pop back > open wide awake.. I found out that the two pill > doseage is NOT a good > thing for me.. does help me fall asleep.. but then I > have really really > strange dreams.. therefore don't rest at all.. did > find out that if I > only take one pill instead, that eventually I can > drift off to sleep and > rest at least for a few hours... it also helps to > sing the " 1 little 2 > little 3 little indians " forward and backward (from > 1 to 10, then 10 to > 1) under my breath while I'm laying in bed.. Okay.. > yeah.. I know that > sounds nuts... but it works for me.. the > concentration of keeping track > of where I am in the song keeps my mind focused on > that task rather than > all those > pop-in-your-head-things-while-it's-racing-100-miles-per-hour-that > keep > me awake.. > > Well if none of my suggestions work for you, then > know that I'm still > hear to listen anytime you want to rant or rave, or > cry and complain.. > I'll understand.. been there myself... > > Take care... > > |)onna > Deao wrote: > > > > Help - I am down! I am really struggling with > having MS. I am tired > > of it. I am tired of being limited by this. I am > upset about what > > has been taken away and what will never be because > of this. > > > > I am tired of being tired and then not being able > to sleep. I just > > want to be healthy again. For some reason I am > feeling really worn > > down by this. > > > > I just don't want this anymore. It's been almost > 16 years and I am > > done with MS. > > > > Sorry to just ramble - I know it's not gonna go > away and I know I > > just have to keep learning how to live with this. > I know I could be > > so much worse (and I really am grateful for that). > > > > I just want to sit here and cry. No one else but > all of you know > > what I am talking about. > > > > I wish I could just take take off MS like a big > heavy coat and throw > > it down and be rid of it for good. > > > > Sorry again for being a downer at the New Year. > But I am down - > > really down. > > > > > > Peace and Blessings ~*~ Akiba ~*~ Pragmatic Visionary & Eternal Optimist! http://yodamamma.blogspot.com/ http://www.solay-twinflames.com __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2007 Report Share Posted January 3, 2007 Oh ! I wish there was a magic potion to send to you!!! Tell me more about how MS has affected you. How active are you? Do you have to use a cane, walker or wheelchair? You also have the distress and worry of having an ill child piled on you. How is is doing now? Any news? Why can't you sleep? Is it some meds you are taking? If so, can you switch them around so the sleeplessness comes during the day? (don't we all want that? lol) Do you take vitamins/supplements? Do you exercise? Do stretching? Sending my love and understanding.....Sharon If the government is big enough to give you everything you want, it is big enough to take away everything you have. - Gerald Ford----- Original Message ----To: MSersLife Sent: Wednesday, January 3, 2007 2:05:51 AMSubject: Going Nutty with MS Help - I am down! I am really struggling with having MS. I am tired of it. I am tired of being limited by this. I am upset about what has been taken away and what will never be because of this. I am tired of being tired and then not being able to sleep. I just want to be healthy again. For some reason I am feeling really worn down by this. I just don't want this anymore. It's been almost 16 years and I am done with MS. Sorry to just ramble - I know it's not gonna go away and I know I just have to keep learning how to live with this. I know I could be so much worse (and I really am grateful for that). I just want to sit here and cry. No one else but all of you know what I am talking about. I wish I could just take take off MS like a big heavy coat and throw it down and be rid of it for good. Sorry again for being a downer at the New Year. But I am down - really down. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2007 Report Share Posted January 3, 2007 hey kate.just wanted to say I think that visiting others a little less unfortunate is a good idea.I think im going to try that,just to talk and listen to them.how will you go about doing that?do you call and ask?can they let just anyone go to visit?im very interested in doing this,and think once i start feeling a little better im going to look into it.hope your well today.hugs,cassy [katelloydkidz@...] wrote: Sweet ~Yes, we can all relate in one shape or form. There are those of us who have had MS nearly as long as you, others who have had it longer. I'm one of the ones who has had it probably some time, but wasn't really 'afflicted' to the point of pursuing what it was, and have only been officially dx'd for 1 year now. As far as the not sleeping/sleeping--I have that also, and in some part it is due, for me, to perimenopause. I finally pushed myself yesterday and went outside for about 45 min. with my dog. I didn't walk nearly as fast as I used to, and yes, I mourn that, as you yourself mourn the loss of many things in your life, due to MS. Even if you are limited in your walking, at least try and get outdoors in the fresh air, even if it is cold~it did wonders for me yesterday, and for the first time in a while, I slept like a top! Praise God! Also, to try and pull me from the funk of MS, I am looking into possibly visiting MS folks who are nursing home bound in my area, or visiting with hospice patients. I hope and believe 2 things will occur: I will see what I do have, i.e., that the cup is half full, not half empty, and that I will have a sense of reaching out and doing something positive;a serving heart. You are NOT being a downer--you are being you, and being real and truthful~that is a blessing to each of us here, really! The NMSS has counseling services available -just contact them via email or phone and try to set something up with them. Do something for yourself--get a haircut, a massage, reflexology, your nails painted. If you can't afford it, see if a local church, or your home church, if you have one, could assist you in this. Please keep sharing, venting...We are hear to listen and lift you in prayer, and encourage you, whatever ways we can. Blessings and many hugs to you! kate Going Nutty with MS To: MSersLife > Help - I am down! I am really struggling with having MS. I am > tired > of it. I am tired of being limited by this. I am upset about > what > has been taken away and what will never be because of this. > > I am tired of being tired and then not being able to sleep. I > just > want to be healthy again. For some reason I am feeling really > worn > down by this. > > I just don't want this anymore. It's been almost 16 years and I > am > done with MS. > > Sorry to just ramble - I know it's not gonna go away and I know > I > just have to keep learning how to live with this. I know I > could be > so much worse (and I really am grateful for that). > > I just want to sit here and cry. No one else but all of you > know > what I am talking about. > > I wish I could just take take off MS like a big heavy coat and > throw > it down and be rid of it for good. > > Sorry again for being a downer at the New Year. But I am down - > really down. > > > > Recharge Your.... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2007 Report Share Posted January 3, 2007 Hi Sharon, The sad thing was that yesterday my son came to me upset about how tired he was of being sick with leg pain. I thought "oh, boy" we can't both lose it on the same day. LOL Overall, I'd say that he's doing better. I think we are both probably worn down from the holidays and you know how that can get w/any chronic disease. I am not wheelchair bound or using a walker. I have a cane that I use when I am unstable or in a lot of pain and need the extra support. I am usually doing my best to make it through the day. I have help with the house so I don't have to do the tough stuff around the house. MS has mainly affected me by bringing on constant fatigue (debilitating fatigue), overall physical weakness and constant pain. My memory is struggling more and at times I feel that I can't get out what I want to say. It is hard to do too much with my hands - they wear out too fast. Then when my body is fatigued I go into muscle tremors. Obviously, I struggle w/depression - I really work to keep this under control. But every once in awhile - I can't keep it down anymore and this is one of those times. There's just so much that I want to do and can't. So many dreams that I never fulfilled and don't see them happening. Sometimes I just feel like it's a big weight that is just enough to keep me from getting up and doing what I want. Sometimes I wish I could do everything I need to do in the day - in the middle of the night when I can't sleep. Could you imagine? I'd be raising little vampires. LOL I don't think any of my meds are causing the insomnia. I've had this problem the entire time. I have to watch what I take at night to help w/pain and sleep because I have to get up with the kids the next day. Thanks for your thoughts and help. It really helps to know that someone else out there understands me. Family and friends really try (bless their hearts) but really only those of us with chronic diseases understand completely! Blessings and hugs to you,Sharon Marsden wrote: Oh ! I wish there was a magic potion to send to you!!! Tell me more about how MS has affected you. How active are you? Do you have to use a cane, walker or wheelchair? You also have the distress and worry of having an ill child piled on you. How is is doing now? Any news? Why can't you sleep? Is it some meds you are taking? If so, can you switch them around so the sleeplessness comes during the day? (don't we all want that? lol) Do you take vitamins/supplements? Do you exercise? Do stretching? Sending my love and understanding.....Sharon If the government is big enough to give you everything you want, it is big enough to take away everything you have. - Gerald Ford<!--[endif]--> Going Nutty with MS Help - I am down! I am really struggling with having MS. I am tired of it. I am tired of being limited by this. I am upset about what has been taken away and what will never be because of this. I am tired of being tired and then not being able to sleep. I just want to be healthy again. For some reason I am feeling really worn down by this. I just don't want this anymore. It's been almost 16 years and I am done with MS. Sorry to just ramble - I know it's not gonna go away and I know I just have to keep learning how to live with this. I know I could be so much worse (and I really am grateful for that). I just want to sit here and cry. No one else but all of you know what I am talking about. I wish I could just take take off MS like a big heavy coat and throw it down and be rid of it for good. Sorry again for being a downer at the New Year. But I am down - really down.__________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2007 Report Share Posted January 4, 2007 {{{Kate}}} I believe you hit the nail on the head! I know that even on my worse of the worst days, if I just go outside and sit on my deck for awhile...it helps. It's even better if the sun is shining! It gives you a little energy boost. I would love it if I could get around and do some community or volunteer work. That might be what I need to "get back in the groove." I had a very busy and exhausting day yesterday, and all I did was go to the doctor, then wait in my fiances car for 3 hours while he attended to some business. Seems like that's all it took to get a really good nights sleep. Uh Oh...I just remembered. I forgot to take my shot before I went to bed. REALLY! Hmmm...I wonder if that's why I slept so well? God bless... http://360.yahoo.com/vallee45 -- Re: Going Nutty with MS Sweet ~Yes, we can all relate in one shape or form. There are those of us who have had MS nearly as long as you, others who have had it longer. I'm one of the ones who has had it probably some time, but wasn't really 'afflicted' to the point of pursuing what it was, and have only been officially dx'd for 1 year now. As far as the not sleeping/sleeping--I have that also, and in some part it is due, for me, to perimenopause. I finally pushed myself yesterday and went outside for about 45 min. with my dog. I didn't walk nearly as fast as I used to, and yes, I mourn that, as you yourself mourn the loss of many things in your life, due to MS. Even if you are limited in your walking, at least try and get outdoors in the fresh air, even if it is cold~it did wonders for me yesterday, and for the first time in a while, I slept like a top! Praise God! Also, to try and pull me from the funk of MS, I am looking into possibly visiting MS folks who are nursing home bound in my area, or visiting with hospice patients. I hope and believe 2 things will occur: I will see what I do have, i.e., that the cup is half full, not half empty, and that I will have a sense of reaching out and doing something positive;a serving heart. You are NOT being a downer--you are being you, and being real and truthful~that is a blessing to each of us here, really! The NMSS has counseling services available -just contact them via email or phone and try to set something up with them. Do something for yourself--get a haircut, a massage, reflexology, your nails painted. If you can't afford it, see if a local church, or your home church, if you have one, could assist you in this. Please keep sharing, venting...We are hear to listen and lift you in prayer, and encourage you, whatever ways we can. Blessings and many hugs to you! kate Going Nutty with MSTo: MSersLife > Help - I am down! I am really struggling with having MS. I am > tired > of it. I am tired of being limited by this. I am upset about > what > has been taken away and what will never be because of this. > > I am tired of being tired and then not being able to sleep. I > just > want to be healthy again. For some reason I am feeling really > worn > down by this. > > I just don't want this anymore. It's been almost 16 years and I > am > done with MS. > > Sorry to just ramble - I know it's not gonna go away and I know > I > just have to keep learning how to live with this. I know I > could be > so much worse (and I really am grateful for that). > > I just want to sit here and cry. No one else but all of you > know > what I am talking about. > > I wish I could just take take off MS like a big heavy coat and > throw > it down and be rid of it for good. > > Sorry again for being a downer at the New Year. But I am down - > really down.> > > > Recharge Your Chi! Believe and Achieve! Dreams are Worth Striving For! 10 lbs down, 40 to go! Ask me~I'm on Fire! ians 4:13 I can do all things through Crhist who gives me strength. Art by Engelbreit Font - Cac Norm Heavy Sliding Streaker Tutorial Assembly by Chloe Spencer Click Here To Join My Group September 6 , 2006 For Personal Use Only in Incredimail Please Do Not Rip Apart of Convert to OE Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2007 Report Share Posted January 4, 2007 Hey Val~gee whiz! It is hard to remember some days to do the shot--I had gotten into a fairly nice routine with it in the am with my pills, but then...i dunno the holidays hit and routines went by the wayside--but for the most part I am back on schedule. I am bummed though, as the pain and numbness and tingling in my foot have escalated to the point where I have no sensation--i feel like i have a bag of sand for a foot. It has become very challenging to walk at all. Today I am beginning to feel some of the same happening on the right foot also--but definitely significantly worse on the left. I'm just going to try and rest--it is my youngest son's 7th birthday, and i have to make some special dinner and cake arrangements. hugs and blessings to all! kate Going Nutty with MS> To: MSersLife > > > Help - I am down! I am really struggling with having MS. I am > > tired > > of it. I am tired of being limited by this. I am upset about > > what > > has been taken away and what will never be because of this. > > > > I am tired of being tired and then not being able to sleep. I > > just > > want to be healthy again. For some reason I am feeling really > > worn > > down by this. > > > > I just don't want this anymore. It's been almost 16 years and > I > > am > > done with MS. > > > > Sorry to just ramble - I know it's not gonna go away and I > know > > I > > just have to keep learning how to live with this. I know I > > could be > > so much worse (and I really am grateful for that). > > > > I just want to sit here and cry. No one else but all of you > > know > > what I am talking about. > > > > I wish I could just take take off MS like a big heavy coat and > > throw > > it down and be rid of it for good. > > > > Sorry again for being a downer at the New Year. But I am down -> > > really down.> > > > > > > > > > > Recharge Your Chi! Believe and Achieve! Dreams are Worth > Striving For! > 10 lbs down, 40 to go! Ask me~I'm on Fire! > ians 4:13 I can do all things through Crhist who gives > me strength.> > > > > Recharge Your Chi! Believe and Achieve! Dreams are Worth Striving For! 10 lbs down, 40 to go! Ask me~I'm on Fire! ians 4:13 I can do all things through Crhist who gives me strength. Attachment: vcard [not shown] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2007 Report Share Posted January 4, 2007 hey carrie.you remind me so much of myself.all those ways you feel...if you ever need to talk u can email me anytime.its.payngabby72@... have dibilitating fatigue,weakness and pain as well.and it does keep me from doing alot of things.even when I think im ok and feeling good enough to do something.BOOM..like a ton of bricks! And once again im unable to accomplish what I need to.I know family tries there hardest,mine does to,I just think they are unable to completly understand because they dont know what its like to feel this way.I have been feeling like a burden to mine lately.I know im not,but thats how I feel.I have to ask for help with everything,especially getting to and from the doc,witch is wayy to much.they know a dx is around the corner and they are trying there hardest to help as much as possible,but i just feel bad.How old are your kids?mine are 8 and 2.both girls.they keep me smiln always.hang in there and always remember we are all here for you.hugs,cassy [f8thfulmom@...] wrote: Hi Sharon, The sad thing was that yesterday my son came to me upset about how tired he was of being sick with leg pain. I thought " oh, boy " we can't both lose it on the same day. LOL Overall, I'd say that he's doing better. I think we are both probably worn down from the holidays and you know how that can get w/any chronic disease. I am not wheelchair bound or using a walker. I have a cane that I use when I am unstable or in a lot of pain and need the extra support. I am usually doing my best to make it through the day. I have help with the house so I don't have to do the tough stuff around the house. MS has mainly affected me by bringing on constant fatigue (debilitating fatigue), overall physical weakness and constant pain. My memory is struggling more and at times I feel that I can't get out what I want to say. It is hard to do too much with my hands - they wear out too fast. Then when my body is fatigued I go into muscle tremors. Obviously, I struggle w/depression - I really work to keep this under control. But every once in awhile - I can't keep it down anymore and this is one of those times. There's just so much that I want to do and can't. So many dreams that I never fulfilled and don't see them happening. Sometimes I just feel like it's a big weight that is just enough to keep me from getting up and doing what I want. Sometimes I wish I could do everything I need to do in the day - in the middle of the night when I can't sleep. Could you imagine? I'd be raising little vampires. LOL I don't think any of my meds are causing the insomnia. I've had this problem the entire time. I have to watch what I take at night to help w/pain and sleep because I have to get up with the kids the next day. Thanks for your thoughts and help. It really helps to know that someone else out there understands me. Family and friends really try (bless their hearts) but really only those of us with chronic diseases understand completely! Blessings and hugs to you, Sharon Marsden wrote: Oh ! I wish there was a magic potion to send to you!!! Tell me more about how MS has affected you. How active are you? Do you have to use a cane, walker or wheelchair? You also have the distress and worry of having an ill child piled on you. How is is doing now? Any news? Why can't you sleep? Is it some meds you are taking? If so, can you switch them around so the sleeplessness comes during the day? (don't we all want that? lol) Do you take vitamins/supplements? Do you exercise? Do stretching? Sending my love and understanding..... Sharon If the government is big enough to give you everything you want, it is big enough to take away everything you have. - Gerald Ford <!--[endif]--> .... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2007 Report Share Posted January 4, 2007 have fun today kate,and tell your little 1 happy birthday! Try not to over do it i know easier said then done,especially when it comes to the little ones.hugs,cassy [katelloydkidz@...] wrote: Hey Val~gee whiz! It is hard to remember some days to do the shot--I had gotten into a fairly nice routine with it in the am with my pills, but then...i dunno the holidays hit and routines went by the wayside--but for the most part I am back on schedule. I am bummed though, as the pain and numbness and tingling in my foot have escalated to the point where I have no sensation--i feel like i have a bag of sand for a foot. It has become very challenging to walk at all. Today I am beginning to feel some of the same happening on the right foot also--but definitely significantly worse on the left. I'm just going to try and rest--it is my youngest son's 7th birthday, and i have to make some special dinner and cake arrangements. hugs and blessings to all! kate Re: Going Nutty with MS > > Sweet ~Yes, we can all relate in one shape or form. There > are those of > us who have had MS nearly as long as you, others who have had it > longer. I'm > one of the ones who has had it probably some time, but wasn't > really > afflicted' to the point of pursuing what it was, and have only been > officially dx'd for 1 year now. > As far as the not sleeping/sleeping--I have that also, and in > some part it > is due, for me, to perimenopause. I finally pushed myself > yesterday and went > outside for about 45 min. with my dog. I didn't walk nearly as > fast as I > used to, and yes, I mourn that, as you yourself mourn the loss > of many > things in your life, due to MS. Even if you are limited in your > walking, at > least try and get outdoors in the fresh air, even if it is > cold~it did > wonders for me yesterday, and for the first time in a while, I > slept like a > top! Praise God! Also, to try and pull me from the funk of MS, I > am looking > into possibly visiting MS folks who are nursing home bound in.... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2007 Report Share Posted January 4, 2007 , I can't imagine what it is like for you (and many others) who have struggled for so long. I too am struggling with significant symptoms for the last two months (with onset probably in Oct 2005). I am confined to a wheelchair, and for short periods of time I can walk with the use of a walker. What has made it more difficult to cope lately? What have you done in the past to lift your spirits? I hope you feel loved and supported in your difficult times... Thinking of you, Kim > > Help - I am down! I am really struggling with having MS. I am tired > of it. I am tired of being limited by this. I am upset about what > has been taken away and what will never be because of this. > > I am tired of being tired and then not being able to sleep. I just > want to be healthy again. For some reason I am feeling really worn > down by this. > > I just don't want this anymore. It's been almost 16 years and I am > done with MS. > > Sorry to just ramble - I know it's not gonna go away and I know I > just have to keep learning how to live with this. I know I could be > so much worse (and I really am grateful for that). > > I just want to sit here and cry. No one else but all of you know > what I am talking about. > > I wish I could just take take off MS like a big heavy coat and throw > it down and be rid of it for good. > > Sorry again for being a downer at the New Year. But I am down - > really down. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2007 Report Share Posted January 4, 2007 Thank you Kim! I don't know if it is a combination of coming out of the holidays and an attack in October. Fall seems to be really, really hard on me then follow that up with holidays and the weather changes. Right now I am so emotional - if I just start talking about how I am feeling with my husband then I start crying. It's been so long since I felt really good that I can't even remember. I am thinking about making an appt w/ my dr to see about going to see someone about pain management. Do any of you feel that you are just falling apart? It's always something... legs hurting, feeling dizzy, exhausted, .. then I get stuff like kidney stones, migraines...etc. It's just always "something" and I am so tired of it. I totally realize that I am on the edge right now and depressed. I am on Paxil for that - but I wanted to taper off and try something else. Don't you all just ever want a day without MS? To feel great from the moment you wake up till you fall asleep. There was a time that my MS was laying low and that's when I thought that maybe I don't have it. But then last year I had a really bad attack and it seemed to come back with a vengance. I think that's what's been so hard for me. My neuro told me that the changes are just part of the course of MS and the things that used to not be there are there now and reaking havak. Thank you everyone for the encouragement! You are the only ones that really understand how I feel. I hope I haven't brought anyone down or been insensitive to anyone by venting a little bit about how I feel. Love and hugs to all of you! Hugs! PS> I pray everyday for each of you in the group - one for healing for each of you and also thanks for each of you. You all really help me with getting through each day! Blessings to all of you!Kim Latour wrote: ,I can't imagine what it is like for you (and many others) who have struggled for so long. I too am struggling with significant symptoms for the last two months (with onset probably in Oct 2005). I am confined to a wheelchair, and for short periods of time I can walk with the use of a walker.What has made it more difficult to cope lately? What have you done in the past to lift your spirits?I hope you feel loved and supported in your difficult times...Thinking of you,Kim>> Help - I am down! I am really struggling with having MS. I am tired > of it. I am tired of being limited by this. I am upset about what > has been taken away and what will never be because of this. > > I am tired of being tired and then not being able to sleep. I just > want to be healthy again. For some reason I am feeling really worn > down by this. > > I just don't want this anymore. It's been almost 16 years and I am > done with MS. > > Sorry to just ramble - I know it's not gonna go away and I know I > just have to keep learning how to live with this. I know I could be > so much worse (and I really am grateful for that). > > I just want to sit here and cry. No one else but all of you know > what I am talking about. > > I wish I could just take take off MS like a big heavy coat and throw > it down and be rid of it for good. > > Sorry again for being a downer at the New Year. But I am down - > really down.> > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2007 Report Share Posted January 4, 2007 Thank you Kim! I don't know if it is a combination of coming out of the holidays and an attack in October. Fall seems to be really, really hard on me then follow that up with holidays and the weather changes. Right now I am so emotional - if I just start talking about how I am feeling with my husband then I start crying. It's been so long since I felt really good that I can't even remember. I am thinking about making an appt w/ my dr to see about going to see someone about pain management. Do any of you feel that you are just falling apart? It's always something... legs hurting, feeling dizzy, exhausted, .. then I get stuff like kidney stones, migraines...etc. It's just always "something" and I am so tired of it. I totally realize that I am on the edge right now and depressed. I am on Paxil for that - but I wanted to taper off and try something else. Don't you all just ever want a day without MS? To feel great from the moment you wake up till you fall asleep. There was a time that my MS was laying low and that's when I thought that maybe I don't have it. But then last year I had a really bad attack and it seemed to come back with a vengance. I think that's what's been so hard for me. My neuro told me that the changes are just part of the course of MS and the things that used to not be there are there now and reaking havak. Thank you everyone for the encouragement! You are the only ones that really understand how I feel. I hope I haven't brought anyone down or been insensitive to anyone by venting a little bit about how I feel. Love and hugs to all of you! Hugs! PS> I pray everyday for each of you in the group - one for healing for each of you and also thanks for each of you. You all really help me with getting through each day! Blessings to all of you!Kim Latour wrote: ,I can't imagine what it is like for you (and many others) who have struggled for so long. I too am struggling with significant symptoms for the last two months (with onset probably in Oct 2005). I am confined to a wheelchair, and for short periods of time I can walk with the use of a walker.What has made it more difficult to cope lately? What have you done in the past to lift your spirits?I hope you feel loved and supported in your difficult times...Thinking of you,Kim>> Help - I am down! I am really struggling with having MS. I am tired > of it. I am tired of being limited by this. I am upset about what > has been taken away and what will never be because of this. > > I am tired of being tired and then not being able to sleep. I just > want to be healthy again. For some reason I am feeling really worn > down by this. > > I just don't want this anymore. It's been almost 16 years and I am > done with MS. > > Sorry to just ramble - I know it's not gonna go away and I know I > just have to keep learning how to live with this. I know I could be > so much worse (and I really am grateful for that). > > I just want to sit here and cry. No one else but all of you know > what I am talking about. > > I wish I could just take take off MS like a big heavy coat and throw > it down and be rid of it for good. > > Sorry again for being a downer at the New Year. But I am down - > really down.> > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2007 Report Share Posted January 5, 2007 , I just wanted you to know that you continue to be in my prayers. Hugs nne Breast Cancer Patients Soul Mates for Lifehttp://www.geocities.com/chucky5741/breastcancerpatients.htmlBreastCancerStories.comhttp://www.breastcancerstories.com/content/view/433/161/Angel Feather Loomerwww.angelfeatherloomer.blogspot.comCheck out my other ornaments atwww.geocities.com/chucky5741/bcornament.htmlLots of info and gifts at:www.cancerclub.com Re: Re: Going Nutty with MS Thank you Kim! I don't know if it is a combination of coming out of the holidays and an attack in October. Fall seems to be really, really hard on me then follow that up with holidays and the weather changes. Right now I am so emotional - if I just start talking about how I am feeling with my husband then I start crying. It's been so long since I felt really good that I can't even remember. I am thinking about making an appt w/ my dr to see about going to see someone about pain management. Do any of you feel that you are just falling apart? It's always something... legs hurting, feeling dizzy, exhausted, .. then I get stuff like kidney stones, migraines...etc. It's just always "something" and I am so tired of it. I totally realize that I am on the edge right now and depressed. I am on Paxil for that - but I wanted to taper off and try something else. Don't you all just ever want a day without MS? To feel great from the moment you wake up till you fall asleep. There was a time that my MS was laying low and that's when I thought that maybe I don't have it. But then last year I had a really bad attack and it seemed to come back with a vengance. I think that's what's been so hard for me. My neuro told me that the changes are just part of the course of MS and the things that used to not be there are there now and reaking havak. Thank you everyone for the encouragement! You are the only ones that really understand how I feel. I hope I haven't brought anyone down or been insensitive to anyone by venting a little bit about how I feel. Love and hugs to all of you! Hugs! PS> I pray everyday for each of you in the group - one for healing for each of you and also thanks for each of you. You all really help me with getting through each day! Blessings to all of you!Kim Latour <klatour1cogeco (DOT) ca> wrote: ,I can't imagine what it is like for you (and many others) who have struggled for so long. I too am struggling with significant symptoms for the last two months (with onset probably in Oct 2005). I am confined to a wheelchair, and for short periods of time I can walk with the use of a walker.What has made it more difficult to cope lately? What have you done in the past to lift your spirits?I hope you feel loved and supported in your difficult times...Thinking of you,Kim>> Help - I am down! I am really struggling with having MS. I am tired > of it. I am tired of being limited by this. I am upset about what > has been taken away and what will never be because of this. > > I am tired of being tired and then not being able to sleep. I just > want to be healthy again. For some reason I am feeling really worn > down by this. > > I just don't want this anymore. It's been almost 16 years and I am > done with MS. > > Sorry to just ramble - I know it's not gonna go away and I know I > just have to keep learning how to live with this. I know I could be > so much worse (and I really am grateful for that). > > I just want to sit here and cry. No one else but all of you know > what I am talking about. > > I wish I could just take take off MS like a big heavy coat and throw > it down and be rid of it for good. > > Sorry again for being a downer at the New Year. But I am down - > really down.> > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2007 Report Share Posted January 5, 2007 I can relate to your comment about physicians who are quick to lump new symptoms and dismiss them as simply part of the disease process. I just visited my doc yesterday and told him about pain/ difficulty I am having where my left foot feels twisted and turned so that a normal position is painful. He simply shrugged and said it was part and parcel of the disease. This is my life and it has changed dramatically in a short period of time. I am not on any treatment and desperate to start something that MIGHT prevent or slow the progression of this disease. I was upset that he could be so dismissive! On the other hand I have had some potentially good news. I have been offered an appointment at a specialty MS clinic Feb 15. God willing I won't go mad until then. Thanks to everyone for their responses. It makes it easier to hear others are managing with similar difficulties. Kim > > > > Help - I am down! I am really struggling with having MS. I am > tired > > of it. I am tired of being limited by this. I am upset about what > > has been taken away and what will never be because of this. > > > > I am tired of being tired and then not being able to sleep. I > just > > want to be healthy again. For some reason I am feeling really > worn > > down by this. > > > > I just don't want this anymore. It's been almost 16 years and I > am > > done with MS. > > > > Sorry to just ramble - I know it's not gonna go away and I know I > > just have to keep learning how to live with this. I know I could > be > > so much worse (and I really am grateful for that). > > > > I just want to sit here and cry. No one else but all of you know > > what I am talking about. > > > > I wish I could just take take off MS like a big heavy coat and > throw > > it down and be rid of it for good. > > > > Sorry again for being a downer at the New Year. But I am down - > > really down. > > > > > > > > > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
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