Re: Cassy, Zoloft and Paxil -- Wish Me luck today please? (Terri)

[Guest guest]

Hi Cassy, How are you doing with the change to Zoloft? A number of years ago, for reasons other than Depression, I took Paxil for a short time. At first it seemed to work great, then after about two months (or close to it) suddenly everything got worse. Then I moved to Zoloft and stayed there until no longer needed so-many months later. It was wonderful for me! Sometimes I wish I still had it! LOL My oldest son, , had been taking Zoloft for his OCD and he stayed with the med for years before weaning completely about a year and a half to two years ago. has used Zoloft, also for OCD, a couple times and very briefly. Both boys did very well with it, too. I did notice some minor differences of a sexual nature, but not bad and that was it. I hope you do very well with Zoloft!

) Challis cassandra workmn wrote: hey teri.what kind of antidepresant do you take?I was taking paxil 20 mg. And when i seen my neuro last week she switched me to zoloft 50 mg.she said paxil tends to make you gain weight.ughh.I hate when they switch it cuz it kinda messes everything up.good luck,cassy[TJSJ5988msn] wrote:Well, I did type this around 11:30 if that

counts?Morning Yeah, it's morning..smile* I needed to get up before my usual 2:00 PM to get showered and dressed for the doctor. I'm making jokes about this but in truth it's kinda gross..sigh*I don't care what I look like cuz I never leave my house except maybe to get my Rx's. I have my groceries delivered to my house, but I don't cook so it's all frozen stuff.I've got to get my doctor to give me some direction, some way to snap my ass out of this never ending depression that seems to have been going on since around the time my brother ~ny~ died February 2001.I seem to get to the point where I'm hopeful, even optimistic then I get *smacked* upside the head with what seems like a 2 x 4 .. OUCH!! And, it's not even my brothers fault but all the other crap that invades our lives in my case it's my health. I can handle my issues with mobility but it's my brain issues that bug the crap out of me. I don't seem to care about

anything. I have always fought depression *dysthemia* but it has gotten so much worse. I know my MS is part of this so I'm hoping that maybe my doctor can give me a different med that may help cuz so far any that we have tried hasn't helped me except make me gain weight..sigh*Wish Me luck today please?Hugs Terri __________________________________________________

[Guest guest]

hey.well im not sure it has taken full effect.I have been on paxil for a few

yrs. And about 6 mons ago I wanted to stop so I weaned to 20 mg. From 40.and

then to 10.once the docs started talking about devics disease we decided I

should stay on something,and I wanted paxil.was already use to it.then my neuro

said she wanted to switch me to zoloft to see if it would help any of my pain.no

luck. And she also said paxil makes you gain weight.I dunno.I seem ok.was never

really a depressed person.just kinda anxious sometimes.and the paxil reallyyyy

helped that. But on my real bad days I get depressed.so guess we'll see.but Ive

heard lots of good stuff about zoloft so im hoping once it kicks in all the way

ill be feeln better.:)hugs, cassy

[smyelingroovy@...] wrote:

Hi Cassy,

How are you doing with the change to Zoloft? A number of years ago, for

reasons other than Depression, I took Paxil for a short time. At first it

seemed to work great, then after about two months (or close to it) suddenly

everything got worse. Then I moved to Zoloft and stayed there until no longer

needed so-many months later. It was wonderful for me! Sometimes I wish I still

had it! LOL

My oldest son, , had been taking Zoloft for his OCD and he stayed with the

med for years before weaning completely about a year and a half to two years

ago. has used Zoloft, also for OCD, a couple times and very briefly.

Both boys did very well with it, too.

I did notice some minor differences of a sexual nature, but not bad and that

was it.

I hope you do very well with Zoloft! )

Challis

cassandra workmn wrote:

hey teri.what kind of antidepresant do you take?I was taking paxil 20

mg. And when i seen my neuro last week she switched me to zoloft 50 mg.she said

paxil tends to make you gain weight.ughh.I hate when they switch it cuz it kinda

messes everything up.good luck,cassy

[TJSJ5988@...] wrote:

Well, I did type this around 11:30 if that counts?

Morning

Yeah, it's morning..smile* I needed to get up before my usual 2:00 PM to get

showered and dressed for the doctor. I'm making jokes about this but in truth

it's kinda gross..sigh*

I don't care what I look like cuz I never leave my house except maybe to get my

Rx's. I have my groceries delivered to my house, but I don't cook so it's all

frozen stuff.

I've got to get my doctor to give me some direction, some way to snap my ass out

of this never ending depression that seems to have been going on since around

the time my brother ~ny~ died February 2001.

I seem to get to the point where I'm hopeful, even optimistic then I get

*smacked* upside the head with what seems like a 2 x 4 .. OUCH!! And, it's not

even my brothers fault but all the other crap that invades our lives in my case

it's my health.

I can handle my issues with mobility but it's my brain issues that bug the crap

out of me. I don't seem to care about anything. I have always fought depression

*dysthemia* but it has gotten so much worse. I know my MS is part of this so I'm

hoping that maybe my doctor can give me a different med that may help cuz so far

any that we have tried hasn't helped me except make me gain weight..sigh*

Wish Me luck today please?

Hugs

Terri

__________________________________________________

[Guest guest]

I use to take Paxil with good results then they switched me to Cymbalta for the neuropathy. I think I need to be back on paxil and maybe take neurotin with it. Paxil removed the need to wrap my hands around someones neck and choke them!!!!LOL:>) ' in Texascassandra workmn wrote: hey.well im not sure it has taken full effect.I have been on paxil for a few yrs. And about 6 mons ago I wanted to stop so I weaned to 20 mg. From 40.and then to 10.once the docs

started talking about devics disease we decided I should stay on something,and I wanted paxil.was already use to it.then my neuro said she wanted to switch me to zoloft to see if it would help any of my pain.no luck. And she also said paxil makes you gain weight.I dunno.I seem ok.was never really a depressed person.just kinda anxious sometimes.and the paxil reallyyyy helped that. But on my real bad days I get depressed.so guess we'll see.but Ive heard lots of good stuff about zoloft so im hoping once it kicks in all the way ill be feeln better.:)hugs, cassy[smyelingroovy] wrote:Hi Cassy,How are you doing with the change to Zoloft? A number of years ago, for reasons other than Depression, I took Paxil for a short time. At first it seemed to work great, then after about two months (or close to it) suddenly everything got worse. Then I moved to Zoloft and stayed there until no longer needed

so-many months later. It was wonderful for me! Sometimes I wish I still had it! LOLMy oldest son, , had been taking Zoloft for his OCD and he stayed with the med for years before weaning completely about a year and a half to two years ago. has used Zoloft, also for OCD, a couple times and very briefly. Both boys did very well with it, too.I did notice some minor differences of a sexual nature, but not bad and that was it. I hope you do very well with Zoloft! )Challiscassandra workmn <payngabby72> wrote:hey teri.what kind of antidepresant do you take?I was taking paxil 20 mg. And when i seen my neuro last week she switched me to zoloft 50 mg.she said paxil tends to make you gain weight.ughh.I hate when they switch it cuz it kinda messes everything up.good luck,cassy[TJSJ5988msn]

wrote:Well, I did type this around 11:30 if that counts?Morning Yeah, it's morning..smile* I needed to get up before my usual 2:00 PM to get showered and dressed for the doctor. I'm making jokes about this but in truth it's kinda gross..sigh*I don't care what I look like cuz I never leave my house except maybe to get my Rx's. I have my groceries delivered to my house, but I don't cook so it's all frozen stuff.I've got to get my doctor to give me some direction, some way to snap my ass out of this never ending depression that seems to have been going on since around the time my brother ~ny~ died February 2001.I seem to get to the point where I'm hopeful, even optimistic then I get *smacked* upside the head with what seems like a 2 x 4 .. OUCH!! And, it's not even my brothers fault but all the other crap that invades our lives in my case it's my health. I can handle my issues with mobility but it's my brain issues that

bug the crap out of me. I don't seem to care about anything. I have always fought depression *dysthemia* but it has gotten so much worse. I know my MS is part of this so I'm hoping that maybe my doctor can give me a different med that may help cuz so far any that we have tried hasn't helped me except make me gain weight..sigh*Wish Me luck today please?Hugs Terri __________________________________________________

[Guest guest]

lol.did the same 4 me.lol.they tried to give me cymbalta for my pain,but my

insurance is fighting with me to pay and its almost 300 bucks a month.ikes.cant

afford that.but they finally gave me stronger pain meds so im doin a little

better.still waitn for the zoloft to kick in.lol

[dixmstx@...] wrote:

I use to take Paxil with good results then they switched me to Cymbalta for the

neuropathy. I think I need to be back on paxil and maybe take neurotin with it.

Paxil removed the need to wrap my hands around someones neck and choke

them!!!!LOL:>)

' in Texas

cassandra workmn wrote:

hey.well im not sure it has taken full effect.I have been on paxil for

a few yrs. And about 6 mons ago I wanted to stop so I weaned to 20 mg. From

40.and then to 10.once the docs started talking about devics disease we decided

I should stay on something,and I wanted paxil.was already use to it.then my

neuro said she wanted to switch me to zoloft to see if it would help any of my

pain.no luck. And she also said paxil makes you gain weight.I dunno.I seem

ok.was never really a depressed person.just kinda anxious sometimes.and the

paxil reallyyyy helped that. But on my real bad days I get depressed.so guess

we'll see.but Ive heard lots of good stuff about zoloft so im hoping once it

kicks in all the way ill be feeln better.:)hugs, cassy

[smyelingroovy@...] wrote:

Hi Cassy,

How are you doing with the change to Zoloft? A number of years ago, for reasons

other than Depression, I took Paxil for a short time. At first it seemed to work

great, then after about two months (or close to it) suddenly everything got

worse. Then I moved to Zoloft and stayed there until no longer needed so-many

months later. It was wonderful for me! Sometimes I wish I still had it! LOL

My oldest son, , had been taking Zoloft for his OCD and he stayed with the

med for years before weaning completely about a year and a half to two years

ago. has used Zoloft, also for OCD, a couple times and very briefly. Both

boys did very well with it, too.

I did notice some minor differences of a sexual nature, but not bad and that was

it.

I hope you do very well with Zoloft! )

Challis

cassandra workmn wrote:

hey teri.what kind of antidepresant do you take?I was taking paxil 20 mg. And

when i seen my neuro last week she switched me to zoloft 50 mg.she said paxil

tends to make you gain weight.ughh.I hate when they switch it cuz it kinda

messes everything up.good luck,cassy

[TJSJ5988@...] wrote:

Well, I did type this around 11:30 if that counts?

Morning

Yeah, it's morning..smile* I needed to get up before my usual 2:00 PM to get

showered and dressed for the doctor. I'm making jokes about this but in truth

it's kinda gross..sigh*

I don't care what I look like cuz I never leave my house except maybe to get my

Rx's. I have my groceries delivered to my house, but I don't cook so it's all

frozen stuff.

I've got to get my doctor to give me some direction, some way to snap my ass out

of this never ending depression that seems to have been going on since around

the time my brother ~ny~ died February 2001.

I seem to get to the point where I'm hopeful, even optimistic then I get

*smacked* upside the head with what seems....

[Guest guest]

Did you check with Wal Mart to see if the Cymbalta is one of the $4 drugs? Probably not since its new but you can also contact the company that makes it to see if they have a program to help those in need. Thats how I get my Celexa.

Hugs

nne

Breast Cancer Patients Soul Mates for Lifehttp://www.geocities.com/chucky5741/breastcancerpatients.htmlBreastCancerStories.comhttp://www.breastcancerstories.com/content/view/433/161/Angel Feather Loomerwww.angelfeatherloomer.blogspot.comCheck out my other ornaments atwww.geocities.com/chucky5741/bcornament.htmlLots of info and gifts at:www.cancerclub.com

Re: Cassy, Zoloft and Paxil -- Wish Me luck today please? (Terri)

lol.did the same 4 me.lol.they tried to give me cymbalta for my pain,but my insurance is fighting with me to pay and its almost 300 bucks a month.ikes.cant afford that.but they finally gave me stronger pain meds so im doin a little better.still waitn for the zoloft to kick in.lol[dixmstx] wrote:I use to take Paxil with good results then they switched me to Cymbalta for the neuropathy. I think I need to be back on paxil and maybe take neurotin with it. Paxil removed the need to wrap my hands around someones neck and choke them!!!!LOL:>)' in Texascassandra workmn <payngabby72> wrote:hey.well im not sure it has taken full effect.I have been on paxil for a few yrs. And about 6 mons ago I wanted to stop so I weaned to 20 mg. From 40.and then to 10.once the docs started talking about devics disease we decided I should stay on something,and I wanted paxil.was already use to it.then my neuro said she wanted to switch me to zoloft to see if it would help any of my pain.no luck. And she also said paxil makes you gain weight.I dunno.I seem ok.was never really a depressed person.just kinda anxious sometimes.and the paxil reallyyyy helped that. But on my real bad days I get depressed.so guess we'll see.but Ive heard lots of good stuff about zoloft so im hoping once it kicks in all the way ill be feeln better.:)hugs, cassy[smyelingroovy] wrote:Hi Cassy,How are you doing with the change to Zoloft? A number of years ago, for reasons other than Depression, I took Paxil for a short time. At first it seemed to work great, then after about two months (or close to it) suddenly everything got worse. Then I moved to Zoloft and stayed there until no longer needed so-many months later. It was wonderful for me! Sometimes I wish I still had it! LOLMy oldest son, , had been taking Zoloft for his OCD and he stayed with the med for years before weaning completely about a year and a half to two years ago. has used Zoloft, also for OCD, a couple times and very briefly. Both boys did very well with it, too.I did notice some minor differences of a sexual nature, but not bad and that was it. I hope you do very well with Zoloft! )Challiscassandra workmn <payngabby72> wrote:hey teri.what kind of antidepresant do you take?I was taking paxil 20 mg. And when i seen my neuro last week she switched me to zoloft 50 mg.she said paxil tends to make you gain weight.ughh.I hate when they switch it cuz it kinda messes everything up.good luck,cassy[TJSJ5988msn] wrote:Well, I did type this around 11:30 if that counts?Morning Yeah, it's morning..smile* I needed to get up before my usual 2:00 PM to get showered and dressed for the doctor. I'm making jokes about this but in truth it's kinda gross..sigh*I don't care what I look like cuz I never leave my house except maybe to get my Rx's. I have my groceries delivered to my house, but I don't cook so it's all frozen stuff.I've got to get my doctor to give me some direction, some way to snap my ass out of this never ending depression that seems to have been going on since around the time my brother ~ny~ died February 2001.I seem to get to the point where I'm hopeful, even optimistic then I get *smacked* upside the head with what seems....

No virus found in this incoming message.Checked by AVG Free Edition.Version: 7.1.409 / Virus Database: 268.15.29/607 - Release Date: 12/28/2006

[Guest guest]

With my ins. it costs me 50 a month. I'm not having a good day today. Hurt really bad and having bad muscle spasms and tremors. Don't know if it's late affects from all the problems I've had with my teeth or if I'm starting a new exacerbation. Keep your fingers crossed it's just cause I'm tired right now. ' in Texas & nne Svihlik wrote: Did you check with Wal Mart to see if the Cymbalta is one of the $4 drugs?

Probably not since its new but you can also contact the company that makes it to see if they have a program to help those in need. Thats how I get my Celexa. Hugs nne Breast Cancer Patients Soul Mates for Lifehttp://www.geocities.com/chucky5741/breastcancerpatients.htmlBreastCancerStories.comhttp://www.breastcancerstories.com/content/view/433/161/Angel Feather Loomerwww.angelfeatherloomer.blogspot.comCheck out my other ornaments atwww.geocities.com/chucky5741/bcornament.htmlLots

of info and gifts at:www.cancerclub.com Re: Cassy, Zoloft and Paxil -- Wish Me luck today please? (Terri) lol.did the same 4 me.lol.they tried to give me cymbalta for my pain,but my insurance is fighting with me to pay and its almost 300 bucks a month.ikes.cant afford that.but they finally

gave me stronger pain meds so im doin a little better.still waitn for the zoloft to kick in.lol[dixmstx] wrote:I use to take Paxil with good results then they switched me to Cymbalta for the neuropathy. I think I need to be back on paxil and maybe take neurotin with it. Paxil removed the need to wrap my hands around someones neck and choke them!!!!LOL:>)' in Texascassandra workmn <payngabby72> wrote:hey.well im not sure it has taken full effect.I have been on paxil for a few yrs. And about 6 mons ago I wanted to stop so I weaned to 20 mg. From 40.and then to 10.once the docs started talking about devics disease we decided I should stay on something,and I wanted paxil.was already use to it.then my neuro said she wanted to switch me to zoloft to see if it would help any of my pain.no luck. And she also said paxil

makes you gain weight.I dunno.I seem ok.was never really a depressed person.just kinda anxious sometimes.and the paxil reallyyyy helped that. But on my real bad days I get depressed.so guess we'll see.but Ive heard lots of good stuff about zoloft so im hoping once it kicks in all the way ill be feeln better.:)hugs, cassy[smyelingroovy] wrote:Hi Cassy,How are you doing with the change to Zoloft? A number of years ago, for reasons other than Depression, I took Paxil for a short time. At first it seemed to work great, then after about two months (or close to it) suddenly everything got worse. Then I moved to Zoloft and stayed there until no longer needed so-many months later. It was wonderful for me! Sometimes I wish I still had it! LOLMy oldest son, , had been taking Zoloft for his OCD and he stayed with the med for years before weaning completely about a year and a half to two

years ago. has used Zoloft, also for OCD, a couple times and very briefly. Both boys did very well with it, too.I did notice some minor differences of a sexual nature, but not bad and that was it. I hope you do very well with Zoloft! )Challiscassandra workmn <payngabby72> wrote:hey teri.what kind of antidepresant do you take?I was taking paxil 20 mg. And when i seen my neuro last week she switched me to zoloft 50 mg.she said paxil tends to make you gain weight.ughh.I hate when they switch it cuz it kinda messes everything up.good luck,cassy[TJSJ5988msn] wrote:Well, I did type this around 11:30 if that counts?Morning Yeah, it's morning..smile* I needed to get up before my usual 2:00 PM to get showered and dressed for the doctor. I'm making jokes about this but in truth it's kinda

gross..sigh*I don't care what I look like cuz I never leave my house except maybe to get my Rx's. I have my groceries delivered to my house, but I don't cook so it's all frozen stuff.I've got to get my doctor to give me some direction, some way to snap my ass out of this never ending depression that seems to have been going on since around the time my brother ~ny~ died February 2001.I seem to get to the point where I'm hopeful, even optimistic then I get *smacked* upside the head with what seems.... No virus found in this incoming message.Checked by AVG Free Edition.Version: 7.1.409 / Virus Database: 268.15.29/607 - Release Date: 12/28/2006

[Guest guest]

'

I will keep you in my prayers that its just that you are tired.

Hugs

nne

Breast Cancer Patients Soul Mates for Lifehttp://www.geocities.com/chucky5741/breastcancerpatients.htmlBreastCancerStories.comhttp://www.breastcancerstories.com/content/view/433/161/Angel Feather Loomerwww.angelfeatherloomer.blogspot.comCheck out my other ornaments atwww.geocities.com/chucky5741/bcornament.htmlLots of info and gifts at:www.cancerclub.com

Re: Cassy, Zoloft and Paxil -- Wish Me luck today please? (Terri)

lol.did the same 4 me.lol.they tried to give me cymbalta for my pain,but my insurance is fighting with me to pay and its almost 300 bucks a month.ikes.cant afford that.but they finally gave me stronger pain meds so im doin a little better.still waitn for the zoloft to kick in.lol[dixmstx] wrote:I use to take Paxil with good results then they switched me to Cymbalta for the neuropathy. I think I need to be back on paxil and maybe take neurotin with it. Paxil removed the need to wrap my hands around someones neck and choke them!!!!LOL:>)' in Texascassandra workmn <payngabby72> wrote:hey.well im not sure it has taken full effect.I have been on paxil for a few yrs. And about 6 mons ago I wanted to stop so I weaned to 20 mg. From 40.and then to 10.once the docs started talking about devics disease we decided I should stay on something,and I wanted paxil.was already use to it.then my neuro said she wanted to switch me to zoloft to see if it would help any of my pain.no luck. And she also said paxil makes you gain weight.I dunno.I seem ok.was never really a depressed person.just kinda anxious sometimes.and the paxil reallyyyy helped that. But on my real bad days I get depressed.so guess we'll see.but Ive heard lots of good stuff about zoloft so im hoping once it kicks in all the way ill be feeln better.:)hugs, cassy[smyelingroovy] wrote:Hi Cassy,How are you doing with the change to Zoloft? A number of years ago, for reasons other than Depression, I took Paxil for a short time. At first it seemed to work great, then after about two months (or close to it) suddenly everything got worse. Then I moved to Zoloft and stayed there until no longer needed so-many months later. It was wonderful for me! Sometimes I wish I still had it! LOLMy oldest son, , had been taking Zoloft for his OCD and he stayed with the med for years before weaning completely about a year and a half to two years ago. has used Zoloft, also for OCD, a couple times and very briefly. Both boys did very well with it, too.I did notice some minor differences of a sexual nature, but not bad and that was it. I hope you do very well with Zoloft! )Challiscassandra workmn <payngabby72> wrote:hey teri.what kind of antidepresant do you take?I was taking paxil 20 mg. And when i seen my neuro last week she switched me to zoloft 50 mg.she said paxil tends to make you gain weight.ughh.I hate when they switch it cuz it kinda messes everything up.good luck,cassy[TJSJ5988msn] wrote:Well, I did type this around 11:30 if that counts?Morning Yeah, it's morning..smile* I needed to get up before my usual 2:00 PM to get showered and dressed for the doctor. I'm making jokes about this but in truth it's kinda gross..sigh*I don't care what I look like cuz I never leave my house except maybe to get my Rx's. I have my groceries delivered to my house, but I don't cook so it's all frozen stuff.I've got to get my doctor to give me some direction, some way to snap my ass out of this never ending depression that seems to have been going on since around the time my brother ~ny~ died February 2001.I seem to get to the point where I'm hopeful, even optimistic then I get *smacked* upside the head with what seems....

No virus found in this incoming message.Checked by AVG Free Edition.Version: 7.1.409 / Virus Database: 268.15.29/607 - Release Date: 12/28/2006

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[Guest guest]

{{{}}}

I am sooo hoping that you're just tired. I'm sending you some e-hugs 'cause I know the other kind will only cause you more pain.

Blessed be...

http://360.yahoo.com/vallee45

-- Re: Cassy, Zoloft and Paxil -- Wish Me luck today please? (Terri)

With my ins. it costs me 50 a month. I'm not having a good day today. Hurt really bad and having bad muscle spasms and tremors. Don't know if it's late affects from all the problems I've had with my teeth or if I'm starting a new exacerbation. Keep your fingers crossed it's just cause I'm tired right now.

' in Texas & nne Svihlik <moochie1aeroinc (DOT) net> wrote:

Did you check with Wal Mart to see if the Cymbalta is one of the $4 drugs? Probably not since its new but you can also contact the company that makes it to see if they have a program to help those in need. Thats how I get my Celexa.

Hugs

nne

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Re: Cassy, Zoloft and Paxil -- Wish Me luck today please? (Terri)

lol.did the same 4 me.lol.they tried to give me cymbalta for my pain,but my insurance is fighting with me to pay and its almost 300 bucks a month.ikes.cant afford that.but they finally gave me stronger pain meds so im doin a little better.still waitn for the zoloft to kick in.lol[dixmstx] wrote:I use to take Paxil with good results then they switched me to Cymbalta for the neuropathy. I think I need to be back on paxil and maybe take neurotin with it. Paxil removed the need to wrap my hands around someones neck and choke them!!!!LOL:>)' in Texascassandra workmn <payngabby72> wrote:hey.well im not sure it has taken full effect.I have been on paxil for a few yrs. And about 6 mons ago I wanted to stop so I weaned to 20 mg. From 40.and then to 10.once the docs started talking about devics disease we decided I should stay on something,and I wanted paxil.was already use to it.then my neuro said she wanted to switch me to zoloft to see if it would help any of my pain.no luck. And she also said paxil makes you gain weight.I dunno.I seem ok.was never really a depressed person.just kinda anxious sometimes.and the paxil reallyyyy helped that. But on my real bad days I get depressed.so guess we'll see.but Ive heard lots of good stuff about zoloft so im hoping once it kicks in all the way ill be feeln better.:)hugs, cassy[smyelingroovy] wrote:Hi Cassy,How are you doing with the change to Zoloft? A number of years ago, for reasons other than Depression, I took Paxil for a short time. At first it seemed to work great, then after about two months (or close to it) suddenly everything got worse. Then I moved to Zoloft and stayed there until no longer needed so-many months later. It was wonderful for me! Sometimes I wish I still had it! LOLMy oldest son, , had been taking Zoloft for his OCD and he stayed with the med for years before weaning completely about a year and a half to two years ago. has used Zoloft, also for OCD, a couple times and very briefly. Both boys did very well with it, too.I did notice some minor differences of a sexual nature, but not bad and that was it. I hope you do very well with Zoloft! )Challiscassandra workmn <payngabby72> wrote:hey teri.what kind of antidepresant do you take?I was taking paxil 20 mg. And when i seen my neuro last week she switched me to zoloft 50 mg.she said paxil tends to make you gain weight.ughh.I hate when they switch it cuz it kinda messes everything up.good luck,cassy[TJSJ5988msn] wrote:Well, I did type this around 11:30 if that counts?Morning Yeah, it's morning..smile* I needed to get up before my usual 2:00 PM to get showered and dressed for the doctor. I'm making jokes about this but in truth it's kinda gross..sigh*I don't care what I look like cuz I never leave my house except maybe to get my Rx's. I have my groceries delivered to my house, but I don't cook so it's all frozen stuff.I've got to get my doctor to give me some direction, some way to snap my ass out of this never ending depression that seems to have been going on since around the time my brother ~ny~ died February 2001.I seem to get to the point where I'm hopeful, even optimistic then I get *smacked* upside the head with what seems....

No virus found in this incoming message.Checked by AVG Free Edition.Version: 7.1.409 / Virus Database: 268.15.29/607 - Release Date: 12/28/2006

[Guest guest]

,

I too am hoping and praying for you that it's not an exacerbation.

Though if I'm not mistaken, when I had two molars sugerically removed..

I didn't go into an exacerbation, but I was extremely tired for a few

days afterward.. I think it stemmed from the stress on my body.. I

wouldn't know about the achiness though, cause I called my PCP for

something stronger than Tylenol (which the dentist told me to take, even

though I explained the amount of Advil I already took, and that Tylenol

wasn't going to cut it).. and my PCP gave me these fantastic long white

pills (I can't remember the name of them right this second).... that I

ended up having the break in half to take, otherwise it was oooolala off

to never-neverland... Ahhh.. Vicodin... that's what they were.. Once he

gave me those, I didn't have pain anywhere... but was tired...

The dentist also gave me large doses of anti-biotics... but that's been

a " given " since I had rheumatic fever...

Take care and take it easy...

|)onna

[Guest guest]

Yea...Thank goodness for lortab 7.5 or I would not have made it. I take >>>>>Get Ready: Ibuprofen 800mg once a day Cymbalta 30mg twice a day(was 60 1 but i changed it Nurses are the worst patients) Klonipin 0.05mg three times a day for tremors Flexeril 10 mg twice a day for muscle spasms Thyroid 130 mg once a day Urispas as needed Stool Softener because of the other meds Lortab 5/500mg half a tab a day And I still self cath from one time to every time I void. And remember, Challis, It's all in my head!!!:>) I see my neurologist for my tremors in Jan or Feb and she called to check up on me in Nov and told me she was going to have a new partner that was a regular neurologist and she wanted her to follow my MS like symptoms. Donna, I only have 1 lesion. I have had 7 years of symptoms

and finally one measlly little lesion. Which is good because it means my body is holding its own but it's bad because they will not prescribe the maintenance meds until I have another lesion. In the process, I've lost my bladder function. ' in TexasDonna wrote: ,I too am hoping and praying for you that it's not an exacerbation. Though if I'm not mistaken, when I had two molars sugerically removed.. I didn't go into an exacerbation, but I

was extremely tired for a few days afterward.. I think it stemmed from the stress on my body.. I wouldn't know about the achiness though, cause I called my PCP for something stronger than Tylenol (which the dentist told me to take, even though I explained the amount of Advil I already took, and that Tylenol wasn't going to cut it).. and my PCP gave me these fantastic long white pills (I can't remember the name of them right this second).... that I ended up having the break in half to take, otherwise it was oooolala off to never-neverland... Ahhh.. Vicodin... that's what they were.. Once he gave me those, I didn't have pain anywhere... but was tired...The dentist also gave me large doses of anti-biotics... but that's been a "given" since I had rheumatic fever...Take care and take it easy...|)onna

[Guest guest]

wow renee I didnt know that.were did they find the lesion?how long did it take

them?I have been sick 3 yrs. And knowing my luck when they finally do find

something it will probably be 1.do you mind if I ask were it is at?hope your

feeln ok today.hugs, cassy

[dixmstx@...] wrote:

Yea...Thank goodness for lortab 7.5 or I would not have made it.

I take >>>>>Get Ready: Ibuprofen 800mg once a day

Cymbalta 30mg twice a day(was 60 1 but i

changed it Nurses are the worst patients)

Klonipin 0.05mg three times a day for

tremors

Flexeril 10 mg twice a day for muscle

spasms

Thyroid 130 mg once a day

Urispas as needed

Stool Softener because of the other meds

Lortab 5/500mg half a tab a day

And I still self cath from one time to every time I void. And remember,

Challis, It's all in my head!!!:>)

I see my neurologist for my tremors in Jan or Feb and she called to check up

on me in Nov and told me she was going to have a new partner that was a regular

neurologist and she wanted her to follow my MS like symptoms.

Donna, I only have 1 lesion. I have had 7 years of symptoms and finally one

measlly little lesion. Which is good because it means my body is holding its own

but it's bad because they will not prescribe the maintenance meds until I have

another lesion. In the process, I've lost my bladder function.

' in Texas

Donna wrote:

,

I too am hoping and praying for you that it's not an exacerbation.

Though if I'm not mistaken, when I had two molars sugerically removed..

I didn't go into an exacerbation, but I was extremely tired for a few

days afterward.. I think it stemmed from the stress on my body.. I

wouldn't know about the achiness though, cause I called my PCP for

something stronger than Tylenol (which the dentist told me to take, even

though I explained the amount of Advil I already took, and that Tylenol

wasn't going to cut it).. and my PCP gave me these fantastic long white

pills (I can't remember the name of them right this second).... that I

ended up having the break in half to take, otherwise it was oooolala off

to never-neverland... Ahhh.. Vicodin... that's what they were.. Once he

gave me those, I didn't have pain anywhere... but was tired...

The dentist also gave me large doses of anti-biotics... but that's been

a " given " since I had rheumatic fever...

Take care and take it easy...

|)onna

[Guest guest]

,

I'm not real sure that maintenance meds are super important... (I could

be wrong)...

My neurologist feels that it's super important to be on one of them...

just not Copaxone.. he insists on Avonex.. while one of his partners

only prescribes Betaseron... I look around his office and I see hand

soap sponsored by " Lexapro " , ink pens, prescription pads, plastic skulls

, brains and spines.. of course supplied by one drug or another.. Not a

single thing from Teva or with the word Copaxone on it... Leads me to

believe Teva doesn't " give " him anything as an incentive to prescribe?

[Lexapro was the last anti-depressant that he prescribed two years ago..

have Wellbutrin now, but at my insistence... figure I might as well try

to stop smoking while getting my moods to level out.. lol... oh.. Zyban

is just Wellbutrin with a name change and price increase.. just like

Tysabri is Antegren with a name change, and most likely a price

increase... ]

A friend of mine, not in this group, but who also has MS went to see his

neurologist.. seems to be a real nice lady, and a neurologist that he

will go see, and he doesn't do doctors AT ALL... He told me that he

asked her about starting Avonex.. and that she told him.. she saw NO

reason to start him on the drug, because he hadn't had an exacerbation

in years and that it was only really effective for like 2 years... and

she saw no reason to start him on something that was only going to be

effective for that period when he didn't " need " it at this point in time...

I've question the results of pre-release testing of Avonex and the other

CRAB drugs (but mostly Avonex because that's what I started with).. IF

this disease is so unpredictable on when, where, how and so forth we're

going to have exacerbations.. how do you know the drugs is working? How

do you know it actually reduced the number of exacerbations in patients?

I would think that it would be possible to have a number of the

placebo group having loads of exacerbations.. and the one receiving the

therapy being in a group that have infrequent exacerbations...

It's all way too confusing for such a small brain as mine... and I do

KNOW that Avonex works.. but I had 7 active lesions at time of

diagnosis, and that 4 of them resolved themselves in 4 months of onset

of treatment with Avonex... So I almost have to believe that the Avonex

was responsible for the resolution... but it's not an impossible stretch

of the imagination to believe that those 4 lesions were resolving

themselves anyway.. and would have done so without the Avonex.. I'll

never know for sure...

If you do some extensive reading on Avonex (if it's still out there on

the web to be found).. you will find that there is more than one source

that states that they (being the higher powers) can only be sure of two

years efficacy for the drug... (at least at the time I was researching

it, that was the conclusions I found)..

I was completely upset and pissed off when the ophthalmologist that

looked at my eyes at diagnosis, with MRI confirming optic neuritis (and

my PCP wanted me on prednisone RIGHT NOW) said " Nope, it will go away on

it's own " ... and I'm thinking... " Apparently these aren't YOUR eyes

we're talking about!, let's do something " .. but they wouldn't treat the

neuritis... Yes, it did go away on it's own, and yes it didn't leave any

lasting damage to the optic nerve.. but it sure was bone of contention

with me.. and I haven't been back to that ophthalmologist since...

Second optha that I saw, agreed with me that there should have been some

treatment... go figure...

I had symptoms of MS long long before my diagnosis.. don't know how many

lesions I had along the way, cause none of my doctors thought to look

for anything other than the completely obvious in my different

complaints... Well gee.. you got to run pee often? hmmm.. could be that

slight uterine prolapse you have pressing on the bladder... okay,

believeable... and uterine prolapse runs in the family.. sooo... Well

gee.. that big toe is numb... that could be from the bone graft surgery

on your ankle.. might have damaged a nerve during the surgery... Well,

okay.. that's understandable too.. Gee.. the pinkies on your hands are

numb?.. that could carpal tunnel syndrome... you do spend an awful lot

of time at the computer... but the tests are negative.. hmmm.. don't

know what it is... Hey.. your left leg quit working you say?... well the

MRI of your lower spine shows no reason for it... so.. I don't know what

it is.. but pay the secretary $150 on your way out... and sure hope it

gets better, oh that's right.. the use of that leg has already started

to come back...but pay the secretary anyway on your way out.. and have a

nice life... then I started to not make it to the bathroom which was

less than 60 feet away from me... with bowel incontinence... and then

(my friend with MS) and I discussed symptoms... and THEN I had

to tell my PCP that I was pretty sure that I had MS.. and she was gonna

blow me off as well... but I will her credit for asking why I thought I

had it... She said.. I don't think you do, but if you do, it's a

" slight " case... ummm... slight? lol.. okay

And yes, that's when they found the 7 lesions, and all the other stuff

that gave me a definite MS diagnosis... Those other symptoms were all

over a period of 10 years or more..

This is ALL so frustrating, and I understand your frustration on losing

bladder function completely... I really hate that I know where every

single bathroom in southwestern Pennsylvania is located, and I don't

like the fact that sometimes I end up wet... or even way way way more

embarrassing kinda smelly... especially since I " don't look sick " ..

This disease really sucks.. it sucks big time when you are diagnosed and

it sucks even more when you are trying to get diagnosed.. and really

really sucks when the doctors look at you like you're a hypochondriac...

and even after diagnosis, though they tend to believe a bit more, PCPs

even my neurologist thinks I'm a hypochondriac... Why they don't connect

nerve damage to strange things happening with our bodies is beyond me..

But you know what.. if it wouldn't have been for the new lesions,

bi-laterally (and I either forgot to ask how many, or he didn't count or

something, but it was alot).. I wouldn't have gone back on therapy.. I

do like the Copaxone, because I noticed a difference right away.. only

slight but still a difference.. without my legs feeling wobbly all the

time, I have a tendency to move around more.. I still don't have a whole

lot of balance and I still run into walls and stumble or weeble-wobble

when I'm walking.. but I really do suspect those symptoms to get better

until they find a way to rebuild the myelin that I've lost..

Have they done a lumbar puncture for you yet? Not really something to

look forward to, or wish upon yourself, but if they haven't done one, it

might be an idea see if they can pick up the oglio-something banding in

the spinal fluid...

Take care

|)onna

Trimm wrote:

<snip>

>

> Donna, I only have 1 lesion. I have had 7 years of symptoms and finally

> one measlly little lesion. Which is good because it means my body is

> holding its own but it's bad because they will not prescribe the

> maintenance meds until I have another lesion. In the process, I've lost

> my bladder function.

>

> ' in Texas

[Guest guest]

My lesion that shows on normal MRI's is in the frontal lobe on my left side. I had an episode of vertigo in 99 for no reason for 6 wks, they checked for lesions, it was neg so they said everything was ok, it was just benign vertigo. In 2000, I started having this severe fatigue and abnormality of gait. I had pressure points so they said it was fibromyalgia. Got pregnant in 2000 and like alot of muscular problems you'll go in a remissive state because your body gives off two hormones to relax and stretch your muscles and tendons. And you walk funny anyway! Started having problems in 2003 but they just said it was fibromyalgia. In 2004 I worked for a surgeon and woke up one day and my left arm didn't work. Did MRI's which were neg. dopplers EMG's sent me to a specialist for hands and arms in Little Rock AR and he said there was nothing wrong with my arm, I needed to find a good neuro. Well my arm started

working so I didn't worry, thought maybe surgery was too stressful and went into home health. In Feb of this year I went to a rheumatologist who said yes I had fibromyalgia. Then in March I thought I had a UTI and went to my urologist (who has treated me for 30 years) and he told me I had a kidney inf. and gave me med. That Sunday I could not go to the bathroom, went to ER and they cathed me and got 1500cc return and then within 1 hr they got another 1000cc, They left the cath in and told me to go to my urologist the next day. my doc looked at me and told me he was sorry, it had to be MS that what was wrong with my bladder only happened with MS pts. So he and my rheumatologist got me into a neurologist and this time I had 1 lesion. Sorry soo long but that's it I had symptoms for 7 years but neg MRI's Just remember 10% of MS pts have neg MRI's and you have to catch a spinal tap at just the right time to catch the

bands. I just think maybe my body tries to fix itself and eventually another lesion is going to show up. That's why my specialist wants me to see this other neuro because she said the research facilities had MRI's that could detect changes in brain tissue before the damage happened. Just think what that could mean for all of us if that technology expands. Sooner dx and better medicine control. Hey...we can Hope can't we. ' in Texascassandra workmn wrote: wow renee I didnt know that.were did they find the lesion?how long did it take them?I have been sick 3 yrs. And knowing my luck when they finally do find something it will probably be 1.do you mind if I ask were it is at?hope your feeln ok today.hugs, cassy[dixmstx] wrote:Yea...Thank goodness for lortab 7.5 or I would not have made it.I take >>>>>Get Ready: Ibuprofen 800mg once a dayCymbalta 30mg twice a day(was 60 1 but ichanged it Nurses are the worst patients)Klonipin 0.05mg three times a day for tremorsFlexeril 10 mg twice a day for muscle spasmsThyroid 130 mg once a dayUrispas as needed Stool Softener because of the other medsLortab 5/500mg half a tab a dayAnd I still self cath from one time to every time I void. And remember, Challis, It's all in my head!!!:>)I see my

neurologist for my tremors in Jan or Feb and she called to check up on me in Nov and told me she was going to have a new partner that was a regular neurologist and she wanted her to follow my MS like symptoms.Donna, I only have 1 lesion. I have had 7 years of symptoms and finally one measlly little lesion. Which is good because it means my body is holding its own but it's bad because they will not prescribe the maintenance meds until I have another lesion. In the process, I've lost my bladder function.' in TexasDonna <donnaisalwayzcomcast (DOT) net> wrote:,I too am hoping and praying for you that it's not an exacerbation. Though if I'm not mistaken, when I had two molars sugerically removed.. I didn't go into an exacerbation, but I was extremely tired for a few days afterward.. I think it stemmed from the stress on my body.. I wouldn't know about the achiness

though, cause I called my PCP for something stronger than Tylenol (which the dentist told me to take, even though I explained the amount of Advil I already took, and that Tylenol wasn't going to cut it).. and my PCP gave me these fantastic long white pills (I can't remember the name of them right this second).... that I ended up having the break in half to take, otherwise it was oooolala off to never-neverland... Ahhh.. Vicodin... that's what they were.. Once he gave me those, I didn't have pain anywhere... but was tired...The dentist also gave me large doses of anti-biotics... but that's been a "given" since I had rheumatic fever...Take care and take it easy...|)onna

[Guest guest]

hey renee.how are you?wow you had a wile before a dx to.7 yrs. I have been sick

3,and they still have not found anything.this disease they think I have is

inflamation.I still worry thow that once they do a spinal that it still will not

tell them.Im not sure but I think for me they can do it anytime because I have

been in a constant flare up for a year now,quickly progressing,whatever it

is.did you have a spinal?sorry if i misd you saying so.so 1 lesion?It is

possible isnt it that you may have more and they heal or whatever you said?I

wonder if that could be possible in my case?im going to a research hospital on

the 16th,I wonder if they have 1 of those machines.thank god for this site,and

all of you.I think I really would be crazy if it wernt for u guys.lol.but

true.hope your doin ok today.hugs,cassy

[dixmstx@...] wrote:

My lesion that shows on normal MRI's is in the frontal lobe on my left side. I

had an episode of vertigo in 99 for no reason for 6 wks, they checked for

lesions, it was neg so they said everything was ok, it was just benign vertigo.

In 2000, I started having this severe fatigue and abnormality of gait. I had

pressure points so they said it was fibromyalgia.

Got pregnant in 2000 and like alot of muscular problems you'll go in a

remissive state because your body gives off two hormones to relax and stretch

your muscles and tendons. And you walk funny anyway!

Started having problems in 2003 but they just said it was fibromyalgia.

In 2004 I worked for a surgeon and woke up one day and my left arm didn't

work. Did MRI's which were neg. dopplers EMG's sent me to a specialist for hands

and arms in Little Rock AR and he said there was nothing wrong with my arm, I

needed to find a good neuro. Well my arm started working so I didn't worry,

thought maybe surgery was too stressful and went into home health.

In Feb of this year I went to a rheumatologist who said yes I had

fibromyalgia. Then in March I thought I had a UTI and went to my urologist (who

has treated me for 30 years) and he told me I had a kidney inf. and gave me med.

That Sunday I could not go to the bathroom, went to ER and they cathed me and

got 1500cc return and then within 1 hr they got another 1000cc, They left the

cath in and told me to go to my urologist the next day. my doc looked at me and

told me he was sorry, it had to be MS that what was wrong with my bladder only

happened with MS pts. So he and my rheumatologist got me into a neurologist and

this time I had 1 lesion.

Sorry soo long but that's it I had symptoms for 7 years but neg MRI's Just

remember 10% of MS pts have neg MRI's and you have to catch a spinal tap at just

the right time to catch the bands.

I just think maybe my body tries to fix itself and eventually another lesion

is going to show up. That's why my specialist wants me to see this other neuro

because she said the research facilities had MRI's that could detect changes in

brain tissue before the damage happened. Just think what that could mean for all

of us if that technology expands. Sooner dx and better medicine control.

Hey...we can Hope can't we.

' in Texas

cassandra workmn wrote:

wow renee I didnt know that.were did they find the lesion?how long did

it take them?I have been sick 3 yrs. And knowing my luck when they finally do

find something it will probably be 1.do you mind if I ask were it is at?hope

your feeln ok today.hugs, cassy

[dixmstx@...] wrote:

Yea...Thank goodness for lortab 7.5 or I would not have made it.

I take >>>>>Get Ready: Ibuprofen 800mg once a day

Cymbalta 30mg twice a day(was 60 1 but i

changed it Nurses are the worst patients)

Klonipin 0.05mg three times a day for tremors

Flexeril 10 mg twice a day for muscle spasms

Thyroid 130 mg once a day

Urispas as....

[Guest guest]

Yea they did but it was neg and the other neuro told me your spinal fluid has to be really inflammed and be attacking your brain at the time or it doesn't show anything 'Donna wrote: ,I'm not real sure that maintenance meds are super important... (I could be wrong)...My neurologist feels that it's super important to be on one of them... just not Copaxone.. he insists on Avonex.. while one of his partners only prescribes Betaseron... I look

around his office and I see hand soap sponsored by "Lexapro", ink pens, prescription pads, plastic skulls , brains and spines.. of course supplied by one drug or another.. Not a single thing from Teva or with the word Copaxone on it... Leads me to believe Teva doesn't "give" him anything as an incentive to prescribe?[Lexapro was the last anti-depressant that he prescribed two years ago.. have Wellbutrin now, but at my insistence... figure I might as well try to stop smoking while getting my moods to level out.. lol... oh.. Zyban is just Wellbutrin with a name change and price increase.. just like Tysabri is Antegren with a name change, and most likely a price increase... ]A friend of mine, not in this group, but who also has MS went to see his neurologist.. seems to be a real nice lady, and a neurologist that he will go see, and he doesn't do doctors AT ALL... He told me that he asked her about

starting Avonex.. and that she told him.. she saw NO reason to start him on the drug, because he hadn't had an exacerbation in years and that it was only really effective for like 2 years... and she saw no reason to start him on something that was only going to be effective for that period when he didn't "need" it at this point in time...I've question the results of pre-release testing of Avonex and the other CRAB drugs (but mostly Avonex because that's what I started with).. IF this disease is so unpredictable on when, where, how and so forth we're going to have exacerbations.. how do you know the drugs is working? How do you know it actually reduced the number of exacerbations in patients? I would think that it would be possible to have a number of the placebo group having loads of exacerbations.. and the one receiving the therapy being in a group that have infrequent exacerbations...It's all way

too confusing for such a small brain as mine... and I do KNOW that Avonex works.. but I had 7 active lesions at time of diagnosis, and that 4 of them resolved themselves in 4 months of onset of treatment with Avonex... So I almost have to believe that the Avonex was responsible for the resolution... but it's not an impossible stretch of the imagination to believe that those 4 lesions were resolving themselves anyway.. and would have done so without the Avonex.. I'll never know for sure...If you do some extensive reading on Avonex (if it's still out there on the web to be found).. you will find that there is more than one source that states that they (being the higher powers) can only be sure of two years efficacy for the drug... (at least at the time I was researching it, that was the conclusions I found)..I was completely upset and pissed off when the ophthalmologist that looked at my eyes at diagnosis,

with MRI confirming optic neuritis (and my PCP wanted me on prednisone RIGHT NOW) said "Nope, it will go away on it's own"... and I'm thinking... "Apparently these aren't YOUR eyes we're talking about!, let's do something".. but they wouldn't treat the neuritis... Yes, it did go away on it's own, and yes it didn't leave any lasting damage to the optic nerve.. but it sure was bone of contention with me.. and I haven't been back to that ophthalmologist since... Second optha that I saw, agreed with me that there should have been some treatment... go figure...I had symptoms of MS long long before my diagnosis.. don't know how many lesions I had along the way, cause none of my doctors thought to look for anything other than the completely obvious in my different complaints... Well gee.. you got to run pee often? hmmm.. could be that slight uterine prolapse you have pressing on the bladder... okay,

believeable... and uterine prolapse runs in the family.. sooo... Well gee.. that big toe is numb... that could be from the bone graft surgery on your ankle.. might have damaged a nerve during the surgery... Well, okay.. that's understandable too.. Gee.. the pinkies on your hands are numb?.. that could carpal tunnel syndrome... you do spend an awful lot of time at the computer... but the tests are negative.. hmmm.. don't know what it is... Hey.. your left leg quit working you say?... well the MRI of your lower spine shows no reason for it... so.. I don't know what it is.. but pay the secretary $150 on your way out... and sure hope it gets better, oh that's right.. the use of that leg has already started to come back...but pay the secretary anyway on your way out.. and have a nice life... then I started to not make it to the bathroom which was less than 60 feet away from me... with bowel incontinence... and then

(my friend with MS) and I discussed symptoms... and THEN I had to tell my PCP that I was pretty sure that I had MS.. and she was gonna blow me off as well... but I will her credit for asking why I thought I had it... She said.. I don't think you do, but if you do, it's a "slight" case... ummm... slight? lol.. okayAnd yes, that's when they found the 7 lesions, and all the other stuff that gave me a definite MS diagnosis... Those other symptoms were all over a period of 10 years or more..This is ALL so frustrating, and I understand your frustration on losing bladder function completely... I really hate that I know where every single bathroom in southwestern Pennsylvania is located, and I don't like the fact that sometimes I end up wet... or even way way way more embarrassing kinda smelly... especially since I "don't look sick"..This disease really sucks.. it sucks big time when you are diagnosed

and it sucks even more when you are trying to get diagnosed.. and really really sucks when the doctors look at you like you're a hypochondriac... and even after diagnosis, though they tend to believe a bit more, PCPs even my neurologist thinks I'm a hypochondriac... Why they don't connect nerve damage to strange things happening with our bodies is beyond me..But you know what.. if it wouldn't have been for the new lesions, bi-laterally (and I either forgot to ask how many, or he didn't count or something, but it was alot).. I wouldn't have gone back on therapy.. I do like the Copaxone, because I noticed a difference right away.. only slight but still a difference.. without my legs feeling wobbly all the time, I have a tendency to move around more.. I still don't have a whole lot of balance and I still run into walls and stumble or weeble-wobble when I'm walking.. but I really do suspect those symptoms to get

better until they find a way to rebuild the myelin that I've lost..Have they done a lumbar puncture for you yet? Not really something to look forward to, or wish upon yourself, but if they haven't done one, it might be an idea see if they can pick up the oglio-something banding in the spinal fluid...Take care|)onna Trimm wrote:<snip>> > Donna, I only have 1 lesion. I have had 7 years of symptoms and finally > one measlly little lesion. Which is good because it means my body is > holding its own but it's bad because they will not prescribe the > maintenance meds until I have another lesion. In the process, I've lost > my bladder function.> > ' in Texas

[Guest guest]

I truly beleive my body is still trying to repair itself. And some days I only have to cath once and some days it's everytime. But I always think, I am lucky. My life could be so much worse. One of my pt's has Huntington's disease. It robs the mind and usually kills you within 15 yrs of dx. and you have a 50% chance of passing it to your children Her fatheer had it, had two daughters and both daughters had it. This pt had a hysterectomy so she wouldn't pass on the genes. 'cassandra workmn wrote: hey renee.how are you?wow you had a wile before a dx to.7 yrs. I have been sick 3,and they still have not found anything.this disease they think I have is inflamation.I still worry thow that once they do a spinal that it still will not tell them.Im not sure but I think for me they can do it anytime because I have been in a constant flare up for a year now,quickly progressing,whatever it is.did you have a spinal?sorry if i misd you saying so.so 1 lesion?It is possible isnt it that you may have more and they heal or whatever you said?I wonder if that could be possible in my case?im going to a research hospital on the 16th,I wonder if they have 1 of those machines.thank god for this site,and all of you.I think I really would be crazy if it wernt for u guys.lol.but true.hope your doin ok today.hugs,cassy[dixmstx] wrote:My lesion that

shows on normal MRI's is in the frontal lobe on my left side. I had an episode of vertigo in 99 for no reason for 6 wks, they checked for lesions, it was neg so they said everything was ok, it was just benign vertigo.In 2000, I started having this severe fatigue and abnormality of gait. I had pressure points so they said it was fibromyalgia.Got pregnant in 2000 and like alot of muscular problems you'll go in a remissive state because your body gives off two hormones to relax and stretch your muscles and tendons. And you walk funny anyway!Started having problems in 2003 but they just said it was fibromyalgia.In 2004 I worked for a surgeon and woke up one day and my left arm didn't work. Did MRI's which were neg. dopplers EMG's sent me to a specialist for hands and arms in Little Rock AR and he said there was nothing wrong with my arm, I needed to find a good neuro. Well my arm started working so I didn't worry, thought maybe surgery was too stressful and

went into home health.In Feb of this year I went to a rheumatologist who said yes I had fibromyalgia. Then in March I thought I had a UTI and went to my urologist (who has treated me for 30 years) and he told me I had a kidney inf. and gave me med. That Sunday I could not go to the bathroom, went to ER and they cathed me and got 1500cc return and then within 1 hr they got another 1000cc, They left the cath in and told me to go to my urologist the next day. my doc looked at me and told me he was sorry, it had to be MS that what was wrong with my bladder only happened with MS pts. So he and my rheumatologist got me into a neurologist and this time I had 1 lesion.Sorry soo long but that's it I had symptoms for 7 years but neg MRI's Just remember 10% of MS pts have neg MRI's and you have to catch a spinal tap at just the right time to catch the bands.I just think maybe my body tries to fix itself and eventually another lesion is going to show up. That's

why my specialist wants me to see this other neuro because she said the research facilities had MRI's that could detect changes in brain tissue before the damage happened. Just think what that could mean for all of us if that technology expands. Sooner dx and better medicine control.Hey...we can Hope can't we.' in Texascassandra workmn <payngabby72> wrote:wow renee I didnt know that.were did they find the lesion?how long did it take them?I have been sick 3 yrs. And knowing my luck when they finally do find something it will probably be 1.do you mind if I ask were it is at?hope your feeln ok today.hugs, cassy[dixmstx] wrote:Yea...Thank goodness for lortab 7.5 or I would not have made it.I take >>>>>Get Ready: Ibuprofen 800mg once a dayCymbalta 30mg twice a day(was 60 1 but ichanged

it Nurses are the worst patients)Klonipin 0.05mg three times a day for tremorsFlexeril 10 mg twice a day for muscle spasmsThyroid 130 mg once a dayUrispas as....

[Guest guest]

Our daughter in laws father died last year due to Huntington's. They never bothered to tell our son about before him and Terry got married. If Terry carries the gene then Justyne has a 50/50 chance of getting it. Our son was not happy to learn this 3 yrs after Justyne was born. All anyone said about the father was that he was in a nursing home to due some sort of brain condition.

Hugs

nne

Breast Cancer Patients Soul Mates for Lifehttp://www.geocities.com/chucky5741/breastcancerpatients.htmlBreastCancerStories.comhttp://www.breastcancerstories.com/content/view/433/161/Angel Feather Loomerwww.angelfeatherloomer.blogspot.comCheck out my other ornaments atwww.geocities.com/chucky5741/bcornament.htmlLots of info and gifts at:www.cancerclub.com

Re: Cassy, Zoloft and Paxil -- Wish Me luck today please? (Terri)

I truly beleive my body is still trying to repair itself. And some days I only have to cath once and some days it's everytime. But I always think, I am lucky. My life could be so much worse. One of my pt's has Huntington's disease. It robs the mind and usually kills you within 15 yrs of dx. and you have a 50% chance of passing it to your children Her fatheer had it, had two daughters and both daughters had it. This pt had a hysterectomy so she wouldn't pass on the genes.

'cassandra workmn <payngabby72> wrote:

hey renee.how are you?wow you had a wile before a dx to.7 yrs. I have been sick 3,and they still have not found anything.this disease they think I have is inflamation.I still worry thow that once they do a spinal that it still will not tell them.Im not sure but I think for methey can do it anytime because I have been in a constant flare up for a year now,quickly progressing,whatever it is.did you have a spinal?sorry if i misd you saying so.so 1 lesion?It is possible isnt it that you may have more and they heal or whatever you said?I wonder if that could be possible in my case?im going to a research hospital on the 16th,I wonder if they have 1 of those machines.thank god for this site,and all of you.I think I really would be crazy if it wernt for u guys.lol.but true.hope your doin ok today.hugs,cassy[dixmstx] wrote:My lesion that shows on normal MRI's is in the frontal lobe on my left side. I had an episode of vertigo in 99 for no reason for 6 wks, they checked for lesions, it was neg so they said everything was ok, it was just benign vertigo.In 2000, I started having this severe fatigue and abnormality of gait. I had pressure points so they said it was fibromyalgia.Got pregnant in 2000 and like alot of muscular problems you'll go in a remissive state because your body gives off two hormones to relax and stretch your muscles and tendons. And you walk funny anyway!Started having problems in 2003 but they just said it was fibromyalgia.In 2004 I worked for a surgeon and woke up one day and my left arm didn't work. Did MRI's which were neg. dopplers EMG's sent me to a specialist for hands and arms in Little Rock AR and he said there was nothing wrong with my arm, I needed to find a good neuro. Well my arm started working so I didn't worry, thought maybe surgery was too stressful and went into home health.In Feb of this year I went to a rheumatologist who said yes I had fibromyalgia. Then in March I thought I had a UTI and went to my urologist (who has treated me for 30 years) and he told me I had a kidney inf. and gave me med. That Sunday I could not go to the bathroom, went to ER and they cathed me and got 1500cc return and then within 1 hr they got another 1000cc, They left the cath in and told me to go to my urologist the next day. my doc looked at me and told me he was sorry, it had to be MS that what was wrong with my bladder only happened with MS pts. So he and my rheumatologist got me into a neurologist and this time I had 1 lesion.Sorry soo long but that's it I had symptoms for 7 years but neg MRI's Just remember 10% of MS pts have neg MRI's and you have to catch a spinal tap at just the right time to catch the bands.I just think maybe my body tries to fix itself and eventually another lesion is going to show up. That's why my specialist wants me to see this other neuro because she said the research facilities had MRI's that could detect changes in brain tissue before the damage happened. Just think what that could mean for all of us if that technology expands. Sooner dx and better medicine control.Hey...we can Hope can't we.' in Texascassandra workmn <payngabby72> wrote:wow renee I didnt know that.were did they find the lesion?how long did it take them?I have been sick 3 yrs. And knowing my luck when they finally do find something it will probably be 1.do you mind if I ask were it is at?hope your feeln ok today.hugs, cassy[dixmstx] wrote:Yea...Thank goodness for lortab 7.5 or I would not have made it.I take >>>>>Get Ready: Ibuprofen 800mg once a dayCymbalta 30mg twice a day(was 60 1 but ichanged it Nurses are the worst patients)Klonipin 0.05mg three times a day for tremorsFlexeril 10 mg twice a day for muscle spasmsThyroid 130 mg once a dayUrispas as....

No virus found in this incoming message.Checked by AVG Free Edition.Version: 7.1.410 / Virus Database: 268.16.6/617 - Release Date: 1/5/2007

[Guest guest]

Yep. My neuro told me that if a person is "going into, or out of, an exacerbation" their LP can be iffy. And if you aren't in an attack it can be negative. Sharon If the government is big enough to give you everything you want, it is big enough to take away everything you have. - Gerald Ford Re: Cassy, Zoloft and Paxil -- Wish Me luck today please? (Terri)

Yea they did but it was neg and the other neuro told me your spinal fluid has to be really inflammed and be attacking your brain at the time or it doesn't show anything 'Donna <donnaisalwayz@ comcast.net> wrote: ,I'm not real sure that maintenance meds are super important... (I could be wrong)...My neurologist feels that it's super important to be on one of them... just not Copaxone.. he insists on Avonex.. while one of his partners only prescribes Betaseron... I look

around his office and I see hand soap sponsored by "Lexapro", ink pens, prescription pads, plastic skulls , brains and spines.. of course supplied by one drug or another.. Not a single thing from Teva or with the word Copaxone on it... Leads me to believe Teva doesn't "give" him anything as an incentive to prescribe?[Lexapro was the last anti-depressant that he prescribed two years ago.. have Wellbutrin now, but at my insistence.. . figure I might as well try to stop smoking while getting my moods to level out.. lol... oh.. Zyban is just Wellbutrin with a name change and price increase.. just like Tysabri is Antegren with a name change, and most likely a price increase... ]A friend of mine, not in this group, but who also has MS went to see his neurologist. . seems to be a real nice lady, and a neurologist that he will go see, and he doesn't do doctors AT ALL... He told me that he asked her about

starting Avonex.. and that she told him.. she saw NO reason to start him on the drug, because he hadn't had an exacerbation in years and that it was only really effective for like 2 years... and she saw no reason to start him on something that was only going to be effective for that period when he didn't "need" it at this point in time...I've question the results of pre-release testing of Avonex and the other CRAB drugs (but mostly Avonex because that's what I started with).. IF this disease is so unpredictable on when, where, how and so forth we're going to have exacerbations. . how do you know the drugs is working? How do you know it actually reduced the number of exacerbations in patients? I would think that it would be possible to have a number of the placebo group having loads of exacerbations. . and the one receiving the therapy being in a group that have infrequent exacerbations. ..It's all way

too confusing for such a small brain as mine... and I do KNOW that Avonex works.. but I had 7 active lesions at time of diagnosis, and that 4 of them resolved themselves in 4 months of onset of treatment with Avonex... So I almost have to believe that the Avonex was responsible for the resolution.. . but it's not an impossible stretch of the imagination to believe that those 4 lesions were resolving themselves anyway.. and would have done so without the Avonex.. I'll never know for sure...If you do some extensive reading on Avonex (if it's still out there on the web to be found).. you will find that there is more than one source that states that they (being the higher powers) can only be sure of two years efficacy for the drug... (at least at the time I was researching it, that was the conclusions I found)..I was completely upset and pissed off when the ophthalmologist that looked at my eyes at diagnosis,

with MRI confirming optic neuritis (and my PCP wanted me on prednisone RIGHT NOW) said "Nope, it will go away on it's own"... and I'm thinking... "Apparently these aren't YOUR eyes we're talking about!, let's do something".. but they wouldn't treat the neuritis... Yes, it did go away on it's own, and yes it didn't leave any lasting damage to the optic nerve.. but it sure was bone of contention with me.. and I haven't been back to that ophthalmologist since... Second optha that I saw, agreed with me that there should have been some treatment... go figure...I had symptoms of MS long long before my diagnosis.. don't know how many lesions I had along the way, cause none of my doctors thought to look for anything other than the completely obvious in my different complaints.. . Well gee.. you got to run pee often? hmmm.. could be that slight uterine prolapse you have pressing on the bladder... okay,

believeable. .. and uterine prolapse runs in the family.. sooo... Well gee.. that big toe is numb... that could be from the bone graft surgery on your ankle.. might have damaged a nerve during the surgery... Well, okay.. that's understandable too.. Gee.. the pinkies on your hands are numb?.. that could carpal tunnel syndrome... you do spend an awful lot of time at the computer... but the tests are negative.. hmmm.. don't know what it is... Hey.. your left leg quit working you say?... well the MRI of your lower spine shows no reason for it... so.. I don't know what it is.. but pay the secretary $150 on your way out... and sure hope it gets better, oh that's right.. the use of that leg has already started to come back...but pay the secretary anyway on your way out.. and have a nice life... then I started to not make it to the bathroom which was less than 60 feet away from me... with bowel incontinence. .. and then

(my friend with MS) and I discussed symptoms... and THEN I had to tell my PCP that I was pretty sure that I had MS.. and she was gonna blow me off as well... but I will her credit for asking why I thought I had it... She said.. I don't think you do, but if you do, it's a "slight" case... ummm... slight? lol.. okayAnd yes, that's when they found the 7 lesions, and all the other stuff that gave me a definite MS diagnosis... Those other symptoms were all over a period of 10 years or more..This is ALL so frustrating, and I understand your frustration on losing bladder function completely.. . I really hate that I know where every single bathroom in southwestern Pennsylvania is located, and I don't like the fact that sometimes I end up wet... or even way way way more embarrassing kinda smelly... especially since I "don't look sick"..This disease really sucks.. it sucks big time when you are diagnosed

and it sucks even more when you are trying to get diagnosed.. and really really sucks when the doctors look at you like you're a hypochondriac. .. and even after diagnosis, though they tend to believe a bit more, PCPs even my neurologist thinks I'm a hypochondriac. .. Why they don't connect nerve damage to strange things happening with our bodies is beyond me..But you know what.. if it wouldn't have been for the new lesions, bi-laterally (and I either forgot to ask how many, or he didn't count or something, but it was alot).. I wouldn't have gone back on therapy.. I do like the Copaxone, because I noticed a difference right away.. only slight but still a difference.. without my legs feeling wobbly all the time, I have a tendency to move around more.. I still don't have a whole lot of balance and I still run into walls and stumble or weeble-wobble when I'm walking.. but I really do suspect those symptoms to get

better until they find a way to rebuild the myelin that I've lost..Have they done a lumbar puncture for you yet? Not really something to look forward to, or wish upon yourself, but if they haven't done one, it might be an idea see if they can pick up the oglio-something banding in the spinal fluid...Take care|)onna Trimm wrote:<snip>> > Donna, I only have 1 lesion. I have had 7 years of symptoms and finally > one measlly little lesion. Which is good because it means my body is > holding its own but it's bad because they will not prescribe the > maintenance meds until I have another lesion. In the process, I've lost > my bladder function.> > ' in Texas

__________________________________________________

[Guest guest]

hey sharon,what if you are always sick?like everday is the same.I wonder how

that works?cuz im sick everyday,just get new symptoms on top of the others.I

worry about that cuz I never know when im in a true flare,some days are jus

worse than others.guess I can ask the specialist.thankyouuu.hugs, cassy

[wobbletowalk@...] wrote:

Yep. My neuro told me that if a person is " going into, or out of, an

exacerbation " their LP can be iffy. And if you aren't in an attack it can be

negative.

Sharon

If the government is big enough to give you everything you want, it

is big enough to take away everything you have. - Gerald Ford

Re: Cassy, Zoloft and Paxil -- Wish Me luck today please?

(Terri)

Yea they did but it was neg and the other neuro told me your spinal fluid has to

be really inflammed and be attacking your brain at the time or it doesn't show

anything

'

Donna <donnaisalwayz@ comcast.net> wrote:

,

I'm not real sure that maintenance meds are super important... (I could

be wrong)...

My neurologist feels that it's super important to be on one of them...

just not Copaxone.. he insists on Avonex.. while one of his partners

only prescribes Betaseron... I look

around his office and I see hand

soap sponsored by " Lexapro " , ink pens, prescription pads, plastic skulls

, brains and spines.. of course supplied by one drug or another.. Not a

single thing from Teva or with the word Copaxone on it... Leads me to

believe Teva doesn't " give " him anything as an incentive to prescribe?

[Lexapro was the last anti-depressant that he prescribed two years ago..

have Wellbutrin now, but at my insistence.. . figure I might as well try

to stop smoking while getting my moods to level out.. lol... oh.. Zyban

is just Wellbutrin with a name change and price increase.. just like

Tysabri is Antegren with a name change, and most likely a price

increase... ]

A friend of mine, not in this group, but who also has MS went to see his

neurologist. . seems to be a real nice lady, and a neurologist that he

will go see, and he doesn't do doctors AT ALL... He told me that he

asked her about

starting Avonex.. and that she told him.. she saw NO

reason to start him on the drug, because he hadn't had an exacerbation

in years and that it was only really effective for like 2 years... and

she saw no reason to start him on something that was only going to be

effective for that period when he didn't " need " it at this point in time...

I've question the results of pre-release testing of Avonex and the other

CRAB drugs (but mostly Avonex because that's what I started with).. IF

this disease is so unpredictable on when, where, how and so forth we're

going to have exacerbations. . how do you know the drugs is working? How

do you know it actually reduced the number of exacerbations in patients?

I would think that it would be possible to have a number of the

placebo group having loads of exacerbations. . and the one receiving the

therapy being in a group that have infrequent exacerbations. ..

It's all way

too confusing for such a small brain as mine... and I do

KNOW....

[Guest guest]

thats so sad.huntingtons is a scary disease.yes we are blessed.hugs,

cassy

[dixmstx@...] wrote:

I truly beleive my body is still trying to repair itself. And some days I only

have to cath once and some days it's everytime. But I always think, I am lucky.

My life could be so much worse. One of my pt's has Huntington's disease. It robs

the mind and usually kills you within 15 yrs of dx. and you have a 50% chance of

passing it to your children Her fatheer had it, had two daughters and both

daughters had it. This pt had a hysterectomy so she wouldn't pass on the genes.

'

cassandra workmn wrote:

hey renee.how are you?wow you had a wile before a dx to.7 yrs. I have

been sick 3,and they still have not found anything.this disease they think I

have is inflamation.I still worry thow that once they do a spinal that it still

will not tell them.Im not sure but I think for me they can do it anytime because

I have been in a constant flare up for a year now,quickly progressing,whatever

it is.did you have a spinal?sorry if i misd you saying so.so 1 lesion?It is

possible isnt it that you may have more and they heal or whatever you said?I

wonder if that could be possible in my case?im going to a research hospital on

the 16th,I wonder if they have 1 of those machines.thank god for this site,and

all of you.I think I really would be crazy if it wernt for u guys.lol.but

true.hope your doin ok today.hugs,cassy

[dixmstx@...] wrote:

My lesion that shows on normal MRI's is in the frontal lobe on my left side. I

had an episode of vertigo in 99 for no reason for 6 wks, they checked for

lesions, it was neg so they said everything was ok, it was just benign vertigo.

In 2000, I started having this severe fatigue and abnormality of gait. I had

pressure points so they said it was fibromyalgia.

Got pregnant in 2000 and like alot of muscular problems you'll go in a remissive

state because your body gives off two hormones to relax and stretch your muscles

and tendons. And you walk funny anyway!

Started having problems in 2003 but they just said it was fibromyalgia.

In 2004 I worked for a surgeon and woke up one day and my left arm didn't work.

Did MRI's which were neg. dopplers EMG's sent me to a specialist for hands and

arms in Little Rock AR and he said there was nothing wrong with my arm, I needed

to find a good neuro. Well my arm started working so I didn't worry, thought

maybe surgery was too stressful and went into home health.

In Feb of this year I went to a rheumatologist who said yes I had fibromyalgia.

Then in March I thought I had a UTI and went to my urologist (who has treated me

for 30 years) and he told me I had a kidney inf. and gave me med. That Sunday I

could not go to the bathroom, went to ER and they cathed me and got 1500cc

return and then within 1 hr they got another 1000cc, They left the cath in and

told me to go to my urologist the next day. my doc looked at me and told me he

was sorry, it had to be MS that what was wrong with my bladder only happened

with MS pts. So he and my rheumatologist got me....

[Guest guest]

Have they had genetic testing done on Justuyne or do they not want to know. I don't think I would want to know 20 years ahead of time my child was going to have it ' & nne Svihlik wrote: Our daughter in laws father died last year due to Huntington's. They never bothered to tell our son about before him and Terry got married. If Terry carries the gene then Justyne has a 50/50 chance of getting it. Our son was not

happy to learn this 3 yrs after Justyne was born. All anyone said about the father was that he was in a nursing home to due some sort of brain condition. Hugs nne Breast Cancer Patients Soul Mates for Lifehttp://www.geocities.com/chucky5741/breastcancerpatients.htmlBreastCancerStories.comhttp://www.breastcancerstories.com/content/view/433/161/Angel Feather Loomerwww.angelfeatherloomer.blogspot.comCheck out my other ornaments atwww.geocities.com/chucky5741/bcornament.htmlLots of

info and gifts at:www.cancerclub.com Re: Cassy, Zoloft and Paxil -- Wish Me luck today please? (Terri) I truly beleive my body is still trying to repair itself. And some days I only have to cath once and some days it's everytime. But I always think, I am lucky. My life could be so much worse. One

of my pt's has Huntington's disease. It robs the mind and usually kills you within 15 yrs of dx. and you have a 50% chance of passing it to your children Her fatheer had it, had two daughters and both daughters had it. This pt had a hysterectomy so she wouldn't pass on the genes. 'cassandra workmn <payngabby72> wrote: hey renee.how are you?wow you had a wile before a dx to.7 yrs. I have been sick 3,and they still have not found anything.this disease they think I have is inflamation.I still worry thow that once they do a spinal that it still will not tell them.Im not sure but I think for methey can do it anytime because I have been in a constant flare up for a year now,quickly progressing,whatever it is.did you have a spinal?sorry if i misd you saying so.so 1

lesion?It is possible isnt it that you may have more and they heal or whatever you said?I wonder if that could be possible in my case?im going to a research hospital on the 16th,I wonder if they have 1 of those machines.thank god for this site,and all of you.I think I really would be crazy if it wernt for u guys.lol.but true.hope your doin ok today.hugs,cassy[dixmstx] wrote:My lesion that shows on normal MRI's is in the frontal lobe on my left side. I had an episode of vertigo in 99 for no reason for 6 wks, they checked for lesions, it was neg so they said everything was ok, it was just benign vertigo.In 2000, I started having this severe fatigue and abnormality of gait. I had pressure points so they said it was fibromyalgia.Got pregnant in 2000 and like alot of muscular problems you'll go in a remissive state because your body gives off two hormones to relax and stretch your muscles and tendons.

And you walk funny anyway!Started having problems in 2003 but they just said it was fibromyalgia.In 2004 I worked for a surgeon and woke up one day and my left arm didn't work. Did MRI's which were neg. dopplers EMG's sent me to a specialist for hands and arms in Little Rock AR and he said there was nothing wrong with my arm, I needed to find a good neuro. Well my arm started working so I didn't worry, thought maybe surgery was too stressful and went into home health.In Feb of this year I went to a rheumatologist who said yes I had fibromyalgia. Then in March I thought I had a UTI and went to my urologist (who has treated me for 30 years) and he told me I had a kidney inf. and gave me med. That Sunday I could not go to the bathroom, went to ER and they cathed me and got 1500cc return and then within 1 hr they got another 1000cc, They left the cath in and told me to go to my urologist the next day. my doc looked at me and told me he was sorry, it had to

be MS that what was wrong with my bladder only happened with MS pts. So he and my rheumatologist got me into a neurologist and this time I had 1 lesion.Sorry soo long but that's it I had symptoms for 7 years but neg MRI's Just remember 10% of MS pts have neg MRI's and you have to catch a spinal tap at just the right time to catch the bands.I just think maybe my body tries to fix itself and eventually another lesion is going to show up. That's why my specialist wants me to see this other neuro because she said the research facilities had MRI's that could detect changes in brain tissue before the damage happened. Just think what that could mean for all of us if that technology expands. Sooner dx and better medicine control.Hey...we can Hope can't we.' in Texascassandra workmn <payngabby72> wrote:wow renee I didnt know that.were did they find the lesion?how long

did it take them?I have been sick 3 yrs. And knowing my luck when they finally do find something it will probably be 1.do you mind if I ask were it is at?hope your feeln ok today.hugs, cassy[dixmstx] wrote:Yea...Thank goodness for lortab 7.5 or I would not have made it.I take >>>>>Get Ready: Ibuprofen 800mg once a dayCymbalta 30mg twice a day(was 60 1 but ichanged it Nurses are the worst patients)Klonipin 0.05mg three times a day for tremorsFlexeril 10 mg twice a day for muscle spasmsThyroid 130 mg once a dayUrispas as.... No virus found in this incoming message.Checked by AVG Free Edition.Version: 7.1.410 / Virus Database: 268.16.6/617 - Release Date: 1/5/2007

[Guest guest]

Unfortunately I think our sons wife is showing signs of it. She is something else but won't go into it as noone would probably believe what our poor son has to put up with. When he suggests that his wife go to the dr just for a reg check up she goes ballistic. Its a very sad situation over there but right now his hands are tied financially and he cannot leave with or without our granddaughter. The wife doesn't know that her Mother told our son what was wrong with the father. Wish they would have told him before they married and had Justyne.

Hugs

nne

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Re: Cassy, Zoloft and Paxil -- Wish Me luck today please? (Terri)

I truly beleive my body is still trying to repair itself. And some days I only have to cath once and some days it's everytime. But I always think, I am lucky. My life could be so much worse. One of my pt's has Huntington's disease. It robs the mind and usually kills you within 15 yrs of dx. and you have a 50% chance of passing it to your children Her fatheer had it, had two daughters and both daughters had it. This pt had a hysterectomy so she wouldn't pass on the genes.

'cassandra workmn <payngabby72> wrote:

hey renee.how are you?wow you had a wile before a dx to.7 yrs. I have been sick 3,and they still have not found anything.this disease they think I have is inflamation.I still worry thow that once they do a spinal that it still will not tell them.Im not sure but I think for methey can do it anytime because I have been in a constant flare up for a year now,quickly progressing,whatever it is.did you have a spinal?sorry if i misd you saying so.so 1 lesion?It is possible isnt it that you may have more and they heal or whatever you said?I wonder if that could be possible in my case?im going to a research hospital on the 16th,I wonder if they have 1 of those machines.thank god for this site,and all of you.I think I really would be crazy if it wernt for u guys.lol.but true.hope your doin ok today.hugs,cassy[dixmstx] wrote:My lesion that shows on normal MRI's is in the frontal lobe on my left side. I had an episode of vertigo in 99 for no reason for 6 wks, they checked for lesions, it was neg so they said everything was ok, it was just benign vertigo.In 2000, I started having this severe fatigue and abnormality of gait. I had pressure points so they said it was fibromyalgia.Got pregnant in 2000 and like alot of muscular problems you'll go in a remissive state because your body gives off two hormones to relax and stretch your muscles and tendons. And you walk funny anyway!Started having problems in 2003 but they just said it was fibromyalgia.In 2004 I worked for a surgeon and woke up one day and my left arm didn't work. Did MRI's which were neg. dopplers EMG's sent me to a specialist for hands and arms in Little Rock AR and he said there was nothing wrong with my arm, I needed to find a good neuro. Well my arm started working so I didn't worry, thought maybe surgery was too stressful and went into home health.In Feb of this year I went to a rheumatologist who said yes I had fibromyalgia. Then in March I thought I had a UTI and went to my urologist (who has treated me for 30 years) and he told me I had a kidney inf. and gave me med. That Sunday I could not go to the bathroom, went to ER and they cathed me and got 1500cc return and then within 1 hr they got another 1000cc, They left the cath in and told me to go to my urologist the next day. my doc looked at me and told me he was sorry, it had to be MS that what was wrong with my bladder only happened with MS pts. So he and my rheumatologist got me into a neurologist and this time I had 1 lesion.Sorry soo long but that's it I had symptoms for 7 years but neg MRI's Just remember 10% of MS pts have neg MRI's and you have to catch a spinal tap at just the right time to catch the bands.I just think maybe my body tries to fix itself and eventually another lesion is going to show up. That's why my specialist wants me to see this other neuro because she said the research facilities had MRI's that could detect changes in brain tissue before the damage happened. Just think what that could mean for all of us if that technology expands. Sooner dx and better medicine control.Hey...we can Hope can't we.' in Texascassandra workmn <payngabby72> wrote:wow renee I didnt know that.were did they find the lesion?how long did it take them?I have been sick 3 yrs. And knowing my luck when they finally do find something it will probably be 1.do you mind if I ask were it is at?hope your feeln ok today.hugs, cassy[dixmstx] wrote:Yea...Thank goodness for lortab 7.5 or I would not have made it.I take >>>>>Get Ready: Ibuprofen 800mg once a dayCymbalta 30mg twice a day(was 60 1 but ichanged it Nurses are the worst patients)Klonipin 0.05mg three times a day for tremorsFlexeril 10 mg twice a day for muscle spasmsThyroid 130 mg once a dayUrispas as....

No virus found in this incoming message.Checked by AVG Free Edition.Version: 7.1.410 / Virus Database: 268.16.6/617 - Release Date: 1/5/2007

No virus found in this incoming message.Checked by AVG Free Edition.Version: 7.1.410 / Virus Database: 268.16.7/619 - Release Date: 1/7/2007

[Guest guest]

hey donna.ill be happy to put my illness on ebay to.FREE! Can anyone pass that

up.lolhope your doin ok.hugs,cassy

[donnaisalwayz@...] wrote:

Hmmm.. so when my LP came back positive, all those years ago, I was

having an exacerbation? I KNOW that I was having a bout with optic

neuritis at the time.. and whatever the strange thing that was going on

with my leg when I let my foot touch the floor while at work (kept it

propped up on the computer next to me.. less swelling that way).. but I

wouldn't have thought that was considered an exacerbation..

Oh sometimes I can be soooooooooo stupid... I guess it would be... any

sudden onset of new or worsen of old symptoms would make it an

exacerbation.. The optic neuritis (once I knew what it was) wasn't

anything " new " to me.. I'd had these same symptoms at different times

from the time I was a teenager... they'd come and go.. figured " eye

strain " ..

Wouldn't my doctor have just choked completely if I had told him when I

was 18 that I thought I had MS.. because of the optic neuritis (the

medical book my parents had, that I read, didn't go into much detail

about the MonSter).. He laughed at me when I told him I had Rheumatic

Fever... until the tests came back...lol.. then I got the chuckle..

I've always thought.. an exacerbation was something more serious (like

the time my leg stopped working).. and I've not had anything that bad

since then.. except the bouts with my left arm going numb and sort of

useless.. but those bouts were only hours long as well.. (but according

to my neuro.. wouldn't have been an exacerbation because those periods

were only hours long, not days)...

Oh, I think I give up.. wonder if I could put the MonSter up for sale on

Ebay?.... think anyone would bid? lol... I'd happily, joyfully sell it

no questions asked.. with a " no returns " policy.. and no " money back

guarantee " either.....

|)onna

Sharon Marsden wrote:

>

> Yep. My neuro told me that if a person is " going into, or out of, an

> exacerbation " their LP can be iffy. And if you aren't in an attack it

> can be negative.

>

> Sharon

>

> If the government is big enough to give you everything you want, it is

> big enough to take away everything you have. - Gerald Ford

>

>

> Re: Cassy, Zoloft and Paxil -- Wish Me luck today

> please? (Terri)

>

> Yea they did but it was neg and the other neuro told me your spinal

> fluid has to be really inflammed and be attacking your brain at the time

> or it doesn't show anything

> '

>

[Guest guest]

man i misd it.but im glad im not alone.I agree with you,and if I wasnt as strong

as a person as I am I would be bedriden.I do wish people could see thow how hard

we fight it,and are struggle is just that...out of our control.I think half the

time people use to think I was lazy,until I started progressing and they could

see me limping and out of breath unable to move.now they realize its day by

day,even hour by hour sometimes,and they know when its a bad

day........hugs,cassy

[dixmstx@...] wrote:

I would LOVE to give it to someone who thinks we are not Really THAT sick. If

we'd just try a little harder or have more self control or endurance. I put up

with pain everyday that would make the normal person bedridden. Do any of you

watch House? I loved it last night when he was trying to explain why he takes

Vicodin. He told the guys on his best days his pain was intoleravble and on his

worst(I can't remember what he compared it too) but I was like yes....THAT's

what we go through.

'

cassandra workmn wrote:

hey donna.ill be happy to put my illness on ebay to.FREE! Can anyone

pass that up.lolhope your doin ok.hugs,cassy

[donnaisalwayz@...] wrote:

Hmmm.. so when my LP came back positive, all those years ago, I was

having an exacerbation? I KNOW that I was having a bout with optic

neuritis at the time.. and whatever the strange thing that was going on

with my leg when I let my foot touch the floor while at work (kept it

propped up on the computer next to me.. less swelling that way).. but I

wouldn't have thought that was considered an exacerbation..

Oh sometimes I can be soooooooooo stupid... I guess it would be... any

sudden onset of new or worsen of old symptoms would make it an

exacerbation.. The optic neuritis (once I knew what it was) wasn't

anything " new " to me.. I'd had these same symptoms at different times

from the time I was a teenager... they'd come and go.. figured " eye

strain " ..

Wouldn't my doctor have just choked completely if I had told him when I

was 18 that I thought I had MS.. because of the optic neuritis (the

medical book my parents had, that I read, didn't go into much detail

about the MonSter).. He laughed at me when I told him I had Rheumatic

Fever... until the tests came back...lol.. then I got the chuckle..

I've always thought.. an exacerbation was something more serious (like

the time my leg stopped working).. and I've not had anything that bad

since then.. except the bouts with my left arm going numb and sort of

useless.. but those bouts were only hours long as well.. (but according

to my neuro.. wouldn't have been an exacerbation because those periods

were only hours long, not days)...

Oh, I think I give up.. wonder if I could put the MonSter up for sale on

Ebay?.... think anyone would bid? lol... I'd happily, joyfully sell it

no questions asked.. with a " no returns " policy.. and no " money back

guarantee " either.....

|)onna

Sharon Marsden wrote:

>

> Yep. My neuro told me that if a person is " going into, or out of, an

> exacerbation " their LP can be iffy. And if you aren't in an attack it

> can be negative.

>

> Sharon

>

> If the government is big enough to give you everything you want, it is

> big enough to take away everything you have. - Gerald Ford

>

>

> Re: ....