Guest guest Posted August 1, 2010 Report Share Posted August 1, 2010 Although Mom has passed away over two years ago, she knew that she had different names for the two. There was me - Joan, my daughter; and Joan, my friend. My sister - Susie, my daughter; and Susie (last name) My brother - Rick; the other Rick She also had two homes - that a short ride in the car could transport her between the two. She would want to go home (although she was home) and so even before I knew about Capgras, I told her OK and we took a drive. However, I had to take the same route every time because she would tell me if I didn't turn on teh right streets in the right places. > > I must apologize, the first time, my computer somehow just sent off a reply > without me even hitting the send. I don't know what happened. I was ready to > type my message and it disappeared from me. > > This is of interest to me as I have experienced this with my husband when he was > living at home, but has progressed farther into the disease and is not > displaying it as much as he once was and is in a nursing home now. > One of my most memorable moments was while we were sitting at the dinner table > and he asked me, " Where do you usually eat? " I said, " I eat with you, we eat > together. " And he blushingly said, " Oh no! Not both of my wives together. " > Other times he would call me " Jan! Jan! " and I would say, " What? I'm right > here. " And he would say, " No, not you, the other Jan. " > Once while toileting he asked me who I was, I said, " Jan " he said, " Where did I > hide the gold? I will know it's you if you can tell me where the gold is. " I was > guessing in the toilet paper roll, under the carpet etc. I had no clue what he > was talking about and neither did he, but he did not recognize me as " Jan " that > he knew. > Occasionally he will still call out my name when I am sitting next to him and he > will say I am not that Jan that he wants, he wants the other Jan. I don't think > we qualify for this interview since the patient can not respond to the > interviewer, but this is great for raising awareness of this syndrome. Before I > had heard of Capgras, it was frustrating that my husband didn't recognize me as > the " Jan " that has always been with him. I have heard that this can happen with > pets as well and homes that they don't recognize as their own pets and homes, > but they look similar, but aren't the correct ones. > > > > ________________________________ > This was posted today to the LBDA Forum. > > > All, > > LBDA was contacted by writer for a psychology magazine in the Netherlands who > would like to interview a patient/caregiver duo (ideally in California) that are > dealing with Capgras syndrome, which is common in LBD. > > Capgras syndrome is a disorder in which a person holds a delusion that a friend, > spouse, parent or other close family member has been replaced by an > identical-looking impostor. > > This writer is traveling to California during the third week in August, so while > a caregiver/patient in California would be ideal, other western states may also > hold potential for an in-person interview. > > If you are interested in being interviewed for this story, please send a brief > summary about your personal experience with Capgras syndrome and LBD to me at > ataylor@... > > Many thanks for your help in raising awareness about LBD and Capgras syndrome! > > > Program Director > LBDA > > > > > Quote Link to comment Share on other sites More sharing options...
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