RE: Noises in your head? Anyone???

[Guest guest]

Sharon,

I would think that

if your TN pain is coming from the side of your jaw from the ear area, then the

noises that you are hearing are sensory related to the TN and the ear is being

affected. It could be that you are in such a relaxed state that your

brain is able to process the auditory situation whereas when you are fully

awake, the noises tend to abate. Are you on carbazepine or

oxycarbazepine (Trileptal) for the TN? This anti-seizure medication helps

a lot of people with TN. I don’t know much about Baclofen.

Also, I know that

you posted about going on Effexor. I want to caution you about it. That

is a really bad drug to discontinue. I stopped it cold turkey and spent

almost 3 weeks in horrible shape. I wouldn’t take it again unless I

was commiting to take it for life. Going off that medication gave me “brain

freezes” where my vision and sensory perception were completely delayed with

what was going on. I later found out that my GP really screwed up on this

one and that I should have been on a taper down schedule to go off of the drug.

Live and learn.

Anyway, if your TN

isn’t coming from your jaw/ear area, then you need to call the doc.

Beth

From:

MSersLife [mailto:MSersLife ] On Behalf Of Sharon Marsden

Sent: Monday, March 06, 2006 6:34

AM

To: mserslife

Subject: Noises in

your head? Anyone???

I'm wondering if

this is either related to Trigeminal Neuralgia or a side effect of Baclofen:

When I wake at night

to go to the bathroom I hear noises inside my head. It's not a ringing

but instead is like a circus or a parade. Like clanging bells and

drums. I don't hear it while I'm awake but just as I'm waking up.

Challis said it's my body's way of waking me up to go pee-- complete with bells

and cymbals playing " Hurray it's POTTY Time " .

What do you

think? I hate to call the neuro to tell him I'm hearing circus music when

I wake up at night, you know???

Sharon

Sharon (MSersLife creator/owner)

“One

minute it's a giant cabbage and the next, ka-boom! You've got cole slaw all

over you. "

V.R. , Palmer, Alaska,

where Cabbages grow huge

Yahoo! Mail

Use

Photomail to share photos without annoying attachments.

[Guest guest]

Beth: Thank you. You make a lot of sense and it does seem to fit. I'm not on Trileptal. Is that what you take? I take Neurontin and Baclofen only. It wasn't me thinking about Effexor. My doc gave me samples of Cymbalta to try but I haven't made the decision to do it yet. That's not the same as Effexor is it? Thanks for your response. Sharon Westie wrote: Sharon, I would think that if your TN pain is coming from the side of your jaw from the ear area, then the noises that you are hearing are sensory related to the TN and the ear is being affected. It could be that you are in such a relaxed state that your brain is able to process the auditory situation whereas when you are fully awake, the noises tend to abate. Are you on carbazepine or oxycarbazepine (Trileptal) for the TN? This anti-seizure medication helps a lot of people with TN. I don’t know much about Baclofen. Also, I know that you posted about going on Effexor. I want to caution you about it. That is a really bad drug to discontinue. I stopped it cold turkey and spent almost 3 weeks in horrible shape. I wouldn’t take it again unless I was commiting to take it for life. Going off that medication gave me “brain freezes” where my vision and sensory perception were completely delayed with what was going on. I later found out that my GP really screwed up on this one and that I should have been on a taper down schedule to go off of the drug. Live and learn. Anyway, if

your TN isn’t coming from your jaw/ear area, then you need to call the doc. Beth From: MSersLife [mailto:MSersLife ] On Behalf Of Sharon MarsdenSent: Monday, March 06, 2006 6:34 AMTo: mserslife Subject: Noises in your head? Anyone??? I'm wondering if this is either related to Trigeminal Neuralgia or a side effect of Baclofen: When I wake at night to go to the bathroom I hear noises inside my head. It's not a ringing but instead is like a circus or a parade. Like clanging bells and drums. I don't hear it while I'm awake but just as I'm waking up. Challis said it's my body's way of waking me up to go pee-- complete with bells and cymbals playing "Hurray it's POTTY Time". What do you think? I hate to call the neuro to tell him I'm hearing circus music when I wake up at night, you

know??? Sharon Sharon (MSersLife creator/owner) “One minute it's a giant cabbage and the next, ka-boom! You've got cole slaw all over you." V.R. , Palmer, Alaska, where

Cabbages grow huge Yahoo! MailUse Photomail to share photos without annoying attachments.

Sharon (MSersLife creator/owner)

“One minute it's a giant cabbage and the next, ka-boom! You've got cole slaw all over you." V.R. , Palmer, Alaska, where Cabbages grow huge

Yahoo! Mail

Bring photos to life! New PhotoMail makes sharing a breeze.

[Guest guest]

Sharon,

I take Trileptal, Neurontin, Prednisone,

& Synthroid. Whoever it was that was going on Effexor will hopefully see my

post. Cymbalta and Effexor are two different drugs, although both are commonly

used to treat depression. The Trileptal is quite expensive, but it has

been very effective for me.

I have a dilemma as my dentist thinks I

need a root canal. I have to consult with my Neuro later this month. I

have seen a lot of information where people have had unnecessary root canals

when they have TN. The dentist is convinced that doing the root

canal will solve the inflammation I have, but the last Neuro I saw before being

referred to the MS clinic told me the pain is not from the tooth root. I

don’t really want to go through a root canal to find that it didn’t

solve the pain problem….so I am sitting on the fence for now until I see Neuro

on the 24th.

As for the noise, circus music is not

too bad. What if you were hearing a loud monotonous banging….and it

didn’t go away! There are other TN patients that suffer from continual

tinnitus.

Beth

From:

MSersLife [mailto:MSersLife ] On Behalf Of Sharon Marsden

Sent: Monday, March 06, 2006 12:16

PM

To: MSersLife

Subject: RE: Noises in

your head? Anyone???

Beth:

Thank you. You make a lot of sense and it does seem to

fit. I'm not on Trileptal. Is that what you take? I take

Neurontin and Baclofen only. It wasn't me thinking about Effexor.

My doc gave me samples of Cymbalta to try but I haven't made the decision to do

it yet. That's not the same as Effexor is it?

Thanks for your response.

Sharon

Westie

wrote:

Sharon,

I would think that

if your TN pain is coming from the side of your jaw from the ear area, then the

noises that you are hearing are sensory related to the TN and the ear is being

affected. It could be that you are in such a relaxed state that your

brain is able to process the auditory situation whereas when you are fully

awake, the noises tend to abate. Are you on carbazepine or

oxycarbazepine (Trileptal) for the TN? This anti-seizure medication helps

a lot of people with TN. I don’t know much about Baclofen.

Also, I know that

you posted about going on Effexor. I want to caution you about it.

That is a really bad drug to discontinue. I stopped it cold turkey

and spent almost 3 weeks in horrible shape. I wouldn’t take it

again unless I was commiting to take it for life. Going off that

medication gave me “brain freezes” where my vision and sensory

perception were completely delayed with what was going on. I later found

out that my GP really screwed up on this one and that I should have been on a

taper down schedule to go off of the drug. Live and learn.

Anyway, if your TN

isn’t coming from your jaw/ear area, then you need to call the doc.

Beth

From:

MSersLife [mailto:MSersLife ] On Behalf Of Sharon Marsden

Sent: Monday, March 06, 2006 6:34

AM

To: mserslife

Subject: Noises in

your head? Anyone???

I'm wondering if

this is either related to Trigeminal Neuralgia or a side effect of Baclofen:

When I wake at night

to go to the bathroom I hear noises inside my head. It's not a ringing

but instead is like a circus or a parade. Like clanging bells and

drums. I don't hear it while I'm awake but just as I'm waking up.

Challis said it's my body's way of waking me up to go pee-- complete with bells

and cymbals playing " Hurray it's POTTY Time " .

What do you

think? I hate to call the neuro to tell him I'm hearing circus music when

I wake up at night, you know???

Sharon

Sharon (MSersLife creator/owner)

“One

minute it's a giant cabbage and the next, ka-boom! You've got cole slaw all

over you. "

V.R. , Palmer, Alaska,

where Cabbages grow huge

Yahoo! Mail

Use

Photomail to share photos without annoying attachments.

Sharon (MSersLife creator/owner)

“One

minute it's a giant cabbage and the next, ka-boom! You've got cole slaw all

over you. "

V.R. , Palmer, Alaska,

where Cabbages grow huge

Yahoo! Mail

Bring photos to life! New

PhotoMail makes sharing a breeze.

[Guest guest]

Beth: I take Baclofen, Neurontin, Synthroid and Triamter/HCTZ (for high blood pressure). And hydrocodone for pain. It doesn't do anything for most of the nerve pain but does help with my back/neck pain and some of the TN pain. I've heard stories of dental work actually aggravating or causing TN pain. I am facing some major dental work and I'm trying to decide what to do too. I don't want to make things worse. I've got some gum disease around some molars, can't chew on that side now. I had a bunch of work done on that far back molar a few years ago but the fillings all fell out recently and the gums are swollen. That's the same area where I've had big TN pain before so I don't know what to think about

it. The last time I had my teeth cleaned it threw me into an MS attack. So I am pretty leery of dental stuff. lol You're right. Circus music or parade music is not bad when considering what it could be. Doesn't everyone love a parade??? ") Sometimes combined with the cymbals and drums is a "whooshing" and I'm wondering if that part is really my blood pressure acting up. Thanks for lending me an understanding ear. Sharon Westie wrote: Sharon, I take Trileptal, Neurontin, Prednisone, & Synthroid. Whoever it was that was going on Effexor will hopefully see my post. Cymbalta and Effexor are two different drugs, although both are commonly used to treat depression. The Trileptal is quite expensive, but it has been very effective for me. I have a dilemma as my dentist thinks I need a root canal. I have to consult with my Neuro later this month. I have seen a lot of information where people have had unnecessary root canals when they have TN. The dentist is convinced that doing the root canal will solve the inflammation I have, but the last Neuro I saw before being referred to the MS clinic told me the pain is not from the tooth root. I don’t really want to go through a root canal to find that it didn’t solve the pain problem….so I am sitting on the fence for now until I see Neuro on the 24th. As for the noise, circus music is not

too bad. What if you were hearing a loud monotonous banging….and it didn’t go away! There are other TN patients that suffer from continual tinnitus. Beth From: MSersLife [mailto:MSersLife ] On Behalf Of Sharon MarsdenSent: Monday, March 06, 2006 12:16 PMTo: MSersLife Subject: RE: Noises in your head? Anyone??? Beth: Thank you. You make a lot of sense and it does seem to fit. I'm not on Trileptal. Is that what you take? I take Neurontin and Baclofen only. It wasn't me thinking about Effexor. My doc gave me samples of Cymbalta to try but I haven't made the decision to do it yet. That's not the same as Effexor is it? Thanks for your response. Sharon Westie wrote: Sharon, I would think that if your TN pain is coming from the side of your jaw from the ear area, then the noises that you are hearing are sensory related to the TN and the ear is being affected. It could

be that you are in such a relaxed state that your brain is able to process the auditory situation whereas when you are fully awake, the noises tend to abate. Are you on carbazepine or oxycarbazepine (Trileptal) for the TN? This anti-seizure medication helps a lot of people with TN. I don’t know much about Baclofen. Also, I know that you posted about going on Effexor. I want to caution you about it. That is a really bad drug to discontinue. I stopped it cold turkey and spent almost 3 weeks in horrible shape. I wouldn’t take it again unless I was commiting to take it for life. Going

off that medication gave me “brain freezes” where my vision and sensory perception were completely delayed with what was going on. I later found out that my GP really screwed up on this one and that I should have been on a taper down schedule to go off of the drug. Live and learn. Anyway, if your TN isn’t coming from your jaw/ear area, then you need to call the doc. Beth From: MSersLife [mailto:MSersLife ] On Behalf Of Sharon MarsdenSent: Monday, March 06, 2006 6:34 AMTo: mserslife Subject:

Noises in your head? Anyone??? I'm wondering if this is either related to Trigeminal Neuralgia or a side effect of Baclofen: When I wake at night to go to the bathroom I hear noises inside my head. It's not a ringing but instead is like a circus or a parade. Like clanging bells and drums. I don't hear

it while I'm awake but just as I'm waking up. Challis said it's my body's way of waking me up to go pee-- complete with bells and cymbals playing "Hurray it's POTTY Time". What do you think? I hate to call the neuro to tell him I'm hearing circus music when I wake up at night, you know??? Sharon Sharon (MSersLife creator/owner) “One minute it's a giant cabbage and the next, ka-boom! You've got cole slaw all over you." V.R. , Palmer, Alaska, where Cabbages grow huge Yahoo! MailUse Photomail to share photos without annoying attachments. Sharon (MSersLife creator/owner) “One minute it's a giant cabbage and the next, ka-boom! You've got cole slaw all over you." V.R. , Palmer, Alaska, where Cabbages grow huge Yahoo! MailBring photos to life! New PhotoMail makes sharing a breeze.

Sharon (MSersLife creator/owner)

“One minute it's a giant cabbage and the next, ka-boom! You've got cole slaw all over you." V.R. , Palmer, Alaska, where Cabbages grow huge

Yahoo! Mail

Bring photos to life! New PhotoMail makes sharing a breeze.

[Guest guest]

Sharon,

I know what you mean about being leery

of the dentist. After the last cleaning I had, I was in pain for over 2 weeks.

I just finished a course of antibiotics

for inflammation/infection, and this gave me a UTI. I am getting really sick

of the doctor cycle.

I feel like I am passed from doctor to

doctor as they all try to do what they can. Now the GP is referring me to the

Urologist.

Urinary retention is becoming a problem.

Have you had any experience with this? What does the urologist do to figure

out how to help it?

My girlfriend told me a story of how

they fill you up and then watch you go…..not exactly what I wanted to

hear.

Anyway, the understanding ear is here. Dealing

with TN is very trying on the nerves. Ask your doc about the Trileptal or

Tegretol. It may really help you.

Beth

From: MSersLife [mailto:MSersLife ] On Behalf Of Sharon Marsden

Sent: Tuesday, March 07, 2006 8:06

AM

To: MSersLife

Subject: RE: Noises in

your head? Anyone???

Beth:

I take Baclofen, Neurontin, Synthroid and

Triamter/HCTZ (for high blood pressure). And hydrocodone for

pain. It doesn't do anything for most of the nerve pain but does help

with my back/neck pain and some of the TN pain.

I've heard stories of dental work actually aggravating or

causing TN pain. I am facing some major dental work and I'm trying to

decide what to do too. I don't want to make things worse. I've got

some gum disease around some molars, can't chew on that side now. I

had a bunch of work done on that far back molar a few years ago but the

fillings all fell out recently and the gums are swollen. That's the same

area where I've had big TN pain before so I don't know what to think about

it. The last time I had my teeth cleaned it threw me into an MS

attack. So I am pretty leery of dental stuff. lol

You're right. Circus music or parade music is not

bad when considering what it could be. Doesn't everyone love a

parade??? " ) Sometimes combined with the cymbals and drums is

a " whooshing " and I'm wondering if that part is really my blood

pressure acting up.

Thanks for lending me an understanding ear.

Sharon

[Guest guest]

Beth,

I have been through the whole urologist

thing. Some not so great tests….

I had pelvic floor therapy which has

helped. I also was on medication for urgency and frequency. Think it is called

Vesicare. I am really careful with my diet now. No caffeine or carbonated

beverages. Makes a big difference.

Connie

From: MSersLife [mailto:MSersLife ] On Behalf Of Westie

Sent: Tuesday, March 07, 2006 5:29

PM

To: MSersLife

Subject: RE: Noises in

your head? Anyone???

Sharon,

I know what you mean about being leery

of the dentist. After the last cleaning I had, I was in pain for over 2

weeks.

I just finished a course of antibiotics

for inflammation/infection, and this gave me a UTI. I am getting really

sick of the doctor cycle.

I feel like I am passed from doctor to

doctor as they all try to do what they can. Now the GP is referring me to

the Urologist.

Urinary retention is becoming a problem.

Have you had any experience with this? What does the urologist do

to figure out how to help it?

My girlfriend told me a story of how

they fill you up and then watch you go…..not exactly what I wanted to

hear.

Anyway, the understanding ear is here.

Dealing with TN is very trying on the nerves. Ask your doc about the

Trileptal or Tegretol. It may really help you.

Beth

From: MSersLife [mailto:MSersLife ] On Behalf Of Sharon Marsden

Sent: Tuesday, March 07, 2006 8:06

AM

To: MSersLife

Subject: RE: Noises in

your head? Anyone???

Beth:

I take Baclofen, Neurontin, Synthroid and

Triamter/HCTZ (for high blood pressure). And hydrocodone for

pain. It doesn't do anything for most of the nerve pain but does help

with my back/neck pain and some of the TN pain.

I've heard stories of dental work actually aggravating or

causing TN pain. I am facing some major dental work and I'm trying to

decide what to do too. I don't want to make things worse. I've got

some gum disease around some molars, can't chew on that side now. I

had a bunch of work done on that far back molar a few years ago but the

fillings all fell out recently and the gums are swollen. That's the same

area where I've had big TN pain before so I don't know what to think about

it. The last time I had my teeth cleaned it threw me into an MS

attack. So I am pretty leery of dental stuff. lol

You're right. Circus music or parade music is not

bad when considering what it could be. Doesn't everyone love a

parade??? " ) Sometimes combined with the cymbals and drums is

a " whooshing " and I'm wondering if that part is really my blood

pressure acting up.

Thanks for lending me an understanding ear.

Sharon

[Guest guest]

Connie,

Thanks for the reply on this. Not

looking forward to it all.

How does the caffeine and carbonated

beverage cause a problem? Seems to me that all liquid would be suspect.

When I try to just drink water, it seems

to make it harder to void completely.

What have they told you about the

caffeine and carbonated beverages?

Beth

From:

MSersLife [mailto:MSersLife ] On Behalf Of connie buran

Sent: Tuesday, March 07, 2006

10:41 PM

To: MSersLife

Subject: RE: Noises in

your head? Anyone???

Beth,

I have been through the whole urologist

thing. Some not so great tests….

I had pelvic floor therapy which has

helped. I also was on medication for urgency and frequency. Think it is called Vesicare.

I am really careful with my diet now. No caffeine or carbonated beverages.

Makes a big difference.

Connie

From: MSersLife [mailto:MSersLife ] On Behalf Of Westie

Sent: Tuesday, March 07, 2006 5:29

PM

To: MSersLife

Subject: RE: Noises in

your head? Anyone???

Sharon,

I know what you mean about being leery

of the dentist. After the last cleaning I had, I was in pain for over 2

weeks.

I just finished a course of antibiotics

for inflammation/infection, and this gave me a UTI. I am getting really

sick of the doctor cycle.

I feel like I am passed from doctor to

doctor as they all try to do what they can. Now the GP is referring me to

the Urologist.

Urinary retention is becoming a problem.

Have you had any experience with this? What does the urologist do

to figure out how to help it?

My girlfriend told me a story of how

they fill you up and then watch you go…..not exactly what I wanted to

hear.

Anyway, the understanding ear is here.

Dealing with TN is very trying on the nerves. Ask your doc about

the Trileptal or Tegretol. It may really help you.

Beth

[Guest guest]

Beth,

Caffeine and carbonated drinks irritate the

bladder lining and makes the urgency worse. I also struggle with citrus

especially tomatoes. It causes terrible bladder spasms for me.

I drink mostly water and skim milk. Pretty

boring but it seems to help.

Let me know how your tests go.

Connie

From: MSersLife [mailto:MSersLife ] On Behalf Of Westie

Sent: Wednesday, March 08, 2006

7:28 PM

To: MSersLife

Subject: RE: Noises in

your head? Anyone???

Connie,

Thanks for the reply on this. Not

looking forward to it all.

How does the caffeine and carbonated

beverage cause a problem? Seems to me that all liquid would be suspect.

When I try to just drink water, it seems

to make it harder to void completely.

What have they told you about the

caffeine and carbonated beverages?

Beth

From: MSersLife [mailto:MSersLife ] On Behalf Of connie buran

Sent: Tuesday, March 07, 2006

10:41 PM

To: MSersLife

Subject: RE: Noises in

your head? Anyone???

Beth,

I have been through the whole urologist

thing. Some not so great tests….

I had pelvic floor therapy which has

helped. I also was on medication for urgency and frequency. Think it is called

Vesicare. I am really careful with my diet now. No caffeine or carbonated

beverages. Makes a big difference.

Connie

From: MSersLife [mailto:MSersLife ] On Behalf Of Westie

Sent: Tuesday, March 07, 2006 5:29

PM

To: MSersLife

Subject: RE: Noises in

your head? Anyone???

Sharon,

I know what you mean about being leery

of the dentist. After the last cleaning I had, I was in pain for over 2

weeks.

I just finished a course of antibiotics

for inflammation/infection, and this gave me a UTI. I am getting really

sick of the doctor cycle.

I feel like I am passed from doctor to

doctor as they all try to do what they can. Now the GP is referring me to

the Urologist.

Urinary retention is becoming a problem.

Have you had any experience with this? What does the urologist do

to figure out how to help it?

My girlfriend told me a story of how

they fill you up and then watch you go…..not exactly what I wanted to

hear.

Anyway, the understanding ear is here.

Dealing with TN is very trying on the nerves. Ask your doc about

the Trileptal or Tegretol. It may really help you.

Beth

[Guest guest]

Deb,

Depends on how much you were on

before you stopped the Effexor. Usually small doses don’t have the

same effect as those that take it 3 bid in higher doses. If they took you

off the drug without a taper down, then you probably are suffering the effects

of discontinuance. I hate to tell you this, but it lasts a few weeks.

Beth

From: MSersLife [mailto:MSersLife ] On Behalf Of Deborah

Sent: Saturday, March 11, 2006

3:18 PM

To: MSersLife

Subject: Re: Noises in

your head? Anyone???

You know,

after reading this post, I began wondering if going off the Effexor is what's

causing my problems - I was just taken off after 2 years of a daily

dose. My eyes have been just awful - My whole body was swollen - like I

was toxic with something. And the thing you mentioned about " brain

freeze " - I have that, only mine is more like just " fading

out " . My left eye shuts itself and stays that way & my

right eye will just 'fade " off to the lower right. And sleep? Uh,

no, I don't think so. For the past week, I have been wandering throughout

the house - with my 19 year old son & my s.o. getting up when they hear me

fall. And they say that I am just in a stupor - that I tell them I need

to find something, or I need some water and they cannot for the life of them

coax me to lie down. I am falling asleep standing at the bathroom mirror

- one time my s.o. said I was the

[Guest guest]

Hi Beth ~ I was on Effexor for 2 years (but was also on Lexapro at the same time), so when I got a new doc, she decided I didn't need both, so she just dropped the Effexor & said, "Don't take it any more." I think the worst sx so far has been the swelling of my feet & legs - for a week now, but it's finally subsiding - and I'm definately more emotional - but all in all, it could be alot worse. I was taken off all of my meds a year ago when I was abruptly taken off Medicaid and put on Medicare - I ended up in the hospital in detox. Bad, bad, bad. so this, I can live with. Take care, debbie>> > > > > Deb,> > Depends on how much you were on before you stopped the Effexor. Usually> small doses don't have the same effect as those that take it 3 bid in higher> doses. If they took you off the drug without a taper down, then you> probably are suffering the effects of discontinuance. I hate to tell you> this, but it lasts a few weeks.> > > > Beth> > _____ > > From: MSersLife [mailto:MSersLife ] On Behalf> Of Deborah > Sent: Saturday, March 11, 2006 3:18 PM> To: MSersLife > Subject: Re: Noises in your head? Anyone???> > > > You know, after reading this post, I began wondering if going off the> Effexor is what's causing my problems - I was just taken off after 2 years> of a daily dose. My eyes have been just awful - My whole body was swollen -> like I was toxic with something. And the thing you mentioned about "brain> freeze" - I have that, only mine is more like just "fading out" . My left> eye shuts itself and stays that way & my right eye will just 'fade" off to> the lower right. And sleep? Uh, no, I don't think so. For the past week, I> have been wandering throughout the house - with my 19 year old son & my s.o.> getting up when they hear me fall. And they say that I am just in a stupor> - that I tell them I need to find something, or I need some water and they> cannot for the life of them coax me to lie down. I am falling asleep> standing at the bathroom mirror - one time my s.o. said I was the > >