Re: tired of all of this!!!

[Guest guest]

...All I can do is let you know that I 'hear' you. The frustration and desperation that follows us is sometimes overwhelming! Yeah, sounds like really low sats to me.

The board always listens and there are many here who have more knowledge of where you are right now than I do. Vicky recently went through a hard time...........

Love to you. Sher ipf 5-06

"Don't worry about tomorrow, God is already there"

tired of all of this!!!

I just need to talk. Last night was really a bad night for me. I woke up about 3:00AM, still half way asleep, to go to the bathroom. I realized I was having a really hard time breathing, extremly out of breath. Then, I noticed my oxygen had come out of my nose in the night. Breathing became really labored, maybe because I was anxious..I dont know. All I know is that I could not walk anymore. Started coughing, coughed so hard that I lost my balance, fell on the floor, could not get up. I didnt have enough breathe to call for my husband who was fast asleep in the bedroom. I was so scared...ended up crawling to my bed...on His side, it was closer. Pulled on the blankets and woke him up and he helped me get my oxygen back on and after I started breathing better again.then he helped me up. I was and still am so mad about all of this!!!! I HATE this disease. I am tired of the hose up my nose..tired of worrying about what I am going to be able to do today..tired of the looks people give me in the grocery store..tired of not being able to join in socials. Tired of being left out of friends parties. Just plain tired of it all.!! My doctors keep telling me that I am in the End Stage. Well, I am ready for the end. My husband checked my sats when he found me...it was 65. Low huh?Thanks for listening.

[Guest guest]

Hi , Oh what a scary event. I'm so sorry. I know the panic feeling of not breathing. You may have to put a little piece of tape on your face. On nights I am playing rollie pollie I do.

Please Please know you do not suffer alone.

The worst thing with depression it seems to be made so much more severe with the Holidays. I hope you have called your Dr and explained exactly how you feel and what happened. Please keep us posted. We do care and understand. Take care of you one breath at a time. God Bless you with peace.

Love and Prayers, Peggy 9/04 ipf Florida

I just need to talk. Last night was really a bad night for me. I

woke up about 3:00AM, still half way asleep, to go to the bathroom.

I realized I was having a really hard time breathing, extremly out

of breath. Then, I noticed my oxygen had come out of my nose in the

night. Breathing became really labored, maybe because I was

anxious..I dont know. All I know is that I could not walk anymore.

Started coughing, coughed so hard that I lost my balance, fell on

the floor, could not get up. I didnt have enough breathe to call

for my husband who was fast asleep in the bedroom. I was so

scared...ended up crawling to my bed...on His side, it was closer.

Pulled on the blankets and woke him up and he helped me get my

oxygen back on and after I started breathing better again.then he

helped me up. I was and still am so mad about all of this!!!! I

HATE this disease. I am tired of the hose up my nose..tired of

worrying about what I am going to be able to do today..tired of the

looks people give me in the grocery store..tired of not being able

to join in socials. Tired of being left out of friends parties.

Just plain tired of it all.!! My doctors keep telling me that I am

in the End Stage. Well, I am ready for the end. My husband checked

my sats when he found me...it was 65. Low huh?

Thanks for listening.

[Guest guest]

, That is what we are here for is to listen. I know how you feel about being tired of all of it. I spent Thurs. night setting up in my recliner because I could not breath lying down and all I could do was cough. I coughed so much that all of my insides hurt now. Just don't give up on yourself and your ability to do some things. I am still having to learn what I can and can not do and I have come to the conclusion that I will never learn. What I can do today I may not be able to do tomorrow, so I just take it one day at a time. It use to bother me going out with this hose up my nose until one day when my wonderful grandson told me not to let it bother me because it sure didn't bother him. I said ok if 14 year old isn't bothered by my hose up my nose why should I be. Now I just figure if someone has a problem and wants to stare it is their problem and not mine. As for as social functions go if I am invited and I feel like going I go if not I stay home. If I am not imvited I could care less. Just means I don't have to get dressed up for something I proberly will not enjoy any way. I did have to let a couple of horses butts know last year about this time that before they started talking about something they needed to know what the heck they were talking about. I was walking across the parking lot at a Micheals Crafts and Florals and this young couple of maybe 30 to 35 started making remarks about if people didn't smoke they wouldn't have to worry about getting lung diseases and having to pull a tank behind them. They followed me all around the store making remarks until I finally got tired of hearing them and I lite into them right there. I informed them that I was not a smoker and the disease I have had nothing to do with smoking and they just needed to shut their mouths until they knew what they were talking about. I also let them know that people that never smoked a day in their lives die with lung diseases everyday because of second hand smoke. They turned about 5 shades of red and left the store. I got a round of applause from the other customers that were standing around listening. Sometimes we just have to say enough is enough and say what we feel. Now you take care of you and the next time something like what happened to you on Sat night happens you get yourself to the doc as soon as possible. We need you here on this board and your hubby needs you too. Never sell yourself short because even though you are sick you still have a lot to offer people and those that called themselves your friends before you were sick and now exclude you from things were never really your friends. So the heck with them. You are worth something and never forget that.

Hugs and Prayers!

Barbara R IPF 1/2003

>> I just need to talk. Last night was really a bad night for me. I > woke up about 3:00AM, still half way asleep, to go to the bathroom. > I realized I was having a really hard time breathing, extremly out > of breath. Then, I noticed my oxygen had come out of my nose in the > night. Breathing became really labored, maybe because I was > anxious..I dont know. All I know is that I could not walk anymore. > Started coughing, coughed so hard that I lost my balance, fell on > the floor, could not get up. I didnt have enough breathe to call > for my husband who was fast asleep in the bedroom. I was so > scared...ended up crawling to my bed...on His side, it was closer. > Pulled on the blankets and woke him up and he helped me get my > oxygen back on and after I started breathing better again.then he > helped me up. I was and still am so mad about all of this!!!! I > HATE this disease. I am tired of the hose up my nose..tired of > worrying about what I am going to be able to do today..tired of the > looks people give me in the grocery store..tired of not being able > to join in socials. Tired of being left out of friends parties. > Just plain tired of it all.!! My doctors keep telling me that I am > in the End Stage. Well, I am ready for the end. My husband checked > my sats when he found me...it was 65. Low huh?> > Thanks for listening.> > >

[Guest guest]

Have you tried a face mask. They don't come off like the nasal does, but you need to turn the oxygen higher to rid the mask of carbon dioxide

tired of all of this!!!

I just need to talk. Last night was really a bad night for me. I woke up about 3:00AM, still half way asleep, to go to the bathroom. I realized I was having a really hard time breathing, extremly out of breath. Then, I noticed my oxygen had come out of my nose in the night. Breathing became really labored, maybe because I was anxious..I dont know. All I know is that I could not walk anymore. Started coughing, coughed so hard that I lost my balance, fell on the floor, could not get up. I didnt have enough breathe to call for my husband who was fast asleep in the bedroom. I was so scared...ended up crawling to my bed...on His side, it was closer. Pulled on the blankets and woke him up and he helped me get my oxygen back on and after I started breathing better again.then he helped me up. I was and still am so mad about all of this!!!! I HATE this disease. I am tired of the hose up my nose..tired of worrying about what I am going to be able to do today..tired of the looks people give me in the grocery store..tired of not being able to join in socials. Tired of being left out of friends parties. Just plain tired of it all.!! My doctors keep telling me that I am in the End Stage. Well, I am ready for the end. My husband checked my sats when he found me...it was 65. Low huh?Thanks for listening.

[Guest guest]

Dear ...I wish I knew what to say that would be of benefit for you at this time. I don't know what to say! Do the tears in my eyes express my feelings for your situation? I suppose one day I will be where you are....but, my tears are for you today. Joy 3/6tuliparizona wrote: I just need to talk. Last night was really a bad night for me. I woke up about 3:00AM, still half way asleep, to go to the bathroom. I realized I was having a really hard time breathing, extremly out

of breath. Then, I noticed my oxygen had come out of my nose in the night. Breathing became really labored, maybe because I was anxious..I dont know. All I know is that I could not walk anymore. Started coughing, coughed so hard that I lost my balance, fell on the floor, could not get up. I didnt have enough breathe to call for my husband who was fast asleep in the bedroom. I was so scared...ended up crawling to my bed...on His side, it was closer. Pulled on the blankets and woke him up and he helped me get my oxygen back on and after I started breathing better again.then he helped me up. I was and still am so mad about all of this!!!! I HATE this disease. I am tired of the hose up my nose..tired of worrying about what I am going to be able to do today..tired of the looks people give me in the grocery store..tired of not being able to join in socials. Tired of being left out of friends parties. Just plain tired of

it all.!! My doctors keep telling me that I am in the End Stage. Well, I am ready for the end. My husband checked my sats when he found me...it was 65. Low huh?Thanks for listening.Joy (IPF 3/06) Today is a gift for each of us. Enjoy it.

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[Guest guest]

I read there is a way they can put the tube directly into your neck....seems the best way to me....joy 3/6dee-andy wrote: Have you tried a face mask. They don't come off like the nasal does, but you need to turn the oxygen higher to rid the mask of carbon dioxide ----- Original

Message ----- From: tuliparizona To: Breathe-Support Sent: Monday, December 04, 2006 10:18 AM Subject: tired of all of this!!! I just need to talk. Last night was really a bad night for me. I woke up about 3:00AM, still half way asleep, to go to the bathroom. I realized I was having a really hard time breathing, extremly out of breath. Then, I noticed my oxygen had come out of my nose in the night. Breathing became really labored, maybe because I was anxious..I dont know. All I know is that I could not walk anymore.

Started coughing, coughed so hard that I lost my balance, fell on the floor, could not get up. I didnt have enough breathe to call for my husband who was fast asleep in the bedroom. I was so scared...ended up crawling to my bed...on His side, it was closer. Pulled on the blankets and woke him up and he helped me get my oxygen back on and after I started breathing better again.then he helped me up. I was and still am so mad about all of this!!!! I HATE this disease. I am tired of the hose up my nose..tired of worrying about what I am going to be able to do today..tired of the looks people give me in the grocery store..tired of not being able to join in socials. Tired of being left out of friends parties. Just plain tired of it all.!! My doctors keep telling me that I am in the End Stage. Well, I am ready for the end. My husband checked my sats when he found me...it was 65. Low huh?Thanks for

listening. Joy (IPF 3/06) Today is a gift for each of us. Enjoy it.

Need a quick answer? Get one in minutes from people who know. Ask your question on

Yahoo! Answers.

[Guest guest]

I read about the tube in the neck in the Lung Association Magazine

that I received last week.

pink joyce ipf 3/06

Have you tried a face

mask. They don't come off like the nasal does, but you need to turn

the oxygen higher to rid the mask of carbon dioxide

>

>

> tired of all of this!!!

>

>

> I just need to talk. Last night was really a bad night for me.

I

> woke up about 3:00AM, still half way asleep, to go to the bathroom.

> I realized I was having a really hard time breathing, extremly out

> of breath. Then, I noticed my oxygen had come out of my nose in the

> night. Breathing became really labored, maybe because I was

> anxious..I dont know. All I know is that I could not walk anymore.

> Started coughing, coughed so hard that I lost my balance, fell on

> the floor, could not get up. I didnt have enough breathe to call

> for my husband who was fast asleep in the bedroom. I was so

> scared...ended up crawling to my bed...on His side, it was closer.

> Pulled on the blankets and woke him up and he helped me get my

> oxygen back on and after I started breathing better again.then he

> helped me up. I was and still am so mad about all of this!!!! I

> HATE this disease. I am tired of the hose up my nose..tired of

> worrying about what I am going to be able to do today..tired of the

> looks people give me in the grocery store..tired of not being able

> to join in socials. Tired of being left out of friends parties.

> Just plain tired of it all.!! My doctors keep telling me that I am

> in the End Stage. Well, I am ready for the end. My husband checked

> my sats when he found me...it was 65. Low huh?

>

> Thanks for listening.

>

>

>

>

>

>

>

>

>

>

> Joy

> (IPF 3/06)

> Today is a gift for each

> of us. Enjoy it.

>

>

> ---------------------------------

> Need a quick answer? Get one in minutes from people who know. Ask

your question on Yahoo! Answers.

>

[Guest guest]

, you fall some so scary. I'm glad you are not alone there in your home. But I'm so sorry you are feeling so isolated and tired of it all. You have fought a good fight. I hope you get some respit this Holiday Season. Some relaxing, happy, healthy, hopeful time with your loved ones.

LynnA

Lynn>> I just need to talk. Last night was really a bad night for me. I > woke up about 3:00AM, still half way asleep, to go to the bathroom. > I realized I was having a really hard time breathing, extremly out > of breath. Then, I noticed my oxygen had come out of my nose in the > night. Breathing became really labored, maybe because I was > anxious..I dont know. All I know is that I could not walk anymore. > Started coughing, coughed so hard that I lost my balance, fell on > the floor, could not get up. I didnt have enough breathe to call > for my husband who was fast asleep in the bedroom. I was so > scared...ended up crawling to my bed...on His side, it was closer. > Pulled on the blankets and woke him up and he helped me get my > oxygen back on and after I started breathing better again.then he > helped me up. I was and still am so mad about all of this!!!! I > HATE this disease. I am tired of the hose up my nose..tired of > worrying about what I am going to be able to do today..tired of the > looks people give me in the grocery store..tired of not being able > to join in socials. Tired of being left out of friends parties. > Just plain tired of it all.!! My doctors keep telling me that I am > in the End Stage. Well, I am ready for the end. My husband checked > my sats when he found me...it was 65. Low huh?> > Thanks for listening.> > >

[Guest guest]

yes be glad you were not alone.

i too had a fall over the summer. my stats dropped so low it caused

me to pass out. when i regained consciousness, i was sprawled out on

my kitchen floor with blood everywhere. i had banged my chin on our

tile floor. ( my stats were in the low 70's)

my husband wanted to take me to the ER and i was thinking are you

nuts? it's just a cut. slap a band aid on it and let me go back to

bed. ( this was at around 5 in the morning) he helped me get my )2 on

and went ahead and went to work, we were having a roof put on our

house that same day. i slept through the entire removal of the old

roof and partial replacement of the new one. everytime i woke up i

went to throwing up, my head hurt, my jaw hurt.

i had an appt with my pulm that afternoon, and when i walked in the

nurse said she knew something was OFF right from the moment i walked

in. she checked my stats which were in the low 80's and they

immediately sent me next door to the ER. from the fall i had given

myself a concussion and gotten my first set of stitches outside of an

operating room.

fun fun fun! NOT!

EG 10-05

> >

> > I just need to talk. Last night was really a bad night for me. I

> > woke up about 3:00AM, still half way asleep, to go to the

bathroom.

> > I realized I was having a really hard time breathing, extremly out

> > of breath. Then, I noticed my oxygen had come out of my nose in

the

> > night. Breathing became really labored, maybe because I was

> > anxious..I dont know. All I know is that I could not walk anymore.

> > Started coughing, coughed so hard that I lost my balance, fell on

> > the floor, could not get up. I didnt have enough breathe to call

> > for my husband who was fast asleep in the bedroom. I was so

> > scared...ended up crawling to my bed...on His side, it was closer.

> > Pulled on the blankets and woke him up and he helped me get my

> > oxygen back on and after I started breathing better again.then he

> > helped me up. I was and still am so mad about all of this!!!! I

> > HATE this disease. I am tired of the hose up my nose..tired of

> > worrying about what I am going to be able to do today..tired of

the

> > looks people give me in the grocery store..tired of not being able

> > to join in socials. Tired of being left out of friends parties.

> > Just plain tired of it all.!! My doctors keep telling me that I am

> > in the End Stage. Well, I am ready for the end. My husband checked

> > my sats when he found me...it was 65. Low huh?

> >

> > Thanks for listening.

> >

> >

> >

>