Re: Re: tired of all of this!!!

[Guest guest]

Thanks guys. Don't you just hate ignorance and idiots?

Hugs and Prayers!

Barbara R IPF 1/2003

[Guest guest]

HEY BARBARA, You go gal! Louise/ipf/96/Ca.acapulco_cottonwoodcove wrote: , That is what we are here for is to listen. I know how you feel about being tired of all of it. I spent Thurs. night setting up in my recliner because I could not breath lying down and all I could do was cough. I coughed so much that all of my insides hurt now. Just don't give up on yourself and your ability to do some things. I am still having to learn what I can and can not do and

I have come to the conclusion that I will never learn. What I can do today I may not be able to do tomorrow, so I just take it one day at a time. It use to bother me going out with this hose up my nose until one day when my wonderful grandson told me not to let it bother me because it sure didn't bother him. I said ok if 14 year old isn't bothered by my hose up my nose why should I be. Now I just figure if someone has a problem and wants to stare it is their problem and not mine. As for as social functions go if I am invited and I feel like going I go if not I stay home. If I am not imvited I could care less. Just means I don't have to get dressed up for something I proberly will not enjoy any way. I did have to let a couple of horses butts know last year about this time that before they started talking about something they needed to know what the heck they were talking about. I was walking across the parking lot at a Micheals Crafts and Florals and this young couple

of maybe 30 to 35 started making remarks about if people didn't smoke they wouldn't have to worry about getting lung diseases and having to pull a tank behind them. They followed me all around the store making remarks until I finally got tired of hearing them and I lite into them right there. I informed them that I was not a smoker and the disease I have had nothing to do with smoking and they just needed to shut their mouths until they knew what they were talking about. I also let them know that people that never smoked a day in their lives die with lung diseases everyday because of second hand smoke. They turned about 5 shades of red and left the store. I got a round of applause from the other customers that were standing around listening. Sometimes we just have to say enough is enough and say what we feel. Now you take care of you and the next time something like what happened to you on Sat night happens you get yourself to the doc as soon as possible. We need you

here on this board and your hubby needs you too. Never sell yourself short because even though you are sick you still have a lot to offer people and those that called themselves your friends before you were sick and now exclude you from things were never really your friends. So the heck with them. You are worth something and never forget that. Hugs and Prayers! Barbara R IPF 1/2003 >> I just need to talk. Last night was really a bad night for me. I > woke up about 3:00AM, still half way asleep, to go to the bathroom. > I realized I was having a really hard time breathing, extremly out > of breath. Then, I noticed my oxygen had come out of my nose in the > night. Breathing became really labored, maybe because I was

> anxious..I dont know. All I know is that I could not walk anymore. > Started coughing, coughed so hard that I lost my balance, fell on > the floor, could not get up. I didnt have enough breathe to call > for my husband who was fast asleep in the bedroom. I was so > scared...ended up crawling to my bed...on His side, it was closer. > Pulled on the blankets and woke him up and he helped me get my > oxygen back on and after I started breathing better again.then he > helped me up. I was and still am so mad about all of this!!!! I > HATE this disease. I am tired of the hose up my nose..tired of > worrying about what I am going to be able to do today..tired of the > looks people give me in the grocery store..tired of not being able > to join in socials. Tired of being left out of friends parties. > Just plain tired of it all.!! My doctors keep telling me that I am > in the End

Stage. Well, I am ready for the end. My husband checked > my sats when he found me...it was 65. Low huh?> > Thanks for listening.> > >

Have a burning question? Go to Yahoo! Answers and get answers from real people who know.

[Guest guest]

YOU GO GIRL!!!!! Joy 3/6acapulco_cottonwoodcove wrote: , That is what we are here for is to listen. I know how you feel about being tired of all of it. I spent Thurs. night setting up in my recliner because I could not breath lying down and all I could do was cough. I coughed so much that all of my insides hurt now. Just don't give up on yourself and your ability to do some things. I am still having to learn what I can and can not do and I have come to the

conclusion that I will never learn. What I can do today I may not be able to do tomorrow, so I just take it one day at a time. It use to bother me going out with this hose up my nose until one day when my wonderful grandson told me not to let it bother me because it sure didn't bother him. I said ok if 14 year old isn't bothered by my hose up my nose why should I be. Now I just figure if someone has a problem and wants to stare it is their problem and not mine. As for as social functions go if I am invited and I feel like going I go if not I stay home. If I am not imvited I could care less. Just means I don't have to get dressed up for something I proberly will not enjoy any way. I did have to let a couple of horses butts know last year about this time that before they started talking about something they needed to know what the heck they were talking about. I was walking across the parking lot at a Micheals Crafts and Florals and this young couple of maybe 30 to 35

started making remarks about if people didn't smoke they wouldn't have to worry about getting lung diseases and having to pull a tank behind them. They followed me all around the store making remarks until I finally got tired of hearing them and I lite into them right there. I informed them that I was not a smoker and the disease I have had nothing to do with smoking and they just needed to shut their mouths until they knew what they were talking about. I also let them know that people that never smoked a day in their lives die with lung diseases everyday because of second hand smoke. They turned about 5 shades of red and left the store. I got a round of applause from the other customers that were standing around listening. Sometimes we just have to say enough is enough and say what we feel. Now you take care of you and the next time something like what happened to you on Sat night happens you get yourself to the doc as soon as possible. We need you here on this

board and your hubby needs you too. Never sell yourself short because even though you are sick you still have a lot to offer people and those that called themselves your friends before you were sick and now exclude you from things were never really your friends. So the heck with them. You are worth something and never forget that. Hugs and Prayers! Barbara R IPF 1/2003 >> I just need to talk. Last night was really a bad night for me. I > woke up about 3:00AM, still half way asleep, to go to the bathroom. > I realized I was having a really hard time breathing, extremly out > of breath. Then, I noticed my oxygen had come out of my nose in the > night. Breathing became really labored, maybe because I was > anxious..I

dont know. All I know is that I could not walk anymore. > Started coughing, coughed so hard that I lost my balance, fell on > the floor, could not get up. I didnt have enough breathe to call > for my husband who was fast asleep in the bedroom. I was so > scared...ended up crawling to my bed...on His side, it was closer. > Pulled on the blankets and woke him up and he helped me get my > oxygen back on and after I started breathing better again.then he > helped me up. I was and still am so mad about all of this!!!! I > HATE this disease. I am tired of the hose up my nose..tired of > worrying about what I am going to be able to do today..tired of the > looks people give me in the grocery store..tired of not being able > to join in socials. Tired of being left out of friends parties. > Just plain tired of it all.!! My doctors keep telling me that I am > in the End Stage. Well, I am ready

for the end. My husband checked > my sats when he found me...it was 65. Low huh?> > Thanks for listening.> > > Joy (IPF 3/06) Today is a gift for each of us. Enjoy it.

Want to start your own business? Learn how on Yahoo! Small Business.

[Guest guest]

Oh my Joyce, The tube in the neck is drastic. Chance of infection. NNNNNNOOOOOOOOOO

the thought is making me crazy.. I think that is done in extreme cases..

Love and Prayers, Peggy 9/04 ipf Florida

I read about the tube in the neck in the Lung Association Magazine

that I received last week.

pink joyce ipf 3/06

Have you tried a face

mask. They don't come off like the nasal does, but you need to turn

the oxygen higher to rid the mask of carbon dioxide

>

>

> tired of all of this!!!

>

>

> I just need to talk. Last night was really a bad night for me.

I

> woke up about 3:00AM, still half way asleep, to go to the bathroom.

> I realized I was having a really hard time breathing, extremly out

> of breath. Then, I noticed my oxygen had come out of my nose in the

> night. Breathing became really labored, maybe because I was

> anxious..I dont know. All I know is that I could not walk anymore.

> Started coughing, coughed so hard that I lost my balance, fell on

> the floor, could not get up. I didnt have enough breathe to call

> for my husband who was fast asleep in the bedroom. I was so

> scared...ended up crawling to my bed...on His side, it was closer.

> Pulled on the blankets and woke him up and he helped me get my

> oxygen back on and after I started breathing better again.then he

> helped me up. I was and still am so mad about all of this!!!! I

> HATE this disease. I am tired of the hose up my nose..tired of

> worrying about what I am going to be able to do today..tired of the

> looks people give me in the grocery store..tired of not being able

> to join in socials. Tired of being left out of friends parties.

> Just plain tired of it all.!! My doctors keep telling me that I am

> in the End Stage. Well, I am ready for the end. My husband checked

> my sats when he found me...it was 65. Low huh?

>

> Thanks for listening.

>

>

>

>

>

>

>

>

>

>

> Joy

> (IPF 3/06)

> Today is a gift for each

> of us. Enjoy it.

>

>

> ---------------------------------

> Need a quick answer? Get one in minutes from people who know. Ask

your question on Yahoo! Answers.

>

[Guest guest]

I have sleep apnea/hypopnea and am unable to use the cpap machine because of the hiatal hernia. The pulmo suggested putting a tube in my throat with a little cap that I would open at night. I told him I would rather drink myself to sleep. So now I don't sleep.

Gordon ipf/uip 12/03

tired of all of this!!!> > > I just need to talk. Last night was really a bad night for me. I > woke up about 3:00AM, still half way asleep, to go to the bathroom. > I realized I was having a really hard time breathing, extremly out > of breath. Then, I noticed my oxygen had come out of my nose in the > night. Breathing became really labored, maybe because I was > anxious..I dont know. All I know is that I could not walk anymore. > Started coughing, coughed so hard that I lost my balance, fell on > the floor, could not get up. I didnt have enough breathe to call > for my husband who was fast asleep in the bedroom. I was so > scared...ended up crawling to my bed...on His side, it was closer. > Pulled on the blankets and woke him up and he helped me get my > oxygen back on and after I started breathing better again.then he > helped me up. I was and still am so mad about all of this!!!! I > HATE this disease. I am tired of the hose up my nose..tired of > worrying about what I am going to be able to do today..tired of the > looks people give me in the grocery store..tired of not being able > to join in socials. Tired of being left out of friends parties. > Just plain tired of it all.!! My doctors keep telling me that I am > in the End Stage. Well, I am ready for the end. My husband checked > my sats when he found me...it was 65. Low huh?> > Thanks for listening.> > > > > > > > > > > Joy > (IPF 3/06)> Today is a gift for each> of us. Enjoy it.> > > ---------------------------------> Need a quick answer? Get one in minutes from people who know. Ask your question on Yahoo! Answers.>

No virus found in this incoming message.Checked by AVG Free Edition.Version: 7.5.432 / Virus Database: 268.15.9/571 - Release Date: 12/5/2006 11:50 AM

[Guest guest]

Ye gads Gordon! All these things that I've never heard of. Do you nap during the day??? Sher

"Don't worry about tomorrow, God is already there"

tired of all of this!!!> > > I just need to talk. Last night was really a bad night for me. I > woke up about 3:00AM, still half way asleep, to go to the bathroom. > I realized I was having a really hard time breathing, extremly out > of breath. Then, I noticed my oxygen had come out of my nose in the > night. Breathing became really labored, maybe because I was > anxious..I dont know. All I know is that I could not walk anymore. > Started coughing, coughed so hard that I lost my balance, fell on > the floor, could not get up. I didnt have enough breathe to call > for my husband who was fast asleep in the bedroom. I was so > scared...ended up crawling to my bed...on His side, it was closer. > Pulled on the blankets and woke him up and he helped me get my > oxygen back on and after I started breathing better again.then he > helped me up. I was and still am so mad about all of this!!!! I > HATE this disease. I am tired of the hose up my nose..tired of > worrying about what I am going to be able to do today..tired of the > looks people give me in the grocery store..tired of not being able > to join in socials. Tired of being left out of friends parties. > Just plain tired of it all.!! My doctors keep telling me that I am > in the End Stage. Well, I am ready for the end. My husband checked > my sats when he found me...it was 65. Low huh?> > Thanks for listening.> > > > > > > > > > > Joy > (IPF 3/06)> Today is a gift for each> of us. Enjoy it.> > > ---------------------------------> Need a quick answer? Get one in minutes from people who know. Ask your question on Yahoo! Answers.>

No virus found in this incoming message.Checked by AVG Free Edition.Version: 7.5.432 / Virus Database: 268.15.9/571 - Release Date: 12/5/2006 11:50 AM

[Guest guest]

I just read what you wrote about the face mask and turning it up to get rid of the carbon dioxide. My husband has a 50% venti to use prn, I have not heard anything about that please explain. LaurieJoyce wrote: I read about the tube in the neck in the Lung Association Magazine that I received last week.pink joyce ipf 3/06 Have you tried a face mask. They don't come off like the nasal does, but you need to turn the oxygen higher to rid the mask of carbon dioxide> > > tired of all of this!!!> > > I just need to talk. Last night was really a bad night for me. I > woke up about 3:00AM, still half way asleep, to go to the bathroom. > I realized I was having a really hard time breathing, extremly out > of breath. Then, I noticed my oxygen had come out of my

nose in the > night. Breathing became really labored, maybe because I was > anxious..I dont know. All I know is that I could not walk anymore. > Started coughing, coughed so hard that I lost my balance, fell on > the floor, could not get up. I didnt have enough breathe to call > for my husband who was fast asleep in the bedroom. I was so > scared...ended up crawling to my bed...on His side, it was closer. > Pulled on the blankets and woke him up and he helped me get my > oxygen back on and after I started breathing better again.then he > helped me up. I was and still am so mad about all of this!!!! I > HATE this disease. I am tired of the hose up my nose..tired of > worrying about what I am going to be able to do today..tired of the > looks people give me in the grocery store..tired of not being able > to join in socials. Tired of being left out of friends parties. > Just

plain tired of it all.!! My doctors keep telling me that I am > in the End Stage. Well, I am ready for the end. My husband checked > my sats when he found me...it was 65. Low huh?> > Thanks for listening.> > > > > > > > > > > Joy > (IPF 3/06)> Today is a gift for each> of us. Enjoy it.> > > ---------------------------------> Need a quick answer? Get one in minutes from people who know. Ask your question on Yahoo! Answers.>

Need a quick answer? Get one in minutes from people who know. Ask your question on

Yahoo! Answers.

[Guest guest]

http://www.tto2.com/ Transtracheal system into the neck. No I don't have it on me Pl e wrote: I just read what you wrote about the face mask and turning it up to get rid of the carbon dioxide. My husband has a 50% venti to use prn, I have not heard anything about that please explain. LaurieJoyce <pinkrockybeach> wrote: I read about the tube in the neck in the Lung Association Magazine that I received last week.pink joyce ipf 3/06 Have you tried a face mask. They don't come off like the nasal does, but you need to turn the oxygen higher to rid the mask of carbon dioxide> > >

tired of all of this!!!> > > I just need to talk. Last night was really a bad night for me. I > woke up about 3:00AM, still half way asleep, to go to the bathroom. > I realized I was having a really hard time breathing, extremly out > of breath. Then, I noticed my oxygen had come out of my nose in the > night. Breathing became really labored, maybe because I was > anxious..I dont know. All I know is that I could not walk anymore. > Started coughing, coughed so hard that I lost my balance, fell on > the floor, could not get up. I didnt have enough breathe to call > for my husband who was fast asleep in the bedroom. I was so > scared...ended up crawling to my bed...on His side, it was closer. > Pulled on the blankets and woke him up and he helped me get my > oxygen back on and after I started breathing better again.then he > helped me up. I was and

still am so mad about all of this!!!! I > HATE this disease. I am tired of the hose up my nose..tired of > worrying about what I am going to be able to do today..tired of the > looks people give me in the grocery store..tired of not being able > to join in socials. Tired of being left out of friends parties. > Just plain tired of it all.!! My doctors keep telling me that I am > in the End Stage. Well, I am ready for the end. My husband checked > my sats when he found me...it was 65. Low huh?> > Thanks for listening.> > > > > > > > > > > Joy > (IPF 3/06)> Today is a gift for each> of us. Enjoy it.> > > ---------------------------------> Need a quick answer? Get one in minutes from people who know. Ask your question on Yahoo!

Answers.> Need a quick answer? Get one in minutes from people who know. Ask your question on Yahoo! Answers.

Check out the all-new Yahoo! Mail beta - Fire up a more powerful email and get things done faster.

[Guest guest]

Sher;

Yes I usually take an early evening ( somewhere between 4 and 6 p.m.) nap. That is if the task master lets me.

Gordon ipf/uip 12/03

tired of all of this!!!> > > I just need to talk. Last night was really a bad night for me. I > woke up about 3:00AM, still half way asleep, to go to the bathroom. > I realized I was having a really hard time breathing, extremly out > of breath. Then, I noticed my oxygen had come out of my nose in the > night. Breathing became really labored, maybe because I was > anxious..I dont know. All I know is that I could not walk anymore. > Started coughing, coughed so hard that I lost my balance, fell on > the floor, could not get up. I didnt have enough breathe to call > for my husband who was fast asleep in the bedroom. I was so > scared...ended up crawling to my bed...on His side, it was closer. > Pulled on the blankets and woke him up and he helped me get my > oxygen back on and after I started breathing better again.then he > helped me up. I was and still am so mad about all of this!!!! I > HATE this disease. I am tired of the hose up my nose..tired of > worrying about what I am going to be able to do today..tired of the > looks people give me in the grocery store..tired of not being able > to join in socials. Tired of being left out of friends parties. > Just plain tired of it all.!! My doctors keep telling me that I am > in the End Stage. Well, I am ready for the end. My husband checked > my sats when he found me...it was 65. Low huh?> > Thanks for listening.> > > > > > > > > > > Joy > (IPF 3/06)> Today is a gift for each> of us. Enjoy it.> > > ---------------------------------> Need a quick answer? Get one in minutes from people who know. Ask your question on Yahoo! Answers.>

No virus found in this incoming message.Checked by AVG Free Edition.Version: 7.5.432 / Virus Database: 268.15.9/571 - Release Date: 12/5/2006 11:50 AM

No virus found in this incoming message.Checked by AVG Free Edition.Version: 7.5.432 / Virus Database: 268.15.11/575 - Release Date: 12/6/2006 12:22 PM

[Guest guest]

Well Gordon, at least we know you're sleeping sometime! Sher

"Don't worry about tomorrow, God is already there"

tired of all of this!!!> > > I just need to talk. Last night was really a bad night for me. I > woke up about 3:00AM, still half way asleep, to go to the bathroom. > I realized I was having a really hard time breathing, extremly out > of breath. Then, I noticed my oxygen had come out of my nose in the > night. Breathing became really labored, maybe because I was > anxious..I dont know. All I know is that I could not walk anymore. > Started coughing, coughed so hard that I lost my balance, fell on > the floor, could not get up. I didnt have enough breathe to call > for my husband who was fast asleep in the bedroom. I was so > scared...ended up crawling to my bed...on His side, it was closer. > Pulled on the blankets and woke him up and he helped me get my > oxygen back on and after I started breathing better again.then he > helped me up. I was and still am so mad about all of this!!!! I > HATE this disease. I am tired of the hose up my nose..tired of > worrying about what I am going to be able to do today..tired of the > looks people give me in the grocery store..tired of not being able > to join in socials. Tired of being left out of friends parties. > Just plain tired of it all.!! My doctors keep telling me that I am > in the End Stage. Well, I am ready for the end. My husband checked > my sats when he found me...it was 65. Low huh?> > Thanks for listening.> > > > > > > > > > > Joy > (IPF 3/06)> Today is a gift for each> of us. Enjoy it.> > > ---------------------------------> Need a quick answer? Get one in minutes from people who know. Ask your question on Yahoo! Answers.>

No virus found in this incoming message.Checked by AVG Free Edition.Version: 7.5.432 / Virus Database: 268.15.9/571 - Release Date: 12/5/2006 11:50 AM

No virus found in this incoming message.Checked by AVG Free Edition.Version: 7.5.432 / Virus Database: 268.15.11/575 - Release Date: 12/6/2006 12:22 PM