Guest guest Posted November 17, 2006 Report Share Posted November 17, 2006 , You can express your feelings as much or as little as you are comfortable with. We're all in this together and try hard to support each other while acknowledging that we're all different. The whole experience of being ill is very overwhelming and discouraging, at least it is for me. I have days when I feel pretty normal and it's easy to be upbeat. Then there are days when I just feel lousy or I can't do something that I used to without even thinking twice and I just sit and cry. It's all part of this and it's all normal. Keep enjoying life in Florida! Beth (Fibrotic NSIP 06/06)Draw close. Hold hands. Life is short. God is good. Re: Sher's second opinion Hi Lady Bug, I had the scope done. Everyone said NO problem you'll wake up and feel great...I was ok but it took me about a week or so to feel like myself again..Just pooped and didn't have any energy. I knew I had been through something. NO PAIN just extremely tired. The only bad part was a nebulizer to numb my throat..I had to do that for about twenty min..I was numb all the way to my toes.. I am sure you'll be fine.Liking your Dr. I think, is half of being able to stand this. I can't imagine having to see a Dr. that ya don't like.. Yep I have had lots of vials done at the same time too.. Thyroid they really get crazy with it..I'm glad that's over for you. Now On to a Good Diagnosis. Love and Prayers, Peggy 9/04 ipf I saw a Dr. yesterday for a second opinion and he does not necessarily agree w/first dx of ipf. Says I do have pf but is doing more blood work to make a decision. He ordered 5! vials of blood. Must be doin' somethin' ok.......... .Also wants me to raise head of bed w/2x4s (I checked out the inflatable one too).ONE cup of coffee in the morning is ok. That's all I usually have anyway. As others here say, no chocolate, no fried foods and take the Prilosec daily.He scheduled me for another pft, 6 min. walk and cat-scan on the 12th of Dec.He is surely being thorough. I can't help but wonder that if this Dr. drew 5 vials of blood to check whatever...why didn't the first Dr. do all this? First one doesn't seem aggressive enough to me, to find out what is a true dx! I don't want and won't be simply a case number to a Dr. Even though I have to drive 35 min. to see #2 and he uses a different hospital than the closest one, it's ok with me. I do feel more confidence in this man. I like him!Personalities DO make a difference.So by mid-Dec. I should know something more definitive. #2 also says possibility of a lung check....not "bio"...go down and take a sample....If necessary to get a dx there is an outside possibility of a lung-bio. This I don't want so lets hope all this testing will reveal enough to know how to aggressively treat me.I've been reading all the posts this morning. Hi to everyone.Love ya all. Sher ipf 5-06 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 2006 Report Share Posted November 17, 2006 Thanks Beth, You just described how I feel. How nice to know someone understands. I can’t seem to get used to not knowing how I will feel in the morning. Will it be a good day or a bad day? You can’t plan ahead. I also am seeing the same thread that we can’t sleep. Fl. P.F. 4/2006 From: Breathe-Support [mailto:Breathe-Support ] On Behalf Of Beth Sent: Friday, November 17, 2006 8:55 PM To: Breathe-Support Subject: Re: from Beth , You can express your feelings as much or as little as you are comfortable with. We're all in this together and try hard to support each other while acknowledging that we're all different. The whole experience of being ill is very overwhelming and discouraging, at least it is for me. I have days when I feel pretty normal and it's easy to be upbeat. Then there are days when I just feel lousy or I can't do something that I used to without even thinking twice and I just sit and cry. It's all part of this and it's all normal. Keep enjoying life in Florida! Beth (Fibrotic NSIP 06/06) Draw close. Hold hands. Life is short. God is good. Re: Sher's second opinion Hi Lady Bug, I had the scope done. Everyone said NO problem you'll wake up and feel great...I was ok but it took me about a week or so to feel like myself again..Just pooped and didn't have any energy. I knew I had been through something. NO PAIN just extremely tired. The only bad part was a nebulizer to numb my throat..I had to do that for about twenty min..I was numb all the way to my toes.. I am sure you'll be fine. Liking your Dr. I think, is half of being able to stand this. I can't imagine having to see a Dr. that ya don't like.. Yep I have had lots of vials done at the same time too.. Thyroid they really get crazy with it..I'm glad that's over for you. Now On to a Good Diagnosis. Love and Prayers, Peggy 9/04 ipf I saw a Dr. yesterday for a second opinion and he does not necessarily agree w/first dx of ipf. Says I do have pf but is doing more blood work to make a decision. He ordered 5! vials of blood. Must be doin' somethin' ok.......... . Also wants me to raise head of bed w/2x4s (I checked out the inflatable one too). ONE cup of coffee in the morning is ok. That's all I usually have anyway. As others here say, no chocolate, no fried foods and take the Prilosec daily. He scheduled me for another pft, 6 min. walk and cat-scan on the 12th of Dec. He is surely being thorough. I can't help but wonder that if this Dr. drew 5 vials of blood to check whatever...why didn't the first Dr. do all this? First one doesn't seem aggressive enough to me, to find out what is a true dx! I don't want and won't be simply a case number to a Dr. Even though I have to drive 35 min. to see #2 and he uses a different hospital than the closest one, it's ok with me. I do feel more confidence in this man. I like him! Personalities DO make a difference. So by mid-Dec. I should know something more definitive. #2 also says possibility of a lung check....not " bio " ...go down and take a sample.... If necessary to get a dx there is an outside possibility of a lung-bio. This I don't want so lets hope all this testing will reveal enough to know how to aggressively treat me. I've been reading all the posts this morning. Hi to everyone. Love ya all. Sher ipf 5-06 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 2006 Report Share Posted November 17, 2006 Di, did you look into the Tranquility Complex I use for sleeping? It really does work well. No 'hang-over' in the morning. Non narcotic and not habit forming. I do recommend it. Sher ipf 5-06 Re: Sher's second opinion Hi Lady Bug, I had the scope done. Everyone said NO problem you'll wake up and feel great...I was ok but it took me about a week or so to feel like myself again..Just pooped and didn't have any energy. I knew I had been through something. NO PAIN just extremely tired. The only bad part was a nebulizer to numb my throat..I had to do that for about twenty min..I was numb all the way to my toes.. I am sure you'll be fine.Liking your Dr. I think, is half of being able to stand this. I can't imagine having to see a Dr. that ya don't like.. Yep I have had lots of vials done at the same time too.. Thyroid they really get crazy with it..I'm glad that's over for you. Now On to a Good Diagnosis. Love and Prayers, Peggy 9/04 ipf I saw a Dr. yesterday for a second opinion and he does not necessarily agree w/first dx of ipf. Says I do have pf but is doing more blood work to make a decision. He ordered 5! vials of blood. Must be doin' somethin' ok.......... .Also wants me to raise head of bed w/2x4s (I checked out the inflatable one too).ONE cup of coffee in the morning is ok. That's all I usually have anyway. As others here say, no chocolate, no fried foods and take the Prilosec daily.He scheduled me for another pft, 6 min. walk and cat-scan on the 12th of Dec.He is surely being thorough. I can't help but wonder that if this Dr. drew 5 vials of blood to check whatever...why didn't the first Dr. do all this? First one doesn't seem aggressive enough to me, to find out what is a true dx! I don't want and won't be simply a case number to a Dr. Even though I have to drive 35 min. to see #2 and he uses a different hospital than the closest one, it's ok with me. I do feel more confidence in this man. I like him!Personalities DO make a difference.So by mid-Dec. I should know something more definitive. #2 also says possibility of a lung check....not "bio"...go down and take a sample....If necessary to get a dx there is an outside possibility of a lung-bio. This I don't want so lets hope all this testing will reveal enough to know how to aggressively treat me.I've been reading all the posts this morning. Hi to everyone.Love ya all. Sher ipf 5-06 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 2006 Report Share Posted November 17, 2006 , I know just what you mean about never knowing how I'll feel when I wake up in the morning. You just never know. For me at least it's completely unpredictable, not necessarily related to how well I've slept or anything else I can pinpoint. I know there's a big emotional component for me. The days that I'm down in the dumps, I feel worse physically. It's lonely being sick. My family and some of my friends are wonderful. They love me and would do anything they could for me but.... well as you know life goes on. People have to get on with it and live their lives, go to work, raise their families etc etc. I do what I'm capable of, stay as active as I can but the reality is I'm limited by my need for O2, my fatigue and my fear of catching some kind of bug, especially now that the cold weather is setting in. It's difficult and sometimes very lonely. All the wonderful folks in this group are a huge help. My sleeping has been gradually getting a bit better, I think related to two things. The doctor has been weaning me off the prednisone, I'm down to 30mg a day from a high of 80 at one point. That may be part of it but the biggest difference has been since I got my new bed. It's so wonderful to be out of that horrible, horizontal hospital bed. Lord how I hated that thing. I'm sleeping so much better for now and I am grateful for every unconscious moment! Beth (Fibrotic NSIP 06/06)Draw close. Hold hands. Life is short. God is good. Re: Sher's second opinion Hi Lady Bug, I had the scope done. Everyone said NO problem you'll wake up and feel great...I was ok but it took me about a week or so to feel like myself again..Just pooped and didn't have any energy. I knew I had been through something. NO PAIN just extremely tired. The only bad part was a nebulizer to numb my throat..I had to do that for about twenty min..I was numb all the way to my toes.. I am sure you'll be fine.Liking your Dr. I think, is half of being able to stand this. I can't imagine having to see a Dr. that ya don't like.. Yep I have had lots of vials done at the same time too.. Thyroid they really get crazy with it..I'm glad that's over for you. Now On to a Good Diagnosis. Love and Prayers, Peggy 9/04 ipf I saw a Dr. yesterday for a second opinion and he does not necessarily agree w/first dx of ipf. Says I do have pf but is doing more blood work to make a decision. He ordered 5! vials of blood. Must be doin' somethin' ok.......... .Also wants me to raise head of bed w/2x4s (I checked out the inflatable one too).ONE cup of coffee in the morning is ok. That's all I usually have anyway. As others here say, no chocolate, no fried foods and take the Prilosec daily.He scheduled me for another pft, 6 min. walk and cat-scan on the 12th of Dec.He is surely being thorough. I can't help but wonder that if this Dr. drew 5 vials of blood to check whatever...why didn't the first Dr. do all this? First one doesn't seem aggressive enough to me, to find out what is a true dx! I don't want and won't be simply a case number to a Dr. Even though I have to drive 35 min. to see #2 and he uses a different hospital than the closest one, it's ok with me. I do feel more confidence in this man. I like him!Personalities DO make a difference.So by mid-Dec. I should know something more definitive. #2 also says possibility of a lung check....not "bio"...go down and take a sample....If necessary to get a dx there is an outside possibility of a lung-bio. This I don't want so lets hope all this testing will reveal enough to know how to aggressively treat me.I've been reading all the posts this morning. Hi to everyone.Love ya all. Sher ipf 5-06 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2006 Report Share Posted November 18, 2006 Thanks Joyce, Sometimes it just feels overwhelming and I know everyone here understands what I'm talking about. Family sometimes tries to " jolly " me out of how I feel. I understand that impulse but it's nice to know that everyone here will just acknowledge it and say, 'yeah, me too'. It does make me feel a bit less alone. Beth --- Joyce wrote: > > Beth, > > Yes, it is lonely being sick. That needed to be > said. I bet everyone > on this board knows the feeling! Even with family > and friends, even in > a crowd, even with my own husband....I feel the > lonliness. I am the > only one inside this wreck of a body fighting this > fight. Sympathy and > empathy are two different things. We can understand > and actually feel > the pain because we have experienced it ourselves. > Thanks for saying it > out loud! > > Joyce PF 1997 Bronchiectasis 2004 INDIANA > > > > > , > > > > I know just what you mean about never knowing how > I'll feel when I > wake up in the morning. You just never know. For me > at least it's > completely unpredictable, not necessarily related to > how well I've slept > or anything else I can pinpoint. I know there's a > big emotional > component for me. The days that I'm down in the > dumps, I feel worse > physically. It's lonely being sick. My family and > some of my friends are > wonderful. They love me and would do anything they > could for me but.... > well as you know life goes on. People have to get on > with it and live > their lives, go to work, raise their families etc > etc. I do what I'm > capable of, stay as active as I can but the reality > is I'm limited by my > need for O2, my fatigue and my fear of catching some > kind of bug, > especially now that the cold weather is setting in. > It's difficult and > sometimes very lonely. All the wonderful folks in > this group are a huge > help. > > > > My sleeping has been gradually getting a bit > better, I think related > to two things. The doctor has been weaning me off > the prednisone, I'm > down to 30mg a day from a high of 80 at one point. > That may be part of > it but the biggest difference has been since I got > my new bed. It's so > wonderful to be out of that horrible, horizontal > hospital bed. Lord how > I hated that thing. I'm sleeping so much better for > now and I am > grateful for every unconscious moment! > > > > > > Beth (Fibrotic NSIP 06/06) > > > > Draw close. Hold hands. Life is short. God is > good. > > > > > > > > Re: Sher's second > opinion > > > > Hi Lady Bug, I had the scope done. Everyone said > NO problem you'll > wake up and feel great...I was ok but it took me > about a week or so to > feel like myself again..Just pooped and didn't have > any energy. I knew I > had been through something. NO PAIN just extremely > tired. The only bad > part was a nebulizer to numb my throat..I had to do > that for about > twenty min..I was numb all the way to my toes.. I am > sure you'll be > fine. > > > > Liking your Dr. I think, is half of being able to > stand this. I can't > imagine having to see a Dr. that ya don't like.. Yep > I have had lots of > vials done at the same time too.. Thyroid they > really get crazy with > it..I'm glad that's over for you. Now On to a Good > Diagnosis. > > Love and Prayers, Peggy 9/04 ipf > > I saw a Dr. yesterday for a second opinion and he > does not necessarily > agree w/first dx of ipf. Says I do have pf but is > doing === message truncated === Beth (Fibrotic NSIP 06/06) Draw close. Hold hands. Life is short. God is good. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2006 Report Share Posted November 18, 2006 Beth...well said! I'm sure all of us feel as you wrote. I especially relate to the loneliness at times. Especially days when I can't do much. Like today....and here we are....lifting each other up. It's a typical foggy, cold and gray day here in Oregon and this weather causes me to feel a tightness in my chest and harder to breathe. Rich is watching football and I'll curl up with a movie! Love to all. Sher ipf 5-06 Re: Sher's second opinion Hi Lady Bug, I had the scope done. Everyone said NO problem you'll wake up and feel great...I was ok but it took me about a week or so to feel like myself again..Just pooped and didn't have any energy. I knew I had been through something. NO PAIN just extremely tired. The only bad part was a nebulizer to numb my throat..I had to do that for about twenty min..I was numb all the way to my toes.. I am sure you'll be fine.Liking your Dr. I think, is half of being able to stand this. I can't imagine having to see a Dr. that ya don't like.. Yep I have had lots of vials done at the same time too.. Thyroid they really get crazy with it..I'm glad that's over for you. Now On to a Good Diagnosis. Love and Prayers, Peggy 9/04 ipf I saw a Dr. yesterday for a second opinion and he does not necessarily agree w/first dx of ipf. Says I do have pf but is doing more blood work to make a decision. He ordered 5! vials of blood. Must be doin' somethin' ok.......... .Also wants me to raise head of bed w/2x4s (I checked out the inflatable one too).ONE cup of coffee in the morning is ok. That's all I usually have anyway. As others here say, no chocolate, no fried foods and take the Prilosec daily.He scheduled me for another pft, 6 min. walk and cat-scan on the 12th of Dec.He is surely being thorough. I can't help but wonder that if this Dr. drew 5 vials of blood to check whatever...why didn't the first Dr. do all this? First one doesn't seem aggressive enough to me, to find out what is a true dx! I don't want and won't be simply a case number to a Dr. Even though I have to drive 35 min. to see #2 and he uses a different hospital than the closest one, it's ok with me. I do feel more confidence in this man. I like him!Personalities DO make a difference.So by mid-Dec. I should know something more definitive. #2 also says possibility of a lung check....not "bio"...go down and take a sample....If necessary to get a dx there is an outside possibility of a lung-bio. This I don't want so lets hope all this testing will reveal enough to know how to aggressively treat me.I've been reading all the posts this morning. Hi to everyone.Love ya all. Sher ipf 5-06 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2006 Report Share Posted November 18, 2006 I have a pair of red tail hawks lurking to try to get my puppy..my yard always has cardinals. Love and Prayers, Peggy 9/04 ipf Di, I thought it was you I talked with about the Tranquility Complex...I forget sometimes who I chat with. It is not a mood alter. Only for sleep. I'm not sure how it works, I just know it does. It's a supplement...a vegetable supplement. I've been taking it for months and it does help me sleep. I think the cpap helps me sleep as well. It's a bit spendy....approx. $20 to $25 depending on how many you buy. Contact Healthline @ 1- x 2526, " Andy " . He will answer all your questions. BTW, tell him I sent you and he will give me a discount. Forgot....there are 60 caps, 2 two at bedtime. We seldom see wildlife where we live. But at the coast we see frequently. Beautiful aren't they? We have cranes, egrets and blue heron among others. Hope your day is a good one. Sher Re: Sher's second opinion Hi Lady Bug, I had the scope done. Everyone said NO problem you'll wake up and feel great...I was ok but it took me about a week or so to feel like myself again..Just pooped and didn't have any energy. I knew I had been through something. NO PAIN just extremely tired. The only bad part was a nebulizer to numb my throat..I had to do that for about twenty min..I was numb all the way to my toes.. I am sure you'll be fine. Liking your Dr. I think, is half of being able to stand this. I can't imagine having to see a Dr. that ya don't like.. Yep I have had lots of vials done at the same time too.. Thyroid they really get crazy with it..I'm glad that's over for you. Now On to a Good Diagnosis. Love and Prayers, Peggy 9/04 ipf I saw a Dr. yesterday for a second opinion and he does not necessarily agree w/first dx of ipf. Says I do have pf but is doing more blood work to make a decision. He ordered 5! vials of blood. Must be doin' somethin' ok.......... . Also wants me to raise head of bed w/2x4s (I checked out the inflatable one too). ONE cup of coffee in the morning is ok. That's all I usually have anyway. As others here say, no chocolate, no fried foods and take the Prilosec daily. He scheduled me for another pft, 6 min. walk and cat-scan on the 12th of Dec. He is surely being thorough. I can't help but wonder that if this Dr. drew 5 vials of blood to check whatever...why didn't the first Dr. do all this? First one doesn't seem aggressive enough to me, to find out what is a true dx! I don't want and won't be simply a case number to a Dr. Even though I have to drive 35 min. to see #2 and he uses a different hospital than the closest one, it's ok with me. I do feel more confidence in this man. I like him! Personalities DO make a difference. So by mid-Dec. I should know something more definitive. #2 also says possibility of a lung check....not " bio " ...go down and take a sample.... If necessary to get a dx there is an outside possibility of a lung-bio. This I don't want so lets hope all this testing will reveal enough to know how to aggressively treat me. I've been reading all the posts this morning. Hi to everyone. Love ya all. Sher ipf 5-06 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2006 Report Share Posted November 18, 2006 hey! I thought you were going to the store! Bring me back a pkg. of Skinny Cow ice cream (low fat) sandwiches. Hurry now. Sher Re: Sher's second opinionHi Lady Bug, I had the scope done. Everyone said NO problem you'll wake up and feel great...I was ok but it took me about a week or so to feel like myself again..Just pooped and didn't have any energy. I knew I had been through something. NO PAIN just extremely tired. The only bad part was a nebulizer to numb my throat..I had to do that for about twenty min..I was numb all the way to my toes.. I am sure you'll be fine.Liking your Dr. I think, is half of being able to stand this. I can't imagine having to see a Dr. that ya don't like.. Yep I have had lots of vials done at the same time too.. Thyroid they really get crazy with it..I'm glad that's over for you. Now On to a Good Diagnosis. Love and Prayers, Peggy 9/04 ipf I saw a Dr. yesterday for a second opinion and he does not necessarily agree w/first dx of ipf. Says I do have pf but is doing more blood work to make a decision. He ordered 5! vials of blood. Must be doin' somethin' ok.......... .Also wants me to raise head of bed w/2x4s (I checked out the inflatable one too).ONE cup of coffee in the morning is ok. That's all I usually have anyway. As others here say, no chocolate, no fried foods and take the Prilosec daily.He scheduled me for another pft, 6 min. walk and cat-scan on the 12th of Dec.He is surely being thorough. I can't help but wonder that if this Dr. drew 5 vials of blood to check whatever...why didn't the first Dr. do all this? First one doesn't seem aggressive enough to me, to find out what is a true dx! I don't want and won't be simply a case number to a Dr. Even though I have to drive 35 min. to see #2 and he uses a different hospital than the closest one, it's ok with me. I do feel more confidence in this man. I like him!Personalities DO make a difference.So by mid-Dec. I should know something more definitive. #2 also says possibility of a lung check....not "bio"...go down and take a sample....If necessary to get a dx there is an outside possibility of a lung-bio. This I don't want so lets hope all this testing will reveal enough to know how to aggressively treat me.I've been reading all the posts this morning. Hi to everyone.Love ya all. Sher ipf 5-06 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2006 Report Share Posted November 18, 2006 Oh no to late, BUT I do have 1 ( ONE ) left in the freezer. hurry over before finds it. I just needed a charger plate for an pineapple upside down cake for Sweet night at church tomorrow eve.. Love and Prayers, Peggy 9/04 ipf hey! I thought you were going to the store! Bring me back a pkg. of Skinny Cow ice cream (low fat) sandwiches. Hurry now. Sher Re: Sher's second opinion Hi Lady Bug, I had the scope done. Everyone said NO problem you'll wake up and feel great...I was ok but it took me about a week or so to feel like myself again..Just pooped and didn't have any energy. I knew I had been through something. NO PAIN just extremely tired. The only bad part was a nebulizer to numb my throat..I had to do that for about twenty min..I was numb all the way to my toes.. I am sure you'll be fine. Liking your Dr. I think, is half of being able to stand this. I can't imagine having to see a Dr. that ya don't like.. Yep I have had lots of vials done at the same time too.. Thyroid they really get crazy with it..I'm glad that's over for you. Now On to a Good Diagnosis. Love and Prayers, Peggy 9/04 ipf I saw a Dr. yesterday for a second opinion and he does not necessarily agree w/first dx of ipf. Says I do have pf but is doing more blood work to make a decision. He ordered 5! vials of blood. Must be doin' somethin' ok.......... . Also wants me to raise head of bed w/2x4s (I checked out the inflatable one too). ONE cup of coffee in the morning is ok. That's all I usually have anyway. As others here say, no chocolate, no fried foods and take the Prilosec daily. He scheduled me for another pft, 6 min. walk and cat-scan on the 12th of Dec. He is surely being thorough. I can't help but wonder that if this Dr. drew 5 vials of blood to check whatever...why didn't the first Dr. do all this? First one doesn't seem aggressive enough to me, to find out what is a true dx! I don't want and won't be simply a case number to a Dr. Even though I have to drive 35 min. to see #2 and he uses a different hospital than the closest one, it's ok with me. I do feel more confidence in this man. I like him! Personalities DO make a difference. So by mid-Dec. I should know something more definitive. #2 also says possibility of a lung check....not " bio " ...go down and take a sample.... If necessary to get a dx there is an outside possibility of a lung-bio. This I don't want so lets hope all this testing will reveal enough to know how to aggressively treat me. I've been reading all the posts this morning. Hi to everyone. Love ya all. Sher ipf 5-06 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2006 Report Share Posted November 18, 2006 Hmmmmm. I love pineapple upside cake. How come all the goodies are at your house and not mine? to you Peggy, AND TO EVERYONE! Sher Re: Sher's second opinionHi Lady Bug, I had the scope done. Everyone said NO problem you'll wake up and feel great...I was ok but it took me about a week or so to feel like myself again..Just pooped and didn't have any energy. I knew I had been through something. NO PAIN just extremely tired. The only bad part was a nebulizer to numb my throat..I had to do that for about twenty min..I was numb all the way to my toes.. I am sure you'll be fine.Liking your Dr. I think, is half of being able to stand this. I can't imagine having to see a Dr. that ya don't like.. Yep I have had lots of vials done at the same time too.. Thyroid they really get crazy with it..I'm glad that's over for you. Now On to a Good Diagnosis. Love and Prayers, Peggy 9/04 ipf I saw a Dr. yesterday for a second opinion and he does not necessarily agree w/first dx of ipf. Says I do have pf but is doing more blood work to make a decision. He ordered 5! vials of blood. Must be doin' somethin' ok.......... .Also wants me to raise head of bed w/2x4s (I checked out the inflatable one too).ONE cup of coffee in the morning is ok. That's all I usually have anyway. As others here say, no chocolate, no fried foods and take the Prilosec daily.He scheduled me for another pft, 6 min. walk and cat-scan on the 12th of Dec.He is surely being thorough. I can't help but wonder that if this Dr. drew 5 vials of blood to check whatever...why didn't the first Dr. do all this? First one doesn't seem aggressive enough to me, to find out what is a true dx! I don't want and won't be simply a case number to a Dr. Even though I have to drive 35 min. to see #2 and he uses a different hospital than the closest one, it's ok with me. I do feel more confidence in this man. I like him!Personalities DO make a difference.So by mid-Dec. I should know something more definitive. #2 also says possibility of a lung check....not "bio"...go down and take a sample....If necessary to get a dx there is an outside possibility of a lung-bio. This I don't want so lets hope all this testing will reveal enough to know how to aggressively treat me.I've been reading all the posts this morning. Hi to everyone.Love ya all. Sher ipf 5-06 Quote Link to comment Share on other sites More sharing options...
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