A Hummingbirds Guide to ME Newsletter -October 2006

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A Hummingbirds Guide to ME Newsletter

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October 2006

Hello and welcome to the 'A Hummingbirds Guide to

Myalgic Encephalomyelitis' e-newsletter for October 2006.

As always I hope it finds you and yours all doing as well

as possible.

This month I have just one small new project to announce,

as well as a few new great articles by other authors. I've

been resting up after finally finishing the huge CBT and

GET database last month, including the essay 'Smoke and

Mirrors' which, if anyone missed it, is available at:

http://www.ahummingbirdsguide.com/cbtandget.htm

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A new Translations page: Calling all translators!

Since my website began I've been interested in having

translations available, as much as is possible. Myalgic

Encephalomyelitis (M.E.) is an illness that has occurred in

epidemic and sporadic forms all over the world. Unfortunately

the bulk of information on M.E., particularly the good quality and

unbiased information, is mostly only available in English. For the

benefit of the many thousands of people with M.E around the

world this has to change.

In time, I hope to be able to present here links to at least the

basic texts on this site (which quote and reference some of the

best information on M.E. available by many of the world's

leading M.E. experts), in at least most of the most commonly

used languages. For this to happen however, translators are

urgently needed!

If you would be willing to translate even just 2 pages of text into

another common language please contact me. For more

information, and to see some of the texts currently available in

other languages see:

http://www.ahummingbirdsguide.com/translations.htm

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Outstanding new articles by other authors

The following new(ish) articles by some of the world's leading

M.E experts and advocates are highly recommended.

1. A New and Simple Definition of Myalgic Encephalomyelitis

and a New Simple Definition of Chronic Fatigue Syndrome & A

Brief History of Myalgic Encephalomyelitis & An Irreverent

History of Chronic Fatigue Syndrome (an extract, PDF format)

by Dr Byron Hyde M.D.

This is simply one of the best (if not THE BEST) articles on the

illness. It contain valuable information both politically and

medically and should be essential reading for anyone with an

interest in M.E. or CFS. (See the quote at the end of the

newsletter for a brief sample.)

Also, for anyone who hasn't read Hyde's 2003 The Complexities

of Diagnosis this is also very highly recommended. Links to both

texts are available at:

http://www.ahummingbirdsguide.com/whyde.htm

Also, a review of Dr Hyde's essential M.E. textbook, including a

selection of quotes from the book, is now available at:

http://www.ahummingbirdsguide.com/hydetextbookreview.htm

2. Myalgic Encephalomyelitis (ME): a review with emphasis on

key findings in biomedical research by Professor Hooper 2006,

printed in the BMJ

A quote: 'Undoubtedly the perverse use of chronic fatigue

syndrome, to impose a psychiatric definition for ME/CFS by

allying it to fatigue syndromes, has delayed research, the

discovery of effective treatment(s), and care and support for

those suffering from this illness I would propose that the use of

CFS should now be abandoned and that, following the Minister

of Health's assurances, the WHO definition is now accepted and

used in all official documentations. The excellent work on the

biological aspects of ME, already carried out by several leading

research groups, now requires significant funding.'

A link to this paper is available at:

http://www.ahummingbirdsguide.com/whooper.htm

3. Submission to the Parliamentary Inquiry into progress in the

scientific research of M.E. by the 25% Severe ME Group/Greg

Crowhurst

This paper includes comments from 25% members on CBT,

GET and the effect of the 'psychiatric' approach to M.E. and

makes very clear the high level of suffering caused by these

inappropriate interventions and theories. This is utterly

compelling reading and great work by Greg Crowhurst/25%

Group.

A link to this paper is available at:

http://www.ahummingbirdsguide.com/w25group.htm

4. Illustrations of Clinical Observations and International

Research Findings from 1955 to 2005 that demonstrate the

organic aetiology of Myalgic Encephalomyelitis / Chronic

Fatigue Syndrome by Malcolm Hooper, Eileen Marshall and

Margaret , 12th December 2005

This 175 page paper has been around for a while, but is still well

worth drawing attention to for those who are not aware of it. It

was prepared for the recent Gibson inquiry. The paper is also

available as a PDF download from MEAction UK. Links to the

webpage and the PDF download are available at:

http://www.ahummingbirdsguide.com/wmarwillhoopgibsonenqui.htm

(There are likely many more papers that could be included in this

list, but I wanted to keep it (relatively) brief.)

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That's it for this month!

Best wishes as always to everyone and all the best in your

ongoing battle with M.E. (or your loved one's battle with M.E.) -

until next month!

If you're still waiting for a reply to an email you wrote me,

hopefully it will be coming soon, I'm up to April 2006 now!

Jodi Bassett -- A Hummingbirds Guide to Myalgic

Encephalomyelitis: www.ahummingbirdsguide.com

Do not for one minute believe that CFS is simply another

name for Myalgic Encephalomyelitis (M.E.). It is not. The

CDC 1988 definition of CFS describes a non-existing

chimera based upon inexperienced individuals who lack

any historical knowledge of this disease process. The

CDC definition is not a disease process. It is (a) a partial

mix of infectious mononucleosis /glandular fever, ( a mix

of some of the least important aspects of M.E. and © what

amounts to a possibly unintended psychiatric slant to an

epidemic and endemic disease process of major

importance. Any disease process that has major criteria,

of excluding all other disease processes, is simply not a

disease at all; it doesn't exist. M.E. and CFS should be

separated as definitions. They are not the same.

Dr Byron Hyde MD