Re: My Neurologist said to me CFS does not exist...

[Guest guest]

I so sympathize , I am sure we all have had those experiences but now you

can go to CDC and print out or if you can get his e-mail send the info to him

and then get a new doctor.

I once went to the library to get a copy of the Hippocratic oath went back

to the doctors office , made a scene and shoved the copy in his pocket. I am

not suggesting you do that LOL.

I do understand how it feels and it doesn't feel very good.

I would keep looking and maybe ask the next ones receptionist if he

understands CFIDS before you even go.

Interview them.

Can you tell I am angry ? LOL I am, let me at em!

Cat & Max

**********

" Always stand on principle, even if you stand alone. "

Quincy

[Guest guest]

Michele we probable all have experienced this at some time or another.... just

brush it off and find another doctor... some of the doctor's out there are

idiots... and they forget it is us that is paying their wages.. and they treat

us like crap...

I had one neurologist tell me that there was nothing wrong with me that some

counseling wouldn't fix.. If only he could see me now... I would love to rub his

nose in this...

Sorry you were treated this way... try not to take it personal.. it will just

make ya sick...

Huggles!

Vickie

[Guest guest]

Dear Michele,

I am sure almost all of us have had that. I have found that older doctors do

not seem to believe in CFS but the younger doctors are more open to it. A lot

of them have a relative with it and are much more open to it. You could either

try giving this Neurologist recent information about CFS and suggest he does

some research into it (may not go down too well) Else ask your doctor to send

you to another neurologist. My Rheumatologist does not believe in CFS-not that

he said it straight out but I could tell by his face, I saw his Registrar the

other day and she was much more receptive to CFS. I was telling my local doctor

and she said that there are still quite a few doctors like that around. She is

great but is leaving in a few weeks-so I will have to try and find someone else

as good as her. She was receptive to trying different things on me and got so

upset that she could not cure my CFS-I said if you could do that you would be a

millionairess. heheheheheee My

suggestion is try another neurologist.

Regards Nerida

michele wrote:

hello all.

my name is michele. I am new to the group. I wanted to write

everyone to first say hello but then also to see if anyone else has

had this experience and how they handled it.

[Guest guest]

Yes...for many years I suffered with no PCP because they were not educated about

CFS. And I was patient enough and struggled until years later a new woman doctor

came to town.

Many of the doctors I've seen who do not specialize or understand CFS can be

rather bothersome. One must be very patient and have some support. A suggestion

if you don't mind would be to get your PCPs advice and explain how you feel.

Both doctors may have some kind of key in helping.~K

[Guest guest]

Hey Michele,

The neurologist I saw actually was the one who diagnosed me. But then he went

on to suggest some psychiatrict help, better eating habits and more exercise.

He said he couldn't do anything for me because CFS is not a neurological

problem. Funny, it resides in the brain and affects cognitive function.

Personallly, I don't " believe " in CFS either, but it hasn't stopped it from

effecting my life and the lives of those around me.

I agree that you should find a doctor in your area that specializes in CFS.

[Guest guest]

I would tell him----------I will pray for you---------to get fibro.

Lynda in Indiana

Grace- God's riches at Christ expense.

[Guest guest]

Hi Michele,

I had something very like your experience when I went to the Pain clinic, they

accepted that I have Fibromyalgia but came across as a non believer in CFS/ME

and said in the report back to GP that I was also suffering from 'Pyshco-social

issues'.

This left me greatly upset and made me start thinking it was all in my head

and resulted me in really overdoing things and near to collapse.

My GP wasn't happy with his comments and advised me to put in a letter of

complaint, as he comments and attitude was unprofessional.

Take care

Tracie x

[Guest guest]

thanks to everyone who responded. I asked my primary doctor for another

neurologist. it's really nice to hear that other people have had this

experience. I mean.. well... not that you want someone to have this experience

lol but it's nice to " chat " with people who can relate

[Guest guest]

Well since you are already gone my best advise is to not go back and

just find another one. I think we just have to keep trying.

I am jumping all of the CDC's campaign for CFS. I think that gives us

a lot of credability to have a govt agency back us so strongly.

[Guest guest]

Yeah Michele,

I'm working on my 6th neurologist. I don't have a lot of faith, but for

insurance & disability reasons, I continue to go as instructed by my PCP. Hang

in there, we all know where you're coming from!

Jane

Michele wrote:

thanks to everyone who responded. I asked my primary doctor for

another neurologist. it's really nice to hear that other people have had this

experience. I mean.. well... not that you want someone to have this experience

lol but it's nice to " chat " with people who can relate

[Guest guest]

Can you please articulate and explain briefly more about the Hippocratic Oath

and what it does have to do with these doctors that act oppionated? Would

somelike to post the oath? Thanks~K

ShyCat2@... wrote:

I so sympathize , I am sure we all have had those experiences but now you

can go to CDC and print out or if you can get his e-mail send the info to him

and then get a new doctor.

I once went to the library to get a copy of the Hippocratic oath went back

to the doctors office , made a scene and shoved the copy in his pocket.