RE: Why the rush to get a useless Combatting Autism Act when we can do better?

[Guest guest]

Have you READ the Combating Autism Act? Check out combatautism.org.

This legislation will accomplish the following goals in the fight against

Autism:

Double NIH spending on autism research.

Empower the Director of the NIH to act as an " autism czar " - developing an

annual research budget on autism, based on the best science, and requiring

that budget be reported to Congress.

Create a screening program in all 50 states for the early identification of

children with autism - short of a cure, early identification leading to

early intervention with behavioral services provides the best available

outcomes for autistic kids.

Fund the efforts of the Autism Treatment Network to identify the best

medical practices in the treatment of autistic kids.

Continue funding of the epidemiological and public education programs on

autism at the CDC.

Authorize, overall, nearly 1 billion of federal spending on autism over the

next 5 years - a multi-front war on autism from public awareness and early

diagnosis to basic biomedical research.

This is a start. A MAJOR start. And we can't give up on it just because it

doesn't include everything we want. Let's get SOMEthing going, something

that maybe will spotlight the importance of the other issues this

legislation doesn't cover. Let's get it out there. It's NOT useless

legislation. It DOES include funds for research, screening, intervention and

education. We NEED that. Our CHILDREN need that. I'm sorry that you think it

s useless, but it's a major step that should have been taken years ago. Let

s take what we can get and then we can take more steps forward.

Anne

-- Why the rush to get a useless Combatting

Autism Act when we can do better?

The Combating Autism Act as passed by the Senate has no money for

vaccine research or provisions to include citizens' organizations in

research oversight, now Rep. Joe Barton wants to take out the minimal amount

of

money for environmental research, the Centers of Excellence and slash

the total amount of money. Neither version ever contained services for

people with autism or their families.

But Joe Barton will no longer be a commitee chair in a few short

weeks. Imus this morning suggested that we would be better off if we

just waited until the Democrats get power and then move ahead. I

can't see how the Democrats could propose anything worse than what

is on the table now.

Why shouldn't we just say " Thanks, but no thanks, " And come back in

January when we have a much better chance of gettting a better bill?

Why are CAN, Autism Speaks, the Autism Society of America and other

organizations fighting the current Congress for scraps when we could do much

better with the new Congress in a few weeks?

And if the Barton bill gets passed it will be much harder for us to come

back and ask for a decent bill next year. I don't get it. Can someone please

expalin this to me?

[Guest guest]

Anne - I could not agree with you more. What concerns me, however, are the

organizations listed below and the insinuations, rumors, etc...that they are

working on a compromise bill. That we CAN NOT tolerate. As far as I am

concerned, it is S. 843 during the lame duck session or we start all over with

this new tide of democrats...but we can not allow ourselves to be sold out by

Barton or our national organizations...

Anne wrote: Have you READ the Combating

Autism Act? Check out combatautism.org.

This legislation will accomplish the following goals in the fight against

Autism:

Double NIH spending on autism research.

Empower the Director of the NIH to act as an " autism czar " - developing an

annual research budget on autism, based on the best science, and requiring

that budget be reported to Congress.

Create a screening program in all 50 states for the early identification of

children with autism - short of a cure, early identification leading to

early intervention with behavioral services provides the best available

outcomes for autistic kids.

Fund the efforts of the Autism Treatment Network to identify the best

medical practices in the treatment of autistic kids.

Continue funding of the epidemiological and public education programs on

autism at the CDC.

Authorize, overall, nearly 1 billion of federal spending on autism over the

next 5 years - a multi-front war on autism from public awareness and early

diagnosis to basic biomedical research.

This is a start. A MAJOR start. And we can't give up on it just because it

doesn't include everything we want. Let's get SOMEthing going, something

that maybe will spotlight the importance of the other issues this

legislation doesn't cover. Let's get it out there. It's NOT useless

legislation. It DOES include funds for research, screening, intervention and

education. We NEED that. Our CHILDREN need that. I'm sorry that you think it

s useless, but it's a major step that should have been taken years ago. Let

s take what we can get and then we can take more steps forward.

Anne

-- Why the rush to get a useless Combatting

Autism Act when we can do better?

The Combating Autism Act as passed by the Senate has no money for

vaccine research or provisions to include citizens' organizations in

research oversight, now Rep. Joe Barton wants to take out the minimal amount

of

money for environmental research, the Centers of Excellence and slash

the total amount of money. Neither version ever contained services for

people with autism or their families.

But Joe Barton will no longer be a commitee chair in a few short

weeks. Imus this morning suggested that we would be better off if we

just waited until the Democrats get power and then move ahead. I

can't see how the Democrats could propose anything worse than what

is on the table now.

Why shouldn't we just say " Thanks, but no thanks, " And come back in

January when we have a much better chance of gettting a better bill?

Why are CAN, Autism Speaks, the Autism Society of America and other

organizations fighting the current Congress for scraps when we could do much

better with the new Congress in a few weeks?

And if the Barton bill gets passed it will be much harder for us to come

back and ask for a decent bill next year. I don't get it. Can someone please

expalin this to me?

[Guest guest]

REGARDING EARLY SCREENING FOR MENTAL DISABILITIES….

Are you guys aware of the book by Gwen Olsen? This early screening is very

scary. They begin the process of mental screening at 2 weeks and begin

interventions very early on. Since infants cannot benefit from therapies

for “observed” mental deficiencies, their only therapy will be drugging.

This is a planed process that has already begun. Get informed.

http://www.gwenolsen.com <http://www.gwenolsen.com/>

Why the rush to get a useless Combatting

Autism Act when we can do better?

The Combating Autism Act as passed by the Senate has no money for

vaccine research or provisions to include citizens' organizations in

research oversight, now Rep. Joe Barton wants to take out the minimal amount

of

money for environmental research, the Centers of Excellence and slash

the total amount of money. Neither version ever contained services for

people with autism or their families.

But Joe Barton will no longer be a commitee chair in a few short

weeks. Imus this morning suggested that we would be better off if we

just waited until the Democrats get power and then move ahead. I

can't see how the Democrats could propose anything worse than what

is on the table now.

Why shouldn't we just say " Thanks, but no thanks, " And come back in

January when we have a much better chance of gettting a better bill?

Why are CAN, Autism Speaks, the Autism Society of America and other

organizations fighting the current Congress for scraps when we could do much

better with the new Congress in a few weeks?

And if the Barton bill gets passed it will be much harder for us to come

back and ask for a decent bill next year. I don't get it. Can someone please

expalin this to me?

[Guest guest]

Now I do agree with you there. I think the Senate passed it 100% for a

reason. It shouldn't be held up by anyone or changed at this point.

Anne

-- Why the rush to get a useless Combatting

Autism Act when we can do better?

The Combating Autism Act as passed by the Senate has no money for

vaccine research or provisions to include citizens' organizations in

research oversight, now Rep. Joe Barton wants to take out the minimal amount

of

money for environmental research, the Centers of Excellence and slash

the total amount of money. Neither version ever contained services for

people with autism or their families.

But Joe Barton will no longer be a commitee chair in a few short

weeks. Imus this morning suggested that we would be better off if we

just waited until the Democrats get power and then move ahead. I

can't see how the Democrats could propose anything worse than what

is on the table now.

Why shouldn't we just say " Thanks, but no thanks, " And come back in

January when we have a much better chance of gettting a better bill?

Why are CAN, Autism Speaks, the Autism Society of America and other

organizations fighting the current Congress for scraps when we could do much

better with the new Congress in a few weeks?

And if the Barton bill gets passed it will be much harder for us to come

back and ask for a decent bill next year. I don't get it. Can someone please

expalin this to me?

[Guest guest]

We need to be content with the way it is written and go with it. No

stalling please

in Austin

Why the rush to get a useless Combatting

Autism Act when we can do better?

The Combating Autism Act as passed by the Senate has no money for

vaccine research or provisions to include citizens' organizations in

research oversight, now Rep. Joe Barton wants to take out the minimal amount

of

money for environmental research, the Centers of Excellence and slash

the total amount of money. Neither version ever contained services for

people with autism or their families.

But Joe Barton will no longer be a commitee chair in a few short

weeks. Imus this morning suggested that we would be better off if we

just waited until the Democrats get power and then move ahead. I

can't see how the Democrats could propose anything worse than what

is on the table now.

Why shouldn't we just say " Thanks, but no thanks, " And come back in

January when we have a much better chance of gettting a better bill?

Why are CAN, Autism Speaks, the Autism Society of America and other

organizations fighting the current Congress for scraps when we could do much

better with the new Congress in a few weeks?

And if the Barton bill gets passed it will be much harder for us to come

back and ask for a decent bill next year. I don't get it. Can someone please

expalin this to me?

[Guest guest]

No compromise in the substance (amounts and directives) only as to who has

the authority to move the appropriations.don't believe rumors-best to

actually read the bill.

-------------------------------------------------------

Peacefully,

Jeff Sell, Esq.

Director of Chapters & Membership

Autism Society of America

7910 Woodmont Ave., Suite 300

Bethesda, MD 20814-3067

ext. 104 (office)

(cell)

(fax)

(e-fax)

www.autism-society.org

jzsell@...

jsell@...

--------------------------------------------------------

NOTICE: This message is confidential, intended for the named recipient(s)

and may contain information that is (i) proprietary to the sender, and/or,

(ii) privileged, confidential and/or otherwise exempt from disclosure under

applicable Texas and federal law, including, but not limited to, privacy

standards imposed pursuant to the Health Insurance Portability and

Accountability Act ( " HIPAA " ). Receipt by anyone other than the named

recipient(s) is not a waiver of any applicable privilege. If you have

received this email in error, please delete it immediately. Thank you in

advance for your compliance with this notice.

_____

From: Texas-Autism-Advocacy

[mailto:Texas-Autism-Advocacy ] On Behalf Of Mara LaViola

Sent: Thursday, November 09, 2006 5:14 PM

To: Texas-Autism-Advocacy

Subject: Re: Why the rush to get a useless

Combatting Autism Act when we can do better?

Anne - I could not agree with you more. What concerns me, however, are the

organizations listed below and the insinuations, rumors, etc...that they are

working on a compromise bill. That we CAN NOT tolerate. As far as I am

concerned, it is S. 843 during the lame duck session or we start all over

with this new tide of democrats...but we can not allow ourselves to be sold

out by Barton or our national organizations...

Anne <Lady_Anne76@ <mailto:Lady_Anne76%40hotmail.com> hotmail.com> wrote:

Have you READ the Combating Autism Act? Check out combatautism.org.

This legislation will accomplish the following goals in the fight against

Autism:

Double NIH spending on autism research.

Empower the Director of the NIH to act as an " autism czar " - developing an

annual research budget on autism, based on the best science, and requiring

that budget be reported to Congress.

Create a screening program in all 50 states for the early identification of

children with autism - short of a cure, early identification leading to

early intervention with behavioral services provides the best available

outcomes for autistic kids.

Fund the efforts of the Autism Treatment Network to identify the best

medical practices in the treatment of autistic kids.

Continue funding of the epidemiological and public education programs on

autism at the CDC.

Authorize, overall, nearly 1 billion of federal spending on autism over the

next 5 years - a multi-front war on autism from public awareness and early

diagnosis to basic biomedical research.

This is a start. A MAJOR start. And we can't give up on it just because it

doesn't include everything we want. Let's get SOMEthing going, something

that maybe will spotlight the importance of the other issues this

legislation doesn't cover. Let's get it out there. It's NOT useless

legislation. It DOES include funds for research, screening, intervention and

education. We NEED that. Our CHILDREN need that. I'm sorry that you think it

s useless, but it's a major step that should have been taken years ago. Let

s take what we can get and then we can take more steps forward.

Anne

-- Why the rush to get a useless Combatting

Autism Act when we can do better?

The Combating Autism Act as passed by the Senate has no money for

vaccine research or provisions to include citizens' organizations in

research oversight, now Rep. Joe Barton wants to take out the minimal amount

of

money for environmental research, the Centers of Excellence and slash

the total amount of money. Neither version ever contained services for

people with autism or their families.

But Joe Barton will no longer be a commitee chair in a few short

weeks. Imus this morning suggested that we would be better off if we

just waited until the Democrats get power and then move ahead. I

can't see how the Democrats could propose anything worse than what

is on the table now.

Why shouldn't we just say " Thanks, but no thanks, " And come back in

January when we have a much better chance of gettting a better bill?

Why are CAN, Autism Speaks, the Autism Society of America and other

organizations fighting the current Congress for scraps when we could do much

better with the new Congress in a few weeks?

And if the Barton bill gets passed it will be much harder for us to come

back and ask for a decent bill next year. I don't get it. Can someone please

expalin this to me?

[Guest guest]

Best to quell the rumors by giving out some substance --- otherwise, we have to

rely on statements like Deidra Imus made this morning etc...there has been alot

said that may be, from what you allude to, misinformation but how are we to know

without some information or statements from those who are in the know... I was

responding to Gilmore of NAA - given the very public statements that have

been made from the many divergent autism groups/advocates on this subject, we

would be remiss not to question...

Jeff Sell wrote: No compromise in the substance

(amounts and directives) only as to who has

the authority to move the appropriations.don't believe rumors-best to

actually read the bill.

-------------------------------------------------------

Peacefully,

Jeff Sell, Esq.

Director of Chapters & Membership

Autism Society of America

7910 Woodmont Ave., Suite 300

Bethesda, MD 20814-3067

ext. 104 (office)

(cell)

(fax)

(e-fax)

www.autism-society.org

jzsell@...

jsell@...

--------------------------------------------------------

NOTICE: This message is confidential, intended for the named recipient(s)

and may contain information that is (i) proprietary to the sender, and/or,

(ii) privileged, confidential and/or otherwise exempt from disclosure under

applicable Texas and federal law, including, but not limited to, privacy

standards imposed pursuant to the Health Insurance Portability and

Accountability Act ( " HIPAA " ). Receipt by anyone other than the named

recipient(s) is not a waiver of any applicable privilege. If you have

received this email in error, please delete it immediately. Thank you in

advance for your compliance with this notice.

_____

From: Texas-Autism-Advocacy

[mailto:Texas-Autism-Advocacy ] On Behalf Of Mara LaViola

Sent: Thursday, November 09, 2006 5:14 PM

To: Texas-Autism-Advocacy

Subject: Re: Why the rush to get a useless

Combatting Autism Act when we can do better?

Anne - I could not agree with you more. What concerns me, however, are the

organizations listed below and the insinuations, rumors, etc...that they are

working on a compromise bill. That we CAN NOT tolerate. As far as I am

concerned, it is S. 843 during the lame duck session or we start all over

with this new tide of democrats...but we can not allow ourselves to be sold

out by Barton or our national organizations...

Anne <Lady_Anne76@ <mailto:Lady_Anne76%40hotmail.com> hotmail.com> wrote:

Have you READ the Combating Autism Act? Check out combatautism.org.

This legislation will accomplish the following goals in the fight against

Autism:

Double NIH spending on autism research.

Empower the Director of the NIH to act as an " autism czar " - developing an

annual research budget on autism, based on the best science, and requiring

that budget be reported to Congress.

Create a screening program in all 50 states for the early identification of

children with autism - short of a cure, early identification leading to

early intervention with behavioral services provides the best available

outcomes for autistic kids.

Fund the efforts of the Autism Treatment Network to identify the best

medical practices in the treatment of autistic kids.

Continue funding of the epidemiological and public education programs on

autism at the CDC.

Authorize, overall, nearly 1 billion of federal spending on autism over the

next 5 years - a multi-front war on autism from public awareness and early

diagnosis to basic biomedical research.

This is a start. A MAJOR start. And we can't give up on it just because it

doesn't include everything we want. Let's get SOMEthing going, something

that maybe will spotlight the importance of the other issues this

legislation doesn't cover. Let's get it out there. It's NOT useless

legislation. It DOES include funds for research, screening, intervention and

education. We NEED that. Our CHILDREN need that. I'm sorry that you think it

s useless, but it's a major step that should have been taken years ago. Let

s take what we can get and then we can take more steps forward.

Anne

-- Why the rush to get a useless Combatting

Autism Act when we can do better?

The Combating Autism Act as passed by the Senate has no money for

vaccine research or provisions to include citizens' organizations in

research oversight, now Rep. Joe Barton wants to take out the minimal amount

of

money for environmental research, the Centers of Excellence and slash

the total amount of money. Neither version ever contained services for

people with autism or their families.

But Joe Barton will no longer be a commitee chair in a few short

weeks. Imus this morning suggested that we would be better off if we

just waited until the Democrats get power and then move ahead. I

can't see how the Democrats could propose anything worse than what

is on the table now.

Why shouldn't we just say " Thanks, but no thanks, " And come back in

January when we have a much better chance of gettting a better bill?

Why are CAN, Autism Speaks, the Autism Society of America and other

organizations fighting the current Congress for scraps when we could do much

better with the new Congress in a few weeks?

And if the Barton bill gets passed it will be much harder for us to come

back and ask for a decent bill next year. I don't get it. Can someone please

expalin this to me?

[Guest guest]

Pigs get fed, hogs get slaughtered.

While there is reason to think that next year an equal or better bill

might be passed, there is certainly no guarantee. It is my understanding

many senators, dems and repubs alike took issue with some of the

stronger language in the earlier versions of this bill. Perhaps some of

the people that gave support to the bill in an election year knew Joe

Barton was going to kill it so it was a free vote? These people may have

a very different view next year. To characterize the national autism

organizations as " fighting for scraps " I believe is untruthful and

devalues a tremendous amount of work done by dedicated people to get

almost a billion " useless " dollars in funding directly for autism. The

honest truth is that the government is NEVER going to fully investigate

itself to our satisfaction. The constant drum beating asking for this I

don't believe serves a useful purpose. Getting real public funding for

autism research can serve a purpose in that it should free up private

money which can be directed at the more controversial studies which need

to be done. However, funding private studies which start with a

preconceived notion and bias toward a specific outcome is exactly what

we criticize the CDC and the NIH of doing and the mainstream medical

community will never be won over by such efforts. Only honest, well

engineered studies adhering to rigorous scientific principals with

statistically significant study populations that are repeatable by

independent groups will lead us to the truth about autism, whatever that

may be. I would like to see a lot of this anger and frustration directed

instead at the scientists, doctors, and autism leaders who make

tremendous claims (which may or may not be true) but have failed to give

the world credible scientific studies to prove or disprove their claims.

Whether a child with autism receives a useless treatment or whether a

child fails to get a needed treatment is equally a tragedy for the child

and a failure of the scientific and medical community for not getting us

to the clear truth.

Just my 2 cents...

(And perhaps someone who is on all 50 of those lists below would be kind

enough to forward this response to those lists as well as I am not on

all those lists...)

Regards,

Mike Bernoski

*** The future belongs to those who believe

*** in the beauty of their dreams...

________________________________

From: Texas-Autism-Advocacy

[mailto:Texas-Autism-Advocacy ] On Behalf Of Gilmore

Sent: Thursday, November 09, 2006 2:42 PM

To: abmd ; ASW-autism ;

autism-aspergers ;

autism-awareness-action ;

Autism-Biomed-BayArea ; autism-georgia ;

Autism-Indiana ; autism-mercury ;

Autism-Michigan ; autism-ny ;

autism_and_vaccinations ;

autism_intervention_discussion_LI ;

autisminterventionsocal ; AutismKentucky ;

AutismKing ; AutismRecoveryNetwork ;

AutismRecoveryWA ; AutismSupportDaily ;

BEATMN ; chelatingkids2 ;

EverydayMiraclesAutism ; GFCFKids ;

homeodetox-talk ; JZS_autism_friends ;

MercuryFreeland ;

MoMAMissionpossible ; Mosaic-List ;

NIDS ; nsasa ;

recoveredkids ; Texas-Autism-Advocacy ;

unyfeat ; Vaccinations ;

vaccineinfo ; vaccinescience ;

ASA-NV ; AUFTHEWALL ;

autism-politics ;

autism_inlandempire_socal ; AutismNews ;

beatiowa ; DaytonUnitedAgainstAutism ;

slist ; DTT-NET ;

EnzymesandAutism@...; talk_about_autism@...

Subject: Why the rush to get a useless

Combatting Autism Act when we can do better?

The Combating Autism Act as passed by the Senate has no money for

vaccine research or provisions to include citizens' organizations in

research oversight, now Rep. Joe Barton wants to take out the minimal

amount of

money for environmental research, the Centers of Excellence and slash

the total amount of money. Neither version ever contained services for

people with autism or their families.

But Joe Barton will no longer be a commitee chair in a few short

weeks. Imus this morning suggested that we would be better off if we

just waited until the Democrats get power and then move ahead. I

can't see how the Democrats could propose anything worse than what

is on the table now.

Why shouldn't we just say " Thanks, but no thanks, " And come back in

January when we have a much better chance of gettting a better bill?

Why are CAN, Autism Speaks, the Autism Society of America and other

organizations fighting the current Congress for scraps when we could do

much better with the new Congress in a few weeks?

And if the Barton bill gets passed it will be much harder for us to come

back and ask for a decent bill next year. I don't get it. Can someone

please expalin this to me?

[Guest guest]

Well said Mike B.

I know we are all fighting so hard for what's best for our kids.

Just a couple of things to remember though ...

- We have to decide if we want to be right or if we want to be

effective. We need to keep in mind that politics is an ugly

business. (I'm still waiting for one of us to step up and offer to

sleep with Joe Barton.)

- The " national organizations " you suspect are betraying you are

actually the very ones who wrote this legilsation and who have been

working diligently to get it passed for almost two years.

- The " lobbyists " that Diedre Imus referred to are mostly parents of

children with autism ... really! They could be working in the

private sector making tons more money, but they want to make a

difference.

- We really need to get specific facts about any compromises and be

realistic prior to proceeding.

I think the best next step is to contact the organizations you are

concerned with and find out what they have to say. Don't get caught

up in all of the rumours. Get the facts, then consider options...

Judith

>

> Pigs get fed, hogs get slaughtered.

>

>

>

> While there is reason to think that next year an equal or better

bill

> might be passed, there is certainly no guarantee. It is my

understanding

> many senators, dems and repubs alike took issue with some of the

> stronger language in the earlier versions of this bill. Perhaps

some of

> the people that gave support to the bill in an election year knew

Joe

> Barton was going to kill it so it was a free vote? These people

may have

> a very different view next year. To characterize the national

autism

> organizations as " fighting for scraps " I believe is untruthful and

> devalues a tremendous amount of work done by dedicated people to

get

> almost a billion " useless " dollars in funding directly for autism.

The

> honest truth is that the government is NEVER going to fully

investigate

> itself to our satisfaction. The constant drum beating asking for

this I

> don't believe serves a useful purpose. Getting real public funding

for

> autism research can serve a purpose in that it should free up

private

> money which can be directed at the more controversial studies

which need

> to be done. However, funding private studies which start with a

> preconceived notion and bias toward a specific outcome is exactly

what

> we criticize the CDC and the NIH of doing and the mainstream

medical

> community will never be won over by such efforts. Only honest, well

> engineered studies adhering to rigorous scientific principals with

> statistically significant study populations that are repeatable by

> independent groups will lead us to the truth about autism,

whatever that

> may be. I would like to see a lot of this anger and frustration

directed

> instead at the scientists, doctors, and autism leaders who make

> tremendous claims (which may or may not be true) but have failed

to give

> the world credible scientific studies to prove or disprove their

claims.

> Whether a child with autism receives a useless treatment or

whether a

> child fails to get a needed treatment is equally a tragedy for the

child

> and a failure of the scientific and medical community for not

getting us

> to the clear truth.

>

>

>

> Just my 2 cents...

>

>

>

> (And perhaps someone who is on all 50 of those lists below would

be kind

> enough to forward this response to those lists as well as I am not

on

> all those lists...)

>

> Regards,

>

> Mike Bernoski

>

>

>

> *** The future belongs to those who believe

> *** in the beauty of their dreams...

>

> ________________________________

>

> From: Texas-Autism-Advocacy

> [mailto:Texas-Autism-Advocacy ] On Behalf Of

Gilmore

> Sent: Thursday, November 09, 2006 2:42 PM

> To: abmd ; ASW-autism ;

> autism-aspergers ;

> autism-awareness-action ;

> Autism-Biomed-BayArea ; autism-

georgia ;

> Autism-Indiana ; autism-mercury ;

> Autism-Michigan ; autism-ny ;

> autism_and_vaccinations ;

> autism_intervention_discussion_LI ;

> autisminterventionsocal ;

AutismKentucky ;

> AutismKing ; AutismRecoveryNetwork ;

> AutismRecoveryWA ;

AutismSupportDaily ;

> BEATMN ; chelatingkids2 ;

> EverydayMiraclesAutism ; GFCFKids ;

> homeodetox-talk ;

JZS_autism_friends ;

> MercuryFreeland ;

> MoMAMissionpossible ; Mosaic-List ;

> NIDS ; nsasa ;

> recoveredkids ; Texas-Autism-

Advocacy ;

> unyfeat ; Vaccinations ;

> vaccineinfo ; vaccinescience ;

> ASA-NV ; AUFTHEWALL ;

> autism-politics ;

> autism_inlandempire_socal ;

AutismNews ;

> beatiowa ;

DaytonUnitedAgainstAutism ;

> slist ; DTT-NET ;

> EnzymesandAutism@...; talk_about_autism@...

> Subject: Why the rush to get a useless

> Combatting Autism Act when we can do better?

>

>

>

>

>

> The Combating Autism Act as passed by the Senate has no money for

> vaccine research or provisions to include citizens' organizations

in

> research oversight, now Rep. Joe Barton wants to take out the

minimal

> amount of

> money for environmental research, the Centers of Excellence and

slash

> the total amount of money. Neither version ever contained services

for

> people with autism or their families.

>

> But Joe Barton will no longer be a commitee chair in a few short

> weeks. Imus this morning suggested that we would be better off if

we

> just waited until the Democrats get power and then move ahead. I

> can't see how the Democrats could propose anything worse than what

> is on the table now.

>

> Why shouldn't we just say " Thanks, but no thanks, " And come back in

> January when we have a much better chance of gettting a better

bill?

>

> Why are CAN, Autism Speaks, the Autism Society of America and other

> organizations fighting the current Congress for scraps when we

could do

> much better with the new Congress in a few weeks?

>

> And if the Barton bill gets passed it will be much harder for us

to come

> back and ask for a decent bill next year. I don't get it. Can

someone

> please expalin this to me?

>

>

[Guest guest]

Hi Mara:

Good point. But, I have found that spending time responding to rumors ect on

listserves is usually not time well spent--kinda like shooting at moving targets

that after they are hit, another one pops up. The bill is out there and I'll

send it to you when I get up to Dallas later on today.

-still has the money, $916 million

-sec of HHS has authority rather than dir of NIH

-list of specific research areas changed--not happy about that but, doesn't

appear to be a deal breaker.

As Reynolds said so well a while ago-- " people, this is nearly a BILLION

dollars " when most areas are being cut.

Sure things will get better in the 110th, but a bird in the hand is worth 2 in

the bush--

My best...

Jeff

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

Sent from my BlackBerry. Please excuse typos!

Why the rush to get a useless Combatting

Autism Act when we can do better?

The Combating Autism Act as passed by the Senate has no money for

vaccine research or provisions to include citizens' organizations in

research oversight, now Rep. Joe Barton wants to take out the minimal amount

of

money for environmental research, the Centers of Excellence and slash

the total amount of money. Neither version ever contained services for

people with autism or their families.

But Joe Barton will no longer be a commitee chair in a few short

weeks. Imus this morning suggested that we would be better off if we

just waited until the Democrats get power and then move ahead. I

can't see how the Democrats could propose anything worse than what

is on the table now.

Why shouldn't we just say " Thanks, but no thanks, " And come back in

January when we have a much better chance of gettting a better bill?

Why are CAN, Autism Speaks, the Autism Society of America and other

organizations fighting the current Congress for scraps when we could do much

better with the new Congress in a few weeks?

And if the Barton bill gets passed it will be much harder for us to come

back and ask for a decent bill next year. I don't get it. Can someone please

expalin this to me?

[Guest guest]

Hi Jeff -

Thanks for this summary - it is very much appreciated. I can not agree with

you more that you can not spend much needed time pacifying every rumor, but when

the community at large is eagerly anticipating response on this and you have

both national representatives putting out mass e-mails and a national TV figure

doing the same, it is really important to get some substance out there. Which

is what you have done. So thank you and ASA for your openness and willingness

to share this insight with us. I think this is vital - particularly for those

who were hearing rumors that much of the substance and funding was going to be

cut...this sounds very good ....Thank you so much again...

Mara

Jeff Sell wrote:

Hi Mara:

Good point. But, I have found that spending time responding to rumors ect on

listserves is usually not time well spent--kinda like shooting at moving targets

that after they are hit, another one pops up. The bill is out there and I'll

send it to you when I get up to Dallas later on today.

-still has the money, $916 million

-sec of HHS has authority rather than dir of NIH

-list of specific research areas changed--not happy about that but, doesn't

appear to be a deal breaker.

As Reynolds said so well a while ago-- " people, this is nearly a BILLION

dollars " when most areas are being cut.

Sure things will get better in the 110th, but a bird in the hand is worth 2 in

the bush--

My best...

Jeff

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

Sent from my BlackBerry. Please excuse typos!

Why the rush to get a useless Combatting

Autism Act when we can do better?

The Combating Autism Act as passed by the Senate has no money for

vaccine research or provisions to include citizens' organizations in

research oversight, now Rep. Joe Barton wants to take out the minimal amount

of

money for environmental research, the Centers of Excellence and slash

the total amount of money. Neither version ever contained services for

people with autism or their families.

But Joe Barton will no longer be a commitee chair in a few short

weeks. Imus this morning suggested that we would be better off if we

just waited until the Democrats get power and then move ahead. I

can't see how the Democrats could propose anything worse than what

is on the table now.

Why shouldn't we just say " Thanks, but no thanks, " And come back in

January when we have a much better chance of gettting a better bill?

Why are CAN, Autism Speaks, the Autism Society of America and other

organizations fighting the current Congress for scraps when we could do much

better with the new Congress in a few weeks?

And if the Barton bill gets passed it will be much harder for us to come

back and ask for a decent bill next year. I don't get it. Can someone please

expalin this to me?