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Re: Turn for the worst

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Hugs to you Bonnie. So sorry and you are so right- no one deserves this.

It's so unfair.

>

>

> I had admitted to the hospital today after trying to manage his

> severe anxiety and suicidal behavior over the past couple of weeks. I

> haven't had to do that in a few years. I am broken hearted and sick with

> worry. I put him in a hospital far from home because it was the best that I

> could find at this time. I am seriously considering sending him to or

> a place with a good reputation for a more longterm treatment. I don't know

> how many more hospitalizations he can take before he gives up. Life is so

> unfair and cruel...no child deserves to suffer!

>

> Bonnie

>

>

>

--

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I am so sorry Bonnie, that is suffering so much.

I know that you have done so much research and seek the best

doctors. He is lucky to have a Mom that is so devoted.

I hope and pray that you have the strength to keep yourself

well in this very very difficult time. The stress I am guessing

must be unbelieveably high for you.

You hve done so many interventions, new OCD therapists, then

Hollander in NYC, the new private school ...I am guessing it

is upsetting that the interventions didn't prevent this ..

And now you have found other places of support for .

Take care of yourself. I wish we could offer some

help and support.

Pam

>

> I had admitted to the hospital today after trying to manage his severe

anxiety and suicidal behavior over the past couple of weeks. I haven't had to

do that in a few years. I am broken hearted and sick with worry. I put him in

a hospital far from home because it was the best that I could find at this time.

I am seriously considering sending him to or a place with a good

reputation for a more longterm treatment. I don't know how many more

hospitalizations he can take before he gives up. Life is so unfair and

cruel...no child deserves to suffer!

>

> Bonnie

>

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Thanks Pam. I am trying so hard and not many recognize the challenge. Nothing

means more to me than my children and so this really cuts deep.

This hospital won't be the longterm answer. Matt will probably be there for a

week or two. He's a good kid and so I suspect it'll take at least a week for

them to see the real . They do a lot of psychoeducational testing and

evaluation there (so I'm told) and so I hope that it gives me more info to work

on and of course I hope he is more stable when he leaves. If they think he

needs more intensive work, then I am committed to providing it at whatever cost

(if he's well, I can work more).

I can't tell you how hard this is. I am trying to take care of my younger

daughter at the same time... not enough of me to go round! Fortunately, I used

to live not far from where Matt is and I know the roads (minimum 3 hr round trip

aside from visitation, ect). All I need is someone to pick up and care

for her till dh comes home. One day at a time is how it'll work for now.

I need to have my daughter speak with someone too - if only to vent. I know

there must be some resentment, fears, sadness too. I know my too and I

don't think she'd confide in me because she knows how upset I am - she's an old

soul at age 10! I thank God for her because she's so easy and so adjusted -

validates my parenting to some extent.

Well, enough rambling - a long day ahead tomorrow. I must say that Cornerstone

did more to help me than did Dr. Hollander and Dr. Turovsky. That alone has

made my efforts at Cornerstone worthwhile.

Update later.

Bonnie

PS Hope things are looking up with your dd

> >

> > I had admitted to the hospital today after trying to manage his

severe anxiety and suicidal behavior over the past couple of weeks. I haven't

had to do that in a few years. I am broken hearted and sick with worry. I put

him in a hospital far from home because it was the best that I could find at

this time. I am seriously considering sending him to or a place with a

good reputation for a more longterm treatment. I don't know how many more

hospitalizations he can take before he gives up. Life is so unfair and

cruel...no child deserves to suffer!

> >

> > Bonnie

> >

>

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Bonnie, you are so amazing. You take about 2 seconds to feel

the weight of the problem and then you are right back with

full energy to problem solving.

I was listening to the song called " note to God " it is a

popular song and the message is to " asking God to help find

a way through a difficult situation " ....you seem to

really be able to manage your emotions so that you can

figure out how to help your whole family, even when you

are suffering too. I think that is very amazing of you.

I am so glad Cornerstone was support to you. They got to

know . I am so happy to hear that they had some

good advice.

Take care Bonnie and big (((((hugs)))),

Pam

> > >

> > > I had admitted to the hospital today after trying to manage his

severe anxiety and suicidal behavior over the past couple of weeks. I haven't

had to do that in a few years. I am broken hearted and sick with worry. I put

him in a hospital far from home because it was the best that I could find at

this time. I am seriously considering sending him to or a place with a

good reputation for a more longterm treatment. I don't know how many more

hospitalizations he can take before he gives up. Life is so unfair and

cruel...no child deserves to suffer!

> > >

> > > Bonnie

> > >

> >

>

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I'm so sorry Bonnie. I've walked in your shoes and I know how scary and alone

you must feel. I have 2 boys with a form of OCD, both hosptalized. The older one

went through several wrong diagnosis and wrong medications. The younger one had

the right diagnosis, but so many wrong medications. It's been a rocky these

past few years, but things are finally stabilized around here. My older son is

graduating from college ( there was a time I never thought I'd see this and I

still, with weeks left, it could not happen as he had a set back in Feb., but

recovered rather quickly) and the younger one is in high school. I found a

private one with a very caring atmosphere, otherwise I would have continued home

schooling. Both still have issues, and I still worry, but the storm is abated

for now. All I can say is you are right to seek all the help you can. It was a

combination of hospital, therapy, medications and not giving up that saved them

both. My family,once Norman Rockwellish, then so broken apart, is back too.

After all we went through, deep down they still love and care about one another.

Having this group was a huge help, because there was no one else I could relate

to. I truely believe if you keep turning over rocks, you will find the answer

for your son. Sending you good thoughts and stregnth for your inner spirit. -

Anita

--- > Thanks Pam. I am trying so hard and not many recognize the challenge.

Nothing means more to me than my children and so this really cuts deep.

>

>

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I'm so sorry to hear that you and your ds are going through such a difficult

time. It does sound like he would benefit from a long term facility, as you

mentioned. Many positive thoughts being sent your way.

Fay

>

>

> I had admitted to the hospital today after trying to manage his

> severe anxiety and suicidal behavior over the past couple of weeks. I

> haven't had to do that in a few years. I am broken hearted and sick with

> worry. I put him in a hospital far from home because it was the best that I

> could find at this time. I am seriously considering sending him to or

> a place with a good reputation for a more longterm treatment. I don't know

> how many more hospitalizations he can take before he gives up. Life is so

> unfair and cruel...no child deserves to suffer!

>

> Bonnie

>

>

>

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Dear Bonnie,

I am so sorry about what you are going through right now with . My heart

breaks for you as no mother ever wants to see her child going through what he is

going through. How old is ? I will certainly say a prayer for him, and

you!

> ------------------------------------

>

> Our list archives feature may be accessed at:

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archives calendar . Our links may be accessed at

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accessed at

> http://health.groups.yahoo.com/group//files .

> Our list advisors are Gail B. , Ed.D.(http://www.ocdawareness.com ),

Tamar Chansky, Ph.D.( http://www.worrywisekids.org ), and Dan Geller, M.D. (

http://www.massgeneral.org/doctors/doctor.aspx?ID=18068 ). You may ask a

question of any of these mental health professionals by inserting the words " Ask

Dr.(insert name) " in the subject line of a post to the list. Our list

moderators are Castle, BJ, Barb Nesrallah, and Stormy. You may contact

the moderators at -owner . OCDKidsLoop

membership may be accessed at http://health.groups.yahoo.com/group/ocdkidsloop/

.. Our group and related groups are listed at

http://health.groups.yahoo.com/group/ocdsupportgroups/links . IOCDF treatment

providers list may be viewed at

http://www.ocfoundation.info/treatment-providers-list.php .

> NLM-NIH Drug Information Portal may be viewed at

>

http://druginfo.nlm.nih.gov/drugportal/drugportal.jsp?APPLICATION_NAME=drugporta\

l . IOCDF recommended reading list may be accessed at

http://www.ocfoundation.org/Books.aspx . IOCDF glossary of terms may be

accessed at http://www.ocfoundation.org/glossary.aspx . IOCDF membership link

may be accessed at http://www.ocfoundation.net/membership/ . Drugs.com pill

identification wizard may be accessed at http://www.drugs.com/imprints.php .

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bonny

im so sorry to hear this bonny...just hang in there...it is terrible..i have

been there too...its just so ...i cant find any word for it ..im sorry...i wish

you luck..

alida

To:

From: tuscany_tea@...

Date: Wed, 13 Apr 2011 11:43:28 +0000

Subject: Re: Turn for the worst

I'm so sorry Bonnie. I've walked in your shoes and I know how scary and alone

you must feel. I have 2 boys with a form of OCD, both hosptalized. The older one

went through several wrong diagnosis and wrong medications. The younger one had

the right diagnosis, but so many wrong medications. It's been a rocky these past

few years, but things are finally stabilized around here. My older son is

graduating from college ( there was a time I never thought I'd see this and I

still, with weeks left, it could not happen as he had a set back in Feb., but

recovered rather quickly) and the younger one is in high school. I found a

private one with a very caring atmosphere, otherwise I would have continued home

schooling. Both still have issues, and I still worry, but the storm is abated

for now. All I can say is you are right to seek all the help you can. It was a

combination of hospital, therapy, medications and not giving up that saved them

both. My family,once Norman Rockwellish, then so broken apart, is back too.

After all we went through, deep down they still love and care about one another.

Having this group was a huge help, because there was no one else I could relate

to. I truely believe if you keep turning over rocks, you will find the answer

for your son. Sending you good thoughts and stregnth for your inner spirit. -

Anita

--- > Thanks Pam. I am trying so hard and not many recognize the challenge.

Nothing means more to me than my children and so this really cuts deep.

>

>

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Guest guest

(((hugs))) I hope they are able to help him.

>

> I had admitted to the hospital today after trying to manage his severe

anxiety and suicidal behavior over the past couple of weeks. I haven't had to

do that in a few years. I am broken hearted and sick with worry. I put him in

a hospital far from home because it was the best that I could find at this time.

I am seriously considering sending him to or a place with a good

reputation for a more longterm treatment. I don't know how many more

hospitalizations he can take before he gives up. Life is so unfair and

cruel...no child deserves to suffer!

>

> Bonnie

>

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Guest guest

Awww, Bonnie, so sorry!!! (((hugs))) And after he began that new school, I

thought things would continue to get better. I am so sorry!

What do his doctors (or those who placed him for you) think, any ideas? How old

is he? (re thinking of treatment places)

Gosh - hate that he got to that point!

Do keep us updated on his progress at the current hospital. I imagine they will

look at his meds and try to get him stabilized/better.

>

> I had admitted to the hospital today after trying to manage his severe

anxiety and suicidal behavior over the past couple of weeks. I haven't had to

do that in a few years. I am broken hearted and sick with worry. I put him in

a hospital far from home because it was the best that I could find at this time.

I am seriously considering sending him to or a place with a good

reputation for a more longterm treatment. I don't know how many more

hospitalizations he can take before he gives up. Life is so unfair and

cruel...no child deserves to suffer!

>

> Bonnie

>

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Dear Bonnie,

My heart goes out to you! If I had that magic word I would give to you.

Be brave!

Lots of positive energy to you

All the Best

Ivalo

________________________________

To:

Sent: Wed, April 13, 2011 4:46:50 AM

Subject: Turn for the worst

I had admitted to the hospital today after trying to manage his severe

anxiety and suicidal behavior over the past couple of weeks. I haven't had to

do that in a few years. I am broken hearted and sick with worry. I put him in

a hospital far from home because it was the best that I could find at this time.

I am seriously considering sending him to or a place with a good

reputation for a more longterm treatment. I don't know how many more

hospitalizations he can take before he gives up. Life is so unfair and

cruel...no child deserves to suffer!

Bonnie

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dear bonnie

my heart goes out to you....be strong and stay with people, dont stay

alone...and pray that your sweet heart will get better...but remind yourself one

thing, that he is in a safe place even thought he doesnt want to be there..how

hard must be for him...my son was there too...and when i saw him in that

hospital, my heart broke to pieces...and i hope it works for your child cos for

mine didnt work at all...i hope and wish all the best for you..i hope he is in

good hands..

blessings

alida

To:

From: ivalookking@...

Date: Wed, 13 Apr 2011 10:17:28 -0700

Subject: Re: Turn for the worst

Dear Bonnie,

My heart goes out to you! If I had that magic word I would give to you.

Be brave!

Lots of positive energy to you

All the Best

Ivalo

________________________________

To:

Sent: Wed, April 13, 2011 4:46:50 AM

Subject: Turn for the worst

I had admitted to the hospital today after trying to manage his severe

anxiety and suicidal behavior over the past couple of weeks. I haven't had to

do that in a few years. I am broken hearted and sick with worry. I put him in

a hospital far from home because it was the best that I could find at this time.

I am seriously considering sending him to or a place with a good

reputation for a more longterm treatment. I don't know how many more

hospitalizations he can take before he gives up. Life is so unfair and

cruel...no child deserves to suffer!

Bonnie

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Guest guest

Anita, I'm glad things are going well for your boys & family. I like your " keep

turning over rocks " analogy. Congrats to your oldest for college graduation! :)

>

> I'm so sorry Bonnie. I've walked in your shoes and I know how scary and alone

you must feel. I have 2 boys with a form of OCD, both hosptalized. The older one

went through several wrong diagnosis and wrong medications. The younger one had

the right diagnosis, but so many wrong medications. It's been a rocky these

past few years, but

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Guest guest

Bonnie, I know how difficult this is. I have been through it with my child. I do

want to say one thing, my biggest regret is that I didn't place my dd in her 60

day long term treatment facility sooner. It really was not only life changing

but also I believe saved her life. If you really believe this is what your

child needs I would recommend you do it sooner rather than later. My dd spent

extra years completely disabled because, despite our best efforts, she needed

more than all the treatments we had tried to do. I hope things improve for your

son no matter what route you decide to pursue. Hugs, Stormy

________________________________

To:

Sent: Tue, April 12, 2011 9:46:50 PM

Subject: Turn for the worst

I had admitted to the hospital today after trying to manage his severe

anxiety and suicidal behavior over the past couple of weeks. I haven't had to

do that in a few years. I am broken hearted and sick with worry. I put him in

a hospital far from home because it was the best that I could find at this time.

I am seriously considering sending him to or a place with a good

reputation for a more longterm treatment. I don't know how many more

hospitalizations he can take before he gives up. Life is so unfair and

cruel...no child deserves to suffer!

Bonnie

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Thanks Stormy. I am willing to do longterm treatment - not sure that it's

offered there. part of the problem is that is so well behaved at the

hospital and soft spoken that they think he's not as bad as he is. I hope that

he is in a therapeutic school with staff who will communicate with the hospital

will help. Yesterday, he got angery that I wouldn't take him home and they saw

some of his behavior, but didn't hear the depth of it. Family meeting tomorrow.

Where was your dd hospitalized?

Bonnie

>

> Bonnie, I know how difficult this is. I have been through it with my child. I

do

> want to say one thing, my biggest regret is that I didn't place my dd in her

60

> day long term treatment facility sooner. It really was not only life changing

> but also I believe saved her life. If you really believe this is what your

> child needs I would recommend you do it sooner rather than later. My dd spent

> extra years completely disabled because, despite our best efforts, she needed

> more than all the treatments we had tried to do. I hope things improve for

your

> son no matter what route you decide to pursue. Hugs, Stormy

>

>

>

>

>

> ________________________________

>

> To:

> Sent: Tue, April 12, 2011 9:46:50 PM

> Subject: Turn for the worst

>

>

> I had admitted to the hospital today after trying to manage his severe

> anxiety and suicidal behavior over the past couple of weeks. I haven't had to

> do that in a few years. I am broken hearted and sick with worry. I put him

in

> a hospital far from home because it was the best that I could find at this

time.

> I am seriously considering sending him to or a place with a good

> reputation for a more longterm treatment. I don't know how many more

> hospitalizations he can take before he gives up. Life is so unfair and

> cruel...no child deserves to suffer!

>

> Bonnie

>

>

>

>

>

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Guest guest

Thanks everyone for your well wishes. Bedtime is the toughest. ALso keeping a

stiff upper lip for my daughter. I'll update as I can

Bonnie

>

> I had admitted to the hospital today after trying to manage his severe

anxiety and suicidal behavior over the past couple of weeks. I haven't had to

do that in a few years. I am broken hearted and sick with worry. I put him in

a hospital far from home because it was the best that I could find at this time.

I am seriously considering sending him to or a place with a good

reputation for a more longterm treatment. I don't know how many more

hospitalizations he can take before he gives up. Life is so unfair and

cruel...no child deserves to suffer!

>

> Bonnie

>

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Guest guest

Bonnie, my dd was at Remuda Ranch in Wickenburg, AZ. Hers was a 60 day intensive

inpatient hospitalization for girls with severe, refractory anxiety. After she

finished that, they then recommended their residential program for her. From

looking at the website I believe the program may have changed since my dd was

there 2 years ago. It looks like it is just residential now, instead of

inpatient, for anxiety and that it may be 45 days instead of 60. I know Remuda

was having a lot of trouble getting insurance companies to reimburse as much for

their anxiety program as they did for their eating disorders program. This is

the reason for the change. It was a very expensive program. My dd saw a pdoc 7

days a week there and they were finally able to get her meds right for her

comorbid conditions. It was a fabulous program. I have heard good things about

, so maybe that would be a good option. I hope your family meeting goes

well. Stormy

________________________________

To:

Sent: Thu, April 14, 2011 7:25:55 AM

Subject: Re: Turn for the worst

Thanks Stormy. I am willing to do longterm treatment - not sure that it's

offered there. part of the problem is that is so well behaved at the

hospital and soft spoken that they think he's not as bad as he is. I hope that

he is in a therapeutic school with staff who will communicate with the hospital

will help. Yesterday, he got angery that I wouldn't take him home and they saw

some of his behavior, but didn't hear the depth of it. Family meeting tomorrow.

Where was your dd hospitalized?

Bonnie

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archives calendar . Our links may be accessed at

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accessed at

http://health.groups.yahoo.com/group//files .

Our list advisors are Gail B. , Ed.D.(http://www.ocdawareness.com ), Tamar

Chansky, Ph.D.( http://www.worrywisekids.org ), and Dan Geller, M.D. (

http://www.massgeneral.org/doctors/doctor.aspx?ID=18068 ). You may ask a

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Dr.(insert name) " in the subject line of a post to the list. Our list

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I am just reading this Bonnie. BIG HUG to you!!! So sorry to hear things have

evolved to this. When the anxiety gets so high and if they are not getting any

relief it becomes intolerable, they can feel unable to go on, understandably.

We had this a couple months ago, but thankfully it passed. So hard, I know. But

now you know he is safe, and hopefully you can have some time to decide on next

steps.

I remember you were making changes with the medication. Do you think this may

be part of why this came about? At least in the hospital that is the focus, to

get some stability with the meds. That can make all the difference, improved

mood, bring the anxiety down, and he will start to see that he will be able to

cope again.

Also, they may be able to be clearer on what all is going on, if that is a

consideration. They can better assess this if they are seeing everyday.

Very hard to have them at a distance. Can you call and talk to him daily, get

an idea how he's doing, to feel reassured.

Hang in there Bonnie! I will be thinking of you, keep us updated.

More hugs!

Barb

>

> I had admitted to the hospital today after trying to manage his severe

anxiety and suicidal behavior over the past couple of weeks. I haven't had to

do that in a few years. I am broken hearted and sick with worry. I put him in

a hospital far from home because it was the best that I could find at this time.

I am seriously considering sending him to or a place with a good

reputation for a more longterm treatment. I don't know how many more

hospitalizations he can take before he gives up. Life is so unfair and

cruel...no child deserves to suffer!

>

> Bonnie

>

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Guest guest

Thanks to everyone for your support. I have the family meeting tomorrow. Matt's

been very anxious there - the therapist called and said " he has a lot of fears "

- no kidding!!!! He has his mood disorder, but as I have said, I know there's

more to it..

I honestly think this episode is bipolar in nature, but I think that the anxiety

contributes to his medication response and I don't think I've had good

medication management. Clear cut episodes of instability should be able to be

managed/prevented. The baseline behavior could then be evaluated and worked on

therapeutically. If I had to pick a trigger or two, I would say that

transferring to a new school and experiencing bad grades for the first time in

his life is it.

The hospital he's in does psychoeducational testing and program recommendations

- I hope that gives me some info. I can call a couple times a day and so can

he. I have been visiting him daily since he was admitted (150 mi round trip),

but that may have to change some next week. I'm doing OK, just tired and

worried and missing my boy. He was kind of pitiful yesterday and it broke my

heart - gets to me mostly at bedtime. Worried about my daughter too.

I wish my answers for him were as deep as my worries - I'd have solved this long

ago!

Bonnie

> >

> > I had admitted to the hospital today after trying to manage his

severe anxiety and suicidal behavior over the past couple of weeks. I haven't

had to do that in a few years. I am broken hearted and sick with worry. I put

him in a hospital far from home because it was the best that I could find at

this time. I am seriously considering sending him to or a place with a

good reputation for a more longterm treatment. I don't know how many more

hospitalizations he can take before he gives up. Life is so unfair and

cruel...no child deserves to suffer!

> >

> > Bonnie

> >

>

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Guest guest

Bonnie, I am wondering what you mean by, " Clear cut episodes of instability

should be able to be managed/prevented? " My dd's bipolar episodes have never

really had triggers. When she needs a med adjustment her manic or depressive

episodes happen regardless of what else is going on and don't stop until the med

changes take affect. There has never been an outside trigger for her. Anxiety

though is a very large part of her bipolar but acts different in her then her

anxiety that is not part of her bipolar. I hope things improve soon. Take Care,

Stormy

________________________________

To:

Sent: Thu, April 14, 2011 7:56:53 PM

Subject: Re: Turn for the worst

I honestly think this episode is bipolar in nature, but I think that the anxiety

contributes to his medication response and I don't think I've had good

medication management. Clear cut episodes of instability should be able to be

managed/prevented. The baseline behavior could then be evaluated and worked on

therapeutically. If I had to pick a trigger or two, I would say that

transferring to a new school and experiencing bad grades for the first time in

his life is it.

The hospital he's in does psychoeducational testing and program recommendations

- I hope that gives me some info. I can call a couple times a day and so can

he. I have been visiting him daily since he was admitted (150 mi round trip),

but that may have to change some next week. I'm doing OK, just tired and

worried and missing my boy. He was kind of pitiful yesterday and it broke my

heart - gets to me mostly at bedtime. Worried about my daughter too.

I wish my answers for him were as deep as my worries - I'd have solved this long

ago!

Bonnie

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Bonnie, you take care of yourself too, I know you have to be worn out

emotionally and physically (150m daily, plus regular parent duties, etc.).

's suffered with the bad grade thing too since he began Chapel Hill.

Quite an adjustment for him. I don't think he has adjusted totally. Me either,

lol.

At least by next week, Matt hopefully will be used to being there so maybe you

can get by with just phone calls some days and give yourself a rest and more

time here & there to your daughter. Quality time, just 20-30 minutes for her &

you to spend together can help. With 3 sons, single parent, that's what I had to

try and do each week. Note I said *try*!

((hugs))

> > >

> > > I had admitted to the hospital today after trying to manage his

severe anxiety and suicidal behavior over the past couple of weeks. I haven't

had to do that in a few years. I am broken hearted and sick with worry. I put

him in a hospital far from home because it was the best that I could find at

this time. I am seriously considering sending him to or a place with a

good reputation for a more longterm treatment. I don't know how many more

hospitalizations he can take before he gives up. Life is so unfair and

cruel...no child deserves to suffer!

> > >

> > > Bonnie

> > >

> >

>

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Guest guest

What I mean is that his behavior changes dramatically at certain times and I can

predict that he will struggle in the spring. It's a seasonal thing that heats

up in March - May. I understand that this is a bipolar thing (a kind of reverse

seasonal affective disorder), though not all bipolar illnesses behave this way.

What makes it worse is any anxiety associated with the seasonal chanage (like

his school issues). His behavior changes so dramatically that you'd realize

somethig was happening - it truly is a day and night difference. Why then, the

dilemma about how to approach the issues?

's baseline behavior is filled with anxiety (comorbidity?). It seems that

this aggravates his mood disorder and I wonder that if this is managed, could he

avoid the annual sping breakdown? I think that someone should be able to

anticipate his springtime needs and avert his issues with meds/intensive

therapy? The only time that we were able to avoid a spring breakdown was when

he did exposure therapy for his obsessive fears about throwing up. The

therapist that helped us with that moved to Boston!

Do you see seasonal changes?

Bonnie

>

> Bonnie, I am wondering what you mean by, " Clear cut episodes of instability

> should be able to be managed/prevented? " My dd's bipolar episodes have never

> really had triggers. When she needs a med adjustment her manic or depressive

> episodes happen regardless of what else is going on and don't stop until the

med

> changes take affect. There has never been an outside trigger for her. Anxiety

> though is a very large part of her bipolar but acts different in her then her

> anxiety that is not part of her bipolar. I hope things improve soon. Take

Care,

> Stormy

>

>

>

> ________________________________

>

> To:

> Sent: Thu, April 14, 2011 7:56:53 PM

> Subject: Re: Turn for the worst

>

>

> I honestly think this episode is bipolar in nature, but I think that the

anxiety

> contributes to his medication response and I don't think I've had good

> medication management. Clear cut episodes of instability should be able to be

> managed/prevented. The baseline behavior could then be evaluated and worked

on

> therapeutically. If I had to pick a trigger or two, I would say that

> transferring to a new school and experiencing bad grades for the first time in

> his life is it.

>

>

> The hospital he's in does psychoeducational testing and program

recommendations

> - I hope that gives me some info. I can call a couple times a day and so can

> he. I have been visiting him daily since he was admitted (150 mi round trip),

> but that may have to change some next week. I'm doing OK, just tired and

> worried and missing my boy. He was kind of pitiful yesterday and it broke my

> heart - gets to me mostly at bedtime. Worried about my daughter too.

>

>

> I wish my answers for him were as deep as my worries - I'd have solved this

long

> ago!

>

> Bonnie

>

>

>

>

>

>

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Guest guest

Bonnie, seasonal can definitely affect people with bipolar. When I said that my

dd's never had triggers I was referring more to situational type factors, not

something like seasonal. My dd's bipolar is independent of what else is going

on. When you say, why then the dilemma about how to approach the issues, are you

referring to his treatment team? I think March-May is a very difficult time for

lots of kids, even those who aren't bipolar, based on working in a school and

also what I see on other boards. For people with bipolar, spring often brings

mania. I believe that if my dd was having a seasonal response her pdoc would

either add a med or change a dose right away to try to stop it in its tracks.

Hmm, it is interesting that your son was able to avoid a spring breakdown by

working on the anxiety piece. I don't think that would happen with my dd. Her

bipolar meds are very critical and for her when they aren't right outside things

like therapy (any kind, she has been through many) don't make a difference. If

the bipolar is under control and the anxiety is separate than the exposure might

work for that. An example for my dd is that when she was in the long term

intensive inpatient hospitalization they got her her anxiety to a really good

point and then her bipolar was set off and they couldn't stop until the med

change took affect, even though the anxiety piece was finally under control. As

I said my dd's has anxiety as both part of bipolar and a separate issue but hers

seems to behave differently depending on the cause. This past year her bipolar

is under control and she did not have a seasonal flare up. She did still have

some anxiety flare ups but is managing them much better. I hope things improve

soon for your son. Stormy

________________________________

To:

Sent: Fri, April 15, 2011 8:59:41 AM

Subject: Re: Turn for the worst

What I mean is that his behavior changes dramatically at certain times and I can

predict that he will struggle in the spring. It's a seasonal thing that heats

up in March - May. I understand that this is a bipolar thing (a kind of reverse

seasonal affective disorder), though not all bipolar illnesses behave this way.

What makes it worse is any anxiety associated with the seasonal chanage (like

his school issues). His behavior changes so dramatically that you'd realize

somethig was happening - it truly is a day and night difference. Why then, the

dilemma about how to approach the issues?

's baseline behavior is filled with anxiety (comorbidity?). It seems that

this aggravates his mood disorder and I wonder that if this is managed, could he

avoid the annual sping breakdown? I think that someone should be able to

anticipate his springtime needs and avert his issues with meds/intensive

therapy? The only time that we were able to avoid a spring breakdown was when

he did exposure therapy for his obsessive fears about throwing up. The

therapist that helped us with that moved to Boston!

Do you see seasonal changes?

Bonnie

>

>

>

>

>

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Guest guest

Awwwww, Bonnie. I'm heartbroken for you and . :o(

Big, big ((((hugs))))

I haven't been on much this week because my wretched heart has been on the

rampage, but got on tonight (or maybe I should say, early morning) to try to

catch up. I was so sad to read your post.

You mentioned he is getting bad grades. . Is that at his new school?

You will be in my thoughts and prayers. Please keep us updated. And try not to

wear yourself too thin. I know it is hard. When they are struggling, it is

hard to rest. The stress wears you down to exhaustion. Can you take some time

off of work?

Hugs,

BJ

>

> I had admitted to the hospital today after trying to manage his severe

anxiety and suicidal behavior over the past couple of weeks. I haven't had to

do that in a few years. I am broken hearted and sick with worry. I put him in

a hospital far from home because it was the best that I could find at this time.

I am seriously considering sending him to or a place with a good

reputation for a more longterm treatment. I don't know how many more

hospitalizations he can take before he gives up. Life is so unfair and

cruel...no child deserves to suffer!

>

> Bonnie

>

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Guest guest

Bonnie,

Sorry I've been so out of the loop with family stuff that I realized I

had 400 messages from the group that I hadn't read so I probably am

missing a lot that you've already gone over. First of all, I'm sorry

that your son has had to go into the hospital. I know that is

completely stressful. Thankfully, my daughter only had to be admitted

once for a week when she was 8 and she is nearly 16 now.

I was trying to glance at posts before I deleted to see if there was

anything I could help with and both the spring time issues and vomiting

fears caught my eye. My daughter's OCD centers around a fear of

vomiting. When her medication is working well, you would never know

anything is wrong with her. When it's not--full blown anxiety about

vomiting (and then she gets afraid to eat because her stomach is so

anxious), separation anxiety, she's just a mess. Has your son ever been

stable on a medication? Has one worked for him? My daughter is on 60

mgs. of Prozac currently, but 3 different times has had to have it

supplemented by an antipsychotic. Zyprexa was the one that worked

wonders for her, but she was also severely underweight so that's why

that one was chosen. It causes so much weight gain I wouldn't go that

route unless I had exhausted the others. BUT, she was stable within

days of starting it and the longest she was on it was 2 mos. Then she

was able to wean off and do fine with just the Prozac again. When her

meds aren't working, she is just as you described your son--constant

vomit fears.

She also has more difficulty in the spring. Her psychiatrist years ago

wanted to label her bipolar, but I really believe that it's her seasonal

allergies that causes it. It's an autoimmune response just like a

reaction to a strep infection would be. I have actually found a few

articles that support that. Now, her pdoc disagrees, but I think we

will learn a lot more about body/brain autoimmune responses in the

coming years and I wouldn't discount it. She doesn't have any other

bipolar issues except for the fact that her OCD flares in the spring.

I hope you can get the relief needed for your son. It's a terrible

feeling knowing that they are in so much distress, I know. Please keep

us posted on how he is doing!

Take care,

Dina

>

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