Re: Hi--New Member here---Intro. Post

[Guest guest]

Hi ! I am Liz From southern NJ near Philly. I will be 50 on 3/18. I

started this disease at age 16. I would like to be optimistic for you and hope

that you get long remisions. They do happen . I had 3 ....9 year remissions.

I am now in the middle...months good ...months tired...some days I hurt some

I don't...Ok Let us know how you are Liz NJ

[Guest guest]

Welcome to the group ,

We are so glad to have you.

Lynn, single, 41 and in Wisconsin

-- Hi--New Member here---Intro. Post

Hello Everyone,

My name is and I am so thrilled to have found a place like this group.

I was diagnosed with JRA when I was 12 yrs. old but I remember feeling so

sick as early as 3. In my case, the JRA was so systemic that it took 9 yrs.

for a Dr. to " see " my red, swollen knee joints to say I had JRA.--After a

yr. of treatment on coated aspirin all my symptoms disappeared. I felt

almost healthy for the first time in my short life.-- At the age of 14

however, I started having problems sleeping and pain in my soft

tissues.Icouldn't get enough rest. The Dr. diagnosed

Fibromyalgia.--which was a the

beginning of Dr's ignoring other symptoms that would manifest, later one,

that would not exactly fit the profile of Fibromyalgia. And this lead to no

treatment of JRA.

When I turned 27, I went into a down hill incline with my health. My feet

began to swell on the bottoms and the ankles where so weak. I found it so

hard to walk, let alone to have a life at that time. A week later, my hands

began the same kind of symptoms. A month later I saw a Rheumatologist and he

said " You are one of the less fortunate ones. You have a form of

Inflammatory Arthritis. Take 20 mg. of Prednisone and 500 mg of Naproxin

twice daily. " Later, I found out he sent a report to my PCP stating I had

RA. I was on this treatment for about 8 months, and all symptoms left me

except bouts of a high fever that went unexplained. And again the Dr's

ignored the RA and took me off the meds--I was left with only the drugs to

treat the FMS. Then after the birth of my son in 2000 I began showing

symptoms of RA once more. And it really got bad after the birth of my second

son in 2001.So, I have been on a long rad since then trying to find a Dr. to

treat RA along with FMS. And in Jan. 2006 I have finally found one who is

treating me with MTX to " test and see " if this is truly RA.--I test

negative (except when I was 12) in all tests for RA and Lupus. And just

last week, the Rheumy I see said he is going to research this and find out

if I have Still's or another form of JRA. He says it went dormant and has

now come out.

I am happily married to my life mate, who is such a blessing. He is very

kind and understanding through this whole journey of illness. He is my

support system and is lending a shoulder to cry on and loving arms to

encircle me with love. We have two loving little boys--, who will be

turning 6 in May, and , who is 4.

My family history for such diseases in wide and long. My mother has Lupus

SLE and Diabetes with auto immune Thyroid. And through out her family there

are RA, Lupus and a whole host of auto immune diseases. One would think this

would be enough for one person but not in my case. My father's family has

Lupus and RA, and a few others. Genetically speaking, I'm a wreck! lol.

I think that's about it. I'm sorry for such a long post. If you have any

questions feel free to ask and I will do my best to answer.

Best Regards,

--

SPEEDY :-)

" Love endures all things. "

[Guest guest]

Welcome to the group . I hope you will find as much support, caring and

information as well as a host of new friends as I have since joining in Jan of

this year.

---------------------------------

Yahoo! Mail

Bring photos to life! New PhotoMail makes sharing a breeze.

[Guest guest]

Welcome aboard! It's nice to have seatmates on this roller coaster

ride, isn't it?

in Maine

>

> Hello Everyone,

> My name is and I am so thrilled to have found a place like

this group.

>

[Guest guest]

Hello ,

My name is Melt and I was diagnosed in 1977. Welcome to our family and let us

know if we can help in any way.

Good day, Melt in So. Calif.

----- Original Message -----

From: KC

Hello Everyone,

My name is and I am so thrilled to have found a place like this group.

[Guest guest]

Hi

Welcome to the group. It seems the treatment you are getting is helping even

if the diagnosis is not quite there yet. Hope you continue making progress

and get any help you can from us.

All the best to you

Joan UK

Hi--New Member here---Intro. Post

Hello Everyone,

My name is and I am so thrilled to have found a place like this

group.

I was diagnosed with JRA when I was 12 yrs. old but I remember feeling so

sick as early as 3. In my case, the JRA was so systemic that it took 9

yrs.

for a Dr. to " see " my red, swollen knee joints to say I had JRA.--After a

yr. of treatment on coated aspirin all my symptoms disappeared. I felt

almost healthy for the first time in my short life.-- At the age of 14

however, I started having problems sleeping and pain in my soft

tissues.Icouldn't get enough rest. The Dr. diagnosed

Fibromyalgia.--which was a the

beginning of Dr's ignoring other symptoms that would manifest, later one,

that would not exactly fit the profile of Fibromyalgia. And this lead to

no

treatment of JRA.

When I turned 27, I went into a down hill incline with my health. My feet

began to swell on the bottoms and the ankles where so weak. I found it so

hard to walk, let alone to have a life at that time. A week later, my

hands

began the same kind of symptoms. A month later I saw a Rheumatologist and

he

said " You are one of the less fortunate ones. You have a form of

Inflammatory Arthritis. Take 20 mg. of Prednisone and 500 mg of Naproxin

twice daily. " Later, I found out he sent a report to my PCP stating I had

RA. I was on this treatment for about 8 months, and all symptoms left me

except bouts of a high fever that went unexplained. And again the Dr's

ignored the RA and took me off the meds--I was left with only the drugs to

treat the FMS. Then after the birth of my son in 2000 I began showing

symptoms of RA once more. And it really got bad after the birth of my

second

son in 2001.So, I have been on a long rad since then trying to find a Dr.

to

treat RA along with FMS. And in Jan. 2006 I have finally found one who is

treating me with MTX to " test and see " if this is truly RA.--I test

negative (except when I was 12) in all tests for RA and Lupus. And just

last week, the Rheumy I see said he is going to research this and find out

if I have Still's or another form of JRA. He says it went dormant and has

now come out.

I am happily married to my life mate, who is such a blessing. He is very

kind and understanding through this whole journey of illness. He is my

support system and is lending a shoulder to cry on and loving arms to

encircle me with love. We have two loving little boys--, who will be

turning 6 in May, and , who is 4.

My family history for such diseases in wide and long. My mother has Lupus

SLE and Diabetes with auto immune Thyroid. And through out her family

there

are RA, Lupus and a whole host of auto immune diseases. One would think

this

would be enough for one person but not in my case. My father's family has

Lupus and RA, and a few others. Genetically speaking, I'm a wreck! lol.

I think that's about it. I'm sorry for such a long post. If you have any

questions feel free to ask and I will do my best to answer.

Best Regards,

--

SPEEDY :-)

" Love endures all things. "

[Guest guest]

Dear ,

A very warm welcome to our group! Everyone here is friendly, helpful, and we

have several very knowledgeable people on this site.

I'm terribly sorry you've had such a long, rough journey! Hopefully you will

find a Rheumatologist who has experience treating other Stills patients, or is

willing to consult with other Rheumatologists who have experience with Stills

Disease.

Feel free to ask questions of the group. I think you will find many wonderful

friends here. I sure have! My name is Barbara, I've had Stills Disease for

over 17 years, and am now 47 years old.

You may want to ask Bob Himes for brochures on Stills Disease. His email

address is: Oldgoat378@.... If you send him your mailing address,

he'll be happy to mail you as many as you need. Hand them out to doctors,

nurses, family, friends, and others who ask " What is Stills Disease? " It

becomes a tiresome question and our website is conveniently on the back!

Take care and feel better.

In Peace,

Barbara Gardner

Ventura, CA

" Never doubt that a small, group of thoughtful, committed citizens can change

the world. Indeed, it is the only thing that ever has. " Margaret Mead

[Guest guest]

>

> Dear ,

>

> A very warm welcome to our group! Everyone here is friendly,

helpful, and we have several very knowledgeable people on this site.

>

> I'm terribly sorry you've had such a long, rough journey!

Hopefully you will find a Rheumatologist who has experience treating

other Stills patients, or is willing to consult with other

Rheumatologists who have experience with Stills Disease.

>

> Feel free to ask questions of the group. I think you will find

many wonderful friends here. I sure have! My name is Barbara, I've

had Stills Disease for over 17 years, and am now 47 years old.

>

> You may want to ask Bob Himes for brochures on Stills Disease.

His email address is: Oldgoat378@... If you send him your mailing

address, he'll be happy to mail you as many as you need. Hand them

out to doctors, nurses, family, friends, and others who ask " What is

Stills Disease? " It becomes a tiresome question and our website is

conveniently on the back!

>

> Take care and feel better.

> In Peace,

> Barbara Gardner

> Ventura, CA

>

> " Never doubt that a small, group of thoughtful, committed

citizens can change the world. Indeed, it is the only thing that

ever has. " Margaret Mead

>

>

>

[Guest guest]

Welcome Pernilla;

My nickname is Melt and I want to say hi. Don't worry about your spelling it

was just fine to read. I hope your day is not too bad.

Melt, Southern California USA

----- Original Message -----

>hellow. myname is pernilla and i live in sweden.about 10 years

ago ,i got sick in still disease.

[Guest guest]

*Hello and Welcome Pernilla,*

*It is nice to meet you. Don't worry about your spelling. It is just fine.*

*You do not have anyone who can tell you about this disease? Well, you have

come to the right place. Still's is an auto immune disease under the

category **of Rheumatoid illnesses. (form of RA) As of yet, there is no

known cure however, with the proper treatment one can achieve remissions.*

**

*Welcome to the group. I'm sure you will find all the information you need.

And*

*please feel free to ask questions. This is how we all learn.*

**

* in Oregon*

>

>

> >

> >