Re: Re: PANDAS?--Kara

[Guest guest]

Hi Kara, I wonder what is the titer of your dd's ASO or DNAesb Antibody? I will

tell our pediartric about your case if you don't mind and let him know your dd

is on such a high doesage every day for long term. I told him last time about

possibility of taking zithromax for long term on a daily basis, my pedi was kind

of hesitated to do so. I also will try if he is opened minded enough to take

time to call Dr. K at Hinsdale IL, but I doubt he will do so. So, I need to show

him some case for him to study, like your case, Deana's son ro Judy's child's

case who are on antiboitic.

 

Rei

 

Subject: Re: PANDAS?

To:

Date: Monday, July 19, 2010, 5:14 AM

 

Hi Rei,

That sounds a little low to me. My dd8, 60 lbs started on 350 mg for 5 days,

then 175 for a month. After our first visit to Dr. B. He upped it to 350mg again

for a month and then dropped it to 200mg. That's what she is on now and will be

through the winter, assuming she has no new exacerbations. She's about 90-95%

better.

We also gave her Motrin twice a day as well as Inositol...

Kara

> >

> > This is an intro of sorts, but ties into Dr. Collard. My 9yo son was

diagnosed

> >Aspergers at age 5 by Texas Childrens, got scarlet fever which the ped would

not

> >treat for 10 days until the lab results came back, and resulted in PANDAS. We

> >have been going to see Lucas at Thoughtful House in Austin, and they

> >diagnosed the PANDAS at age 7/8, and we've had good luck. Recently saw Dr.

> >Collard's name as a local Houston ped who treats PANDAS, went to see her, and

> >she was adamant about not only not treating, but not sure it exists, and in

> >direct conflict with Thoughtful House overall. So Beth in Houston, you're

> >right...we need to get her name off the list! Have

> >

>

>