Re: Provigil (modafinil)

[Guest guest]

Hi ,

Yes, I've taken Provigil also. I did find it helped with the sleepiness and

somewhat decreased the fog. It was also VERY expensive and not covered by

insurance for ME/CFIDS, so my doc is giving me samples. I had to start out at

very low dose and work my way up to 100mg a day. You can take up to 200mg, but

I haven't gotten there yet and may not.

Good Luck!

Jane

nanc3p0 wrote:

Yesterday I began taking Provigil (modafinil)put out by Cephalon,

Inc.,

to help sleepiness. This drug is said to help with sleepiness.

I normally reject prescription drugs but I will give this a 3 week

trial and see if it helps keep me more alert during the day. I have

been advised by the Nurse Practitioner at my doctor's office that it

may help. I am to take it with breakfast each day.

Perhaps others have information on this drug.

[Guest guest]

I took only 1 dose of it and my heart began racing out of control...I had to go

to the er at the local hospital. They told me I was extremely sensitive to it

so to cease taking it. They also told me not to take any decongestants.

[Guest guest]

These are samples of 200 mg and they have made me dizzy and nauseous. How alert

can you be if you are dizzy?

I wouldn't take them if they were not samples and I will probably not take any

more.

How did you take it and did it take time to become effective? It seems to me

that it didn't keep me awake but I was miserable all day with the side effects.

Re: Provigil (modafinil)

Hi ,

Yes, I've taken Provigil also. I did find it helped with the sleepiness and

somewhat decreased the fog. It was also VERY expensive and not covered by

insurance for ME/CFIDS, so my doc is giving me samples. I had to start out at

very low dose and work my way up to 100mg a day. You can take up to 200mg, but I

haven't gotten there yet and may not.

Good Luck!

Jane

[Guest guest]

Which comes back to my standard stance on prescription drugs. They often cause

more trouble than they help.

Re: Provigil (modafinil)

I took only 1 dose of it and my heart began racing out of control...I had to

go to the er at the local hospital. They told me I was extremely sensitive to it

so to cease taking it. They also told me not to take any decongestants.

[Guest guest]

Hi,

Decongestants do the same thing to me...I never take them, I never take any of

the over the counter cold meds...

Jeanette

Re: Provigil (modafinil)

Which comes back to my standard stance on prescription drugs. They often cause

more trouble than they help.

[Guest guest]

Well , I started by breaking my samples into 4 pieces, (50mg each) and

took 1 in the am, then 1 in the afternoon (around lunch) so it wouldn't keep me

up at night. I noticed this lessend those effects. Like I said, I don't think

I'll ever work up to 200mg, even tho the doctor thinks I should....I think that

is too much, at least for me and maybe for you too!

I noticed a clearing of the brain fog within a couple of days, and the

vertigo subsided some - although I have suffered vertigo occasionally throughout

this disease, so it's hard for me to tell sometimes, ya know? I know I don't

have the daytime sleepiness as bad.

You know how it is, sometimes we trade one symptom for another, I guess it

just depends what you are willing to put up with......

Hope this helped and hope you can find your path,

Jane

Engel wrote:

These are samples of 200 mg and they have made me dizzy and nauseous.

How alert can you be if you are dizzy?

I wouldn't take them if they were not samples and I will probably not take any

more.

How did you take it and did it take time to become effective? It seems to me

that it didn't keep me awake but I was miserable all day with the side effects.

[Guest guest]

Yup - I agree!

Jane

Engel wrote:

Which comes back to my standard stance on prescription drugs. They

often cause more trouble than they help.

Re: Provigil (modafinil)

I took only 1 dose of it and my heart began racing out of control...I had to go

to the er at the local hospital. They told me I was extremely sensitive to it so

to cease taking it. They also told me not to take any decongestants.

[Guest guest]

Hi! I'm new here and tend to be a lurker, but I tried Provigil 3 years

ago and it bottomed out my BP to the point of becoming unconscious. My

sister takes Provigil to help her stay awake during the day. I am very

sensitive to a lot of meds.

I was recently diagnosed with mitral valve prolapse. Not bad for most

people but I am symptomatic and take meds. This diagnosis explained why my

heart had been having pounding episodes, why I had been having anxiety and

panic spells, and why I had chest pain. My doc told me to avoid cold meds

because they would increase my heart rate.

[Guest guest]

Hi :

I tried Provigil for about 4 days and went off it. Within a 1/2 hr of taking

it, it made me feel so alive. I just wanted to clean the house and was so

pumped up. Then about 5 hrs. later I had extreme fatigue. It was such a big

letdown and didn't cope very good with. I wanted to go to bed.

Then by the third day I lost my appetite. As soon as I stopped it, I got my

appetite back. My doc said alot of MS people take it for their fatigue and

works real well.

When I was talking to Dr. Bell I told him about that. He said he had done

studies on that with his patients. He said for his CFS patients, it didn't

work.

Lou

nanc3p0 wrote:

Yesterday I began taking Provigil (modafinil)put out by Cephalon,

Inc.,

to help sleepiness. This drug is said to help with sleepiness.

I normally reject prescription drugs but I will give this a 3 week

trial and see if it helps keep me more alert during the day.

[Guest guest]

Thanks, Lou,

I haven't heard one positive report on Provigil. I lasted 2 days with it.