Re: New to list

[Guest guest]

---hi karen

quite a story i dont know about explaining it to you when you have

not been properly diagnosed ..

even if you have been properly diagnosed i fel safe in recomending a

few things to you --these are the things i would do.

always spiritual/reiki healing

always look at nutrition very carefully ensure you are getting what

you need

massage -

attention to all your elimination channels

then some way of determining that your glands are operating

properly .

then we can look at spiritual psychological aspects too --that you

are deriving enough from your enviroment , work , and the right kind

of people around you.

you say blood tests been done which ones there are so many

all these are massive factors in our make up.

and my full sympathies go to you patients should not have to do

their own research when theya re so unwell it is ridiculous.

but most concerning of all you said

my labs are good so all they do is give me paxil or

> zoloft or something like that.

which brings me to a good point you must sureely appreciate their

are good doctors and very poor ones .

the best doctors reccomend these kind of things i did say best .

karma therpay

spiritual/reiki healing

attention to nutrition

massage

considertion of psychological/spiritual aspects

consideration of attitudes

attention to elimination channels

i could go on and on here ..but what you do find that good doctors

do not just recomend drugs . its finding the good ones that are the

problem.

now only read on if you want to learn what is going on --and do

remenber some of the people i mention next i am persopnaly aqainted

wi There are quite a few points to consider one of which is why if

this is so good as you say why are we not being told about it. Why

indeed?

Well I am going to tell you about something that maybe less than 1%

of the population even understand.

The answer –vested interest and quite a bit of apathy and scientific

arrogance.

There are a few very important points that I would like to cover on

the subject of drugs and research and treatment At present the

system in England is this, all treatment recommended by the NHS

should be tested and approved and quite rightly so. Obviously it

costs vast sums of money to test and approve treatments because of

the possible damage to people and the subsequent litigation costing

millions of pounds. The point is this Where does this money come

from to test and approve treatments?

By far the biggest source is the drug companies.

So take for example a researcher might go along to his local drug

company and tell them his findings about this treatment he has been

working on which is of outstanding value but needs testing further

or approving, you might think they would be falling over themselves

to know more –right, you could not be more wrong.

By and large only treatments, which show the promise of good deal of

a profit, will even get examined.

Because they are in business to make a profit, not for serving the

people.

So many of the thousands of therapies which they see as having no

profit potential do not get approved and thus by and large do not

get recommended by your local doctor or hospital.

Despite The fact that some of them do have overwhelming benefits

some, which have saved needless operations, needless amputations,

needless pain and trauma, needless kidney failures and much loss of

life.

This will apply to any country where most research is being done by

drug companies –

they would probably laugh in your face if you went there with a

promising therapy which was so cheap anyone could get it.

Do you really think they would invest thousands of pounds in any

therapy which did not show the promise of good profit.

Your local G.P/ doctor is not a researcher, do you clearly

understand that

in the main he is told…………… what to prescribe …………. he does not

even have the time often to look at research.

In fact some G.P .s doctors have had action taken against them for

prescribing simple supplements. They are in a difficult position in

a way many would like to prescribe many different therapies but many

feel they cannot for action could be taken against them.

This does not help you does it though.

At this minute 2004 approx 5000 Beds are being taken up by people

in the UK who have had adverse reactions to drugs. Some will die

others will be maimed .A serious amount of suffering is taking place

on a scale that makes some wars look like a minor infringement. That

is a fact

So Mr/Mrs patient in 99% of the time because of this system you will

probably only get recommended drugs.

Primarily because of deliberate government policy not to fund

research into other therapies.

Have you heard your local doctor recommend, Massage, Spiritual

healing, Knieisiology Herbs, Light therapy, Colour therapy,

Regression therapy, Osteopathy, Zappers, Magnetic devices,

Electrical Frequency devices.has he mentioned detoxing , reiki,

massage, colonics, enemas, sweat baths , accupuncture, tai chi,

yoga, hypnosis.not to mention castor oil packs epsum salt packs

etc etc.

Has he ever mentioned the power of nutrition what you eat how much

protein, carbo, vitamins, water you take in etc.

Has he ever recommended a detox ..

All of these have shown their inherent worth with thousands if not

millions of testimonials.

As you can see this system in its present state is inherently

flawed, that is

Until the day comes when most of the research and testing is done

by an agency with no vested interests attached and a very clear

agenda of being objective. Acting for the people. Printing and

revealing all results good and bad.

What also clouds the issue further is the fact that some of these

drugs work well but that is not to say that there isn't something

more natural better.

Moving on to a more positive note .One of the biggest problems we

see when giving this material is that a lot of people do not have

good evaluation skills. They rely on a white coat, a hospital

building, the sound of a persons voice to sway their thinking into

accepting treatments when they are ill. Like lambs they are taken

down paths some of which will lead them into untold suffering .

Of course this is what some of these drug companies rely on the vast

sums of money which can be generated are enormous.

So as the wise among you will see a little investment in time over

your health could be a very wise move indeed. Well we move now along

to our little protocol the principles of which will apply to many

other health problems as well.

best for now

phil

[Guest guest]

The only ones I have seen that recommend what you are saying on the more

natural based level of healing is my local holistic doctor.. But I am more for

the full body healing without drugs if I can do it that way.. I just hope all

that is going on is a vitamin imbalance due to not eating right and being

under a great deal of stress.. But I have been taking some mineral drops and

every time I take them I get so tired and very hungry and then I eat and sleep

like all day off and on and start feeling a little better.. But I just hope I

am getting better and healing takes more time than GP docs pills they keep

pushing.. Thank you for the information.. I am going to try and follow all this

information and get as more information as I can on the topics cause I wanna

get better as soon as I can.

Have a wonderful night...

[Guest guest]

Well I have had a full hormonal panel ran and I do have so elevated levels

like testosterone ACTH and prolactin. They said I had PCOS because of that.

Then they said they ran a thyroid panel and it was normal, my CBC was normal I

am not pregnant and all my normal chemicals are all normal as well .. they

checked my reflexes and said I am okay from what they can tell but they did not

run a CT or a MRI. So I guess all I can do is take their word for it and work

on healing my mind body and spirit and go from there.. Do you feel that

getting you body back in balance you can heal almost anything that goes wrong

with the body?

[Guest guest]

Hi ,

You stated that you had " some " blood tests done and have not been

diagnosed yet. Those blood tests you mentioned could be anything to

nothing and what I would tell you to do is to go to

a " indocrinologist " . He will order a battery of tests based on your

physical signs upon examination. Mine was very detailed lists of tests

and I requested a copy of those results also in the event I wanted to

take with me to another doctor or do some research myself.

I too had thought this was my problem prior to being diagnosed and

suffered for 2 yrs until they figured it out. You need to start there

I think. That way, if you dont have ME/CFS/Fibro, he can tell you what

you do have.

Hope this helps you.

/Dutchie

>

> Hello my name is and I am 27 and new to the list. I just

wanted to

> introduce myself.

>

> I have not been diagnosed with ME or CFS but I feel I might have

CFS. I have

[Guest guest]

,

It sounds like you have alot of symptoms that match. You need to keep trying

dr's until you get someone who will listen. Have you had your thyroid tested?

What city are you in? Maybe someone here can recommend a dr in your area.

Good luck and God Bless,

,

Sacramento, Calif.

---------------------------------

Want to be your own boss? Learn how on Yahoo! Small Business.

[Guest guest]

Well I just went to another doctor today and he listens. He said that my

thyroid was functions at almost nowhere where it needed to be and I was just

really off balance. Other doctors said it was okay. But once this doctor put me

on a trace mineral drops. It was like my body kicked back into where it needed

to be and I have improved so much in just a few days. But as of today he

said my thyroid is going at about 30% so he is still working with me and since

no other doctor would listen and he would and I am getting closer to feeling

better everyday since I started the treatment he gave me I think I have found

a really good doctor that not only listened but is making me feel better

after months of feeling really bad.. I just happy to be feeling better..

Thanks,

[Guest guest]

Hi ,

I know those drugs you came off of,and what you describe isn't at all

normal. There are some particular symptoms with CFS/ME/Fibro, however.

what you are going to need is to locate a doctor in the area in which

you live who can do a physical for you and run bloodwork, etc.

Swollen lymph nodes are a symptom, as are 'different' sleep patterns,

tiredness, weakness (as you mentioned), headaches which are different

or more frequent than they had been before. As I recall when I first

joined this group I did get an email stating I was now a member but

there was in the email alot of good informetion on this illness. It

would not be surprising if the diagnosis was missed so far; for me it

took a long time before I found someone who KNEW what to look for and

how to treat it. Welcome to the group, good luck, and i amsure you'll

get other reoplies as well.

Jane

>

> Hello my name is and I am 27 and new to the list. I just

wanted to > introduce myself.

> > I have not been diagnosed with ME or CFS but I feel I might have

CFS. I have > for many months been under a great deal of stress not

to mention I got off > some meds ( Depakote and Paxil) It was not

long after I got off my meds I was > under a great deal of stress

and still am under stress and I feel so tired, my > muscles feel

weak and tingling and numb and confused sometimes and very very

> tired all the time my speech is well different and my mouth waters

more and > all this just hit me in like one weeks time after I had a

very upsetting > night. I thought I had a pin stroke. But the docs

say I don't act like anyone who > has had a stroke and my labs are

good so all they do is give me paxil or > zoloft or something like

that. I am just wondering does this sound like CFS? I > have a great

deal other things that fall into the symptoms. I was just hoping

> to ask some people to see if this kind of thing has happened to

them before > and if you might be able to tell me what to look for

when having CFS? I don't > mean to be a bother but I am worried and

don't know really what to do and if > I keep going to the docs they

are going to label me a hypochondriac which I > am not but I just

feel so weak all the time and I don't know what to do. it > has been

going on for almost nine months. I have went to the doctors and ER

> more than once and they run blood work and can't find anything.

Can anyone > explain anything like this to me I would greatly

appreciate.

> >

>

>

>

[Guest guest]

Hi , welcome. For years my thyroid blood tests (tsh) came back

normal. I finally insisted on a thyroid scan and sure enough I had 2

tumors on left side and one on the right. Now I have to have it out in

a few weeks. So please don't go by those normal Tsh tests. If anyone

feels there is a problem with swallowing, losing voice. The way I

supected was by putting a finger on each side of the thyroid (base of

throat) and swallowing and I could feel the right tumor because it was

an inch in diameter, please insist on thyroid scan....

[Guest guest]

Oh congrats - good, helpful, open-minded doctors are few and far between.

I hope he can really help you out!

Jane

[Guest guest]

Kren,

I'm so glad you've found someone who seems to be treating you with respect and

care. He sounds like he's really trying to help you out, what a

BREAKTHROUGH!!!!!

Keep fighting for your health, and I hope you continue to feel better every

day. Keep us informed on how you're doing.

Blessings ,

[Guest guest]

I am doing much better thank you and I going back to see my doctor on Monday

and I will let you guys know how things are going.So far so good he says I

am improving very fast and I am feel much better so I just hope things do get

back on track like he seems to think that they will in the next few months..

I hope everyone has a wonderful night and I hope you guys have a wonderful

week...

Many Blessings to you and yours...