Re: Regression

[Guest guest]

Hi Helen I dont know how old Matt is but he is so cute. Mic doesnt regress half

as much as he used to. He does regress when theres illness of some kind and on

school vacations. At about 2 Mic was talking and had some signing and ate table

food. In a matter of a few months all the words he had were gone and he stopped

eating solid foods completely and started self stim behaviors...Hes 6 now and

has not regained what he had but we are making progress.Its so hard to watch. I

have Mic enrolled in an ABA school and it has helped alot.Regression comes and

goes mostly when hes sick some skills come back some dont and he picks up new

skills. I know how heartbreaking it was everytime Mic regressed and we thought

he was never coming back to our world.He does come back sometimes its takes

awhile but I dont expect him to actually talk and Im not sure whats gonna happen

with solid foods.Just when I get really feeling bad Mic does something that

surprises me and brings back my hope.I

think weve all been thru this and its normal for our kids.Regression seems to

work in different ways for every kid that goes thru it.I have not seen any major

regression in Mic for a year or so and I believe its the ABA thats helping.Plus

he is much healthier then hes been in years. Hope this helps just wanted you to

know your not alone we all go thru it. Laurie

Regression

Hi

We had a review at school yesterday, and it was kind of OK. But pretty

depressing I guess. We found out a few things about Matt that showed he's

continuing to regress.

Whereas he always used to love messy play, now he won't touch messy things -

doesn't even like playdough. Sensory-wise, things like that were never a

problem, but it appears it's getting more so.

Also, he bit his teacher yesterday, just for the hell of it. And he's started

putting everything into his mouth, or licking them. And is fixated with licking

his hands and then touching his chin.

They said his obsessive behaviour has got worse. Holes seem to be No 1 on the

agenda at all times! He no longer sits nicely at lunch at school as he's looking

for holes/gaps to stick his fingers/hands in. He won't sit on the toilet for

them, so is having accidents every day - they tell me he has no concept of his

toilet needs (he's a lot better at home, but admittedly, it's getting worse here

too!)

He used to know many of his letter sounds and signs by sight, but we went

through them last night. He used to sign and say about 15 of them (about 6wks

ago), now he appears to only remember 2 of the signs, none of the sounds.

I've accepted that he has a dual diagnosis (although it's not confirmed yet) but

how much more will he regress? Is he going to lose all his skills, and just go

back to being a baby/toddler having to wear nappies again, mouthing everything,

climbing all the time, etc?

It's hard enough seeing the regression thus far, without thinking there's more

to come.

He was in a show at church last Saturday, and it was so sad to watch him. Last

Christmas he was also in a show, where he stood independently at the front and

signed all the actions to some Christmas songs, and a load of nursery rhymes,

with a group of other non-DS kids, but he was star of the show, and I was SO

proud of him. This time, he stood there with a helper, and just gazed into

space, or licked his hands. Talk about a completely different kid.

Anyway, there's no point getting down. I know no-one will be able to give me a

definitive answer, but anyone got any ideas?

Thanks

Helen

Mum to Matt 14/06/03

[Guest guest]

Hello Helen

I don't have any particular advice for you, but just wanted you to know my heart

aches with you. My son who is 25 now, Andy went through a similar thing when he

was about 2 ish . He had open heart surgery that didn't go too well and lost

most of the skills he had. It was very sad and it left me with that " I HATE

autism " feeling.

Brigid

Regression

Hi

We had a review at school yesterday, and it was kind of OK. But pretty

depressing I guess. We found out a few things about Matt that showed he's

continuing to regress.

Whereas he always used to love messy play, now he won't touch messy things -

doesn't even like playdough. Sensory-wise, things like that were never a

problem, but it appears it's getting more so.

Also, he bit his teacher yesterday, just for the hell of it. And he's started

putting everything into his mouth, or licking them. And is fixated with licking

his hands and then touching his chin.

They said his obsessive behaviour has got worse. Holes seem to be No 1 on the

agenda at all times! He no longer sits nicely at lunch at school as he's looking

for holes/gaps to stick his fingers/hands in. He won't sit on the toilet for

them, so is having accidents every day - they tell me he has no concept of his

toilet needs (he's a lot better at home, but admittedly, it's getting worse here

too!)

He used to know many of his letter sounds and signs by sight, but we went

through them last night. He used to sign and say about 15 of them (about 6wks

ago), now he appears to only remember 2 of the signs, none of the sounds.

I've accepted that he has a dual diagnosis (although it's not confirmed yet)

but how much more will he regress? Is he going to lose all his skills, and just

go back to being a baby/toddler having to wear nappies again, mouthing

everything, climbing all the time, etc?

It's hard enough seeing the regression thus far, without thinking there's more

to come.

He was in a show at church last Saturday, and it was so sad to watch him. Last

Christmas he was also in a show, where he stood independently at the front and

signed all the actions to some Christmas songs, and a load of nursery rhymes,

with a group of other non-DS kids, but he was star of the show, and I was SO

proud of him. This time, he stood there with a helper, and just gazed into

space, or licked his hands. Talk about a completely different kid.

Anyway, there's no point getting down. I know no-one will be able to give me a

definitive answer, but anyone got any ideas?

Thanks

Helen

Mum to Matt 14/06/03

[Guest guest]

Thanks Laurie

Matt's almost 3 1/2. Fortunately Matt is never sick, so we're really lucky on

that score.

Can you tell me what an ABA school is? We live in UK, and Matt goes to a regular

mainstream school nursery. He gets 1 to 1 support 3 hrs a day, and the rest of

the time is just another member of the class. He's the only child with special

needs in a class of 30. He's always very happy to go there, and runs to the

gates. I know he's happy there, but the more he regresses, the more I question

whether its the right school for him.

Thanks

Helen

Regression

Hi

We had a review at school yesterday, and it was kind of OK. But pretty

depressing I guess. We found out a few things about Matt that showed he's

continuing to regress.

Whereas he always used to love messy play, now he won't touch messy things -

doesn't even like playdough. Sensory-wise, things like that were never a

problem, but it appears it's getting more so.

Also, he bit his teacher yesterday, just for the hell of it. And he's started

putting everything into his mouth, or licking them. And is fixated with licking

his hands and then touching his chin.

They said his obsessive behaviour has got worse. Holes seem to be No 1 on the

agenda at all times! He no longer sits nicely at lunch at school as he's looking

for holes/gaps to stick his fingers/hands in. He won't sit on the toilet for

them, so is having accidents every day - they tell me he has no concept of his

toilet needs (he's a lot better at home, but admittedly, it's getting worse here

too!)

He used to know many of his letter sounds and signs by sight, but we went

through them last night. He used to sign and say about 15 of them (about 6wks

ago), now he appears to only remember 2 of the signs, none of the sounds.

I've accepted that he has a dual diagnosis (although it's not confirmed yet)

but how much more will he regress? Is he going to lose all his skills, and just

go back to being a baby/toddler having to wear nappies again, mouthing

everything, climbing all the time, etc?

It's hard enough seeing the regression thus far, without thinking there's more

to come.

He was in a show at church last Saturday, and it was so sad to watch him. Last

Christmas he was also in a show, where he stood independently at the front and

signed all the actions to some Christmas songs, and a load of nursery rhymes,

with a group of other non-DS kids, but he was star of the show, and I was SO

proud of him. This time, he stood there with a helper, and just gazed into

space, or licked his hands. Talk about a completely different kid.

Anyway, there's no point getting down. I know no-one will be able to give me a

definitive answer, but anyone got any ideas?

Thanks

Helen

Mum to Matt 14/06/03

[Guest guest]

>

> Also, he bit his teacher yesterday, just for the hell of it. And

he's started putting everything into his mouth, or licking them. And

is fixated with licking his hands and then touching his chin.

>

> They said his obsessive behaviour has got worse.

Hi Helen,

My son had also displayed the licking, mouthing and to add on has a

need to tap, tap, tap, just anywhere, not sit still. This also occurs

when there is some underlying medical issue going on but most of the

time it was also due to a sensory input he seeked or when he

displayed auditory sensitivity.

He required Vestibular, tactile, & Propriospective input. Along with

what his docs and nutritionist have also mentioned lack of zinc

deficiency. Its like " How does your engine run? "

Oral motor activities, Oral Beckman therapy helped with the biting,

licking, etc. Heavy exercise activities helped decrease the not

sitting still, the tactile activities helped decreased the wanting to

touch or not to touch certain tactile activities along with the

Wilbarger brushing. Vestibular like swinging, spinning, etc. helped

too decrease some of the sensory input he seeked.

Is your son taking any type of multi-vitamins and supplements?

What type of motor developlment program does the school provide?

When a child is overwhelmed this creates them to seek some comfort to

apply to help them cope with what they are going through.

Have you read the Out of Sync by Carol Kronowitz?

Google under sensory integration and most of all under Temple

Grandin, this will help you some on reading from a person who lives

under the spectrum, when their engine is not running right.

Irma,18,DS/ASD

[Guest guest]

Wow! That's a lot of information!!!

Matt doesn't take any supplements or multi-vitamins - I guess because he's

always been healthy I've never thought about it.

In terms of motor development, the school provides nothing. Here in UK, the set

up is very different. Matt saw his ST today at school, for the first time since

June. He's had no PT since he walked at 18mths, and children with DS don't

qualify for OT. So basically, he gets nothing.

Thanks for the info. I'm going to have a busy evening tonight by the looks of it

- looking up all your information!!!

Helen & Matt, 3

Re: Regression

>

> Also, he bit his teacher yesterday, just for the hell of it. And

he's started putting everything into his mouth, or licking them. And

is fixated with licking his hands and then touching his chin.

>

> They said his obsessive behaviour has got worse.

Hi Helen,

My son had also displayed the licking, mouthing and to add on has a

need to tap, tap, tap, just anywhere, not sit still. This also occurs

when there is some underlying medical issue going on but most of the

time it was also due to a sensory input he seeked or when he

displayed auditory sensitivity.

He required Vestibular, tactile, & Propriospective input. Along with

what his docs and nutritionist have also mentioned lack of zinc

deficiency. Its like " How does your engine run? "

Oral motor activities, Oral Beckman therapy helped with the biting,

licking, etc. Heavy exercise activities helped decrease the not

sitting still, the tactile activities helped decreased the wanting to

touch or not to touch certain tactile activities along with the

Wilbarger brushing. Vestibular like swinging, spinning, etc. helped

too decrease some of the sensory input he seeked.

Is your son taking any type of multi-vitamins and supplements?

What type of motor developlment program does the school provide?

When a child is overwhelmed this creates them to seek some comfort to

apply to help them cope with what they are going through.

Have you read the Out of Sync by Carol Kronowitz?

Google under sensory integration and most of all under Temple

Grandin, this will help you some on reading from a person who lives

under the spectrum, when their engine is not running right.

Irma,18,DS/ASD

[Guest guest]

http://en.wikipedia.org/wiki/Applied_Behavior_Analysis Helen heres a link to one

of the explanantions of ABA.Some articles are very old and have not been

updated, now they use a more modified version of ABA they do not use punishment

of any kind they simply ignore the behavior and reroute the child to something

else.Mics school will use aversives that amount to a holding a child down for

safety if the child is in danger to himself or others and oral bad tasting swabs

is the worse aversive I know about in this school.I think they use the swabs in

the mouth for biters. Sometimes it works and sometimes it doesnt.Never do they

do this without parental consent.Theres a controversery with ABA but I know most

of us who use it have had good results and I think the earlier you start the

better off a child is.It isnt the answer for all of Mics problems but has made

such a difference in him and hes happy.Just this week I asked him to turn off

the light in the kitchen and he did. Blew

my mind.now hes turning on and off the lights all over the house but to see him

respond appropiately and know what Im talking about was kind of a shock.We are

teaching him to put garbage in the trash maybe not a great idea because who

knows what he will throw out when we arent looking.I used to call ABA Baby

bootcamp and it is to some degree but it works. Laurie

Regression

Hi

We had a review at school yesterday, and it was kind of OK. But pretty

depressing I guess. We found out a few things about Matt that showed he's

continuing to regress.

Whereas he always used to love messy play, now he won't touch messy things -

doesn't even like playdough. Sensory-wise, things like that were never a

problem, but it appears it's getting more so.

Also, he bit his teacher yesterday, just for the hell of it. And he's started

putting everything into his mouth, or licking them. And is fixated with licking

his hands and then touching his chin.

They said his obsessive behaviour has got worse. Holes seem to be No 1 on the

agenda at all times! He no longer sits nicely at lunch at school as he's looking

for holes/gaps to stick his fingers/hands in. He won't sit on the toilet for

them, so is having accidents every day - they tell me he has no concept of his

toilet needs (he's a lot better at home, but admittedly, it's getting worse here

too!)

He used to know many of his letter sounds and signs by sight, but we went

through them last night. He used to sign and say about 15 of them (about 6wks

ago), now he appears to only remember 2 of the signs, none of the sounds.

I've accepted that he has a dual diagnosis (although it's not confirmed yet) but

how much more will he regress? Is he going to lose all his skills, and just go

back to being a baby/toddler having to wear nappies again, mouthing everything,

climbing all the time, etc?

It's hard enough seeing the regression thus far, without thinking there's more

to come.

He was in a show at church last Saturday, and it was so sad to watch him. Last

Christmas he was also in a show, where he stood independently at the front and

signed all the actions to some Christmas songs, and a load of nursery rhymes,

with a group of other non-DS kids, but he was star of the show, and I was SO

proud of him. This time, he stood there with a helper, and just gazed into

space, or licked his hands. Talk about a completely different kid.

Anyway, there's no point getting down. I know no-one will be able to give me a

definitive answer, but anyone got any ideas?

Thanks

Helen

Mum to Matt 14/06/03

[Guest guest]

We are going through the same thing. We have an evaluation to see if

Danial is in fact autistic, on Dec. 8. In my heart I am 99% sure they

will tell me he is.

Danial also puts everything in his mouth and does a lot of what you

explained. When he gets into his class and starts putting things in

him mouth his teacher put a T teether around his neck. They put it on

the string and that is supposed to be the only thing he can chew on.

It works for the most part at school.

It is heatbreaking to hear your story and how down you feel. Just

know we are here for you, and we know exactly what you are going

through. Take Care

Jessi

Mom to Dominick 9 and Danial 3(DS)

>

> Hi

>

> We had a review at school yesterday, and it was kind of OK. But

pretty depressing I guess. We found out a few things about Matt that

showed he's continuing to regress.

>

> Whereas he always used to love messy play, now he won't touch messy

things - doesn't even like playdough. Sensory-wise, things like that

were never a problem, but it appears it's getting more so.

>

> Also, he bit his teacher yesterday, just for the hell of it. And

he's started putting everything into his mouth, or licking them. And

is fixated with licking his hands and then touching his chin.

>

> They said his obsessive behaviour has got worse. Holes seem to be

No 1 on the agenda at all times! He no longer sits nicely at lunch at

school as he's looking for holes/gaps to stick his fingers/hands in.

He won't sit on the toilet for them, so is having accidents every

day - they tell me he has no concept of his toilet needs (he's a lot

better at home, but admittedly, it's getting worse here too!)

>

> He used to know many of his letter sounds and signs by sight, but

we went through them last night. He used to sign and say about 15 of

them (about 6wks ago), now he appears to only remember 2 of the

signs, none of the sounds.

>

> I've accepted that he has a dual diagnosis (although it's not

confirmed yet) but how much more will he regress? Is he going to lose

all his skills, and just go back to being a baby/toddler having to

wear nappies again, mouthing everything, climbing all the time, etc?

>

> It's hard enough seeing the regression thus far, without thinking

there's more to come.

>

> He was in a show at church last Saturday, and it was so sad to

watch him. Last Christmas he was also in a show, where he stood

independently at the front and signed all the actions to some

Christmas songs, and a load of nursery rhymes, with a group of other

non-DS kids, but he was star of the show, and I was SO proud of him.

This time, he stood there with a helper, and just gazed into space,

or licked his hands. Talk about a completely different kid.

>

> Anyway, there's no point getting down. I know no-one will be able

to give me a definitive answer, but anyone got any ideas?

>

> Thanks

>

> Helen

> Mum to Matt 14/06/03

>

>

[Guest guest]

I would go back to the school for fine motor training. Kids with DS

frequently need muscle strengthening in their hands for functional writing

(a school skill), buttoning and zipping (a life skill need).

You can't lose by trying.

Sara - Choose to make lemonade, not complain about the lemons.

>

>Reply-To:

>To: < >

>Subject: Re: Re: Regression

>Date: Thu, 16 Nov 2006 16:11:11 -0000

>

>Wow! That's a lot of information!!!

>

>Matt doesn't take any supplements or multi-vitamins - I guess because he's

>always been healthy I've never thought about it.

>

>In terms of motor development, the school provides nothing. Here in UK, the

>set up is very different. Matt saw his ST today at school, for the first

>time since June. He's had no PT since he walked at 18mths, and children

>with DS don't qualify for OT. So basically, he gets nothing.

>

>Thanks for the info. I'm going to have a busy evening tonight by the looks

>of it - looking up all your information!!!

>

>Helen & Matt, 3

>

> Re: Regression

>

>

>

> >

> > Also, he bit his teacher yesterday, just for the hell of it. And

> he's started putting everything into his mouth, or licking them. And

> is fixated with licking his hands and then touching his chin.

> >

> > They said his obsessive behaviour has got worse.

>

> Hi Helen,

> My son had also displayed the licking, mouthing and to add on has a

> need to tap, tap, tap, just anywhere, not sit still. This also occurs

> when there is some underlying medical issue going on but most of the

> time it was also due to a sensory input he seeked or when he

> displayed auditory sensitivity.

> He required Vestibular, tactile, & Propriospective input. Along with

> what his docs and nutritionist have also mentioned lack of zinc

> deficiency. Its like " How does your engine run? "

> Oral motor activities, Oral Beckman therapy helped with the biting,

> licking, etc. Heavy exercise activities helped decrease the not

> sitting still, the tactile activities helped decreased the wanting to

> touch or not to touch certain tactile activities along with the

> Wilbarger brushing. Vestibular like swinging, spinning, etc. helped

> too decrease some of the sensory input he seeked.

> Is your son taking any type of multi-vitamins and supplements?

> What type of motor developlment program does the school provide?

> When a child is overwhelmed this creates them to seek some comfort to

> apply to help them cope with what they are going through.

> Have you read the Out of Sync by Carol Kronowitz?

> Google under sensory integration and most of all under Temple

> Grandin, this will help you some on reading from a person who lives

> under the spectrum, when their engine is not running right.

>

> Irma,18,DS/ASD

>

>

>

>

>

>

[Guest guest]

The more and longer the school will allow hinm to be with typical kids, the

better off he is ( IMHO) at age 3.5. BUT - and this is a big BUT- would he

get speech and OT in another setting? Speech - especially muscle

strengthening of the face, tongue, lips will both help him make appropriate

sounds when he can, help with feeding and control drooling .

Sara - Choose to make lemonade, not complain about the lemons.

>

>Reply-To:

>To: < >

>Subject: Re: Regression

>Date: Thu, 16 Nov 2006 12:52:25 -0000

>

>Thanks Laurie

>

>Matt's almost 3 1/2. Fortunately Matt is never sick, so we're really lucky

>on that score.

>

>Can you tell me what an ABA school is? We live in UK, and Matt goes to a

>regular mainstream school nursery. He gets 1 to 1 support 3 hrs a day, and

>the rest of the time is just another member of the class. He's the only

>child with special needs in a class of 30. He's always very happy to go

>there, and runs to the gates. I know he's happy there, but the more he

>regresses, the more I question whether its the right school for him.

>

>Thanks

>Helen

>

> Regression

>

> Hi

>

> We had a review at school yesterday, and it was kind of OK. But pretty

>depressing I guess. We found out a few things about Matt that showed he's

>continuing to regress.

>

> Whereas he always used to love messy play, now he won't touch messy

>things - doesn't even like playdough. Sensory-wise, things like that were

>never a problem, but it appears it's getting more so.

>

> Also, he bit his teacher yesterday, just for the hell of it. And he's

>started putting everything into his mouth, or licking them. And is fixated

>with licking his hands and then touching his chin.

>

> They said his obsessive behaviour has got worse. Holes seem to be No 1

>on the agenda at all times! He no longer sits nicely at lunch at school as

>he's looking for holes/gaps to stick his fingers/hands in. He won't sit on

>the toilet for them, so is having accidents every day - they tell me he has

>no concept of his toilet needs (he's a lot better at home, but admittedly,

>it's getting worse here too!)

>

> He used to know many of his letter sounds and signs by sight, but we

>went through them last night. He used to sign and say about 15 of them

>(about 6wks ago), now he appears to only remember 2 of the signs, none of

>the sounds.

>

> I've accepted that he has a dual diagnosis (although it's not confirmed

>yet) but how much more will he regress? Is he going to lose all his skills,

>and just go back to being a baby/toddler having to wear nappies again,

>mouthing everything, climbing all the time, etc?

>

> It's hard enough seeing the regression thus far, without thinking

>there's more to come.

>

> He was in a show at church last Saturday, and it was so sad to watch

>him. Last Christmas he was also in a show, where he stood independently at

>the front and signed all the actions to some Christmas songs, and a load of

>nursery rhymes, with a group of other non-DS kids, but he was star of the

>show, and I was SO proud of him. This time, he stood there with a helper,

>and just gazed into space, or licked his hands. Talk about a completely

>different kid.

>

> Anyway, there's no point getting down. I know no-one will be able to

>give me a definitive answer, but anyone got any ideas?

>

> Thanks

>

> Helen

> Mum to Matt 14/06/03

>

>

[Guest guest]

Helen: Our hearts go out to you-we have all been there. It is very sad to see

your child go backwards after all the progress they have made-especially having

the with issues with the DS and then to throw this at them.

We have all been hit with it like lead balloons, but I think we are lucky

because we have already built up the strength to fight for our kids because of

their DS and it just makes us a little stronger. Many of our families have mild

to severe issues with the kdis, but we are one big family and support and advise

when we can.

Liz

Regression

Hi

We had a review at school yesterday, and it was kind of OK. But pretty

depressing I guess. We found out a few things about Matt that showed he's

continuing to regress.

Whereas he always used to love messy play, now he won't touch messy things -

doesn't even like playdough. Sensory-wise, things like that were never a

problem, but it appears it's getting more so.

Also, he bit his teacher yesterday, just for the hell of it. And he's started

putting everything into his mouth, or licking them. And is fixated with licking

his hands and then touching his chin.

They said his obsessive behaviour has got worse. Holes seem to be No 1 on the

agenda at all times! He no longer sits nicely at lunch at school as he's looking

for holes/gaps to stick his fingers/hands in. He won't sit on the toilet for

them, so is having accidents every day - they tell me he has no concept of his

toilet needs (he's a lot better at home, but admittedly, it's getting worse here

too!)

He used to know many of his letter sounds and signs by sight, but we went

through them last night. He used to sign and say about 15 of them (about 6wks

ago), now he appears to only remember 2 of the signs, none of the sounds.

I've accepted that he has a dual diagnosis (although it's not confirmed yet)

but how much more will he regress? Is he going to lose all his skills, and just

go back to being a baby/toddler having to wear nappies again, mouthing

everything, climbing all the time, etc?

It's hard enough seeing the regression thus far, without thinking there's more

to come.

He was in a show at church last Saturday, and it was so sad to watch him. Last

Christmas he was also in a show, where he stood independently at the front and

signed all the actions to some Christmas songs, and a load of nursery rhymes,

with a group of other non-DS kids, but he was star of the show, and I was SO

proud of him. This time, he stood there with a helper, and just gazed into

space, or licked his hands. Talk about a completely different kid.

Anyway, there's no point getting down. I know no-one will be able to give me a

definitive answer, but anyone got any ideas?

Thanks

Helen

Mum to Matt 14/06/03