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In a message dated 8/25/2006 7:30:05 A.M. Eastern Standard Time,

meowwest@... writes:

I was also told we might end up in a private school that

they will pay for (I think it's called the School in Berwyn,

PA). Does anyone have any feedback on what is real helpful with

dual diagnosis children (elementary age). Our developmental Ped did

write in her report to continue with the autism support class.

Hiya Cat. Remember me? Donna Duffey? We met at the convention in

Philly. Good to see you *over here*. The School uses the TEACCH

method for autism. TEACCH uses picture systems and scheduling. I checked

it out years ago. I have to be honest, I was REALLY impressed with the

TEACCH method, but was NOT happy with what I saw at . I knew

instantly

it wasn't the place for Maddie. I'll tell you 3 things right off the bat

that *clued* me in. Number 1, I mentioned that I noticed all the doors were

left open and what do they do if you have a *runner* like Maddie. The

woman replied with " Well, that's why we have STOP signs at the end of all the

corridors " . Uh, NOPE, wouldn't work with Maddie!!! Then, during the tour,

I noticed a little tiny cinderblock room (I mean SUPER small). She wouldn't

have said anything, but I asked what it was. So she had to tell

me.......it was their non-compliance room. Told me that she herself wasn't

*for

it*, but the powers that be felt the need for it. She said that " thankfully,

we've only had to use it a couple times " . Whoa!!!!! Then finally, I asked

her if they used any components of the Floortime method (which we used with

Maddie for years) and her reply was, " No, simply because we don't have the

space " . HUH? I was annoyed...why didn't she just be honest and admit she

didn't know what it was. The amount of space you have has nothing to do w

ith Floortime, but she assumed it did because of the name. Oh, and one more

thing.....no one seemed to be smiling that day. The kids, the teachers, no

one. It felt rote and cold to me.

Now I haven't been there in 7 years, so it could be very different now. I

suggest you go and visit yourself. Visit other schools as well. Here is a

list of the private schools that could be options for your son. Check

them ALL out. When I went to Melmark, I instantly felt it was the right

place

for Maddie. Good luck,

Donna

P.S. Oh, here's that

site.....http://www.pde.state.pa.us/special_edu/cwp/view.asp?a=177 & Q=61435 & speci\

al_eduNav=%7C5287%7C

Just copy and paste it to your browser.

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Share on other sites

Hi, My name is Cat and I'm new to this board. My son is four

and in a 5 day a week Autism Class with the Intermediate Unit. I

have three other children ages 2 to 7. We just went to our yearly

Developmental Ped appointment downtown in Philly and we were told he

probably has " severe " delays, his skills are still at the 12-18

month level. The class he is in is great. My only complaint is it

doesn't address his life skills needs....which he does need. We

intend to transition him to the school district next year (and not

repeat PreK - our intermediate unit is in a 2 million+ deficit). My

concern is our school district has the Autism Support Program in One

School and the Life Skills in another School. I'm afraid they will

see his MR level and just put him in the Life Skills and he will not

get the Autism Support (which he really needs and has helped in his

progress). I was also told we might end up in a private school that

they will pay for (I think it's called the School in Berwyn,

PA). Does anyone have any feedback on what is real helpful with

dual diagnosis children (elementary age). Our developmental Ped did

write in her report to continue with the autism support class.

We don't start the transition process until January but I would

rather have the time to research and understand what is going on and

is best for him not best for the admin at the school.

Thanks,

Cat W.

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Cat: Welcome! Who did you see at CHOP?

Liz-Mom to Tori 6 1/2 yrs.

School for Elementary Age Children

Hi, My name is Cat and I'm new to this board. My son is four

and in a 5 day a week Autism Class with the Intermediate Unit. I

have three other children ages 2 to 7. We just went to our yearly

Developmental Ped appointment downtown in Philly and we were told he

probably has " severe " delays, his skills are still at the 12-18

month level. The class he is in is great. My only complaint is it

doesn't address his life skills needs....which he does need. We

intend to transition him to the school district next year (and not

repeat PreK - our intermediate unit is in a 2 million+ deficit). My

concern is our school district has the Autism Support Program in One

School and the Life Skills in another School. I'm afraid they will

see his MR level and just put him in the Life Skills and he will not

get the Autism Support (which he really needs and has helped in his

progress). I was also told we might end up in a private school that

they will pay for (I think it's called the School in Berwyn,

PA). Does anyone have any feedback on what is real helpful with

dual diagnosis children (elementary age). Our developmental Ped did

write in her report to continue with the autism support class.

We don't start the transition process until January but I would

rather have the time to research and understand what is going on and

is best for him not best for the admin at the school.

Thanks,

Cat W.

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is a lovely place IF - you have an IQ approaching 70, are basically

compliant.

In Chester COunty they are using the TEACCH program at the Intermediate Unit

k-as school.

If the thought of elementary private school is broached, there are other

places. Beaver Run, part of Camphill has a lovely program - and it is an

approved private school. They like taking younger kids but they only school

thru age 18.

Elywin at the son School has an uneven program. Elie went there for 5

years. Some years were fantastic and some years only so-so. BUt he was

safe, he did learn, and his behavior is sooooo much better. (I wanted him

at Beaver Run, but for some reason when we went to visit, he froze, then

started screaming. HE did not feel comfortable there.

Sara - Choose to make lemonade, not complain about the lemons.

>From: duffey48@...

>Reply-To:

>To:

>Subject: Re: School for Elementary Age Children

>Date: Fri, 25 Aug 2006 07:51:13 EDT

>

>

>In a message dated 8/25/2006 7:30:05 A.M. Eastern Standard Time,

>meowwest@... writes:

>

>I was also told we might end up in a private school that

>they will pay for (I think it's called the School in Berwyn,

>PA). Does anyone have any feedback on what is real helpful with

>dual diagnosis children (elementary age). Our developmental Ped did

>write in her report to continue with the autism support class.

>

>

>

>Hiya Cat. Remember me? Donna Duffey? We met at the convention in

>Philly. Good to see you *over here*. The School uses the

>TEACCH

>method for autism. TEACCH uses picture systems and scheduling. I

>checked

>it out years ago. I have to be honest, I was REALLY impressed with the

>TEACCH method, but was NOT happy with what I saw at . I knew

>instantly

>it wasn't the place for Maddie. I'll tell you 3 things right off the bat

>that *clued* me in. Number 1, I mentioned that I noticed all the doors

>were

>left open and what do they do if you have a *runner* like Maddie. The

>woman replied with " Well, that's why we have STOP signs at the end of all

>the

>corridors " . Uh, NOPE, wouldn't work with Maddie!!! Then, during the

>tour,

>I noticed a little tiny cinderblock room (I mean SUPER small). She

>wouldn't

>have said anything, but I asked what it was. So she had to tell

>me.......it was their non-compliance room. Told me that she herself

>wasn't *for

>it*, but the powers that be felt the need for it. She said that

> " thankfully,

>we've only had to use it a couple times " . Whoa!!!!! Then finally, I

>asked

>her if they used any components of the Floortime method (which we used

>with

>Maddie for years) and her reply was, " No, simply because we don't have the

>space " . HUH? I was annoyed...why didn't she just be honest and admit

>she

>didn't know what it was. The amount of space you have has nothing to do

>w

>ith Floortime, but she assumed it did because of the name. Oh, and one

>more

>thing.....no one seemed to be smiling that day. The kids, the teachers,

>no

>one. It felt rote and cold to me.

>

>Now I haven't been there in 7 years, so it could be very different now.

>I

>suggest you go and visit yourself. Visit other schools as well. Here

>is a

>list of the private schools that could be options for your son. Check

>them ALL out. When I went to Melmark, I instantly felt it was the right

>place

>for Maddie. Good luck,

>Donna

>P.S. Oh, here's that

>site.....http://www.pde.state.pa.us/special_edu/cwp/view.asp?a=177 & Q=61435 & spec\

ial_eduNav=%7C5287%7C

>Just copy and paste it to your browser.

>

>

>

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If anyone is looking for Residential spots Pathfinder Village is very nice.

Located in upstate NY, rural area.It looks like a New England village.

www.pathfinder.org I think. Also springbrookny.org is another

residential/school program

Brigid

Re: School for Elementary Age Children

>Date: Fri, 25 Aug 2006 07:51:13 EDT

>

>

>In a message dated 8/25/2006 7:30:05 A.M. Eastern Standard Time,

>meowwest@... writes:

>

>I was also told we might end up in a private school that

>they will pay for (I think it's called the School in Berwyn,

>PA). Does anyone have any feedback on what is real helpful with

>dual diagnosis children (elementary age). Our developmental Ped did

>write in her report to continue with the autism support class.

>

>

>

>Hiya Cat. Remember me? Donna Duffey? We met at the convention in

>Philly. Good to see you *over here*. The School uses the

>TEACCH

>method for autism. TEACCH uses picture systems and scheduling. I

>checked

>it out years ago. I have to be honest, I was REALLY impressed with the

>TEACCH method, but was NOT happy with what I saw at . I knew

>instantly

>it wasn't the place for Maddie. I'll tell you 3 things right off the bat

>that *clued* me in. Number 1, I mentioned that I noticed all the doors

>were

>left open and what do they do if you have a *runner* like Maddie. The

>woman replied with " Well, that's why we have STOP signs at the end of all

>the

>corridors " . Uh, NOPE, wouldn't work with Maddie!!! Then, during the

>tour,

>I noticed a little tiny cinderblock room (I mean SUPER small). She

>wouldn't

>have said anything, but I asked what it was. So she had to tell

>me.......it was their non-compliance room. Told me that she herself

>wasn't *for

>it*, but the powers that be felt the need for it. She said that

> " thankfully,

>we've only had to use it a couple times " . Whoa!!!!! Then finally, I

>asked

>her if they used any components of the Floortime method (which we used

>with

>Maddie for years) and her reply was, " No, simply because we don't have the

>space " . HUH? I was annoyed...why didn't she just be honest and admit

>she

>didn't know what it was. The amount of space you have has nothing to do

>w

>ith Floortime, but she assumed it did because of the name. Oh, and one

>more

>thing.....no one seemed to be smiling that day. The kids, the teachers,

>no

>one. It felt rote and cold to me.

>

>Now I haven't been there in 7 years, so it could be very different now.

>I

>suggest you go and visit yourself. Visit other schools as well. Here

>is a

>list of the private schools that could be options for your son. Check

>them ALL out. When I went to Melmark, I instantly felt it was the right

>place

>for Maddie. Good luck,

>Donna

>P.S. Oh, here's that

>site.....http://www.pde.state.pa.us/special_edu/cwp/view.asp?a=177 & Q=61435 & spec\

ial_eduNav=%7C5287%7C

>Just copy and paste it to your browser.

>

>

>

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>

> Cat: Welcome! Who did you see at CHOP?

> Hi Liz,

Thanks Liz. We saw Dr Pipan. We've seen her for 2 1/2

years. She initially saw the Autistic Features and eventually she

was the one who diagnosed . We spent six months with the County

therapists telling us " it wasn't possible to have Trisomy 21 and

Autism " . Afterwords they said they " suspected " it (I had been

asking for almost a year about his non-engagement, rocking and

stimming....all day long). We felt like Dr Pipan helped save .

If we had listened to the therapists from the county and our regular

pediatrician he would never have received the services he currently

does. (We had 25 hours of Lovaas until 3 (after calling in an

advocate and our state representative's office) then we went to the

Intermediate Unit Autistic Class).

Cat

> Liz-Mom to Tori 6 1/2 yrs.

> School for Elementary Age Children

>

>

> Hi, My name is Cat and I'm new to this board. My son is

four

> and in a 5 day a week Autism Class with the Intermediate Unit. I

> have three other children ages 2 to 7. We just went to our

yearly

> Developmental Ped appointment downtown in Philly and we were

told he

> probably has " severe " delays, his skills are still at the 12-18

> month level. The class he is in is great. My only complaint is

it

> doesn't address his life skills needs....which he does need. We

> intend to transition him to the school district next year (and

not

> repeat PreK - our intermediate unit is in a 2 million+ deficit).

My

> concern is our school district has the Autism Support Program in

One

> School and the Life Skills in another School. I'm afraid they

will

> see his MR level and just put him in the Life Skills and he will

not

> get the Autism Support (which he really needs and has helped in

his

> progress). I was also told we might end up in a private school

that

> they will pay for (I think it's called the School in

Berwyn,

> PA). Does anyone have any feedback on what is real helpful with

> dual diagnosis children (elementary age). Our developmental Ped

did

> write in her report to continue with the autism support class.

>

> We don't start the transition process until January but I would

> rather have the time to research and understand what is going on

and

> is best for him not best for the admin at the school.

>

> Thanks,

>

> Cat W.

>

>

>

>

>

>

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Cat: Where do you live again? Dr. Pipan has been Tori's Dev. Ped. since her Dx

in 2003...and she has been a life saver all around.

It is very difficult for parents and professionals alike to want another dx.

But we as parents see it. They are just afraid to step outside the box they are

too familiar with. I am a HUGE advocate for promoting the recognition of the

Dual dx.

I am glad you pushed for . I am sure life is a bit simpler since the dx.

And as you said, without the dx., our kids don't get the proper intervention.

Liz

School for Elementary Age Children

>

>

> Hi, My name is Cat and I'm new to this board. My son is

four

> and in a 5 day a week Autism Class with the Intermediate Unit. I

> have three other children ages 2 to 7. We just went to our

yearly

> Developmental Ped appointment downtown in Philly and we were

told he

> probably has " severe " delays, his skills are still at the 12-18

> month level. The class he is in is great. My only complaint is

it

> doesn't address his life skills needs....which he does need. We

> intend to transition him to the school district next year (and

not

> repeat PreK - our intermediate unit is in a 2 million+ deficit).

My

> concern is our school district has the Autism Support Program in

One

> School and the Life Skills in another School. I'm afraid they

will

> see his MR level and just put him in the Life Skills and he will

not

> get the Autism Support (which he really needs and has helped in

his

> progress). I was also told we might end up in a private school

that

> they will pay for (I think it's called the School in

Berwyn,

> PA). Does anyone have any feedback on what is real helpful with

> dual diagnosis children (elementary age). Our developmental Ped

did

> write in her report to continue with the autism support class.

>

> We don't start the transition process until January but I would

> rather have the time to research and understand what is going on

and

> is best for him not best for the admin at the school.

>

> Thanks,

>

> Cat W.

>

>

>

>

>

>

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Liz -

We Live in King of Prussia, PA (About 5 minutes from that Great Big

Mall:). Our school district is Upper Merion and the County is

Montgomery. Where are you located?

Cat

> >

> > Cat: Welcome! Who did you see at CHOP?

>

> > Hi Liz,

> Thanks Liz. We saw Dr Pipan. We've seen her for 2 1/2

> years. She initially saw the Autistic Features and eventually

she

> was the one who diagnosed . We spent six months with the

County

> therapists telling us " it wasn't possible to have Trisomy 21 and

> Autism " . Afterwords they said they " suspected " it (I had been

> asking for almost a year about his non-engagement, rocking and

> stimming....all day long). We felt like Dr Pipan helped save

.

> If we had listened to the therapists from the county and our

regular

> pediatrician he would never have received the services he

currently

> does. (We had 25 hours of Lovaas until 3 (after calling in an

> advocate and our state representative's office) then we went to

the

> Intermediate Unit Autistic Class).

>

> Cat

>

> > Liz-Mom to Tori 6 1/2 yrs.

> > School for Elementary Age Children

> >

> >

> > Hi, My name is Cat and I'm new to this board. My son is

> four

> > and in a 5 day a week Autism Class with the Intermediate Unit.

I

> > have three other children ages 2 to 7. We just went to our

> yearly

> > Developmental Ped appointment downtown in Philly and we were

> told he

> > probably has " severe " delays, his skills are still at the 12-

18

> > month level. The class he is in is great. My only complaint is

> it

> > doesn't address his life skills needs....which he does need.

We

> > intend to transition him to the school district next year (and

> not

> > repeat PreK - our intermediate unit is in a 2 million+

deficit).

> My

> > concern is our school district has the Autism Support Program

in

> One

> > School and the Life Skills in another School. I'm afraid they

> will

> > see his MR level and just put him in the Life Skills and he

will

> not

> > get the Autism Support (which he really needs and has helped

in

> his

> > progress). I was also told we might end up in a private school

> that

> > they will pay for (I think it's called the School in

> Berwyn,

> > PA). Does anyone have any feedback on what is real helpful

with

> > dual diagnosis children (elementary age). Our developmental

Ped

> did

> > write in her report to continue with the autism support class.

> >

> > We don't start the transition process until January but I

would

> > rather have the time to research and understand what is going

on

> and

> > is best for him not best for the admin at the school.

> >

> > Thanks,

> >

> > Cat W.

> >

> >

> >

> >

> >

> >

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Donna,Donna, Yes I do remember you! Dan and I have talked about the

woman we met in the parking garage at CHOP after the March

Conference about two years ago. I remember you telling us about

floor time. We talked your ear off (you were trying to meet people).

I had lost your email address and had no idea how to reach you. I

remember you telling us that you had originally gone down to

land and you knew other people with children with the dual DX.

I really appreciate your feed back on the School. I am also

going to remember to ask any facility about non-compliance rooms!

I'm pretty shocked that they would have that.

I pulled up the Melmark web page and requested some information.

Thank you so much!

Cat

In , duffey48@... wrote:

>

>

> In a message dated 8/25/2006 7:30:05 A.M. Eastern Standard Time,

> meowwest@... writes:

>

> I was also told we might end up in a private school that

> they will pay for (I think it's called the School in

Berwyn,

> PA). Does anyone have any feedback on what is real helpful with

> dual diagnosis children (elementary age). Our developmental Ped

did

> write in her report to continue with the autism support class.Hi

> "

ya Cat. Remember me? Donna Duffey? We met at the convention

in

> Philly. Good to see you *over here*. The School

uses the TEACCH

> method for autism. TEACCH uses picture systems and

scheduling. I checked

> it out years ago. I have to be honest, I was REALLY impressed

with the

> TEACCH method, but was NOT happy with what I saw at . I

knew instantly

> it wasn't the place for Maddie. I'll tell you 3 things right

off the bat

> that *clued* me in. Number 1, I mentioned that I noticed all

the doors were

> left open and what do they do if you have a *runner* like

Maddie. The

> woman replied with " Well, that's why we have STOP signs at the end

of all the

> corridors " . Uh, NOPE, wouldn't work with Maddie!!! Then,

during the tour,

> I noticed a little tiny cinderblock room (I mean SUPER small).

She wouldn't

> have said anything, but I asked what it was. So she had to tell

> me.......it was their non-compliance room. Told me that she

herself wasn't *for

> it*, but the powers that be felt the need for it. She said

that " thankfully,

> we've only had to use it a couple times " . Whoa!!!!! Then

finally, I asked

> her if they used any components of the Floortime method (which we

used with

> Maddie for years) and her reply was, " No, simply because we don't

have the

> space " . HUH? I was annoyed...why didn't she just be honest

and admit she

> didn't know what it was. The amount of space you have has

nothing to do w

> ith Floortime, but she assumed it did because of the name. Oh,

and one more

> thing.....no one seemed to be smiling that day. The kids, the

teachers, no

> one. It felt rote and cold to me.

>

> Now I haven't been there in 7 years, so it could be very

different now. I

> suggest you go and visit yourself. Visit other schools as

well. Here is a

> list of the private schools that could be options for your

son. Check

> them ALL out. When I went to Melmark, I instantly felt it was

the right place

> for Maddie. Good luck,

> Donna

> P.S. Oh, here's that

> site.....http://www.pde.state.pa.us/special_edu/cwp/view.asp?

a=177 & Q=61435 & special_eduNav=%7C5287%7C

> Just copy and paste it to your browser.

>

>

>

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Share on other sites

We live in Breinigsville, PA-Upper Macungie Twp., just west of town-Lehigh

County.

Liz

School for Elementary Age Children

> >

> >

> > Hi, My name is Cat and I'm new to this board. My son is

> four

> > and in a 5 day a week Autism Class with the Intermediate Unit.

I

> > have three other children ages 2 to 7. We just went to our

> yearly

> > Developmental Ped appointment downtown in Philly and we were

> told he

> > probably has " severe " delays, his skills are still at the 12-

18

> > month level. The class he is in is great. My only complaint is

> it

> > doesn't address his life skills needs....which he does need.

We

> > intend to transition him to the school district next year (and

> not

> > repeat PreK - our intermediate unit is in a 2 million+

deficit).

> My

> > concern is our school district has the Autism Support Program

in

> One

> > School and the Life Skills in another School. I'm afraid they

> will

> > see his MR level and just put him in the Life Skills and he

will

> not

> > get the Autism Support (which he really needs and has helped

in

> his

> > progress). I was also told we might end up in a private school

> that

> > they will pay for (I think it's called the School in

> Berwyn,

> > PA). Does anyone have any feedback on what is real helpful

with

> > dual diagnosis children (elementary age). Our developmental

Ped

> did

> > write in her report to continue with the autism support class.

> >

> > We don't start the transition process until January but I

would

> > rather have the time to research and understand what is going

on

> and

> > is best for him not best for the admin at the school.

> >

> > Thanks,

> >

> > Cat W.

> >

> >

> >

> >

> >

> >

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