Guest guest Posted August 25, 2006 Report Share Posted August 25, 2006 In a message dated 8/25/2006 7:30:05 A.M. Eastern Standard Time, meowwest@... writes: I was also told we might end up in a private school that they will pay for (I think it's called the School in Berwyn, PA). Does anyone have any feedback on what is real helpful with dual diagnosis children (elementary age). Our developmental Ped did write in her report to continue with the autism support class. Hiya Cat. Remember me? Donna Duffey? We met at the convention in Philly. Good to see you *over here*. The School uses the TEACCH method for autism. TEACCH uses picture systems and scheduling. I checked it out years ago. I have to be honest, I was REALLY impressed with the TEACCH method, but was NOT happy with what I saw at . I knew instantly it wasn't the place for Maddie. I'll tell you 3 things right off the bat that *clued* me in. Number 1, I mentioned that I noticed all the doors were left open and what do they do if you have a *runner* like Maddie. The woman replied with " Well, that's why we have STOP signs at the end of all the corridors " . Uh, NOPE, wouldn't work with Maddie!!! Then, during the tour, I noticed a little tiny cinderblock room (I mean SUPER small). She wouldn't have said anything, but I asked what it was. So she had to tell me.......it was their non-compliance room. Told me that she herself wasn't *for it*, but the powers that be felt the need for it. She said that " thankfully, we've only had to use it a couple times " . Whoa!!!!! Then finally, I asked her if they used any components of the Floortime method (which we used with Maddie for years) and her reply was, " No, simply because we don't have the space " . HUH? I was annoyed...why didn't she just be honest and admit she didn't know what it was. The amount of space you have has nothing to do w ith Floortime, but she assumed it did because of the name. Oh, and one more thing.....no one seemed to be smiling that day. The kids, the teachers, no one. It felt rote and cold to me. Now I haven't been there in 7 years, so it could be very different now. I suggest you go and visit yourself. Visit other schools as well. Here is a list of the private schools that could be options for your son. Check them ALL out. When I went to Melmark, I instantly felt it was the right place for Maddie. Good luck, Donna P.S. Oh, here's that site.....http://www.pde.state.pa.us/special_edu/cwp/view.asp?a=177 & Q=61435 & speci\ al_eduNav=%7C5287%7C Just copy and paste it to your browser. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2006 Report Share Posted August 25, 2006 Hi, My name is Cat and I'm new to this board. My son is four and in a 5 day a week Autism Class with the Intermediate Unit. I have three other children ages 2 to 7. We just went to our yearly Developmental Ped appointment downtown in Philly and we were told he probably has " severe " delays, his skills are still at the 12-18 month level. The class he is in is great. My only complaint is it doesn't address his life skills needs....which he does need. We intend to transition him to the school district next year (and not repeat PreK - our intermediate unit is in a 2 million+ deficit). My concern is our school district has the Autism Support Program in One School and the Life Skills in another School. I'm afraid they will see his MR level and just put him in the Life Skills and he will not get the Autism Support (which he really needs and has helped in his progress). I was also told we might end up in a private school that they will pay for (I think it's called the School in Berwyn, PA). Does anyone have any feedback on what is real helpful with dual diagnosis children (elementary age). Our developmental Ped did write in her report to continue with the autism support class. We don't start the transition process until January but I would rather have the time to research and understand what is going on and is best for him not best for the admin at the school. Thanks, Cat W. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2006 Report Share Posted August 25, 2006 Cat: Welcome! Who did you see at CHOP? Liz-Mom to Tori 6 1/2 yrs. School for Elementary Age Children Hi, My name is Cat and I'm new to this board. My son is four and in a 5 day a week Autism Class with the Intermediate Unit. I have three other children ages 2 to 7. We just went to our yearly Developmental Ped appointment downtown in Philly and we were told he probably has " severe " delays, his skills are still at the 12-18 month level. The class he is in is great. My only complaint is it doesn't address his life skills needs....which he does need. We intend to transition him to the school district next year (and not repeat PreK - our intermediate unit is in a 2 million+ deficit). My concern is our school district has the Autism Support Program in One School and the Life Skills in another School. I'm afraid they will see his MR level and just put him in the Life Skills and he will not get the Autism Support (which he really needs and has helped in his progress). I was also told we might end up in a private school that they will pay for (I think it's called the School in Berwyn, PA). Does anyone have any feedback on what is real helpful with dual diagnosis children (elementary age). Our developmental Ped did write in her report to continue with the autism support class. We don't start the transition process until January but I would rather have the time to research and understand what is going on and is best for him not best for the admin at the school. Thanks, Cat W. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2006 Report Share Posted August 25, 2006 Welcome Cat! I have a son, Dylan with a dual diagnosis. He is 11. Becky __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2006 Report Share Posted August 25, 2006 is a lovely place IF - you have an IQ approaching 70, are basically compliant. In Chester COunty they are using the TEACCH program at the Intermediate Unit k-as school. If the thought of elementary private school is broached, there are other places. Beaver Run, part of Camphill has a lovely program - and it is an approved private school. They like taking younger kids but they only school thru age 18. Elywin at the son School has an uneven program. Elie went there for 5 years. Some years were fantastic and some years only so-so. BUt he was safe, he did learn, and his behavior is sooooo much better. (I wanted him at Beaver Run, but for some reason when we went to visit, he froze, then started screaming. HE did not feel comfortable there. Sara - Choose to make lemonade, not complain about the lemons. >From: duffey48@... >Reply-To: >To: >Subject: Re: School for Elementary Age Children >Date: Fri, 25 Aug 2006 07:51:13 EDT > > >In a message dated 8/25/2006 7:30:05 A.M. Eastern Standard Time, >meowwest@... writes: > >I was also told we might end up in a private school that >they will pay for (I think it's called the School in Berwyn, >PA). Does anyone have any feedback on what is real helpful with >dual diagnosis children (elementary age). Our developmental Ped did >write in her report to continue with the autism support class. > > > >Hiya Cat. Remember me? Donna Duffey? We met at the convention in >Philly. Good to see you *over here*. The School uses the >TEACCH >method for autism. TEACCH uses picture systems and scheduling. I >checked >it out years ago. I have to be honest, I was REALLY impressed with the >TEACCH method, but was NOT happy with what I saw at . I knew >instantly >it wasn't the place for Maddie. I'll tell you 3 things right off the bat >that *clued* me in. Number 1, I mentioned that I noticed all the doors >were >left open and what do they do if you have a *runner* like Maddie. The >woman replied with " Well, that's why we have STOP signs at the end of all >the >corridors " . Uh, NOPE, wouldn't work with Maddie!!! Then, during the >tour, >I noticed a little tiny cinderblock room (I mean SUPER small). She >wouldn't >have said anything, but I asked what it was. So she had to tell >me.......it was their non-compliance room. Told me that she herself >wasn't *for >it*, but the powers that be felt the need for it. She said that > " thankfully, >we've only had to use it a couple times " . Whoa!!!!! Then finally, I >asked >her if they used any components of the Floortime method (which we used >with >Maddie for years) and her reply was, " No, simply because we don't have the >space " . HUH? I was annoyed...why didn't she just be honest and admit >she >didn't know what it was. The amount of space you have has nothing to do >w >ith Floortime, but she assumed it did because of the name. Oh, and one >more >thing.....no one seemed to be smiling that day. The kids, the teachers, >no >one. It felt rote and cold to me. > >Now I haven't been there in 7 years, so it could be very different now. >I >suggest you go and visit yourself. Visit other schools as well. Here >is a >list of the private schools that could be options for your son. Check >them ALL out. When I went to Melmark, I instantly felt it was the right >place >for Maddie. Good luck, >Donna >P.S. Oh, here's that >site.....http://www.pde.state.pa.us/special_edu/cwp/view.asp?a=177 & Q=61435 & spec\ ial_eduNav=%7C5287%7C >Just copy and paste it to your browser. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2006 Report Share Posted August 25, 2006 If anyone is looking for Residential spots Pathfinder Village is very nice. Located in upstate NY, rural area.It looks like a New England village. www.pathfinder.org I think. Also springbrookny.org is another residential/school program Brigid Re: School for Elementary Age Children >Date: Fri, 25 Aug 2006 07:51:13 EDT > > >In a message dated 8/25/2006 7:30:05 A.M. Eastern Standard Time, >meowwest@... writes: > >I was also told we might end up in a private school that >they will pay for (I think it's called the School in Berwyn, >PA). Does anyone have any feedback on what is real helpful with >dual diagnosis children (elementary age). Our developmental Ped did >write in her report to continue with the autism support class. > > > >Hiya Cat. Remember me? Donna Duffey? We met at the convention in >Philly. Good to see you *over here*. The School uses the >TEACCH >method for autism. TEACCH uses picture systems and scheduling. I >checked >it out years ago. I have to be honest, I was REALLY impressed with the >TEACCH method, but was NOT happy with what I saw at . I knew >instantly >it wasn't the place for Maddie. I'll tell you 3 things right off the bat >that *clued* me in. Number 1, I mentioned that I noticed all the doors >were >left open and what do they do if you have a *runner* like Maddie. The >woman replied with " Well, that's why we have STOP signs at the end of all >the >corridors " . Uh, NOPE, wouldn't work with Maddie!!! Then, during the >tour, >I noticed a little tiny cinderblock room (I mean SUPER small). She >wouldn't >have said anything, but I asked what it was. So she had to tell >me.......it was their non-compliance room. Told me that she herself >wasn't *for >it*, but the powers that be felt the need for it. She said that > " thankfully, >we've only had to use it a couple times " . Whoa!!!!! Then finally, I >asked >her if they used any components of the Floortime method (which we used >with >Maddie for years) and her reply was, " No, simply because we don't have the >space " . HUH? I was annoyed...why didn't she just be honest and admit >she >didn't know what it was. The amount of space you have has nothing to do >w >ith Floortime, but she assumed it did because of the name. Oh, and one >more >thing.....no one seemed to be smiling that day. The kids, the teachers, >no >one. It felt rote and cold to me. > >Now I haven't been there in 7 years, so it could be very different now. >I >suggest you go and visit yourself. Visit other schools as well. Here >is a >list of the private schools that could be options for your son. Check >them ALL out. When I went to Melmark, I instantly felt it was the right >place >for Maddie. Good luck, >Donna >P.S. Oh, here's that >site.....http://www.pde.state.pa.us/special_edu/cwp/view.asp?a=177 & Q=61435 & spec\ ial_eduNav=%7C5287%7C >Just copy and paste it to your browser. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2006 Report Share Posted August 26, 2006 > > Cat: Welcome! Who did you see at CHOP? > Hi Liz, Thanks Liz. We saw Dr Pipan. We've seen her for 2 1/2 years. She initially saw the Autistic Features and eventually she was the one who diagnosed . We spent six months with the County therapists telling us " it wasn't possible to have Trisomy 21 and Autism " . Afterwords they said they " suspected " it (I had been asking for almost a year about his non-engagement, rocking and stimming....all day long). We felt like Dr Pipan helped save . If we had listened to the therapists from the county and our regular pediatrician he would never have received the services he currently does. (We had 25 hours of Lovaas until 3 (after calling in an advocate and our state representative's office) then we went to the Intermediate Unit Autistic Class). Cat > Liz-Mom to Tori 6 1/2 yrs. > School for Elementary Age Children > > > Hi, My name is Cat and I'm new to this board. My son is four > and in a 5 day a week Autism Class with the Intermediate Unit. I > have three other children ages 2 to 7. We just went to our yearly > Developmental Ped appointment downtown in Philly and we were told he > probably has " severe " delays, his skills are still at the 12-18 > month level. The class he is in is great. My only complaint is it > doesn't address his life skills needs....which he does need. We > intend to transition him to the school district next year (and not > repeat PreK - our intermediate unit is in a 2 million+ deficit). My > concern is our school district has the Autism Support Program in One > School and the Life Skills in another School. I'm afraid they will > see his MR level and just put him in the Life Skills and he will not > get the Autism Support (which he really needs and has helped in his > progress). I was also told we might end up in a private school that > they will pay for (I think it's called the School in Berwyn, > PA). Does anyone have any feedback on what is real helpful with > dual diagnosis children (elementary age). Our developmental Ped did > write in her report to continue with the autism support class. > > We don't start the transition process until January but I would > rather have the time to research and understand what is going on and > is best for him not best for the admin at the school. > > Thanks, > > Cat W. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2006 Report Share Posted August 26, 2006 Cat: Where do you live again? Dr. Pipan has been Tori's Dev. Ped. since her Dx in 2003...and she has been a life saver all around. It is very difficult for parents and professionals alike to want another dx. But we as parents see it. They are just afraid to step outside the box they are too familiar with. I am a HUGE advocate for promoting the recognition of the Dual dx. I am glad you pushed for . I am sure life is a bit simpler since the dx. And as you said, without the dx., our kids don't get the proper intervention. Liz School for Elementary Age Children > > > Hi, My name is Cat and I'm new to this board. My son is four > and in a 5 day a week Autism Class with the Intermediate Unit. I > have three other children ages 2 to 7. We just went to our yearly > Developmental Ped appointment downtown in Philly and we were told he > probably has " severe " delays, his skills are still at the 12-18 > month level. The class he is in is great. My only complaint is it > doesn't address his life skills needs....which he does need. We > intend to transition him to the school district next year (and not > repeat PreK - our intermediate unit is in a 2 million+ deficit). My > concern is our school district has the Autism Support Program in One > School and the Life Skills in another School. I'm afraid they will > see his MR level and just put him in the Life Skills and he will not > get the Autism Support (which he really needs and has helped in his > progress). I was also told we might end up in a private school that > they will pay for (I think it's called the School in Berwyn, > PA). Does anyone have any feedback on what is real helpful with > dual diagnosis children (elementary age). Our developmental Ped did > write in her report to continue with the autism support class. > > We don't start the transition process until January but I would > rather have the time to research and understand what is going on and > is best for him not best for the admin at the school. > > Thanks, > > Cat W. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 2006 Report Share Posted August 27, 2006 Liz - We Live in King of Prussia, PA (About 5 minutes from that Great Big Mall:). Our school district is Upper Merion and the County is Montgomery. Where are you located? Cat > > > > Cat: Welcome! Who did you see at CHOP? > > > Hi Liz, > Thanks Liz. We saw Dr Pipan. We've seen her for 2 1/2 > years. She initially saw the Autistic Features and eventually she > was the one who diagnosed . We spent six months with the County > therapists telling us " it wasn't possible to have Trisomy 21 and > Autism " . Afterwords they said they " suspected " it (I had been > asking for almost a year about his non-engagement, rocking and > stimming....all day long). We felt like Dr Pipan helped save . > If we had listened to the therapists from the county and our regular > pediatrician he would never have received the services he currently > does. (We had 25 hours of Lovaas until 3 (after calling in an > advocate and our state representative's office) then we went to the > Intermediate Unit Autistic Class). > > Cat > > > Liz-Mom to Tori 6 1/2 yrs. > > School for Elementary Age Children > > > > > > Hi, My name is Cat and I'm new to this board. My son is > four > > and in a 5 day a week Autism Class with the Intermediate Unit. I > > have three other children ages 2 to 7. We just went to our > yearly > > Developmental Ped appointment downtown in Philly and we were > told he > > probably has " severe " delays, his skills are still at the 12- 18 > > month level. The class he is in is great. My only complaint is > it > > doesn't address his life skills needs....which he does need. We > > intend to transition him to the school district next year (and > not > > repeat PreK - our intermediate unit is in a 2 million+ deficit). > My > > concern is our school district has the Autism Support Program in > One > > School and the Life Skills in another School. I'm afraid they > will > > see his MR level and just put him in the Life Skills and he will > not > > get the Autism Support (which he really needs and has helped in > his > > progress). I was also told we might end up in a private school > that > > they will pay for (I think it's called the School in > Berwyn, > > PA). Does anyone have any feedback on what is real helpful with > > dual diagnosis children (elementary age). Our developmental Ped > did > > write in her report to continue with the autism support class. > > > > We don't start the transition process until January but I would > > rather have the time to research and understand what is going on > and > > is best for him not best for the admin at the school. > > > > Thanks, > > > > Cat W. > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 2006 Report Share Posted August 27, 2006 Donna,Donna, Yes I do remember you! Dan and I have talked about the woman we met in the parking garage at CHOP after the March Conference about two years ago. I remember you telling us about floor time. We talked your ear off (you were trying to meet people). I had lost your email address and had no idea how to reach you. I remember you telling us that you had originally gone down to land and you knew other people with children with the dual DX. I really appreciate your feed back on the School. I am also going to remember to ask any facility about non-compliance rooms! I'm pretty shocked that they would have that. I pulled up the Melmark web page and requested some information. Thank you so much! Cat In , duffey48@... wrote: > > > In a message dated 8/25/2006 7:30:05 A.M. Eastern Standard Time, > meowwest@... writes: > > I was also told we might end up in a private school that > they will pay for (I think it's called the School in Berwyn, > PA). Does anyone have any feedback on what is real helpful with > dual diagnosis children (elementary age). Our developmental Ped did > write in her report to continue with the autism support class.Hi > " ya Cat. Remember me? Donna Duffey? We met at the convention in > Philly. Good to see you *over here*. The School uses the TEACCH > method for autism. TEACCH uses picture systems and scheduling. I checked > it out years ago. I have to be honest, I was REALLY impressed with the > TEACCH method, but was NOT happy with what I saw at . I knew instantly > it wasn't the place for Maddie. I'll tell you 3 things right off the bat > that *clued* me in. Number 1, I mentioned that I noticed all the doors were > left open and what do they do if you have a *runner* like Maddie. The > woman replied with " Well, that's why we have STOP signs at the end of all the > corridors " . Uh, NOPE, wouldn't work with Maddie!!! Then, during the tour, > I noticed a little tiny cinderblock room (I mean SUPER small). She wouldn't > have said anything, but I asked what it was. So she had to tell > me.......it was their non-compliance room. Told me that she herself wasn't *for > it*, but the powers that be felt the need for it. She said that " thankfully, > we've only had to use it a couple times " . Whoa!!!!! Then finally, I asked > her if they used any components of the Floortime method (which we used with > Maddie for years) and her reply was, " No, simply because we don't have the > space " . HUH? I was annoyed...why didn't she just be honest and admit she > didn't know what it was. The amount of space you have has nothing to do w > ith Floortime, but she assumed it did because of the name. Oh, and one more > thing.....no one seemed to be smiling that day. The kids, the teachers, no > one. It felt rote and cold to me. > > Now I haven't been there in 7 years, so it could be very different now. I > suggest you go and visit yourself. Visit other schools as well. Here is a > list of the private schools that could be options for your son. Check > them ALL out. When I went to Melmark, I instantly felt it was the right place > for Maddie. Good luck, > Donna > P.S. Oh, here's that > site.....http://www.pde.state.pa.us/special_edu/cwp/view.asp? a=177 & Q=61435 & special_eduNav=%7C5287%7C > Just copy and paste it to your browser. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 2006 Report Share Posted August 27, 2006 We live in Breinigsville, PA-Upper Macungie Twp., just west of town-Lehigh County. Liz School for Elementary Age Children > > > > > > Hi, My name is Cat and I'm new to this board. My son is > four > > and in a 5 day a week Autism Class with the Intermediate Unit. I > > have three other children ages 2 to 7. We just went to our > yearly > > Developmental Ped appointment downtown in Philly and we were > told he > > probably has " severe " delays, his skills are still at the 12- 18 > > month level. The class he is in is great. My only complaint is > it > > doesn't address his life skills needs....which he does need. We > > intend to transition him to the school district next year (and > not > > repeat PreK - our intermediate unit is in a 2 million+ deficit). > My > > concern is our school district has the Autism Support Program in > One > > School and the Life Skills in another School. I'm afraid they > will > > see his MR level and just put him in the Life Skills and he will > not > > get the Autism Support (which he really needs and has helped in > his > > progress). I was also told we might end up in a private school > that > > they will pay for (I think it's called the School in > Berwyn, > > PA). Does anyone have any feedback on what is real helpful with > > dual diagnosis children (elementary age). Our developmental Ped > did > > write in her report to continue with the autism support class. > > > > We don't start the transition process until January but I would > > rather have the time to research and understand what is going on > and > > is best for him not best for the admin at the school. > > > > Thanks, > > > > Cat W. > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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