Re: WHERE HAVE I BEEN?????

May 15, 2001

Randi !! Wondered where ya were, hon ! I am goin thru the same thing

right now !! It started in Jan, and got worse. to the point about a

month ago, I was falling asleep at my keyboard, too !! I totally stopped

driving ! I had my heart tested and a blood test and every came out ok.

Do you smoke, hon ? My doc thinks mine is from lack of oxygen, (I have

emphysema) or just the fms flaring ! Remember me talking about using my

'shakey thingy' ? (to put oxyge in my blood) Well, it seems to be

helpin, I wasnt to bad this past weekend, but yesterday & today, I've

been sleepin more again !! My house is a Total wreck !!! But you need to

go to your doc to get it checked out, hon ! We are all sooo different,

yet sooo the same !! 8^)

Dear Sisters ~

I am so sorry I haven't been posting very frequently lately. I seem to be in

some kind of a flare. Every time I sit down and get still - I am out like a

light! And I don't mean I gently fall asleep for a nap - and gently wake up.

I mean, one minute I am sitting at the 'puter typing a reply to

someone..........and the next minute I come to - and look at the

clock..........and it's 5 min, 20 min, or an hour later!!!!! And when I DO

manage to stay awake for more than 20 minutes at a time, I have absolutely NO

energy! My arms and legs - heck, my WHOLE BODY - feels like it is encased

in cement! It took me 1 & 1/2 hrs. yesterday, just to take a shower and

wash my hair! I kept having to stop and rest! This feels like an immune

system problem. Like my immune system is on absolute zero - and I keep

pushing myself to keep going. Does anyone else in the group have flares like

this? Can anyone else relate? And I also feel just generally achy and

yucky. I keep thinking this is a result from being stressed from all that

has been going on with Mother. But even when I don't go over for a day or

two (so I can de-stress) - I STILL feel this way afterwards! Mother -

however is doing so well (at the moment! LOL), and is so stable - we expect

her to be taken off of Hospice, any day now! Well, I am feeling wiped out

and exhausted! Gonna crawl to the couch and take a nap! Take good care of

YOU, everyone!

Blessings on each and every one of you, and hugs

(((((((((((((((All))))))))))))))),

Randi

" We come to love not

by finding a perfect person,

but by learning to see

an imperfect person perfectly. "

" We come to love not

by finding a perfect person,

but by learning to see

an imperfect person perfectly. "

May 15, 2001

and Randi,

Going thru something similar, started yesterday and has gotten

steadily worse! One of the worst flares I have had recently!

Hope it doesn't last long for any of us!

hugs, birdsong

> Randi !! Wondered where ya were, hon ! I am goin thru the same thing

> right now !! It started in Jan, and got worse. to the point about a

> month ago, I was falling asleep at my keyboard, too !! I totally

stopped

> driving ! I had my heart tested and a blood test and every came out

ok.

> Do you smoke, hon ? My doc thinks mine is from lack of oxygen, (I

have

> emphysema) or just the fms flaring ! Remember me talking about

using my

> 'shakey thingy' ? (to put oxyge in my blood) Well, it seems to be

> helpin, I wasnt to bad this past weekend, but yesterday & today,

I've

> been sleepin more again !! My house is a Total wreck !!! But you

need to

> go to your doc to get it checked out, hon ! We are all sooo

different,

> yet sooo the same !! 8^)

May 15, 2001

thanks for the concern, but the same goes for you my friend!

Take care of yourself sweetie

birdsong

> awww, gee, Robin !!! Sorry to hear you are flarin, too, hon !! I'm

> fightin to keep my eyes open !! And Steve has to get his shower, so

I

> CAN NOT fall asleep !!! Rest up, sweetie ! You've had sooo much

> happenin, and also worrying about Joy !! BOTH of you Take It

Easy !!!

> 8^)

May 15, 2001

Randi sounds like a flare. I have days sometimes weeks I can hardly stay awake. This happened when I was off work and still happens. The clutter in my house is overwhelming, but I do what I can which some days is not much.

With a busy 7 year old that has been playing 2 sports this season it has been a challenge. School will be out in another week--not sure if that will be good or bad--he will attend several day camps this summer, but will be home for a few weeks too--so only time will tell. We also acquired an 8 wk old kitten (to go with our 15 year old female cat) this past week and its like having something tiny in terrible 2 stage all the time. The clutter makes a great play ground for this kitten and the kitten gives Will an out--he didn't bother something I'm missing its the kitten. Between fibro fog, a new kitten and all my clutter it is a wonder I function at all. This too shall get better, I hope.

MJ / Mom to Will 1/6/94 and wife to Mark 5/19/90

Back to work as RN BSN CCRN

May 15, 2001

Here I thought I was the only one this bad!!! That has been whats

been bothering me lately! I sit down or stop doing something and am

just still I start to fall asleep. The girls have been waking me

up. I tremble (or shake) when I am inactive. I have been feeling

like a zombie for the last month! It must be part of this nasty

disease. I went (am an) on no mail, as I can't keep up. So I check

the archives when I can. I am just so exhausted too!. I'm Sorry

you are this way also. It's terrible.

Hugs

Helen

> Dear Sisters ~

>

> I am so sorry I haven't been posting very frequently lately. I

seem to be in

> some kind of a flare. Every time I sit down and get still - I am

out like a

> light! And I don't mean I gently fall asleep for a nap - and

gently wake up.

> I mean, one minute I am sitting at the 'puter typing a reply to

> someone..........and the next minute I come to - and look at the

> clock..........and it's 5 min, 20 min, or an hour later!!!!! And

when I DO

> manage to stay awake for more than 20 minutes at a time, I have

absolutely NO

> energy! My arms and legs - heck, my WHOLE BODY - feels like it is

encased

> in cement! It took me 1 & 1/2 hrs. yesterday, just to take a

shower and

> wash my hair! I kept having to stop and rest! This feels like an

immune

> system problem. Like my immune system is on absolute zero - and I

keep

> pushing myself to keep going. Does anyone else in the group have

flares like

> this? Can anyone else relate? And I also feel just generally achy

and

> yucky. I keep thinking this is a result from being stressed from

all that

> has been going on with Mother. But even when I don't go over for a

day or

> two (so I can de-stress) - I STILL feel this way afterwards!

Mother -

> however is doing so well (at the moment! LOL), and is so stable -

we expect

> her to be taken off of Hospice, any day now! Well, I am feeling

wiped out

> and exhausted! Gonna crawl to the couch and take a nap! Take good

care of

> YOU, everyone!

>

> Blessings on each and every one of you, and hugs

> (((((((((((((((All))))))))))))))),

> Randi

May 15, 2001

Here I thought I was the only one this bad!!! That has been whats

been bothering me lately! I sit down or stop doing something and am

just still I start to fall asleep. The girls have been waking me

up. I tremble (or shake) when I am inactive. I have been feeling

like a zombie for the last month! It must be part of this nasty

disease. I went (am an) on no mail, as I can't keep up. So I check

the archives when I can. I am just so exhausted too!. I'm Sorry

you are this way also. It's terrible.

Hugs

Helen

> Dear Sisters ~

>

> I am so sorry I haven't been posting very frequently lately. I

seem to be in

> some kind of a flare. Every time I sit down and get still - I am

out like a

> light! And I don't mean I gently fall asleep for a nap - and

gently wake up.

> I mean, one minute I am sitting at the 'puter typing a reply to

> someone..........and the next minute I come to - and look at the

> clock..........and it's 5 min, 20 min, or an hour later!!!!! And

when I DO

> manage to stay awake for more than 20 minutes at a time, I have

absolutely NO

> energy! My arms and legs - heck, my WHOLE BODY - feels like it is

encased

> in cement! It took me 1 & 1/2 hrs. yesterday, just to take a

shower and

> wash my hair! I kept having to stop and rest! This feels like an

immune

> system problem. Like my immune system is on absolute zero - and I

keep

> pushing myself to keep going. Does anyone else in the group have

flares like

> this? Can anyone else relate? And I also feel just generally achy

and

> yucky. I keep thinking this is a result from being stressed from

all that

> has been going on with Mother. But even when I don't go over for a

day or

> two (so I can de-stress) - I STILL feel this way afterwards!

Mother -

> however is doing so well (at the moment! LOL), and is so stable -

we expect

> her to be taken off of Hospice, any day now! Well, I am feeling

wiped out

> and exhausted! Gonna crawl to the couch and take a nap! Take good

care of

> YOU, everyone!

>

> Blessings on each and every one of you, and hugs

> (((((((((((((((All))))))))))))))),

> Randi

May 16, 2001

MJ... LOL !! Sorry to laugh, hon, but it doesnt get any better when the

kitten grows up !! My dining room table, (along with every other flat

surface in my house!!) is heaped with 'stuff' that needs put away !!

This gives the cats Lots of stuff to knock onto the floor !! Which gives

me room to heap more stuff, but then the floor is also gettin crowded

!!! LOL ! But thats ok, cause it gives the dogs stuff to chew up !!!

LMAO !! And I MEAN it !! No joke !!! 8^)

PS... there is a new drug for narcolepsy that they have een giving to MS

patients for fatigue. My doc wont give it to me, but I'll send the name,

maybe one of you will have more luck gettin it !!!!!

Randi sounds like a flare. I have days sometimes weeks I can hardly stay awake. This happened when I was off work and still happens. The clutter in my house is overwhelming, but I do what I can which some days is not much.

With a busy 7 year old that has been playing 2 sports this season it has been a challenge. School will be out in another week--not sure if that will be good or bad--he will attend several day camps this summer, but will be home for a few weeks too--so only time will tell. We also acquired an 8 wk old kitten (to go with our 15 year old female cat) this past week and its like having something tiny in terrible 2 stage all the time. The clutter makes a great play ground for this kitten and the kitten gives Will an out--he didn't bother something I'm missing its the kitten. Between fibro fog, a new kitten and all my clutter it is a wonder I function at all. This too shall get better, I hope.

MJ / Mom to Will 1/6/94 and wife to Mark 5/19/90

Back to work as RN BSN CCRN

May 16, 2001

>Randi sounds like a flare. I have days sometimes weeks I can hardly stay

>

>awake. This happened when I was off work and still happens. The clutter

>in

>my house is overwhelming, but I do what I can which some days is not much.

****************************************************************************De

ar MJ,

I can really relate! You should see the clutter in my house! And I don't

even have a 7 yr. old child, or a new kitten to blame it on! LOL I figured

it was a flare, because I have been rocking along here, for a while, staying

pretty status quo. And all of the sudden, I feel like I have just had the

slats knocked out from under me! I can't really explain it, but its like I

just " feel " like my immune system is on empty. I know that sounds ridiculous

- but that's the way I feel! Thank you for you letter, and for letting me

know I am not alone! Take good care of YOU, MJ!

Blessings on you, MJ, and hugs (((((((((((((((MJ)))))))))))))))),

Randi

" We come to love not

by finding a perfect person,

but by learning to see

an imperfect person perfectly. "

May 17, 2001

I got like that real bad when I first got this DD. My kids were little and

it scared the crap out of me. I couldn't keep my eyes open.It was very hard

to explain to anyone else but boy do we understand.. After a while I laerned