Fish

[Guest guest]

Pierre, I just had to laugh when I read these posts about fish, especially

your responses I'm like you, I hate fish, absolutely loathe it, along

with any type of seafood... just don't do it. Although I can tolerate tuna

fish depending on the brand... some just doesn't taste like fish, then its

alright. And there was one brand of baked and breaded cod that I managed to

eat without... getting sick. But otherwise, I stay away from it! Hehe.

Ginger

>

>Reply-To: iga-nephropathyegroups

>To: <iga-nephropathyegroups>

>Subject: Re: research

>Date: Sun, 17 Dec 2000 19:58:53 -0500

>

>Thanks, but I just want to emphasize that I'm not an authority on these

>things. I'm just sort of synthesizing the information that's available, and

>trying to remain objective.

>

>And no, I don't like fish or seafood of any kind, especially tuna fish.

>Funny. Throughout my life, everyone from parents, relatives, colleagues to

>perfect strangers have tried to convince me that " it tastes just like

>chicken " . Well, it doesn't taste like chicken to me. It tastes like tuna

>fish, or it tastes like lobster, whatever it is, and I don't like it --

> " not

>that there's anything wrong with it " (to borrow a line from a favourite TV

>show

>

>Pierre

>

> research

>

>

> > Pierre - excellent answers to my questions.......I just want to be

> > able to feel as though I can contribute in some small way to the

> > research efforts - but I want my contribution to be specific to the

> > research involved that seems to be the most promising.......the

> > study, the Mayo study, the knockout mouse study, the IGAN

> > foundation, etc.....how do you pick ?? - Steve - P.S. Don't you even

> > like TUNA FISH.

> >

> >

> > eGroups Sponsor

> >

> > Paid Net2phone Advertisement - Click Here!

> >

> >

[Guest guest]

Well at least i know I'm not alone, Ginger. It's good to laugh sometimes

though, because I think we all tend to take things a little too seriously

sometimes. What I like most of all is pizza, and I don't diet. I figure, any

diet at best will only delay kidney failure a little while (if it ever comes

to that), so I may as well make the best of it now and enjoy it while I can.

So make that one large with black olives, pepperoni and extra cheese, and

all you fish lovers can have the tuna fish sandwich. Your arteries will

probably be cleaner than mine, but what the heck.

Pierre

P.S. I don't expect anyone to follow my bad example

research

> >

> >

> > > Pierre - excellent answers to my questions.......I just want to be

> > > able to feel as though I can contribute in some small way to the

> > > research efforts - but I want my contribution to be specific to the

> > > research involved that seems to be the most promising.......the

> > > study, the Mayo study, the knockout mouse study, the IGAN

> > > foundation, etc.....how do you pick ?? - Steve - P.S. Don't you even

> > > like TUNA FISH.

> > >

> > >

> > > eGroups Sponsor

> > >

> > > Paid Net2phone Advertisement - Click Here!

> > >

> > >

[Guest guest]

LOL! I was President of an Army Officers' Mess once (that's the Officers'

Club to you Americans). This was in a Maritime province of Canada, and

it was therefore expected to have frequent social functions such as "surf

and turfs", lobster bakes and the like, and it seemed like the meal for

every regimental mess dinner I ever attended had to have a course of shrimp

or coquille St-Jacques, or something like that. Since I had to preside

over these things, I did my duty, but I didn't like it. Unfortunately,

there are no medals for eating fish. Now, that doesn't even cover my first

five years in the military which were spent in the Navy, often aboard ship

at sea, some months in Japan, etc. (I don't even want to think about

it!).

As for X-mas dinner, around here, at least for we French-Canadians,

that's turkey with stuffing, cranberry sauce, mashed potatoes, green peas

etc., plus the pièce de résistance, my mother`s tourtière

(meat pie - which I love even though I am a semi-vegetarian). After that

point, we become as American as apple pie, because we usually do have apple

pie with ice cream for dessert. That's not counting the "réveillon",

which is a late night snack on X-mas Eve - variable, but usually meat pie

there too, plus lots of little round sandwiches and the like. Good thing

I'm not on a low protein diet!

Pierre

sdjazzer@... wrote:

O.K. Pierre and Ginger:

There is a fish you both will like. Some where. Some

how. Some way.

Surely a nice fried catfish gets your tastes buds going.

Or perhaps a

little baked cod smothered with butter and herbs. What about a

Mac

Fish sandwhich. There is so much grease you can't even taste the

fish !!! It would be perfect . And caviar is so expensive

it has to

be tasty -right ??? And then we get to the shellfish. You

cannot tell

me you don't like lump crabmeat and spicy red sauce. Fried

shrimp ?

(Actually do shellfish have Omega 3's??)

So - I gather no tuna casserole for Christmas

--- S

[Guest guest]

Double

LOL, you guys ought to be a comedy act, found this very funny. I absolutely adore fish, I eat Tuna at

least 4 times a week, fresh steak, or tinned in brine, I love Salmon (when it

is not too expensive!!! ish being totally devine!!!), love prawns, crab

and all white fish steaks too……..damn if they all have Omega 3 in them, I ought

to have banished this IGAN to oblivion LOL.

I draw the

line at cockles, whelks, mussels and caviar, not nice and I DON’T DO THEM!!!!!!

No Tuna

Steak for Christmas dinner for me, traditional Roast Turkey, all the trimmings,

Christmas Pud, and wine!!!!!! Yes

I am allowing myself to get everso sozzled on Christmas Day, the only day I

usually partake, so 2 glasses later and I am giggling like a good un!!!!!!I

Given my good news about my results yesterday, I am telling myself I deserve to

PARTY!!!!

Have fun

one and all.

-----Original

Message-----

From: Pierre Lachaine

Sent: 19 December 2000 17:16

To: iga-nephropathyegroups

Subject: Re:

fish

LOL! I was

President of an Army Officers' Mess once (that's the Officers' Club to you

Americans). This was in a Maritime province of Canada, and it was therefore

expected to have frequent social functions such as " surf and turfs " ,

lobster bakes and the like, and it seemed like the meal for every regimental

mess dinner I ever attended had to have a course of shrimp or coquille

St-Jacques, or something like that. Since I had to preside over these things, I

did my duty, but I didn't like it. Unfortunately, there are no medals for

eating fish. Now, that doesn't even cover my first five years in the military

which were spent in the Navy, often aboard ship at sea, some months in Japan,

etc. (I don't even want to think about it!).

As for X-mas dinner, around here, at least

for we French-Canadians, that's turkey with stuffing, cranberry sauce, mashed

potatoes, green peas etc., plus the pièce de résistance, my mother`s tourtière

(meat pie - which I love even though I am a semi-vegetarian). After that point,

we become as American as apple pie, because we usually do have apple pie with

ice cream for dessert. That's not counting the " réveillon " , which is

a late night snack on X-mas Eve - variable, but usually meat pie there too,

plus lots of little round sandwiches and the like. Good thing I'm not on a low

protein diet!

Pierre

sdjazzer@... wrote:

O.K. Pierre and Ginger:

There is a fish you both will like. Some where. Some how. Some way.

Surely a nice

fried catfish gets your tastes buds going. Or perhaps a

little baked cod

smothered with butter and herbs. What about a Mac

Fish sandwhich.

There is so much grease you can't even taste the

fish !!! It

would be perfect . And caviar is so expensive it has to

be tasty -right

??? And then we get to the shellfish. You cannot tell

me you don't

like lump crabmeat and spicy red sauce. Fried shrimp ?

(Actually do

shellfish have Omega 3's??)

So - I gather no tuna casserole for Christmas --- S

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[Guest guest]

Okies... I'm sorry to drag on this food post but... I just had to... *black

olives*!!! Now thats a rare occasion to find someone else that loves em

too, hehe. Okies, I'm done...

Btw, from what I've heard Pierre, you don't need to diet, or am I wrong? I

seem to remember something about ... Pierre and thin in the same sentence?

Hehe

Ginger

>

>Reply-To: iga-nephropathyegroups

>To: <iga-nephropathyegroups>

>Subject: Re: Re: fish

>Date: Mon, 18 Dec 2000 22:40:09 -0500

>

>Well at least i know I'm not alone, Ginger. It's good to laugh sometimes

>though, because I think we all tend to take things a little too seriously

>sometimes. What I like most of all is pizza, and I don't diet. I figure,

>any

>diet at best will only delay kidney failure a little while (if it ever

>comes

>to that), so I may as well make the best of it now and enjoy it while I

>can.

>So make that one large with black olives, pepperoni and extra cheese, and

>all you fish lovers can have the tuna fish sandwich. Your arteries will

>probably be cleaner than mine, but what the heck.

>Pierre

>P.S. I don't expect anyone to follow my bad example

>

_________________________________________________________________

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[Guest guest]

That is some coincidence, Ginger. And I'm the only one in the family that

likes black olives too -- but they tolerate me anyway.

You're right. No doctor of any stripe has asked me to diet in any way

whatsoever for the IgAN or anything else, and I certainly wouldn't do it to

lose weight (I wouldn't say I'm thin though, I'm just right for my size:).

Just in case someone else is reading this out of context, of course, if I

had a really bad proteinuria problem, it might be different though, but my

proteinuria has always been relatively mild. This variability of IgAN is why

you can't just extrapolate one person's treatment to another person.

Pierre

Re: Re: fish

> >Date: Mon, 18 Dec 2000 22:40:09 -0500

> >

> >Well at least i know I'm not alone, Ginger. It's good to laugh sometimes

> >though, because I think we all tend to take things a little too seriously

> >sometimes. What I like most of all is pizza, and I don't diet. I figure,

> >any

> >diet at best will only delay kidney failure a little while (if it ever

> >comes

> >to that), so I may as well make the best of it now and enjoy it while I

> >can.

> >So make that one large with black olives, pepperoni and extra cheese, and

> >all you fish lovers can have the tuna fish sandwich. Your arteries will

> >probably be cleaner than mine, but what the heck.

> >Pierre

> >P.S. I don't expect anyone to follow my bad example

> >

>

> _________________________________________________________________

> Get your FREE download of MSN Explorer at http://explorer.msn.com

>

>

> eGroups Sponsor

>

>

>

[Guest guest]

Dear Pierre et al,

I am worried about my son. He is 16, just diagnosed with TBMD and IgAN. He

thinks he is invincible. He wants to go out with his friends at night,

especially now that they are off for Christmas holiday. He has no appetite.

Just not interested in food. Again blood visible in his urine. In your

opinion, how should we approach this with him? I don't want to scare him,

but he must take care of himself. Help!

>

>Reply-To: iga-nephropathyegroups

>To: <iga-nephropathyegroups>

>Subject: Re: Re: fish

>Date: Wed, 20 Dec 2000 07:36:22 -0500

>

>That is some coincidence, Ginger. And I'm the only one in the family that

>likes black olives too -- but they tolerate me anyway.

>

>You're right. No doctor of any stripe has asked me to diet in any way

>whatsoever for the IgAN or anything else, and I certainly wouldn't do it to

>lose weight (I wouldn't say I'm thin though, I'm just right for my size:).

>

>Just in case someone else is reading this out of context, of course, if I

>had a really bad proteinuria problem, it might be different though, but my

>proteinuria has always been relatively mild. This variability of IgAN is

>why

>you can't just extrapolate one person's treatment to another person.

>

>Pierre

>

> Re: Re: fish

> > >Date: Mon, 18 Dec 2000 22:40:09 -0500

> > >

> > >Well at least i know I'm not alone, Ginger. It's good to laugh

>sometimes

> > >though, because I think we all tend to take things a little too

>seriously

> > >sometimes. What I like most of all is pizza, and I don't diet. I

>figure,

> > >any

> > >diet at best will only delay kidney failure a little while (if it ever

> > >comes

> > >to that), so I may as well make the best of it now and enjoy it while I

> > >can.

> > >So make that one large with black olives, pepperoni and extra cheese,

>and

> > >all you fish lovers can have the tuna fish sandwich. Your arteries will

> > >probably be cleaner than mine, but what the heck.

> > >Pierre

> > >P.S. I don't expect anyone to follow my bad example

> > >

> >

> > _________________________________________________________________

> > Get your FREE download of MSN Explorer at http://explorer.msn.com

> >

> >

> > eGroups Sponsor

> >

> >

> >

[Guest guest]

Pierre:

I agree with the whole diet thing-sometimes life is too short to sit and

worry about diet-especially if there is no clear proof that a certain diet

can " cure " this disease.

Carolyn

Re: Re: fish

> >Date: Mon, 18 Dec 2000 22:40:09 -0500

> >

> >Well at least i know I'm not alone, Ginger. It's good to laugh sometimes

> >though, because I think we all tend to take things a little too seriously

> >sometimes. What I like most of all is pizza, and I don't diet. I figure,

> >any

> >diet at best will only delay kidney failure a little while (if it ever

> >comes

> >to that), so I may as well make the best of it now and enjoy it while I

> >can.

> >So make that one large with black olives, pepperoni and extra cheese, and

> >all you fish lovers can have the tuna fish sandwich. Your arteries will

> >probably be cleaner than mine, but what the heck.

> >Pierre

> >P.S. I don't expect anyone to follow my bad example

> >

>

> _________________________________________________________________

> Get your FREE download of MSN Explorer at http://explorer.msn.com

>

>

>

>

[Guest guest]

Hi Carolyn.

Every case can be different, but I don't believe in phoney cures, and

doing things that won't help. If a real low protein diet is needed, the

nephrologist will order one, and refer to a special dietician. If it's

not needed, and it rarely is unless there are particular circumstances

or aspects, then it's not needed. As you may have read in my "Recent Developments"

message, the current thinking is that "moderate" protein restriction *may*

be helpful. That just means don't enter contests that involve eating a

16 pound steak (in other words, not overdoing it).

With the advent of the Internet, the 90's seem to have been a period

of trying out every possible treatment that the medical industry "forgot

about", in a vain attempt to overcome an incurable condition (just like

the mystery gasoline-saver that the petrochemical industry has been keeping

secret for years). Then the medical industry jumped on the bandwagon too,

with needless diets and tonsillectomies. Now, some of the evidence is in,

and reason is being restored, with most of what other IgAN websites and

groups promoted being disproved or limited to specific conditions within

the disease. Even steroid treatment is proving to be next to useless for

ordinary, chronic IgAN.

Pierre

Northern Lights Academy wrote:

Pierre:

I agree with the whole diet thing-sometimes life is too short to

sit and

worry about diet-especially if there is no clear proof that a certain

diet

can "cure" this disease.

Carolyn

Re: Re: fish

> >Date: Mon, 18 Dec 2000 22:40:09 -0500

> >

> >Well at least i know I'm not alone, Ginger. It's good to laugh

sometimes

> >though, because I think we all tend to take things a little

too seriously

> >sometimes. What I like most of all is pizza, and I don't diet.

I figure,

> >any

> >diet at best will only delay kidney failure a little while (if

it ever

> >comes

> >to that), so I may as well make the best of it now and enjoy

it while I

> >can.

> >So make that one large with black olives, pepperoni and extra

cheese, and

> >all you fish lovers can have the tuna fish sandwich. Your arteries

will

> >probably be cleaner than mine, but what the heck.

> >Pierre

> >P.S. I don't expect anyone to follow my bad example

> >

>

> _________________________________________________________________

> Get your FREE download of MSN Explorer at http://explorer.msn.com

>

>

>

>

[Guest guest]

If you really have a recipie that makes fish not taste like fish, I'd love

to try it on my son, who refuses to eat fish. Come ahead and post it.

Erna