Guest guest Posted June 20, 2001 Report Share Posted June 20, 2001 MOM LMAO I JUST PRACTICALLY WROTE THE SAME THING! GREAT MINDS THINK ALIKE! LOL LOVE YA BETS WELCOME TO OUR FAMILY!!! IF YOU NEED ANYTHING, AND I DO MEAN ANYTHING, WE ARE HERE FOR U!!!!! WE SHARE, WE CRY, WE LAUGH, WE SCREAM, WE GET INTO OPINION CONVERSATIONS!!!! JUST AS ANY FAMILY WOULD, CAUSE THAT'S WHAT WE ARE!! A FAMILY!!!!!!!!!! SO AGAIN WELCOME!!! TAKE CARE MOM-BILLIE Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2005 Report Share Posted August 24, 2005 Vicki- First off, welcome aboard! I am 33 years old and ahve had bronch since I was 6, so I am in the veteran category. To answer your question, yes, you can do all the maintenance required and still have a real life. I do. I work full time as a sign language interpreter in a high school, and do a lot of freelancing on the side. I have two college degrees- the second one aquired while working one full time job and two part time jobs. The maintenance is what enables you to live a full life. It seems overwhelming now, but it will seem automatic and old hat after a while. Annoying, but routine. Good luck! Karin >Is it possible to do all the maintenance required AND work full-time AND raise teenagers AND keep a house going? I can't even handle all of that WITHOUT a serious chronic disease! I'm getting within reach of retirement -- maybe I'd better seriously consider it despite the fact that we have two boys heading to college in the next three years. Yikes! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2005 Report Share Posted August 24, 2005 Karin said: The maintenance is what enables you to live a full life. It seems overwhelming now, but it will seem automatic and old hat after a while. Annoying, but routine. ********* well said, karin, this sums it up very well. listen up everyone.......this is true, attitude is key! jennifer --------------------------------- soft ocean breezes __________________________________________________________ Find your next car at http://autos.yahoo.ca Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2005 Report Share Posted August 24, 2005 Greetings, I am new to the group and thought I would start out by reading the first few posts to look for similarities with my bronch. My name is ita and I live in Northern California. I am 59 years old and was diagnosed with bronch when I was 20. I had a lower left lobectomy at 21. My doctors think I was born with bronch. I have been tested for CF and the sweat test came back negative, but one of my doctors is sure I have a mild case of CF. I have had Sinus surgery three times to remove polyps. I have problems with my ears also. This has been a life long problem for me...always sick as a child. Parents took me to so many specialists, but it took 20 years before a smart doctor suggested a bronchoscopy and low and behold the bronch was diagnosed. One of my doctors that was from the UK told me that bronch was very common with WWII babies. I was born in th UK to a British bride of an American serviceman. Problem is getting worse. I have a constant productive cough that is annoying, exhausting and embarrassing. I am on a bronchiodialtor, nebulizer and expectorat(over the counter). Would like to hear from others that have had life long bronch and find out what meds you are taking and if they are working and also what does not work. I have been told that bronch is incurable. Are we likely candiates for lung cancer? So glad I found this group! Cheers, ita > Hey Elaine! Glad you joined the group. I joined not too long ago so I > still feel new. But I have bronchiectasis (diagnosed 2 or 3 years > ago). Am on ABI therapy vest for percussion therapy. It's a lot > better than the traditional " cup the hand and slap the back " method. > My sides and back aren't sore anymore. What therapy are you > taking? Medications? I only take Xopenex with my nebulizer when I'm > really congested, and antibiotics if I'm real congested with > bronchitis or pnuemonia. I, too, have chronic sinusitis. When my > sinuses flare up, my lungs do too, and vice versa. They're so > connected. Do you have this problem? I've had to have 7 sinus > surgeries to remove polyps. We never could figure why I keep getting > them, but they have to be removed before they turn into anything > serious like cancer. Have you had to have sinus surgery. Sorry 'bout > all the questions. I don't hear about too many people with sinus > problems like I have. Well, talk to you later! > > -Brittany Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2005 Report Share Posted September 19, 2005 Hello, I am also a new member. I was born with bronchiectasis but it has gotten worse as I have gotten older. I live in Houston, Texas, which is not the best place to live with this disease. I am anxious to learn more about the disease from people who have it. Sometimes the doctors talk a little above my head. I have the Vest and use a neubulizer as needed. I also use Advair daily and use Albuterol as needed. I aslo have this thing I can blow into that helps loosen the mucus but I can't remember what it's called. Barbsallyemalee wrote: Hello.......I am new as you can see. I'm looking forward to the chat and caring. SM Yahoo! for Good Click here to donate to the Hurricane Katrina relief effort. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 2006 Report Share Posted July 6, 2006 hi , What's bronchiolitis? And since we're talking location and pets...I live on the Texas coast and seem to be collecting coastal cat orphans! We now have tamed 4, on-the-lam,kittens. They act grateful for a safe place with lots of cat food. Kadi > >Reply-To: bronchiectasis >To: <bronchiectasis > >Subject: Re: new member >Date: Wed, 05 Jul 2006 18:31:26 -0500 > >Welcome Sonny!!! I live near Peoria, IL with my 4 dogs!! I have mild >bronchiectasis with chronic bronchiolitis. Hope you find what you need >here. > > > > > Cook, Case Manager >UICOMP >One Illini Dr. >Peoria, IL 61656-1649 > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 2006 Report Share Posted July 6, 2006 Welcome Sonny, I'm Jan and have had bronch since 1993 and diagnosed a few years ago with MAC which I'm being treated for now. That's some nasty medicine! I live in St. Louis--very humid--with my husband and 2 cats. Sorry I don't participate in some of the e-mails, but have gotten a wealth of information and appreciate everyone for sharing their experiences and what they do to fight their health problems. Jan > > Hello All, > I'm Sonny and I'm a newbie to bronchiectasis, a ct scan a couple of months ago showed bronchiectasis and a sputum sample turned up a protea infection. and was put on levaquin for 10 days. I have copd and am on 02 , 24/7 along with nebulizer and inhalers , copd diagnosed about 3yr ago, started on 02 about a yr and 1/2 ago . I live in Massachusetts with my 3 dogs, Teddy, Snoopy , and Hunter. Winters are cold and summer is rainy, hot and humid right now. I am no longer able to work , so I have retired . I get out and about and like to putter in my garden on a limited basis, but not to the extent that I used to. My activities have to be arranged around my medicine routine, as to when my breathing is at its good point. I use my exercise bike each day and am going to get a tread mill. I have been through rehab and know the importance of exercise. I struggle to maintain my weight and appetite . When I was at rehab I met only one other person who had the same weight issue as me. Now even when I have to go on prednisone burst, I don't get hungry like I use to, yet I know so many people have just the opposite problem and have to fight to not gain weight. I hope to be an active member of this group and to learn and grow from it. > > Sonny, > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 2006 Report Share Posted July 6, 2006 Hi Liz, Thank you for the wellcome. Two of my doggies are also Lhasa apso, Teddy a boy and Snoopy a girl, and my girl Hunter is a samoy/sheperd mix. It takes a brave person to be awaiting a double lung transplant, I admire you for that. I'm surprized to hear that you have some smogup there. I had always heard how the air in Nova Scotia was so great to breath, fresh and clean . The smog and acid rain that we sometimes get is supposedly coming from far out western u.s. With our lousey weather , I finally got 6 tomatoe plants in the ground this evening, I only hope they'll make it and produce some tomatoes after being planted so late. Best wishes, Sonny Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2006 Report Share Posted November 29, 2006 Hi my name is and my eight year son just went for untethering surgery two weeks ago.Thank god all is well with him.Now i will be checked. My question is : Are the symptoms different for an adult? My symptoms are headaches,dizziness,tremor,back aches,cant lay on left side(pain and numbness),incomplete emptiness of bladder,frequent urination and scolisis. Has anyone experienced these symptoms? Quote Link to comment Share on other sites More sharing options...
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