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RE: misdiagnosis

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best of luck and god bless.EILEEN-- "compqueen2001" wrote:Return-Path: <sentto-4056817-12597-1141139733-ecbauer954=juno.com@...>Received: from mx06.nyc.untd.com (mx06.nyc.untd.com [10.140.24.66])by maildeliver10.nyc.untd.com with SMTP id AABCAJ4RDA6FCX82for (sender <sentto-4056817-12597-1141139733-ecbauer954=juno.com@...>);Tue, 28 Feb 2006 07:19:00 -0800 (PST)Received: from n3a.bullet.dcn.yahoo.com (n3a.bullet.dcn.yahoo.com [216.155.203.223])by mx06.nyc.untd.com with SMTP id AABCAJ4RDAW6TAFSfor (sender <sentto-4056817-12597-1141139733-ecbauer954=juno.com@...>);Tue, 28 Feb 2006 07:18:59 -0800 (PST)Comment: DomainKeys? See http://antispam.yahoo.com/domainkeysDomainKey-Signature: a=rsa-sha1; q=dns; c=nofws; s=lima; d=yahoogroups.com;b=FD+11ZRlk1lDJPUhMvHQXwQdwZp5r0SiaUXLUCrMeJpXxbJFpG1+VFBrd5Z6nleTm6teKQBVzyWbkmd6z3G8VH/lklTksCfsoBwJu2DyspkcPq4f56ol76eb7vwpDOwL;Received: from [216.155.201.65] by n3.bullet.dcn.yahoo.com with NNFMP; 28 Feb 2006 15:15:33 -0000Received: from [66.218.69.5] by t2.bullet.dcn.yahoo.com with NNFMP; 28 Feb 2006 15:15:33 -0000Received: from [66.218.66.99] by t5.bullet.scd.yahoo.com with NNFMP; 28 Feb 2006 15:15:33 -0000X-Yahoo-Newman-Property: groups-emailX-Sender: compqueen2001@...X-Apparently-To: bronchiectasis Received: (qmail 64841 invoked from network); 28 Feb 2006 15:15:30 -0000Received: from unknown (66.218.67.33) by m34.grp.scd.yahoo.com with QMQP; 28 Feb 2006 15:15:30 -0000Received: from unknown (HELO n2a.bullet.scd.yahoo.com) (66.94.237.36) by mta7.grp.scd.yahoo.com with SMTP; 28 Feb 2006 15:15:30 -0000Comment: DomainKeys? See http://antispam.yahoo.com/domainkeysReceived: from [66.218.69.1] by n2.bullet.scd.yahoo.com with NNFMP; 28 Feb 2006 15:13:05 -0000Received: from [66.218.66.84] by t1.bullet.scd.yahoo.com with NNFMP; 28 Feb 2006 15:13:05 -0000To: bronchiectasis Message-ID: <du1pa1+n8bveGroups>User-Agent: eGroups-EW/0.82X-Mailer: Yahoo Groups Message PosterX-Originating-IP: 66.94.237.36X-eGroups-Msg-Info: 1:12:0:0X-Yahoo-Post-IP: 141.158.57.77X-Yahoo-Profile: compqueen2001Sender: bronchiectasis MIME-Version: 1.0Mailing-List: list bronchiectasis ; contact bronchiectasis-owner Delivered-To: mailing list bronchiectasis List-Id: <bronchiectasis.yahoogroups.com>Precedence: bulkList-Unsubscribe: <mailto:bronchiectasis-unsubscribe >Date: Tue, 28 Feb 2006 15:13:05 -0000Subject: misdiagnosisReply-To: bronchiectasis Content-Type: text/plain; charset=ISO-8859-1Content-Transfer-Encoding: 7bitX-ContentStamp: 5:2:714398279X-MAIL-INFO:0cf55c7cadaddd28ddd85c18d91879bd392c85b88598050c2c3dcdc9f931ed9185119da828e83dd15c5c7511adbc9df89d6195c84de5e508d519190119456521452d290c98b5c5718c8de95915ac0d49e8ec6c390de9ace585456c451921X-UNTD-Peer-Info: 216.155.203.223|n3a.bullet.dcn.yahoo.com|n3a.bullet.dcn.yahoo.com|sentto-4056817-12597-1141139733-ecbauer954=juno.com@...X-UNTD-UBE:-1I am just posting to let everyone know that I have been being treated for bronch. for the past year and have found out that is not what I have. I went to the University of Penna Hospital and they are going to admit me on Thursday for a lung biopsey to find out what I really have. For this reason I will be leaving the group. I do not post often but I have truely enjoyed reading everyones input for the past year and want to tell you that you have been a very well informed compassionate group and I wish the best of health for everyone. Thanks again for all of the shared knowledge. Dottie Yahoo! Groups Links<*> To visit your group on the web, go to: http://groups.yahoo.com/group/bronchiectasis/<*> To unsubscribe from this group, send an email to: bronchiectasis-unsubscribe <*> Your use of Yahoo! Groups is subject to: http://docs.yahoo.com/info/terms/

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Hi Dottie,

Best of luck with your lung biopsy. I hope the doctors get to the bottom of

things and it can be easily treated. Please drop in again sometime to let

us know how you are getting on.

Withing you the best.

Bunny (Sydney, Australia)

----------------------------------------------------------------------

I am just posting to let everyone know that I have been being treated

for bronch. for the past year and have found out that is not what I

have. I went to the University of Penna Hospital and they are going to

admit me on Thursday for a lung biopsey to find out what I really

have. For this reason I will be leaving the group. I do not post often

but I have truely enjoyed reading everyones input for the past year

and want to tell you that you have been a very well informed

compassionate group and I wish the best of health for everyone. Thanks

again for all of the shared knowledge.

Dottie

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I'm new to this site and group. I had several lung biopsies in early 90s to try to diagnosis my chronic cough. No dx was made so ended up with the catch-all dx of bronchiectasis. Still no very effective treatment it seems, and in another cycle of severe coughing and on prednisone again after 4 rounds of antibiotics.

Good luck with your surgery.

Reply-To: bronchiectasis To: <bronchiectasis >Subject: RE: misdiagnosisDate: Wed, 1 Mar 2006 09:39:40 +1100>Hi Dottie,>>Best of luck with your lung biopsy. I hope the doctors get to the bottom of>things and it can be easily treated. Please drop in again sometime to let>us know how you are getting on.>>Withing you the best.>Bunny (Sydney, Australia)>---------------------------------------------------------------------->>I am just posting to let everyone know that I have been being treated>for bronch. for the past year and have found out that is not what I>have. I went to the University of Penna Hospital and they are going to>admit me on Thursday for a lung biopsey to find out what I really>have. For this reason I will be leaving the group. I do not post often>but I have truely enjoyed reading everyones input for the past year>and want to tell you that you have been a very well informed>compassionate group and I wish the best of health for everyone. Thanks>again for all of the shared knowledge.> Dottie>>>>>>>

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Has anyone considered the possiblity you are coughing from acid reflux? I was sick for a year, being treated for bronch. with no relief--until a nurse suggested I may have acid reflux. She was right!!! My symptoms are gone now that I am taking a proton pump inhibitor (Nexium).

Kathy

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Hi and welcome,

It has been fairly quiet here lately. Please ask away if you have any questions. Are you seeing a respiratory specialist for your bronch? There are things you can do to manage your bronch, although there is no cure. I have had bronch since a 2 year old following whooping cough. I take ciproxin and inhaled tobramycin as maintenance antibiotics, as I have a chronic pseudomonas infection that is hard to treat. I also do Postural Drainage twice daily to clear my lungs of mucus. It is important to keep your lungs as clear as possible, to prevent further infection.

Take care, and keep in touch.

Best wishes

Bunny (Sydney, Australia)

-----------------------------------------------------------------------

I'm new to this site and group. I had several lung biopsies in early 90s to try to diagnosis my chronic cough. No dx was made so ended up with the catch-all dx of bronchiectasis. Still no very effective treatment it seems, and in another cycle of severe coughing and on prednisone again after 4 rounds of antibiotics.

Good luck with your surgery.

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Guest guest

are there any other symptoms that could suggest the acid reflux? i often cough with little production, but i keep coughing until i practically throw up ( sometimes i do vomit). it is not fun. i would love to be able to have that stop.

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for many years my cough is non productive too, just dry and chronic. never cough anything up. i've been tested past and present for acid reflux and recently tried on Prevacid (or some such rx) and no dx or sx for that and the rx made no difference in the cough. was again put on nasal steroid spray too to rule out post nasal drip but that made no difference either in the cough. when mine is bad I cough until I throw up too, then that stops the coughing for then.

Reply-To: bronchiectasis To: bronchiectasis Subject: RE: misdiagnosisDate: Wed, 1 Mar 2006 15:48:40 -0800 (PST)are there any other symptoms that could suggest the acid reflux? i often cough with little production, but i keep coughing until i practically throw up ( sometimes i do vomit). it is not fun. i would love to be able to have that stop.

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I eat blueberries on my cereal every morning, and after I ate I would cough up something that I noticed was tinged blue--proof to me that it was coming from my stomach and not from my lungs!

The other indication of the misdiagnosis was that none of the remedies the pulmonologist prescribed made me better. Oh, and what I coughed up was mostly clear or whitish foamy liquid. My doctor kept saying he didn't know what the foam was--none of his patients had complained of that!

If you do decide to try a proton pump inhibitor be prepared to be patient. I didn't get signifcant results for 7 months, and even got some improvement as late as after 11 months on the drug! I didn't get any results for more than 2 months. It was awful!

Kathy

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I believe it is acid reflux meds like

Nexium that heals esophageal erosions as well as inhibits acid production. If I’m

wrong, someone please let me know.

Ginger

From: bronchiectasis [mailto:bronchiectasis ] On Behalf Of L H ROTERING

Sent: Thursday, March 02, 2006

10:49 AM

To: bronchiectasis

Subject: RE:

misdiagnosis

what is a proton pump inhibitor?

From: " K M "

Reply-To: bronchiectasis

To: bronchiectasis

Subject: RE: misdiagnosis

Date: Wed, 01 Mar 2006 17:12:31 -0800

I

eat blueberries on my cereal every morning, and after I ate I would cough up

something that I noticed was tinged blue--proof to me that it was coming from

my stomach and not from my lungs!

The

other indication of the misdiagnosis was that none of the remedies the

pulmonologist prescribed made me better. Oh, and what I coughed up was

mostly clear or whitish foamy liquid. My doctor kept saying he

didn't know what the foam was--none of his patients had complained of that!

If

you do decide to try a proton pump inhibitor be prepared to be patient. I

didn't get signifcant results for 7 months, and even got some improvement as

late as after 11 months on the drug! I didn't get any results for more

than 2 months. It was awful!

Kathy

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