Guest guest Posted September 10, 2006 Report Share Posted September 10, 2006 are there any ? I was diagnosed 7 months ago with pca. I am 43 with gleason 8 and 25.3 psa. I have had no treament yet. as i read the posts about the outcomes or chronicles of differnt people I find nothing that encourages me to have hormone (zoladex) or IMRT radiation. If i missed a success story would someone please share it with me ! I have read and read and frankly i hate reading but in this case i must but I have no symptoms nor do I have problems urinating or any pain. shoud I ? what I have been told is that I have 20% chance of cure with a high reacurrane rate and I will probably be on chemo at some point down the road. As I read the stories within this group almost everyones psa rises after treamtment and they go back on hormones or whatever. The emotional effect is overwhelming because I dont know what to do. shoot me with poison ? radiate me and watch me turn purple and say " I am sorry the treatment did not help sir " or live with the doctors clinical experience that state I willnot reach 50 and die a painful death. It sounds like a roll of the dice.....I can roll my own dice ! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 11, 2006 Report Share Posted September 11, 2006 You will know from what you have read that your numbers are not good and that you will have to have sme conventional treatment if you are to manage this disease. Can I suggest that you go to the second section of the YANA - You Are Not Alone Now www.yananow.net site where men to tell their stories and how they arrived at their decisions regarding treatment. Many people have mailed me to say how useful they have found this, especially because most of the men are happy to respond to specific questions. The section of the site can be found by clicking the link labelled Experiences or going to http://www.yananow.net/Experiences.html If you go there you will see that all the stories (there are over 200) are also indexed by PSA, Age, Gleason Score and Year of diagnosis so you can get a match to your numbers. All the best, Terry Herbert in Melbourne, Australia Diagnosed ‘96: Age 54: Stage T2b: PSA 7.2: Gleason 3+3=6: No treatment. August '06 PSA 27.4 My site is at www.yananow.net As a physician, I am painfully aware that most of the decisions we make with regard to prostate cancer are made with inadequate data: Dr “Snuffy” Myers. From: ProstateCancerSupport [mailto:ProstateCancerSupport ] On Behalf Of allstar003 Sent: 11 September 2006 12:06 PM To: ProstateCancerSupport Subject: a success story are there any ? I was diagnosed 7 months ago with pca. I am 43 with gleason 8 and 25.3 psa. I have had no treament yet. as i read the posts about the outcomes or chronicles of differnt people I find nothing that encourages me to have hormone (zoladex) or IMRT radiation. If i missed a success story would someone please share it with me ! I have read and read and frankly i hate reading but in this case i must but I have no symptoms nor do I have problems urinating or any pain. shoud I ? what I have been told is that I have 20% chance of cure with a high reacurrane rate and I will probably be on chemo at some point down the road. As I read the stories within this group almost everyones psa rises after treamtment and they go back on hormones or whatever. The emotional effect is overwhelming because I dont know what to do. shoot me with poison ? radiate me and watch me turn purple and say " I am sorry the treatment did not help sir " or live with the doctors clinical experience that state I willnot reach 50 and die a painful death. It sounds like a roll of the dice.....I can roll my own dice ! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 11, 2006 Report Share Posted September 11, 2006 I guess that it depends on what you mean by sucess. I am sure that many would define that as waking up each morning and seeing a new day. I just recieved this note from a friend and maybe this is how you would define a total sucess. " When I was diagnosed in 1990, the urologist predicted I had no more than 36 months to live. I'm now in the 17th year of remission, and a month ago my doctor told me he believes I am cancer free. Along with this background, my study of PCa, active volunteer work in the cause, and advocacy are now in about their 15th year. And I'll keep it up as long as God gives me the strength to do so. " Yes there are sucesses. They most often leave the lists because they do not have problems and do not need the support that these lists give. Kathy > > > > > are there any ? I was diagnosed 7 months ago with pca. I am 43 with > gleason 8 and 25.3 psa. I have had no treament yet. as i read the > posts about the outcomes or chronicles of differnt people I find > nothing that encourages me to have hormone (zoladex) or IMRT > radiation. If i missed a success story would someone please share it > with me ! I have read and read and frankly i hate reading but in this > case i must but I have no symptoms nor do I have problems urinating or > any pain. shoud I ? what I have been told is that I have 20% chance of > cure with a high reacurrane rate and I will probably be on chemo at > some point down the road. As I read the stories within this group > almost everyones psa rises after treamtment and they go back on > hormones or whatever. The emotional effect is overwhelming because I > dont know what to do. shoot me with poison ? radiate me and watch me > turn purple and say " I am sorry the treatment did not help sir " or > live with the doctors clinical experience that state I willnot reach > 50 and die a painful death. It sounds like a roll of the dice.....I > can roll my own dice ! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 11, 2006 Report Share Posted September 11, 2006 OK. You asked for a sucess story. I shared one of a man who was treated and is alive and 17 years after treatment is considered cancer free by his doctor. Is this not considered a sucess story? I am willing to bet that with your stats if you do nothing you will not have a similar sucess story. Kathy > --- RE: a success story > > Date: Mon, September 11, 2006 7:26 am > To: ProstateCancerSupport > > > > > > > thank kathy > success: If you ask ten people you will get ten > different anwsers. waking up,wlaking upright and > chewing gum may be success for some. Not me ! I am 43 > not 63. > > --- kmeadelist@... wrote: > > > I guess that it depends on what you mean by sucess. > > I am sure that many > > would define that as waking up each morning and > > seeing a new day. > > > > I just recieved this note from a friend and maybe > > this is how you would > > define a total sucess. > > > > > > " When I was diagnosed in 1990, the urologist > > predicted I had no more > > than 36 months to live. I'm now in the 17th year of > > remission, and a > > month ago my doctor told me he believes I am cancer > > free. Along with > > this background, my study of PCa, active volunteer > > work in the cause, > > and advocacy are now in about their 15th year. And > > I'll keep it up as > > long as God gives me the strength to do so. " > > > > Yes there are sucesses. They most often leave the > > lists because they do > > not have problems and do not need the support that > > these lists give. > > > > Kathy > > > > > > > > > > > > > > > are there any ? I was diagnosed 7 months ago with > > pca. I am 43 with > > > gleason 8 and 25.3 psa. I have had no treament > > yet. as i read the > > > posts about the outcomes or chronicles of > > differnt people I find > > > nothing that encourages me to have hormone > > (zoladex) or IMRT > > > radiation. If i missed a success story would > > someone please share it > > > with me ! I have read and read and frankly i hate > > reading but in this > > > case i must but I have no symptoms nor do I have > > problems urinating or > > > any pain. shoud I ? what I have been told is that > > I have 20% chance of > > > cure with a high reacurrane rate and I will > > probably be on chemo at > > > some point down the road. As I read the stories > > within this group > > > almost everyones psa rises after treamtment and > > they go back on > > > hormones or whatever. The emotional effect is > > overwhelming because I > > > dont know what to do. shoot me with poison ? > > radiate me and watch me > > > turn purple and say " I am sorry the treatment > > did not help sir " or > > > live with the doctors clinical experience that > > state I willnot reach > > > 50 and die a painful death. It sounds like a roll > > of the dice.....I > > > can roll my own dice ! > > > > > > > > > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 11, 2006 Report Share Posted September 11, 2006 thanks kathy...were you in your early forties with " my stats " when you had your prostate removed ? --- kmeadelist@... wrote: > OK. You asked for a sucess story. I shared one of a > man who was treated > and is alive and 17 years after treatment is > considered cancer free by > his doctor. Is this not considered a sucess story? I > am willing to bet > that with your stats if you do nothing you will not > have a similar > sucess story. > > Kathy > > > --- RE: a success > story > > > > Date: Mon, September 11, 2006 7:26 am > > To: ProstateCancerSupport > > > > > > > > > > > > > > thank kathy > > success: If you ask ten people you will get ten > > different anwsers. waking up,wlaking upright and > > chewing gum may be success for some. Not me ! I > am 43 > > not 63. > > > > --- kmeadelist@... wrote: > > > > > I guess that it depends on what you mean by > sucess. > > > I am sure that many > > > would define that as waking up each morning and > > > seeing a new day. > > > > > > I just recieved this note from a friend and > maybe > > > this is how you would > > > define a total sucess. > > > > > > > > > " When I was diagnosed in 1990, the urologist > > > predicted I had no more > > > than 36 months to live. I'm now in the 17th > year of > > > remission, and a > > > month ago my doctor told me he believes I am > cancer > > > free. Along with > > > this background, my study of PCa, active > volunteer > > > work in the cause, > > > and advocacy are now in about their 15th year. > And > > > I'll keep it up as > > > long as God gives me the strength to do so. " > > > > > > Yes there are sucesses. They most often leave > the > > > lists because they do > > > not have problems and do not need the support > that > > > these lists give. > > > > > > Kathy > > > > > > > > > > > > > > > > > > > > are there any ? I was diagnosed 7 months ago > with > > > pca. I am 43 with > > > > gleason 8 and 25.3 psa. I have had no > treament > > > yet. as i read the > > > > posts about the outcomes or chronicles of > > > differnt people I find > > > > nothing that encourages me to have hormone > > > (zoladex) or IMRT > > > > radiation. If i missed a success story would > > > someone please share it > > > > with me ! I have read and read and frankly i > hate > > > reading but in this > > > > case i must but I have no symptoms nor do I > have > > > problems urinating or > > > > any pain. shoud I ? what I have been told is > that > > > I have 20% chance of > > > > cure with a high reacurrane rate and I will > > > probably be on chemo at > > > > some point down the road. As I read the > stories > > > within this group > > > > almost everyones psa rises after treamtment > and > > > they go back on > > > > hormones or whatever. The emotional effect is > > > overwhelming because I > > > > dont know what to do. shoot me with poison ? > > > radiate me and watch me > > > > turn purple and say " I am sorry the > treatment > > > did not help sir " or > > > > live with the doctors clinical experience > that > > > state I willnot reach > > > > 50 and die a painful death. It sounds like a > roll > > > of the dice.....I > > > > can roll my own dice ! > > > > > > > > > > > > > > > > > > > __________________________________________________ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 2006 Report Share Posted September 12, 2006 , I am confused by your answer. First I do not know many men named Kathy so you know I do not have a prostate but that does not mean I do not have a brain and that I cannot talk to men with prostate cancer and learn from them. Are you being sarcastic and attempting to put me down? It is impossible to find an answer to your question. To find someone exactly your age, who have the same genes and grew up in exactly the same enviornment with the exact same cancer will never happen. A while back there were twins dealing with PCa on one of the lists and their cancers acted differently. They reacted differently to treatment. Also treatments have improved so people who were treated 15 or 20 years ago would have had a different treatment. There are constant improvements. There are no guarantees. As you have been told repeatedly you need treatment. Postponing treatment will only make it more difficult to control. You need to learn as much as you can and move forward or else you are only finding a passive way to commit suicide unless you are highly unusual. If you are having a very difficult time making a decision them possibly a psychotherist may help. That is one things they help people do. Hope that you find peace of some sort. Kathy > --- RE: a success story > > Date: Mon, September 11, 2006 7:26 am > To: ProstateCancerSupport > > > > > > > thank kathy > success: If you ask ten people you will get ten > different anwsers. waking up,wlaking upright and > chewing gum may be success for some. Not me ! I am 43 > not 63. > > --- kmeadelist@... wrote: > > > I guess that it depends on what you mean by sucess. > > I am sure that many > > would define that as waking up each morning and > > seeing a new day. > > > > I just recieved this note from a friend and maybe > > this is how you would > > define a total sucess. > > > > > > " When I was diagnosed in 1990, the urologist > > predicted I had no more > > than 36 months to live. I'm now in the 17th year of > > remission, and a > > month ago my doctor told me he believes I am cancer > > free. Along with > > this background, my study of PCa, active volunteer > > work in the cause, > > and advocacy are now in about their 15th year. And > > I'll keep it up as > > long as God gives me the strength to do so. " > > > > Yes there are sucesses. They most often leave the > > lists because they do > > not have problems and do not need the support that > > these lists give. > > > > Kathy > > > > > > > > > > > > > > > are there any ? I was diagnosed 7 months ago with > > pca. I am 43 with > > > gleason 8 and 25.3 psa. I have had no treament > > yet. as i read the > > > posts about the outcomes or chronicles of > > differnt people I find > > > nothing that encourages me to have hormone > > (zoladex) or IMRT > > > radiation. If i missed a success story would > > someone please share it > > > with me ! I have read and read and frankly i hate > > reading but in this > > > case i must but I have no symptoms nor do I have > > problems urinating or > > > any pain. shoud I ? what I have been told is that > > I have 20% chance of > > > cure with a high reacurrane rate and I will > > probably be on chemo at > > > some point down the road. As I read the stories > > within this group > > > almost everyones psa rises after treamtment and > > they go back on > > > hormones or whatever. The emotional effect is > > overwhelming because I > > > dont know what to do. shoot me with poison ? > > radiate me and watch me > > > turn purple and say " I am sorry the treatment > > did not help sir " or > > > live with the doctors clinical experience that > > state I willnot reach > > > 50 and die a painful death. It sounds like a roll > > of the dice.....I > > > can roll my own dice ! > > > > > > > > > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
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