Re: my baby girl - Urodynamics

[Guest guest]

Elissa,

My daughter just had urodynamics last week. I have to tell you - this

test really sucks. My daughter cried for the entire hour. And I didnt

realize they had to use x-rays at her pelvic level. Anyway, the good

news is that the results came back normal. We did this before the

surgery. They want to do it again 6 months after the surgery. So, the

only reason for this urodynamics is a baseline. If it is worse after

the surgery, I guess we will know it was because of the surgery? So,

if it is terriby worse, I can sue?

To me, if there is a bladder problem, there is a bladder problem. Just

measuring it is not useful. However, we need to make sure that the

kidney health is not compromised - cause once you have kidney reflux

and stuff, it can affect the health of kidney, and lead to kidney

failure, dialysis etc. That is the most important thing.

My urologist said that ultrasound cannot tell you about kidney health

and reflex. I dont understand why - cant you see fluid accumulation?

Anyways, if there is any other means to ensure kidney health, I

wouldnt want to have urodynamics unless I see a problem.

Am I missing anything? Anyone?

Abby.

> > >

> > > Hi everyone, my name is Elissa. My youngest daughter, Jesmarie (4

> > months old) was born with lipomyelomeningocele, tethered cord, and

> a

> > syrinx. She just had surgery on March 9th...laminectomy, detether,

> and

> > draining of the syrinx. I welcome any and all info, personal

> > experience, whatever anyone has to offer. I am still fairly new to

> this

> > experience and am desperate for any help in understanding what we

> are

> > facing.

> > >

> > > Thanks! Elissa

> > >

> > >

> > >

[Guest guest]

Hi Abby,

You can't sue for a bad result ... you can only sue if the dr. was grossly

negligent in some way and did not perform a reasonable standard of care.

(Well I guess you can sue for anything, but it'd likely be a waste of time

and money).

_____

From: tetheredspinalcord

[mailto:tetheredspinalcord ] On Behalf Of subub_98

Sent: Monday, April 24, 2006 10:14 AM

To: tetheredspinalcord

Subject: Re: my baby girl - Urodynamics

Elissa,

My daughter just had urodynamics last week. I have to tell you - this

test really sucks. My daughter cried for the entire hour. And I didnt

realize they had to use x-rays at her pelvic level. Anyway, the good

news is that the results came back normal. We did this before the

surgery. They want to do it again 6 months after the surgery. So, the

only reason for this urodynamics is a baseline. If it is worse after

the surgery, I guess we will know it was because of the surgery? So,

if it is terriby worse, I can sue?

To me, if there is a bladder problem, there is a bladder problem. Just

measuring it is not useful. However, we need to make sure that the

kidney health is not compromised - cause once you have kidney reflux

and stuff, it can affect the health of kidney, and lead to kidney

failure, dialysis etc. That is the most important thing.

My urologist said that ultrasound cannot tell you about kidney health

and reflex. I dont understand why - cant you see fluid accumulation?

Anyways, if there is any other means to ensure kidney health, I

wouldnt want to have urodynamics unless I see a problem.

Am I missing anything? Anyone?

Abby.

> > >

> > > Hi everyone, my name is Elissa. My youngest daughter, Jesmarie (4

> > months old) was born with lipomyelomeningocele, tethered cord, and

> a

> > syrinx. She just had surgery on March 9th...laminectomy, detether,

> and

> > draining of the syrinx. I welcome any and all info, personal

> > experience, whatever anyone has to offer. I am still fairly new to

> this

> > experience and am desperate for any help in understanding what we

> are

> > facing.

> > >

> > > Thanks! Elissa

> > >

> > >

> > >

[Guest guest]

Actually you can sue for Compensation, due to a

poorer outcome then they were expecting (for lack

of wording it better), which is not saying the Dr. is

responsible (Negligent), which is legit. Which is not a waste of time.

Although I am not denying that there are plenty of

friverlous Lawsuits out there.

Me

Nebraska, USA

mymocha@...

> You can't sue for a bad result ... you can only sue if the dr. was grossly

> negligent in some way and did not perform a reasonable standard of care.

>

> (Well I guess you can sue for anything, but it'd likely be a waste of time

> and money).

[Guest guest]

The Dr. and Patient. It's a joint decision.......but often

times one side wins out. Expectations can be voiced, but

that's probably not done as much as it should be.

It's very complex, not as

simplistic as we are talking here.

Me

Nebraska, USA

mymocha@...

> Poorer outcome than who was expecting? How do you demonstrate what

> your's

> or the Dr's expectations were in a court of law?

>

[Guest guest]

I wasnt saying I would like to sue anyone. The point I was trying to

make is that if the only benefit is that I can sue, I would rather

just not bother with the baseline measurements.

>

>

> The Dr. and Patient. It's a joint decision.......but often

> times one side wins out. Expectations can be voiced, but

> that's probably not done as much as it should be.

> It's very complex, not as

> simplistic as we are talking here.

>

> Me

> Nebraska, USA

> mymocha@...

>

>

> > Poorer outcome than who was expecting? How do you demonstrate what

> > your's

> > or the Dr's expectations were in a court of law?

> >

>

[Guest guest]

I knew what you meant. I just wanted to point that

out.

You want Baseline Results, that is a good thing.

Me

Nebraska, USA

mymocha@...

>I wasnt saying I would like to sue anyone. The point I was trying to

> make is that if the only benefit is that I can sue, I would rather

> just not bother with the baseline measurements.

>

[Guest guest]

Abby,

Thanks! I am still trying to figure this all out and any input helps.

Elissa- mom to Jesmarie (4 months- lipomyelomeningocele, tethered cord,

syrinx- surgery at 3 months).

subub_98 wrote:

Elissa,

My daughter just had urodynamics last week. I have to tell you - this

test really sucks. My daughter cried for the entire hour. And I didnt

realize they had to use x-rays at her pelvic level. Anyway, the good

news is that the results came back normal. We did this before the

surgery. They want to do it again 6 months after the surgery. So, the

only reason for this urodynamics is a baseline. If it is worse after

the surgery, I guess we will know it was because of the surgery? So,

if it is terriby worse, I can sue?

To me, if there is a bladder problem, there is a bladder problem. Just

measuring it is not useful. However, we need to make sure that the

kidney health is not compromised - cause once you have kidney reflux

and stuff, it can affect the health of kidney, and lead to kidney

failure, dialysis etc. That is the most important thing.

My urologist said that ultrasound cannot tell you about kidney health

and reflex. I dont understand why - cant you see fluid accumulation?

Anyways, if there is any other means to ensure kidney health, I

wouldnt want to have urodynamics unless I see a problem.

Am I missing anything? Anyone?

Abby.

> > >

> > > Hi everyone, my name is Elissa. My youngest daughter, Jesmarie (4

> > months old) was born with lipomyelomeningocele, tethered cord, and

> a

> > syrinx. She just had surgery on March 9th...laminectomy, detether,

> and

> > draining of the syrinx. I welcome any and all info, personal

> > experience, whatever anyone has to offer. I am still fairly new to

> this

> > experience and am desperate for any help in understanding what we

> are

> > facing.

> > >

> > > Thanks! Elissa

> > >

> > >

> > >

[Guest guest]

Very complex b/c if she got worse you wouldn't know if it was just a

complication of the tsc. It appears there are no promises with tsc surgery.

Surgery in theory doesn't make the urodynamics worse but sometimes it can

not improve what is already not working right, especially with the bladder.

So it's good news that the bladder is OK. Urodynamics, depending on the type

and the operator will tell you about reflux or not. Your point seems valid

as far as why get measurements...it all depends how your doctor wants to use

it and the reasons they give you for it. In a baby it's hard to tell bladder

function b/c they're not potty trained so maybe your surgeon wanted this

info to decide if cathing was necessary to protect the kidneys?

A

>

>Reply-To: tetheredspinalcord

>To: tetheredspinalcord

>Subject: Re: my baby girl - Urodynamics

>Date: Mon, 24 Apr 2006 18:41:42 -0000

>

>I wasnt saying I would like to sue anyone. The point I was trying to

>make is that if the only benefit is that I can sue, I would rather

>just not bother with the baseline measurements.

>

>

> >

> >

> > The Dr. and Patient. It's a joint decision.......but often

> > times one side wins out. Expectations can be voiced, but

> > that's probably not done as much as it should be.

> > It's very complex, not as

> > simplistic as we are talking here.

> >

> > Me

> > Nebraska, USA

> > mymocha@...

> >

> >

> > > Poorer outcome than who was expecting? How do you demonstrate what

> > > your's

> > > or the Dr's expectations were in a court of law?

> > >

> >

>

>

>

>

>

[Guest guest]

If you didn't have something wrong (a certain Symptom)

before Surgery, but did right after........then I would

have to say that it would be more likely that it was

the Surgery, rather then the Tethering.

Surgery can make Tests Results worse after Surgery,

if something went wrong..........which a worse

Test Result would show that something has gone

wrong.

Hope that made sense.

Me

Nebraska, USA

mymocha@...

> Very complex b/c if she got worse you wouldn't know if it was just a

> complication of the tsc. It appears there are no promises with tsc

> surgery.

> Surgery in theory doesn't make the urodynamics worse but sometimes it can

> not improve what is already not working right, especially with the

> bladder.