Re: Miralax side effects - a silent epidemic?

[Guest guest]

i'm sure the answer to this is somewhere on here...but does anyone know how long it takes for PEG to get out of the body? thanks!

To: miralax Sent: Tuesday, September 27, 2011 7:50 AMSubject: Re: Miralax "side" effects - a silent epidemic?

Most people are deficient in Vitamin D. Often family members are all low - that was the case with our family when we were tested. The FDA hasn't caught up with recent research on the need for D. I take 4000 iu/day just to stay within normal blood level range and have retested every 6 mos. I give my kids 1000-2000 iu/day and we aren't getting the respiratory infections we used to get in winter. This is the Vitamin D Council website...

http://www.vitamindcouncil.org/

Carol

Vitamin D is a fat soluble vitamin. (as opposed to water soluble ones like Vit. C) Which means it can be toxic to the body as it cannot be excreted properly if you ingest too much of it. I would check with your ped before giving your child any more than 100% of the RDA. Just an FYI as this can be dangerous.

To: miralax Sent: Tuesday, September 20, 2011 6:51 PMSubject: Re: Miralax "side" effects - a silent epidemic?

-

There's lots you can do with your son instead of Miralax. If you check in the "files" section on the miralax front page, you can get some ideas. But here are some that have been successful for many people here:

Nature Calm/Kid Calm

magnesium supplements

high doses Vit C

Juice Plus gummies

Shaklee

epsom salt baths

Fruit-Eze

PlumSmart juice

probiotics

And, just recently, we discovered Vit D in high doses (3x the bottle recommendations until loose stools, then back of little)

Tracie

< /div>

How old is your son now? How old was he when he started taking Miralax? Did he exhibit any of the behavioral problems before he was on Miralax? Do you know what may be the cause of the constipation? What's his diet like? Does he have any food intolerance? My DD needed lactose-free milk - it was as simple as that, but her pediatrician put her on Miralax instead.

From what I have personally experienced and what many here have said, behavioral changes for the worse are amongst the symptoms many children exhibit. If you suspect that Miralax is the culprit for your child's behavior issues, then there's really no choice but to take him off. I personally believe that Miralax has no business being ingested by children and certainly not for long-term.

We started weaning my DD off then went cold turkey (based on advice from this group) and completely changed her diet, introduced probiotics via Activia and gave her Vitamin C gummies and kept her on soup made with veggies that help with BMs (her father's recipe). It took us about 2 weeks before she would produce BMs daily w/o straining and pain. For the first two weeks, if she hadn't had a BM by the 3rd day, we administered an enema (Fleet's children's glycerine enema in the little squeeze tube). She was just over 26.5 months then and it was a traumatic event for all involved.

If you decide to take him off, which I hope you do, I wish you much fortitude - you'll need it. And you can always check in w/ this group for support.

Good luck,

Lillu

To: "miralax " <miralax >Sent: Tuesday, September 20, 2011 5:39 PMSubject: Re: Miralax "side" effects - a silent epidemic?

as i have said before...my son has been on miralax for 2 years an we were just at the pediatrician and she told me it was perfectly fine and he can be on it for many years. i am a young single mother that has gone through so much with my son these past few years. his behavior is getting worse and he is getting in trouble at school numerous times a week. they have diagnosed him with impulse control disorder that will eventally turn into ADHD (is what they told me) i do not want to put him on medication for behavior problems but i feel like i have no other choice. i made a follow up with his behavioral doctors and i didn't get an appointment until february. i have tried weaning him off of it and end up having more problems than before and i end up giving him enemas instead. i hope i figure something out soon!

To: "miralax " <miralax >Sent: Monday, September 19, 2011 9:39 AMSubject: Re: Miralax "side" effects - a silent epidemic?

Thanks so much. I will try this. I also have a visit set up with a homeopath today. Will let you know if I have any luck with her. I will mention this to her. Hopefully she will know about it. Best, LEslie

To: miralax Sent: Saturday, September 17, 2011 8:07 PMSubject: Re: Miralax "side" effects - a silent epidemic?

http://www.shaklee.com/products.php?sku=20144

This is a lifesaver..................gave to my dd at 4. Introduced to our family 30 years ago. All natural, it's so natural, you can squeeze it in your hand and it crumbles into dust. We put 1/4 of tablet in applesauce. It's Senna, but has licorice, alphalfa, etc.

The Ocean Wonders Multi-Vitamin is fantastic...........makes you feel good in one day, makes your nails hard and strong and makes your hair grow in days

http://www.shaklee.com/products.php?sku=20001

Expensive, but spectacular stuff

Jeanie

To: "miralax " <miralax >Sent: Fri, September 16, 2011 9:28:53 PMSubject: Re: Miralax "side" effects - a silent epidemic?

Hi, my daughter is three, we started Miralax at about 18 months. She is a very picky eater. I'm sure this is part of the problem with constipation. I have tried flaxseed oil, olive oil, she is now drinking prune juice but she doesn't drink enough to help her poop. I had tried Little Tummies Senna, but I was told I can't give her this on a long term basis. I've tried suppositories, these work but can't use on long term basis. She was holding her poop but she seems to have let up on that. Miralax has helped in that respect. Next I am going to try a homeopath. But I have seen a Naturopath with no luck. I am disgusted that doctors would prescribe medicine that would make children sick. I actually asked my doctor would he give it to his children. His response was that his daughter was on Miralax for six months. Common sense

tells you that it is not a good idea to keep a child on this drug long term. But to see them suffer with constipation and have no other choice is even worse.

Has anyone used something that has finally helped with their childs constipation?

To: miralax Sent: Friday, September 16, 2011 7:11 AMSubject: Re: Miralax "side" effects - a silent epidemic?

, let the group know what you've tried, they may be able to help. How old and what have you tried?

Jeanie

To: "miralax " <miralax >Sent: Thu, September 15, 2011 7:54:28 PMSubject: Re: Miralax "side" effects - a silent epidemic?

I really don't know what to do. I'm trying to wean my daughter off of the Miralax. She has been on it for 18 months. I feel like a vocal victim. The docs all prescribe the same thing. She has to poop. Miralax makes her poop but at what cost. I don't want to do this but I still don't know what options I have. I have tried many.

Desparate in Massachusetts

To: "< a href="mailto:miralax " rel="nofollow" target="_blank" ymailto="mailto:miralax ">miralax " <miralax >Sent: Thursday, September 15, 2011 2:38 PMSubject: Miralax "side" effects - a silent epidemic?

Dear All:

During a general conversation with my DD's preschool teacher, I mentioned that my DD had been on Miralax and that I link many of her current issues, amongst them her short stature and weak muscles (it's still a struggle for her at almost 4 y/o to climb up onto my bed), to her being on Miralax for 8.5 months between 18 to 25 months of age. Well, the preschool teacher told me that she'd had more than a few students whose parents had them on Miralax who, when they tried to wean them, found that they couldn't and had to go back to using the drug!! She said that these kids were on the drug FOR YEARS!!

I believe that those of us who are on this board are just the tip of the iceberg and that there is a silent epidemic of victims out there who haven't yet linked whatever issues their kids may be having, including the inability to have a BM w/o the use of Miralax, for years on end, to their use of Miralax.

We cannot wait for other people like us to find us. We have to find them!!

I believe it is our duty to do whatever necessary to bring this to the general public's attention and all of the ideas mentioned below have merit, so why not approach them all!? I love the idea of 60 minutes and 20/20 because investigative journalists would do a thorough job and these shows also have a really wide viewership. I have a friend who is a regular contributor to CNN.com. She's also a former attorney. I'll approach her and see what she can do to help us. Another good person to contact is Dr. Sanjay Gupta, who is the "Dr. Oz" for CNN.

I have to say, after my conversation with my DD's preschool teacher, I felt a renewed sense of urgency and purpose. Perhaps we can form an online committee and approach this in a more organized and targeted manner.

Thank you,

Lillu Tesfa

To: "miralax " <miralax >Sent: Thursday, September 15, 2011 12:26 PMSubject: 60 minutes / Dr. Doris Rapp

Jeanie, you know I will share my heartbreaking story.Dr. Phil is more about interpersonal relationships though.I have many friends who are saying investigative reporting is what we need. I am leaning towards 60 minutes or Stossel.Has anyone heard of Dr. Doris Rapp?We need her to confirm all of our personal experiences.I think she was on Phil Donahue in 1989, one of his highest rated shows ever!www.dorisrappmd.comTe

[Guest guest]

The medical professionals say it's somewhere around 72 hours? But I beg to differ...................we're going on a decade and we still see the urination problems with calcium oxalate crystals and it crossed the blood barrier of her brain causing neuro symptoms which in my opinion is permanent damage. They are better but that's a statement in itself, if you look at the state she came from!!!!!!!!!!!!!!!The clucking, hand flapping, melting down over insignificant situations, fear, paranoia, anxiety, nephrologist appointments, endocrinologist appointments, overload of cortizol in the body, overweight, urinary stinging from the oxalate crystals, focus, obsessive touching of things, sleeplessness. My doc is wondering if the bi-products of plastic in this chemical are mimicing

hormones. To: "miralax " <miralax >Sent: Sun, October 9, 2011 11:29:45 AMSubject: Re: Miralax "side" effects - a silent epidemic?

i'm sure the answer to this is somewhere on here...but does anyone know how long it takes for PEG to get out of the body? thanks!

To: miralax Sent: Tuesday, September 27, 2011 7:50 AMSubject: Re: Miralax "side" effects - a silent epidemic?

Most people are deficient in Vitamin D. Often family members are all low - that was the case with our family when we were tested. The FDA hasn't caught up with recent research on the need for D. I take 4000 iu/day just to stay within normal blood level range and have retested every 6 mos. I give my kids 1000-2000 iu/day and we aren't getting the respiratory infections we used to get in winter. This is the Vitamin D Council website...

http://www.vitamindcouncil.org/

Carol

Vitamin D is a fat soluble vitamin. (as opposed to water soluble ones like Vit. C) Which means it can be toxic to the body as it cannot be excreted properly if you ingest too much of it. I would check with your ped before giving your child any more than 100% of the RDA. Just an FYI as this can be dangerous.

To: miralax Sent: Tuesday, September 20, 2011 6:51 PMSubject: Re: Miralax "side" effects - a silent epidemic?

-

There's lots you can do with your son instead of Miralax. If you check in the "files" section on the miralax front page, you can get some ideas. But here are some that have been successful for many people here:

Nature Calm/Kid Calm

magnesium supplements

high doses Vit C

Juice Plus gummies

Shaklee

epsom salt baths

Fruit-Eze

PlumSmart juice

probiotics

And, just recently, we discovered Vit D in high doses (3x the bottle recommendations until loose stools, then back of little)

Tracie

< /div>

How old is your son now? How old was he when he started taking Miralax? Did he exhibit any of the behavioral problems before he was on Miralax? Do you know what may be the cause of the constipation? What's his diet like? Does he have any food intolerance? My DD needed lactose-free milk - it was as simple as that, but her pediatrician put her on Miralax instead.

From what I have personally experienced and what many here have said, behavioral changes for the worse are amongst the symptoms many children exhibit. If you suspect that Miralax is the culprit for your child's behavior issues, then there's really no choice but to take him off. I personally believe that Miralax has no business being ingested by children and certainly not for long-term.

We started weaning my DD off then went cold turkey (based on advice from this group) and completely changed her diet, introduced probiotics via Activia and gave her Vitamin C gummies and kept her on soup made with veggies that help with BMs (her father's recipe). It took us about 2 weeks before she would produce BMs daily w/o straining and pain. For the first two weeks, if she hadn't had a BM by the 3rd day, we administered an enema (Fleet's children's glycerine enema in the little squeeze tube). She was just over 26.5 months then and it was a traumatic event for all involved.

If you decide to take him off, which I hope you do, I wish you much fortitude - you'll need it. And you can always check in w/ this group for support.

Good luck,

Lillu

To: "miralax " <miralax >Sent: Tuesday, September 20, 2011 5:39 PMSubject: Re: Miralax "side" effects - a silent epidemic?

as i have said before...my son has been on miralax for 2 years an we were just at the pediatrician and she told me it was perfectly fine and he can be on it for many years. i am a young single mother that has gone through so much with my son these past few years. his behavior is getting worse and he is getting in trouble at school numerous times a week. they have diagnosed him with impulse control disorder that will eventally turn into ADHD (is what they told me) i do not want to put him on medication for behavior problems but i feel like i have no other choice. i made a follow up with his behavioral doctors and i didn't get an appointment until february. i have tried weaning him off of it and end up having more problems than before and i end up giving him enemas instead. i hope i figure something out soon!

To: "miralax " <miralax >Sent: Monday, September 19, 2011 9:39 AMSubject: Re: Miralax "side" effects - a silent epidemic?

Thanks so much. I will try this. I also have a visit set up with a homeopath today. Will let you know if I have any luck with her. I will mention this to her. Hopefully she will know about it. Best, LEslie

To: miralax Sent: Saturday, September 17, 2011 8:07 PMSubject: Re: Miralax "side" effects - a silent epidemic?

http://www.shaklee.com/products.php?sku=20144

This is a lifesaver..................gave to my dd at 4. Introduced to our family 30 years ago. All natural, it's so natural, you can squeeze it in your hand and it crumbles into dust. We put 1/4 of tablet in applesauce. It's Senna, but has licorice, alphalfa, etc.

The Ocean Wonders Multi-Vitamin is fantastic...........makes you feel good in one day, makes your nails hard and strong and makes your hair grow in days

http://www.shaklee.com/products.php?sku=20001

Expensive, but spectacular stuff

Jeanie

To: "miralax " <miralax >Sent: Fri, September 16, 2011 9:28:53 PMSubject: Re: Miralax "side" effects - a silent epidemic?

Hi, my daughter is three, we started Miralax at about 18 months. She is a very picky eater. I'm sure this is part of the problem with constipation. I have tried flaxseed oil, olive oil, she is now drinking prune juice but she doesn't drink enough to help her poop. I had tried Little Tummies Senna, but I was told I can't give her this on a long term basis. I've tried suppositories, these work but can't use on long term basis. She was holding her poop but she seems to have let up on that. Miralax has helped in that respect. Next I am going to try a homeopath. But I have seen a Naturopath with no luck. I am disgusted that doctors would prescribe medicine that would make children sick. I actually asked my doctor would he give it to his children. His response was that his daughter was on Miralax for six months. Common sense

tells you that it is not a good idea to keep a child on this drug long term. But to see them suffer with constipation and have no other choice is even worse.

Has anyone used something that has finally helped with their childs constipation?

To: miralax Sent: Friday, September 16, 2011 7:11 AMSubject: Re: Miralax "side" effects - a silent epidemic?

, let the group know what you've tried, they may be able to help. How old and what have you tried?

Jeanie

To: "miralax " <miralax >Sent: Thu, September 15, 2011 7:54:28 PMSubject: Re: Miralax "side" effects - a silent epidemic?

I really don't know what to do. I'm trying to wean my daughter off of the Miralax. She has been on it for 18 months. I feel like a vocal victim. The docs all prescribe the same thing. She has to poop. Miralax makes her poop but at what cost. I don't want to do this but I still don't know what options I have. I have tried many.

Desparate in Massachusetts

To: "< a href="mailto:miralax " rel="nofollow" target="_blank" ymailto="mailto:miralax ">miralax " <miralax >Sent: Thursday, September 15, 2011 2:38 PMSubject: Miralax "side" effects - a silent epidemic?

Dear All:

During a general conversation with my DD's preschool teacher, I mentioned that my DD had been on Miralax and that I link many of her current issues, amongst them her short stature and weak muscles (it's still a struggle for her at almost 4 y/o to climb up onto my bed), to her being on Miralax for 8.5 months between 18 to 25 months of age. Well, the preschool teacher told me that she'd had more than a few students whose parents had them on Miralax who, when they tried to wean them, found that they couldn't and had to go back to using the drug!! She said that these kids were on the drug FOR YEARS!!

I believe that those of us who are on this board are just the tip of the iceberg and that there is a silent epidemic of victims out there who haven't yet linked whatever issues their kids may be having, including the inability to have a BM w/o the use of Miralax, for years on end, to their use of Miralax.

We cannot wait for other people like us to find us. We have to find them!!

I believe it is our duty to do whatever necessary to bring this to the general public's attention and all of the ideas mentioned below have merit, so why not approach them all!? I love the idea of 60 minutes and 20/20 because investigative journalists would do a thorough job and these shows also have a really wide viewership. I have a friend who is a regular contributor to CNN.com. She's also a former attorney. I'll approach her and see what she can do to help us. Another good person to contact is Dr. Sanjay Gupta, who is the "Dr. Oz" for CNN.

I have to say, after my conversation with my DD's preschool teacher, I felt a renewed sense of urgency and purpose. Perhaps we can form an online committee and approach this in a more organized and targeted manner.

Thank you,

Lillu Tesfa

To: "miralax " <miralax >Sent: Thursday, September 15, 2011 12:26 PMSubject: 60 minutes / Dr. Doris

Rapp

Jeanie, you know I will share my heartbreaking story.Dr. Phil is more about interpersonal relationships though.I have many friends who are saying investigative reporting is what we need. I am leaning towards 60 minutes or Stossel.Has anyone heard of Dr. Doris Rapp?We need her to confirm all of our personal experiences.I think she was on Phil Donahue in 1989, one of his highest rated shows ever!www.dorisrappmd.comTe