Re: pain, anger and ready to just shut out the world

[Guest guest]

Hi Cheryle -

This is Cheryl, too, with a different spelling, from Arizona. I also

have severe neuropathy in my feet and legs as well as back pain and

spasms, from a spinal cord injury call adhesive arachnoiditis, as

well as herniated disks, epidural fibrosis from surgery, and

congenital stenosis. So I know what you're going through!

I'm so sorry for the pain that brought you here, but you've just

found a boatload of friends who can empathize with you!! This group

is great for providing support and encouragement when no one else in

our lives understands our pain.

BTW, I've never met a Cheryle with the " e " on the end before!

Usually people who mis-spell my name put an " e " on the end, but I

didn't know that that was an actual way to spell our name before.

I'm glad you're here, and hope I can help you deal with your pain

when you need help. I know everyone else on the list will do the same.

Cheryl in AZ

[Guest guest]

Hi Cheryle -

This is Cheryl, too, with a different spelling, from Arizona. I also

have severe neuropathy in my feet and legs as well as back pain and

spasms, from a spinal cord injury call adhesive arachnoiditis, as

well as herniated disks, epidural fibrosis from surgery, and

congenital stenosis. So I know what you're going through!

I'm so sorry for the pain that brought you here, but you've just

found a boatload of friends who can empathize with you!! This group

is great for providing support and encouragement when no one else in

our lives understands our pain.

BTW, I've never met a Cheryle with the " e " on the end before!

Usually people who mis-spell my name put an " e " on the end, but I

didn't know that that was an actual way to spell our name before.

I'm glad you're here, and hope I can help you deal with your pain

when you need help. I know everyone else on the list will do the same.

Cheryl in AZ

[Guest guest]

Hi Cheryle -

This is Cheryl, too, with a different spelling, from Arizona. I also

have severe neuropathy in my feet and legs as well as back pain and

spasms, from a spinal cord injury call adhesive arachnoiditis, as

well as herniated disks, epidural fibrosis from surgery, and

congenital stenosis. So I know what you're going through!

I'm so sorry for the pain that brought you here, but you've just

found a boatload of friends who can empathize with you!! This group

is great for providing support and encouragement when no one else in

our lives understands our pain.

BTW, I've never met a Cheryle with the " e " on the end before!

Usually people who mis-spell my name put an " e " on the end, but I

didn't know that that was an actual way to spell our name before.

I'm glad you're here, and hope I can help you deal with your pain

when you need help. I know everyone else on the list will do the same.

Cheryl in AZ

[Guest guest]

Cheryle in NH

I feel so terrible for you, yet I understand completely. I've had three spinal

surgeries, am fused from top of shoulder blades to pelvis, and have various

nerve pains. My legs, my shoulder, my neck, my feet. It varies and is worse with

barometric changes.

My daughter is great, but my husband well, all his pains are worse than I can

ever imagine. Why, his ingrown hair on his knuckle was the end of the world!!!!!

So, anyway, no support there.

That's why I love this group. People know. And care. And don't try to compete

for the worst pain. Some offer suggestions, some offer support, some lurk, some

cry for help. We're here for each other. It's pretty amazing what support does

when dealing with pain.

strgzrs13 wrote:

My name is cheryle in N.H. I suffer from nerve damage and I'm just

miserable.

[Guest guest]

Cheryle in NH

I feel so terrible for you, yet I understand completely. I've had three spinal

surgeries, am fused from top of shoulder blades to pelvis, and have various

nerve pains. My legs, my shoulder, my neck, my feet. It varies and is worse with

barometric changes.

My daughter is great, but my husband well, all his pains are worse than I can

ever imagine. Why, his ingrown hair on his knuckle was the end of the world!!!!!

So, anyway, no support there.

That's why I love this group. People know. And care. And don't try to compete

for the worst pain. Some offer suggestions, some offer support, some lurk, some

cry for help. We're here for each other. It's pretty amazing what support does

when dealing with pain.

strgzrs13 wrote:

My name is cheryle in N.H. I suffer from nerve damage and I'm just

miserable.

[Guest guest]

Cheryle,

Oh honey! I read your post and can so relate. I've been dealing with

neuropathy in my neck and shoulders for around 2 years now and recently it has

gone to my feet and legs(kind of the opposite of what you experienced). Its is

so scary and I feel very overwhelmed.

I've spent many a day/night at home alone crying by myself. In fact, a lot of

times I shut out friends that I know love and care about me but I'm too

exhausted to even open up to them most of the time, knowing they can't really

get it.

I'll make plans and dread them and then when its all over I'm like why was I

dreading that? That is what I need MORE of (company, social ties) not less of.

But just psyching myself to actually DO anything is half the battle sometimes.

Its really hard and something I struggle with daily.

I used to feel like my husband didn't listen to me a lot of the time or even

care. But I think its more that he is concerned and knows he cannot help me

physically and it frustrates him. He does the best he can. I hope that you voice

your concerns to your husband.

I hope you find some comfort in this group. There are many people going

through some of the same things you are. Please feel free to email me anytime

(on group or off).

Take care,

Caitlin

..

__________________________________________________

[Guest guest]

Cheryle,

Oh honey! I read your post and can so relate. I've been dealing with

neuropathy in my neck and shoulders for around 2 years now and recently it has

gone to my feet and legs(kind of the opposite of what you experienced). Its is

so scary and I feel very overwhelmed.

I've spent many a day/night at home alone crying by myself. In fact, a lot of

times I shut out friends that I know love and care about me but I'm too

exhausted to even open up to them most of the time, knowing they can't really

get it.

I'll make plans and dread them and then when its all over I'm like why was I

dreading that? That is what I need MORE of (company, social ties) not less of.

But just psyching myself to actually DO anything is half the battle sometimes.

Its really hard and something I struggle with daily.

I used to feel like my husband didn't listen to me a lot of the time or even

care. But I think its more that he is concerned and knows he cannot help me

physically and it frustrates him. He does the best he can. I hope that you voice

your concerns to your husband.

I hope you find some comfort in this group. There are many people going

through some of the same things you are. Please feel free to email me anytime

(on group or off).

Take care,

Caitlin

..

__________________________________________________

[Guest guest]

" strgzrs13 " wrote:

> My name is cheryle in N.H. I suffer from nerve damage and I'm

just miserable.

> Cheryle in N.H.

Hi Cheryle,

My name is also Cheryl I am from PA i have severe nerve damage too from haveing

3 surgerys i know what your talking about. It never goes away, no one

understands.

Since I am on oxycodone & neurtion it should be enough to knock out a horse but

i am still in pain i wonder if anything really works on nerve pain?

I do agree with you it seems like no one cares, but i am finding that here even

if no one can help, these friends do listen & they care.

I also cant exercise at all but at least i do try to take short walks, sometimes

i dont think i will make it back but i do. I am here most of the time, i dont go

out unless my husband drags me out.

So please feel free to write, anytime day or night. I will talk to you about

anything, I need a friend too. I guess since there are so many Cheryls in this

group i will sign Cheryl Lynn.

Have a good day if you can hang in there there will be some good days it just

never feels like it.

Your friend

Cheryl Lynn in PA

[Guest guest]

I know the feeling. The world won't go away and we

even get dragged into it. I left New England for a dry

climate. I miss my farm and country life, but I used to

feel a lot better here in the desert southwest.

Now I don't think location would make much difference as the

disease has progressed. I want to relocate to Arizona

or Death Valley in California, Nevada where I am is a

BAD place to be sick and low income.

Good Luck,

RSD-al

[Guest guest]

In a unusual situation, my ex who left when I was my sickest, down to

90 lbs and fainting now lives with their new lover all of two houses

from me. Ir really doesn't help when I see their car all the time and

know even in their free time, and having told me they still love me,

never makes anytime to try to work out now tht mu mind isn't mush.

Anger? Yep with my daily reminder.

Liz

[Guest guest]

Hi Cheryle,

My name is Liz I have been in this group for a short time. I have had

back surgery April 22, 2002. It was a failed back surgery. I have

chronic back pain. I spend alot of time in bed. I use a walker just to

get around. My back surgery was L5, S1. I had fusion and I have cages

in my back.I make myself go for a walk every day, no matter how much

pain I have. If I don't my legs will stop working. I don't have a

choice. I swim twice a week. I don't feel pain in the water. It helps

build my legs up. I take hydrocodone for pain. I hope to hear from

you. It would be nice to be able to email you. My email address is

Lizzy_1954@....

a Big hug

from Liz